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- เผยแพร่เมื่อ 6 ก.ย. 2024
- Sarah is a 33 year old woman who noticed an unusual change in her eating habits - her cravings for salty snacks had skyrocketed! Little did she know, that this was actually the first sign of a serious medical condition that would change her life forever.
This video was adapted from a medical case report published in the Canadian Medical Association Journal. Click to read the original case!
www.cmaj.ca/co...
This video is made for educational purposes only and should not be viewed as medical advice. Speak to your doctor if you have any concerns about your health.
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~ Siobhan (Violin MD) ~
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📸 Image Credits:
- Case courtesy of Mohammad Osama Hussein Yonso, radiopaedia.or...
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Yeah, this was the first diagnosis they checked for in me when I had a sudden overwhelming salt issue, but in my case it ended up weirding everyone out and taking a year of research on my part as a biologist to uncover I had a B12 deficiency that had symptoms masked by other conditions I had. I had been taking a supplement but my body had stopped absorbing it and I had to switch to the under the tongue version. Of course B12 was the second thing that we tested for but we didn't know that the range listed officially in the United States is inaccurate for some people and puts them as normal when they're at the bottom of the normal range when in actuality for those people it's too low. Talk about an edge case. Thankfully I eventually came across a textbook entry and a case study out of India and switched over to a more direct forum of B12 and all of the symptoms disappeared over the course of the next 6 months. I would love to know how B12 interacts with this part of the body but as far as I can tell, not a lot of research has been done on it.
I love listening to your investigation reports!! I have a situation that maybe you've already covered, or could. I'll try to be brief. I could email if you'd like. I'm a
72yr fe, but get around like I'm 90 with muscle cramping/pain/ weakness started 15 yrs ago. Thinking loss of hormones/aging/sarcopenia?? Lost my gallbladder 9yrs ago w/ same symptoms still progressing from RR issues. Thinking loss of electrolytes/bone?? Many times feel more cramping soon after using RR, whether blatter or bowels. Started walking with hiking poles 2yrs ago. Can't get down to or off of the floor or barely climb stairs. PCP keeps saying my blood is Normal. "I" decided to see a neurologist and waiting for follow-up on EMG/NCS. Neuromuscular?? New heart issues started 2.1/2 yrs ago w/ LBBB and EF was 25, finally up to 45. Reaction to 3 covid injections?? I feel like I'll be in a wheelchair soon if I don't get help.
Any ideas??
Hi Violin MD would this be similar to the UK mp who had sepsis 😮. If you type UK mp sepsis his story is shown.
I am only 1/4 way thru video and know the diagnosis is underlying Addison's disease because I have same symptoms except no pneumonia at the moment. My new nurse practioner just ordered the appropriate diagnostics after literally 40 yrs of drs gaslighting me. That includes every endocrinologist I have seen over the years except the very first one who diagnosed my chronic fatigue and hypothyroidism when I was in my late 20's. I am now 57.
You mentioned the medical alert bracelet, my wife wears one of these and it is amazing how many medical people do not recognize it. They've even told her "Oh, I like your bracelet" without seeming to realize it is a medical alert bracelet. So medical professionals - please be more aware, it isn't just a nice bracelet!
Omg that’s scary 😢
Wow very good point! You want it to be something you will enjoy wearing.., but you also want medical professionals to take note!
Or anklet or necklace. Gosh where I am from, the EMTs are taught to check for any bracelet anklet or necklace!
@@ViolinMD Maybe they'd be searching more for it if the person was unconscious? This has happened to her several times with medical professionals, and you'd think if they'd realized it was an Alert bracelet, they'd have wanted to read it, even if she was awake. Or would have at least recognized it was an Alert bracelet. If she was unconscious and they didn't know who she was, it would be extremely critical they were aware of the situation.
DEI hires.
If I were in the ER I’d want someone like Violin MD to be my doctor. She’s a first rate medical detective and has the tenacity and perseverance to reach the finish line for her patients.
She is refreshingly systematic for a doctor.
And she reads a good script. I rather a doctor that spends their spare time studying actual medicine, not getting good at making TH-cam videos.
@@leebee3845Why are you here watching her valuable content then?
Let's face it, this video has been cut edited and scripted by a team of pros to get you to click. She can't keep this enthusiasm up for long 😂d@@sstracener
@@leebee3845it wasn't exactly a complicated diagnosis (though having pneumonia at the same time is terrible), and she's only reading a case study.. so yeah I dunno why people are acting like this is house hahah
I'm from Northampton, England. When I was around 15 I began to have the symptoms shown in this video, It got so bad that I couldn't stand and crawls to the toilet where I would vomit, because I wasn't eating I would bring up yellow bile, my GP told my parents I was attention seeking and prescribed valium. Over the days I was at deaths door on my bed when a consultant came to see me after my parents pestering the GP. As soon as he saw me he realised I was close to death and called an ambulance. Luckily within a week I was diagnosed with Addison's Disease and at the time was given cortisone which later became hydrocortisone and fludrocortisone. Within two weeks I was back on my feet and walking around the hospital grounds, I convalesced for a short time and soon began to feel normal again. Apart from a several serious episodes I'm living a relatively normal life within certain limits. This was in 1970, today I'm 69 and can do most things for my age, thankfully someone took my condition seriously than my GP or I would have died long ago.
