I wanted to share my love to her. Watching her receiving the Walk of Fame and the courage she showed at the awards shows a lot. Richard Pryor had M.S. You are loved. I mean it... You are loved.
I appreciate this segment but as someone who has been dealing with MS since 16 years old and now over half my life I’m disappointed in the way the doctor discussed it. MS has NOT been found to be triggered by ebv (mono virus) there is a correlation with it however many with MS never had it. So many get ebv in their life that frankly it could easily be correlated to anything. It has not been seen as a cause at all. More frustrating is not only do we not know a cause but we don’t know how it actually functions let alone why. It doesn’t attack ‘nerves’ it attacks the myelin in the your brain, spine and nerves which then removes protection and can attack the actual cells in these. Which is why everyone is completely different in symptoms and disability as well as progression or lack there of. There are also different ‘types’ or categories from relapse/remitting (up n down) to secondary (ad slow decline) to progressive (fast onset fast decline). The reason no good treatment exists is specifically because the world does not know the actual way it functions in our bodies. They don’t even understand what actually is doing the attacking and the understanding is changed nonstop. Originally believed it was bad Tcells so they were targeted to destroy in treatment. Then Bcells n now antibodies that bond to them making them go rouge. So no.. scientists do not know how to prevent it, what the cause is or how it functions. Pushing the idea that a shot could prevent it is irresponsible and wrong to all who suffer it and all who will! There is NO research showing that at all. You can’t prove something will prevent something else when it’s so random that you can bend data to your goals. I didn’t get hit by a car driving today must be because I had coffee.. or maybe it’s because I wasn’t going to get in an accident to begin with?! Correlation is not causations and when you can say ‘you will get ms’ then give shot and ‘see it worked you didn’t get ms!’ Sorry no. The generic predisposition is also false as its been shown while many people with ms have a microscopically small error in genetic code, the same exact error is seen in people without it and many with ms don’t have it either. Again you can skew data anyway you want to get your conclusions. I’m frankly tired of this irresponsible nonsense pushed by doctors whether well meaning or not. Heck the torturous treatments they do have meant to slow down illness can’t even be verified! Why? Because you don’t know what progression anyone will have regardless- with or without it. So we are just glad when we don’t get worse assuming its the med but it could be they wouldn’t have anyway. Yet ignore the countless who still progress on it and say ‘but it could of been worse’ - really? No way to know that let alone prove it. I’ve spent half my life on every know treatment, including countless trials from hell. It’s torture and still I suffer n progress. Is it just me? No. My heart goes out to everyone suffering this hell and i am not anti medication or treatment. I pray one day they actually figure out the way it works and the cause so a cure can actually be possible. I just get so frustrated with the way MS is presented by media, Hollywood and even the scientific and medical fields. They don’t have a clue how it even works let alone what cause’s it and this nonsense they keep pushing that they do - ignoring the research they themselves do providing it over & over again- on people like me - who are essentially lab rats so they can claim false data is beyond enraging. One positive in this segment, I agree with the gentleman who said we are people! We don’t need sympathy and to be treated differently. We all no matter the situation have battles in life that mold us. Illnesses or not. We all suffer and struggle. Mine just has a label on it that I refuse to carry with me. I am me not this stupid disease. My apologies for ranting. I guess my hopes go up that when ‘famous’ people suffer MS it will force actual discussion and understanding on such forum’s not misinformed nonsense. Very disappointed by the doctors explanation. We get lesions in our brains n cns yet so points at nerves? Come on!
And that’s wonderful for Montell. Keep in mind what the doctor said in this clip - everyone experiences different symptoms and different intensities. Christina’s experience is going to be different. It’s completely unfair to expect the same from her.
I wanted to share my love to her. Watching her receiving the Walk of Fame and the courage she showed at the awards shows a lot. Richard Pryor had M.S. You are loved. I mean it... You are loved.
I appreciate this segment but as someone who has been dealing with MS since 16 years old and now over half my life I’m disappointed in the way the doctor discussed it. MS has NOT been found to be triggered by ebv (mono virus) there is a correlation with it however many with MS never had it. So many get ebv in their life that frankly it could easily be correlated to anything. It has not been seen as a cause at all. More frustrating is not only do we not know a cause but we don’t know how it actually functions let alone why.
It doesn’t attack ‘nerves’ it attacks the myelin in the your brain, spine and nerves which then removes protection and can attack the actual cells in these. Which is why everyone is completely different in symptoms and disability as well as progression or lack there of. There are also different ‘types’ or categories from relapse/remitting (up n down) to secondary (ad slow decline) to progressive (fast onset fast decline).
The reason no good treatment exists is specifically because the world does not know the actual way it functions in our bodies. They don’t even understand what actually is doing the attacking and the understanding is changed nonstop. Originally believed it was bad Tcells so they were targeted to destroy in treatment. Then Bcells n now antibodies that bond to them making them go rouge. So no.. scientists do not know how to prevent it, what the cause is or how it functions.
Pushing the idea that a shot could prevent it is irresponsible and wrong to all who suffer it and all who will! There is NO research showing that at all. You can’t prove something will prevent something else when it’s so random that you can bend data to your goals. I didn’t get hit by a car driving today must be because I had coffee.. or maybe it’s because I wasn’t going to get in an accident to begin with?!
Correlation is not causations and when you can say ‘you will get ms’ then give shot and ‘see it worked you didn’t get ms!’ Sorry no. The generic predisposition is also false as its been shown while many people with ms have a microscopically small error in genetic code, the same exact error is seen in people without it and many with ms don’t have it either. Again you can skew data anyway you want to get your conclusions. I’m frankly tired of this irresponsible nonsense pushed by doctors whether well meaning or not. Heck the torturous treatments they do have meant to slow down illness can’t even be verified! Why? Because you don’t know what progression anyone will have regardless- with or without it. So we are just glad when we don’t get worse assuming its the med but it could be they wouldn’t have anyway. Yet ignore the countless who still progress on it and say ‘but it could of been worse’ - really? No way to know that let alone prove it.
I’ve spent half my life on every know treatment, including countless trials from hell. It’s torture and still I suffer n progress. Is it just me? No.
My heart goes out to everyone suffering this hell and i am not anti medication or treatment. I pray one day they actually figure out the way it works and the cause so a cure can actually be possible. I just get so frustrated with the way MS is presented by media, Hollywood and even the scientific and medical fields. They don’t have a clue how it even works let alone what cause’s it and this nonsense they keep pushing that they do - ignoring the research they themselves do providing it over & over again- on people like me - who are essentially lab rats so they can claim false data is beyond enraging.
One positive in this segment, I agree with the gentleman who said we are people! We don’t need sympathy and to be treated differently. We all no matter the situation have battles in life that mold us. Illnesses or not. We all suffer and struggle. Mine just has a label on it that I refuse to carry with me. I am me not this stupid disease. My apologies for ranting. I guess my hopes go up that when ‘famous’ people suffer MS it will force actual discussion and understanding on such forum’s not misinformed nonsense. Very disappointed by the doctors explanation. We get lesions in our brains n cns yet so points at nerves? Come on!
If Christina should read this, plz watch Montell Williams. He had MS and works out regularly and tries to use only holistic methods!!
And that’s wonderful for Montell. Keep in mind what the doctor said in this clip - everyone experiences different symptoms and different intensities. Christina’s experience is going to be different. It’s completely unfair to expect the same from her.
Hello house
❤KA