How one could think puking yellow bile is an 'attention seeking' tactic I'll never know. That GP should have their license revoked and brought up on charges of child cruelty. Yeah, I realize it was over 50 years ago.
My mother’s sister was 16 (this was in the 1920’s) and in terrible abdominal pain. The doctor claimed she was “attention seeking.” My grandparents hitched up the buggy and drove her to the nearest hospital. By the time she was hospitalized, her appendix ruptured and she died.
Me too! Same experience. I was 26 and I'm 33 now with no further crises or issues.
Yes the medical mysteries are really fun to watch. As a dental hygienist I think it is good to know about the brown spots under the tongue. That is something that hygienists can screen for. Keep the videos coming, as you can see they are very popular!
Yes!! Definitely something you might pick up on!!
Dental hygienists don't get enough credit. So many things start showing up in the mouth and they are often the ones who see it first.
@@angelachouinard4581 ~ yes, my hygientist was the one who told me I had Geographic tongue, I suspected it, but she confirmed. 😛👅
You are right! A wise dental hygienist was the one who suggested I be treated for sleep apnea based on the swelling in my throat. Guess what? Over a hundred sleep events in an hour.
Dental assistants often catch illness and incipient disease from the condition of the mouth. Good optometrists often catch early warning signs from the conditions of the eye.
I almost died of an adisonian crisis.. My brother saved my life and got me to the hospital. Doctors said had he brought me in half an hour later I wouldn't have made it to the hospital alive. This is such a scary event that more people need to know of, thanks for bringing awareness Siobhan!
It took 22 years for me to get a medical diagnosis, and it wasn’t a doctor that figured it out, it was me. 22 years. Not one single doctor took time to listen. None of them believed me either. The only time a doctor has been respectful was when my husband came with me. Women are not treated with respect from the medical system.
I’m so sorry. I understand. (((Hugs)))
Twenty two years, geez. If you had textbook symptoms should haven diagnosed in 2 office visits. So sorry.
Very true
It's not so much about being female as it is the medical system. Doctors are not trained to heal anyone. They get a list of symptoms and they prescribe medication. I changed my life and eliminated several health conditions after changing to a naturopathic doctor. You can find them through the schools that teach naturopathy. Some doctors are coming around and doing integrated medicine like Dr. Mark Hyman.
I was born with Cebral Palsy which makes me sound like I’m drunk, I have swelling in my legs and no “can find the problem”. I have had this problem for approximately 40 years.
Side note, it is SO fascinating to see how the body compensates and adapts to try and regain homeostasis; the salt cravings and unquenchable thirst to try and compensate for the sodium deficiency and the dehydration is so wild and cool to me!!
The body itself caused this condition is even more wild 😳
Have you ever heard the stereotype/joke that transgender women love pickles? People started joking about this because one common and cheap testosterone blocker is also an aldosterone blocker, meaning it depletes sodium and causes salt cravings by essentially this same mechanism.
Right. I realized it was dehydration from the start of the video. I didn't think of hyponatremia though. Then, I realized it was Addison's from the tongue picture. It was cool to learn about her treatment, and to remember the autoimmune cause of Addison's disease (i.e. a way to diagnose Addison easily)
Yes, the body is amazing at compensating. Unfortunately, the part where you pee such massive amounts of urine every hour despite taking in tons of salt isn't so cool for those of us going thru it living in the bathroom or on the couch due to very low bp.
Fellow Hamiltonian here!…. I Wanted to be a doctor growing up, but we could not financially afford it. Now in my 60s I still love medicine and love your videos. I learn so much from them.. Educational and you deliver with such enthusiasm! Please keep doing what you do ❤
Thank you very much!
I really enjoy this series. As an ICU nurse, it helps connect the textbook knowledge I have with real-world experiences and allows me to be more prepared for clinical presentations of uncommon conditions so I can serve my patients better.
Thank you!
Thank you for using your off time to be a better nurse (although the series is fascinating and enjoyable). Nurses work hard!
It's so nice to see a truly enthusiastic Doctor who realizes there's always something to learn.
These videos are so interesting. My husband is in his first year of medical school and I always surprise him with how much I know because of these videos!
Years ago, I started craving anything that tasted like lemon… lemonade, lemon yogurt, lemon chicken… even the gum I chewed had to be lemon flavoured! It was INTENSE! It turned out that I was severely anemic, and needed iron infusions. Once my iron got to normal levels, the cravings stopped.
Oh my god, this explains it! I suspected I'm anemic but I never knew my obsession with lemon had anything to do with it. Thank you!
That is called pica
Same thing happened to me except I was craving ice.
@@michelegirard Was there any vitamin B12 deficiency? Linked with ice cravings, also vitamin C helps iron absorption. Lemon is rich in vit. C. Interesting cravings.
@@lynseck8739 I don't know about B12, I do eat meat, but my doctor prescribed iron and vitamin C. The anemia was caused by extremely heavy periods. I underwent endometrial ablation and that fixed the issue.
Oh please do a video on the different adrenal diseases... I have just been diagnosed with a tumor on the left gland after a crisis event and there is so much to learn and understand...
Mine labs were just the opposite, my salt was high and potassium low... blood pressure shot up during crisis but is normally low, in the low teens S 60's D.
Cardiac response, SVT diagnosis... cardiologist was offended when I refused his beta blocker but the "event" is over and I'm not going to take something that is going to make my BP lower than it already is on a "normal" day.
PLEASE offer more input... I haven't had the surgery yet, but I know its coming...
God bless you in all you do for the health and wellbeing of others...
So cool! I just finished my first year of medical school. I had to pause the video to come up with some of my own differentials. As soon as you mentioned bronze skin + salt wasting I automatically knew what was going on. So amazing that I can follow along with this information
Very cool after your first year!!!
JFK had Addison’s disease. He had the bronzed skin. I actually saw him in person once and his coloring didn’t really look like a tan-the color was off
I directly thought dehydration at first and then I thought about addison's with the hyperpigmented skin.
But, I surely forgot about the hyponatremia and salt cravings (didn't link those together).
I will be starting 1st year of medical school this Monday.
Just absolutely love your approach to explaining things. I was an ICU nurse for 30 years and a pain therapy nurse for 10 and I learned so much from you.
My Dad's dog has Addisons. He almost died. Now, he gets a shot every 100 days. The dog had always drank a LOT of water, but at 4 years old, his body couldn't manage anymore, and he needed emergency intervention. Thankfully, his vet did an amazing job diagnosing him.
Smart vert …who is it?and where
I've read that spayed and neutered dogs are more likely to have adrenal problems because the adrenal glands have to do the work of what the testes or ovaries would have, plus their regular jobs. The adrenal glands eventually give out, usually around age 6, and it causes all kinds of problems. If a 1 year old dog was equivalent to a 7 year old human child, think about what it would be like to do the equivalent to that human child, and one can see what devastating effects it has on dogs. Cancer rates are also higher in spayed and neutered dogs. It's much better to give females ovary-sparing hysterectomies and males, vasectomies. They NEED those hormones for proper bone and muscle growth and many other bodily functions. Many people think waiting until they are 2 or 3 years old is better, but studies show that that is not the case.
I would prefer to go to a vet than most doctors. I really mean that; they still know how to critically think and diagnosis.
My first trip as a volunteer ambulance crew chief was a simple leg injury, straight forward enough, however on the return trip we got toned out for a patient with shortness of breath. Past medical history revealed hospitalization a week ago for pericarditis 😮 sh*t, code 3 to the hospital. Fortunately only ten minutes away and also he had Addison' disease, WTF they don't don't teach this in basic EMT course. They stabilized him and we picked up an RN/EMT on the return through town on our way to the regional medical center an hour away. Made for a memorable first trip. Thanks for the reminder. Love ❤ your channel.
I learn more about the body from your videos than from several other TH-cam doctors. Love the way you show what things are and how and what it controls. Thanks.
I enjoy your excitement about informing people about these things
I knew it was Addison’s from the beginning, from once you started craving salty foods.
Yeah adrenals love salt, though it could look like diabetes/kidneys/liver at first
Salty cravings can also be a sign of magnesium deficiency.
POTS too 🤔??
After the medical system creates the diseases then they slap a label on you. Stay away from the Rockefeller poison medical system. Childhood 💉💉 then 💊💊 then ☠️. All by design.
I’m a vet and I was yelling “it’s addisons” before you got to the labwork. Interesting the similarities between dogs and humans, as well as the differences. Dogs do great with a physiologic dose of pred, although we will increase with boarding or major stressors. But our main treatment is monthly injections of desoxycorticosteron pivalate (docp) and they do amazing with it. The most common symptoms in dogs are episodic diarrhea and episodes of weakness or lethargy, especially in times of stress.
Great video, my wife is dealing with GVHD after a recent BMT and the Drs seem to be stumped. I’d love to have someone like you on her team to help diagnose her symptoms.
You have an awesome channel ❤❤❤
I have Primary Addison's Disease. I almost died 20 yrs. ago because doctors kept misdiagnosing me, they insisted I was anorexic! My mother finally found out what I had and brought me into an Endo's office, I couldn't even hold my head up, and that dr. looked at me and said "She has Addison's Disease!) Mom and that doctor saved my life, I was within a few weeks of death! My Addison's has never been stable and the Endo. has never told me how to take care of myself, like when I need to updose! I have crisis symptoms almost all the time! I wish I could find a better doctor. Any other Endo. is so far away! I've developed other auto-immune diseases after this too - like Pernicious Anemia....Hashimoto's actually came first.
You need to read a lot and learn by yourself in order to recognize every symptom. I hope you can reach all the info you need. Blessings
@@CaToRi- Thank you!
There are some drs who will do appts online , then order lab work through a clinic near you . Maybe explore outside the endo only , like some osteopathic doctors will explore hormone supporting prescriptions and other supplements. Don’t give up , sounds like you need a different specialist , they’re out there !
@KimmersF101 An idea for your own research and work on it, From Fatigued to Fantastic is a book for fibro, but I've been told by other it worked on their other autoimmune conditions as well.
And also, I have had hypothyroid symptoms for years. It's of all types have said yeup, those are hypothyroid symptoms, but your TSH is fine. My current doctor did all the thyroid tests, my TSH was borderline high by this point, but everything else fine. I do also have hormone issues from PCOS type symptoms. He finally said I think the thyroid symptoms are actually because there is a feedback loop with insulin and since you are insulin resistant it's staying high and throwing your thyroid off. My A1C doesn't show it, but HOMA IR does. We started working on insulin resistance, and my thyroid symptoms are reducing, my eyebrows are regrowing, and omg is insulin resistance a hard fight.
Fascinating! I've just been told my hormones are acting up and I have several symptoms you mentioned - time to go see my GP I think! And congrats on 1 million subscribers - one of the best educational channels on youtube - real life Dr House without the drama haha x
My daughter has Addison's which was a nightmare to diagnose and it took almost 3 yrs to figure out as every test came back normal. She 16 when she had to stop school and it wasn't until she went into septic shock, kidneys failure and nearly died. She was in was in icu with blood work every 4 hours that they found that her cortisol levels weren't even registering on the blood work. Dr had never seen someone who didn't register at all. The tongue thing is super interesting to me though because my daughter is a typical natural redhead with extremely pale skin that never showed any changes in colour which was another reason to keep trying for an answer especially when her cortisol levels came back normal regardless how many times they tested her. I wonder if they checked under her tongue? They only caught it because of the constant blood testing in icu. Thank for this video, love your passion and your channel ❤ .
I am currently taking endocrinology in med school. got my exam tomorow. immediately guessed she was having an addisons crisis.
My sister in law has Addison's Disease! Similar symptoms before diagnosis but also has a super low blood sugar when she went to hospital. Interesting how the same disease presents differently in different people
It doesn't present differently. Most folks with Addison's (me) will have low blood sugar during times of addisonian crisis or moments of low cortisol because it literally cannot be raised without adequate cortisol.
In Addison crisis, your body has low cortisol. Low cortisol means less glucose is expected to be in one's blood stream. Cortisol is responsible for either enhancing or lowering the effect of insulin on cells. When cortisol is low, insulin will do greater work in lowering glucose levels by increasing glucose use by cells and suppressing glucose formation by the liver. Inversely, high cortisol will make your insulin less operative meaning glucose will not be entering cells i.e. less used by cells as much. High cortisol also increases production of glucose by the liver to compensate for decreased glucose use by cells (but instead of bettering your situation, your body will instead increase the level of glucose in the blood causing hyperglycemia) that results in the cushings disease whereby symptoms includes new diabetes.
Your body might not be good in managing your sugar intake, but it is really good at keeping salt levels in check. It's a very old, mature system, and you should listen to it. Salt cravings are always a serious warning sign. Also, the "low salt" diet results are not really conclusive, and it's much easier to do harm with too few salt than with too much.
I was diagnosed with Addison disease in 2018. Took internal medicine to find out what was happening to me. For four yesrs I was told it was anxiety or ibs
Really enjoyed learning about addison's disease from this video - would love to see more from this medical mystery solved series, thank you for your awesome content!
Thank you!
I love watching these medical mystery videos... so addicting! 🙌🏼
Chubbyemu also has some great videos on his channel.
@@charleslindsey6789 Yeah, I have watched a tonne of his videos too. 👊🏼
Now I know what's happening to me~!!! Thank You more than you know~!
Please continue doing these. I enjoy them more than Sherlock Holmes mysteries. Also, I think they are of medical value and inspire youth into medicine as well as providing direction to those who already are in the profession.
Great case! In 2018, paramedics in the province of Ontario were trained in how to administer emergency hydrocortisone to pts with adrenal insufficiency. We have a long list of conditions, but essentially, if someone says, "I have adrenal insufficiency and I need this medication now," we can go ahead and give the IM injection. I've had 3 pts since then, all different, and with different presenting symptoms/predisposing factors.
That’s awesome! I wish they would do the same in my area - I would feel much safer.
I went through the same things this patient did. I collapsed and my blood pressure tanked. The doctor said when my blood pressure was checked by the EMT’s it around 28/? - I don’t remember the bottom number, but considering my systolic number was that low, I’m certain it was dangerously low. I too had intense salt cravings and was drinking a lot of water. I was lucky that I survived.
I know any time I just get a cold I'm grateful for all the days that I don't have to deal with mild symptoms like a runny nose and whatnot. So I definitely appreciate all the stuff going on 'under the hood' that keeps us going day-to-day that you'll only ever notice if they stop working.
It seems that Sarah was actually lucky to have gotten pneumonia in this situation? That appeared to get her checked out before the disease she has was able to get to that "90%" point so it was able to be treated earlier than if she was asymptotic until super critical time. I also noticed the article is from 2004. Hope Sarah's still living her best life in her 50s!
Amazing a Canadian ER doctor figured it out and didn’t just send her home when there was some improvement. Must have been a slow day, or most certainly not in BC.
😂😂 can tell you've never been to the e.r. in the states
@@wannabetrucker7475 been both sides, but never had a family member die in the US after a car accident because it took 3 days to get an MRI- but you can keep drinking the Trudeau koolaid that the “free health care” socialism is better.
Easy for her to pick and choose the stories where things go well, I doubt they represent the average experience in Canadian Healthcare
I really love your case study as a health care professional, both informative and intriguing.
Violin MD always does excellent, clear explanations. Please give us more!
I’ve been loving these little medical mysteries you’ve been doing!!! I always have loved medical information/knowledge but I have a very weak stomach so I can watch many other medical shows or anything. I love how you present the information in an engaging and informative way without triggering my gag reflex xD
I absolutely LOVE these medical mystery videos, Siobhan! Thank you for them, I learn SO much! ❤
So glad to hear that! Thank you!
If she is your teacher at the hospital, you will become a great doctor.
You gotta know more in depth than that
Love these case studies! As a lab tech I read all your clues and try to guess the diagnosis!
I recovered from adrenal insufficiency 20 years ago. I still keep the bracelet in my jewelry box as a reminder of how God guided me to recovery and to never go back to a stressful life. Blessings for all of you. This is a excellent video.
Delusional
How you recovered?
Then you didn't have true Addison's disease aka Primary adrenal insufficiency. That is something nobody "recovers" from. You had secondary insufficiency.
@@hollydaugherty2620 my cortisol were below 1 and I had all the symptoms and the Endocrinologist did the diagnostic of adrenal insufficiency.
@@user-ee1rs8ed2x I included a link in my answer and youtube deleted it. I changed my lifestyle to reduce stress to a minimum. I changed my job. I used licorice supplement and multiminerals (the one in the vitamins were not enough). Two and a half years later I started the Cortisone AC withdrawal and I've been fine since.
I had a type of brain tumor (Craniopharyngioma) removed when I was 12, which left me with symptoms that present very similar to Addison's disease. It was great seeing a video on this. It's nice to hear about someone else taking hydrocortisone. I like the reminder about having to take more when different stressors in life occur. I went on to become an orthotist and prosthetist which Violin MD also did a video on. I love all the great content she creates!
Yes I am from Texas. Your neighbor from down south. I look forward to your videos. They more than help figure things out. And in some ways help cope.
Another Texan here.
Thank you Dr. for your educational videos!❤
your videos are amazing. just flat out.
partly it's your delivery, fast paced, enthused, and narration is just on point. plus, the assembly and presentation of the information. i also like that it shows the clues to troubleshooting medical stuff like this, the process.
I have dispensed Hydrocortisone and Fludrocortisone many times over the years I have worked as a pharmacy technician. I knew it had something to do with adrenal glands. But this video really opened my eyes to Addison’s disease. I totally love your videos. So interesting, and I always learn something new and cool.
Thank you dear for your informative videos! You are doing a great job of helping people out who may be experiencing certain health issues that need to be addressed! God bless you!
It's just amazing to me how long your body can adapt and keep functioning, especially if you're young. I'm a hospice nurse, and even at the end of life, the body still tries to compensate. Love all your videos, from working with Mark to medical mysteries like this! You are such a bright light in this world, and your smile is contagious! Hope to meet you(and your Mark and my Mark 😊!)one day!!
So interesting! I had troubles with my adrenals for a long time too. Thankfully, we were able to turn things around before it became Addison’s. But it took years to see improvement.
I'm in the same situation, only I haven't managed to turn it around yet. Been trying hard for a few years now. Reliant on glandulars.
@@tatianagolitsyn675 So sorry. It will happen; don’t give up hope. It is a long road.
How did you manage?
Addison's cannot be "turned around", lmao. It is an autoimmune disease that doesn't even show symptoms into the adrenal cortex has been irrevocably destroyed, which is not possible to rebuild. You must be confused.
Love these videos, Siobhan!
This Dr is a Gift from Above
Congrats on a million subbies 😊
Love all your videos. Very informative. I’m commenting to make sure I do my part in giving it good algorithms.
Hi wonderful! Great video as alwaaaays. I finally found you on TikTok!!
Oh awesome! Thanks!
Eight years and I'm still not heard by the specialists I see. They go the easy route and dismiss what could be something worse. It's frustrating when doctors do not listen and do a little homework of their own to see if the puzzle pieces fit.
May I ask what’s going on? Maybe, maybe.. I can help ??
Violin MD. You are a Star. Your videos are so informative and educational. Thank you so much for all the videos. And getting info out there. ❤❤❤❤
I love the passion in which you deliver what could be boring information.
wow!! this was soo interesting from start to the very finish!
I got a diagnosis for Addison’s Disease in 2021, as soon as salty foods were mentioned, it had me thinking Addison’s.
Thank you for another great Medical Mystery, they're so interesting to watch! Obviously a helpful tool to teach your viewers. And we're here in ever-growing numbers - congratulations on your 1 million subscribers Dr Siobhan! 🎉❤🎊
Fascinating. Thank goodness for doctors like you!
Really interesting fantastic and intriguing case from the medical field, but I do hope the patient is doing well.❤😊
I have Addison's. I knew from 7 seconds into the video 😂. Thanks for raising awareness!
My "Addison's disease" is caused by the fact that my adrenal glands were completely removed in 1994. Initially they gave me far too much hydrocortisone and would never admit it. They just said my weight gain was because I needed exercise. Then I finally, after 20 years, saw a much better endocrinologist who significantly reduced my dose and I went from 195 lbs to 120 lbs practically overnight without any changes to diet or exercise. After that i balanced out at 135lbs which was a fine weight for my 5'2" stature. Then I was on that dose for more than 10 years and in that time I had 2 major adrenal crises. First was after I had a major abdominal surgery and got a staph infection with tunneling. They treated the infection, but I wasn't getting better and the surgeon was stumped. Finally he called in my Endo (endos and anesthesiologista are the heros of the medical profession IMO). My Endo sat beside my bed to ask me questions. First question was are you getting your steroids. That was in my chart, but what an amazing doctor he was for asking me directly. I said yes, but they are giving them to me orally and, doc, I am vomiting non stop. Every time I so much as move I vomit or poop the bed. So the act of taking pills leads to immediate vomiting. Mystery solved. One question.
Then in 2019 I got this crazy thing that has never been fully explained to me, which also involved an adrenal crisis. The only actual medical issue to be diagnosed in the whole event was a ruptured bakers cyst. But it all revolved around pain. Such bad pain, everywhere in my body. Especially my knee, but also really bad in my shoulder joints. It didn't hurt to touch, it didn't hurt if the doctor moved my joint, it was excruciating if I tried to move my joint. I could lay completely immobile and be totally fine. But lift my arm to brush my hair. Too much agony, I couldn't do it. Over several days I was told to go home and it was all in my head...but not, because they are not supposed to say that. The basic message: go home and stop bugging us, because it's not putting you in any life threatening danger, and it's not coming up on any test (I got the complete gold standard autoimmune panels because it seemed like it was autoimmune by all my symptoms). But then after several days of no discernable illness, the pain alone sent me into an adrenal crisis and I started having to take my stress dose. Finally, I went in and said, just ignore everything else and just look at my knee, because it's hot, swollen, tight, and the worst of all my pains. Plus I just flew on a plane. So I was worried about that. I said: let's pretend the only problem is my knee pain and everything else is just a fibromyalgia flare up caused by the knee pain. Fibro has been explained to me as "overactive fire alarms" when there is a fire happening in one house, all the fire alarms go off in all the houses, even tho they are not on fire. The ER provider indulged my thought exercise and said they would do a d-dimer test and if that was elevated they would do a CT of my knee. And my D-dimer was elevated so I got my CT. And the answer was a ruptured Bakers cyst. So in my knee and not my head.
But since then I have had 2 more episodes of pain like that. Only with any obvious knee issue. And both those times I ended up admitted because they ended up resulting in an adrenal crisis. The rheumatologist suggested I should be more quick and proactive with my stress doses if I am in pain. But other than that they offered no explanation or help. I would just suddenly get "struck down" by pain. And then after some steroids and fluids they would send me home.and I would slowly get better. My Endo once again came in with a save and suggested that maybe I need just a little more hydrocortisone,. because I am getting older and I was on the absolute lowest dose possible. So maybe it was time for a bump. I still get pain now and then but I haven't had ER/hospital level pain since we bumped my hydrocortisone dose. So that's good. I did put.on a few pounds which was a bummer but better than being in the ER.
But THEN, the hospital had also bumped up my fludrocortisone, which I'd only been taking 1/2 to 3/4 a tab a day for like 10 years. They sent my home on a full tablet a day. And suddenly my blood pressure was sky high all the time. So then my Endo suggested that some people who have been on steroid replacement for as long as I have, sometimes just don't need the fludrocortisone anymore. (There is a small amount in the hydrocortisone). So he suggested I go off it. And then I was having heart palpitations and anywhere from 60/90 to 80/110 BP. My cardiologist politely suggested that I may want to revisit my cortisone dosing with my Endo . What ensued was a rollercoaster of adjustments. First 1 tablet a day- BP too high. Then 1/2-BP still too high? Then 1/4- BP still high?? So my Endo said it seemed like I had become unusually sensitive to the fludrocortisone and suggested we try 1 tablet twice a week. That would still give me high BP on the days that I took my tablet. So we finally settled on 1/2 a tablet twice a week as a.base and then monitoring my BP and taking more or less as needed. That has finally settled the matter.
I will say that it's nice to be on a stable dose again. And it's very hard for doctors who are not endocrinologists to really understand and diagnose when a.problem.is steroid related.
Brown spots under the tongue are not common, it's more common on the gums and around the lip line. Same for dogs! I have Addison's and was sick for over a year with no diagnosis. Ended up in hospital twice, the last time in ICU. I'm lucky to be here. Doctors misdiagnose Addison's so frequently that people die every single year.
Great video. I love these medical mystery videos. 😊❤.
NOT a doctor, but I really enjoy these medical mystery videos you do. It's fun to be guided along on the detective game of trying to make sense of the symptoms.
I knew it was Addisons because our 34 year old daughter was given the news of microcardia after a chest X-ray. She has all the signs and symptoms of Addisons except pigment/darking skin.
She just had a blood test for cortisol and T3. She has been referred to an internist Doctor. Of note,
Our daughter had sarcoidosis of the right chest in 2017 and the granulomas were only found on the plural lining but thankfully not the lung. The Thoracentesis drained over a litre of fluid …done a few days prior to the thoroscopy. Now she has this adrenal problem. No family history of autoimmune disease.
Loved the video, great as usual! ❤
Wow Thank you, I absolutely love that you share all of this information in a teaching way. For all of this is really helpful, while I am studying holistic health so that I can become one amazing holistic health nutritionist. And all healthcare information is top key.☺️♥️
I love your great videos! So often diagnoses are hard to come by. Doctors can be too dismissive of symptoms.
I appreciate you and thank you for making content.
My mind went from diabetes to something with the thyroid then to POTS, but an adrenal crisis caused by Addison’s Disease? Wasn’t expecting that lol
How crazy, my dog actually has Addisons 😢 but my poor dog couldn’t talk and say what was wrong. I’m glad she’s doing better ❤
That was a VERY interesting case! More of these videos, please!
I did have some idea that it had to do with the adrenal glands, due to the Na and K levels. I really enjoyed this medical mystery, more please
Have you done one on Cushing's disease? If not, you totally should!
I recently switched to a new blood pressure medication and it has been making me crave salt. I know it’s from the medication because it didn’t start until I was switched. It has a diuretic in it and I think that’s why. Didn’t crave salt as much as I do now. I’m going to talk to my doctor about it very soon.
I have a question for you. There is a lady with several sores in her mouth and she has seen many doctors and nobody seems to know what is going on. I recommend that she sees a rheumatologist. Do you have a video in reference to lesions and sores inside the mouth?
Best videos since the end of House MD
I really enjoy your medical mystery videos. Very interesting cases. Please keep them coming.
I really enjoy watching these medical mysteries brought to life! I also really appreciate the production value of your videos; were the reenacetment scenes (e.g. the woman eating pickles) shot just for this video, or did you use stock imagery? Whatever the case, it was really well done!
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It blows my mind how intricate the human body is. Thank you for another awesome video Siobhan!!
This is fascinating. I have some of these symptoms, albeit not the hyperpigmentation.
In the future, it would be interesting to see if medical experts can develop an at home cortisone and adolsterone test similar to how diabetics measure their glucose levels. Adrenal gland stress is probably more common than expected.
Great idea!
It would be difficult because not only do they need to know the current blood cortisol level but you need to know how much the body actually needs at that exact moment. Blood glucose is simple to guess as to what the body might need but cortisol demands change moment to moment and have an enormous range. This is why replacing cortisol in people with Addison's is so difficult and why people suffer even with replacement.
@@hollydaugherty2620 Thank you for that explanation.
Love your shows. How about doing one on Ehlers Danlos?
Any patient who gets you or your husband as their doctor is very lucky👍
More! Thank you!!!
when you start saying "take a moment to feel gratitude for your adrenal gland" ...it really touch me, we can add one more thing to be grateful that we probably never aware of ❤
Thank you so much!
Hey what's up Siobhan! Great 2 see U! Thanks for another great and informative video! I love how U always break down diagnosis and treatment for these medical anomalies! I always appreciate everything you do for us and have a great and safe day! Cheers!!
I'm amazed by every one of your videos. They are all so interesting. But what I find most interesting is that these patients received such amazing resource consuming care and a proper diagnosis. Is it because they have private insurance on top of the basic universal Healthcare? I live in a city an hours drive from Toronto. Here you only get that kind of care if you're of a higher economic status. Many people of lower economic status are being disabled or dying from lack of care even when seen by medical professionals. I guess what I'm asking is this just an attitude toward lower class or because of the lack of private insurance?
I live in Toronto and I've always had top-notch care at no cost, including some really major surgery. I think the important thing is to have a good primary care doctor who can refer you to good specialists. My doctor is at a family practice clinic at one of the teaching hospitals. This sort of access isn't as available outside major centers with medical schools. Doctors at a teaching hospital are usually most up-to-date with new developments and more intensely interested in their profession. A teaching hospital usually has staff and equipment for most tests immediately accessible.
The only thing I can suggest is that you have to learn as much as you can about your illness and advocate for yourself. If your doctor doesn't seem interested in your problem, and tries to brush you off, or a treatment isn't working after a reasonable time and the doctor doesn't want to investigate further, you may need to keep pushing, ask for a referral to a specialist, or even change doctors.
Good doctors want their patients to understand what's happening and participate in their care. Good doctors listen to their patients and want them to ask questions. Good doctors can be hard to find outside major centers, not that all doctors in major centers are any better than those in smaller ones.
People of lower economic status are often less educated and may be intimidated by the doctor's higher status. It makes communication more difficult if the patient is afraid to ask questions or ask for more explanation for fear of looking stupid. The doctor has to determine what the problem is and how severe not just by lab tests but what the patient says. The doctor also has to guess how well his patient has understood his explanations and instructions by what the patient says and does.
I hope this helps. If there's a difference by economic class it's because people of lower status may be less able or willing to communicate adequately and advocate for themselves. They may also be less willing to actively participate in their own care, just passively wanting a pill to fix them up rather than undertake lifestyle changes, not that most people aren't like that. Doctors get no benefit from a patient's private insurance, and many poorly paid people get private insurance through their jobs.
That tongue was crucial because those symtoms (except the tongue) are all the symptoms I have for my POTS. It's so important for doctors to make those comparison charts when trying to find diagnosis.
As someone with Addison's who thought (hoped ) it was just POTS, respectfully, you're wrong. The symptoms of Addison's are WAY worse and 100x more intense and horrifying than POTS. She didn't even list all the symptoms of adrenal insufficiency all the ways it kills. Count yourself lucky.
@hollydaugherty2620 Ma'am my post was to say it's important to compare before diagnosis as symptoms can overlap and can get misdiagnosed. Period. This comment wasn't a way for you to try and one up my illness. You don't know me. POTS is ONE facet of ONE of my illnesses (Ehlers danlos). You want to play this game? I have Ehlers, POTS, epilepsy, Lupus, unknown syncope, a paralyzed vocal chord, severe anemia that requires infusions every few months, Malnutrition due to my illnesses, PCOS, trigeminal neuralgia (yah its calls the su1c1d3 disease for a reason), gastritis, fibroids that look like cancer but due to my other illnesses I can't get cleared for the surgery, a brain cyst, white brain matter disease, severe and multiple anaphlactic food allergies, kidney stones that have required multiple procedures, parathyroid removal due to hypercalcemia, migraines, vertigo, scoliosis, 3 hernias, sclaritis, a heart defect (that requires an embedded heart monitor), stenosis of my spine, and an inflammatory disorder. Should I go on? These are just the main ones. I also care for my 5 disabled kids who all have severe and multiple medical issues. How about YOU count yourself lucky. Kindly kick rocks and take your "woah is me, I have it so hard and you don't" attitude and keep scrolling.
My college roommate had issues with her adrenal gland doctor in Vermont thought it was thyroid I'm glad she's still ok
Very interesting video! Thank you!