Oh, please do continue 🙏 in some odd way it feels like we are all connected, that is how I choose to believe. It takes a village and you are a part of my far away village. Come on now you two brave cuties. PLEASE CHARLIE, SHARE YOUR GIFT, 🎷❤
Whether or not Charlie has active dementia at this time, he has been living with that life-altering diagnosis for some time now, and it has been very real for the both of you. In beginning this journey with us, you have been open and honest with us and have become family to us. The fact that you have been given so many different medical opinions is not a reflection of your doctors’ competencies, but rather, goes to show how much there still is to learn about dementia. Rather than being inauthentic, this video series truly is showing your dementia journey - one that could happen to anyone. I hope you do not have dementia. I don’t wish that on anyone. But the journey you both are on is real, wherever it leads. I sincerely hope you will continue with taking us along with you. Allow us to celebrate the good you experience, as well as the challenges.
Ken, this is such a beautiful testament to support and love. I agree that we have become like family. There is a strong connection. Although the ‘dementia’ is not present right now the markers are still there. We feel blessed for now and smile daily. Your comment felt like a blanket of love and a warm hug. Thank you ❤️
This is great news! Well I would let people with dementia decide how they feel about more videos (maybe there would be no problem if the name of the channel were changed?), but this is great health news!
Awesome news! I noticed you looked pretty great in most of your videos, and now we have medical confirmation of this! Congrats! As far as the inauthenticity is concerned, if you could just add an "INAUTHENTIC" tag to the bottom right of your older videos, that would be great...Haha just kidding! Keep on playing that music, amigo.
Hi guys! I wondered how Charlie was doing. It's great to hear his condition has changed for the better! We still want to see what you guys are up to and there's still that little lewy thing unfortunately. So I'm a firm yes to more videos if Charlie is game!! A song hmm. Colour My World is one of my favorites it's short but it's beautiful. Hope to see you all soon 🤗
Thank you, Red. I just sent Charlie your message. It warmed my heart. It’s funny, first we had to learn to accept the diagnosis and then we had to learn to appreciate an enormous gift and live. Thank you for your support and encouragement. I’m hoping Charlie will want to do some songs for everyone soon. 🤗
This is awesome news. My dad has so many signs of Lewy Body. I hope this happens with my dad too. Please will y’all keep doing the videos. We love seeing y’all’s journey! Y’all are amazing!
This is such great news. My husband got better for awhile. They said it was because he took airosep. But they have not given him another test. He started waking again. they told him because his knee goes out he shouldn't. So be careful. I agree you do not get better from Lewy Body. But if the medicine helps. You can improve for awhile. I missed you playing the Trumpet So maybe you will play it again for us. Again. I am so glad you improved and they took more test. You will be fine. TC and Hugs. My God cure you in what ever was wrong.
Music stimulating brain us a sound theory. But also, your beaun fies keep re-fiunting, thatus hiw you cine up with 2,3 wirds to explain the one youcant remember. So kniw. Even with brain shrinkage say, or parts = function ...the brsin you gave keftmay indeed find a new route to walking or something else. Haveyou ever sauda eird you were not thinking of saying? I have. One lady couldnt think of "published" and to her own astonishment said "public-ed" ehich dirt if worked. The phenomena also reveals your filing system, and snd cross filing. Which i hadnt known existed like a syllable sounding similar in the search for a word...me. Looking for enlightening was getting delight, sunlight...imagine.
Thanks for sharing. I’ve been taken advantage of bc of this. Appreciate y’all for doing these.
Sweet video.
Oh, please do continue 🙏 in some odd way it feels like we are all connected, that is how I choose to believe. It takes a village and you are a part of my far away village. Come on now you two brave cuties. PLEASE CHARLIE, SHARE YOUR GIFT, 🎷❤
Whether or not Charlie has active dementia at this time, he has been living with that life-altering diagnosis for some time now, and it has been very real for the both of you. In beginning this journey with us, you have been open and honest with us and have become family to us. The fact that you have been given so many different medical opinions is not a reflection of your doctors’ competencies, but rather, goes to show how much there still is to learn about dementia. Rather than being inauthentic, this video series truly is showing your dementia journey - one that could happen to anyone. I hope you do not have dementia. I don’t wish that on anyone. But the journey you both are on is real, wherever it leads. I sincerely hope you will continue with taking us along with you. Allow us to celebrate the good you experience, as well as the challenges.
Ken, this is such a beautiful testament to support and love. I agree that we have become like family. There is a strong connection. Although the ‘dementia’ is not present right now the markers are still there. We feel blessed for now and smile daily. Your comment felt like a blanket of love and a warm hug. Thank you ❤️
I'd love to see you guys keeping the videos going.
This is great news!
Well I would let people with dementia decide how they feel about more videos (maybe there would be no problem if the name of the channel were changed?), but this is great health news!
Awesome news! I noticed you looked pretty great in most of your videos, and now we have medical confirmation of this! Congrats! As far as the inauthenticity is concerned, if you could just add an "INAUTHENTIC" tag to the bottom right of your older videos, that would be great...Haha just kidding! Keep on playing that music, amigo.
Great news!
Hi guys! I wondered how Charlie was doing. It's great to hear his condition has changed for the better! We still want to see what you guys are up to and there's still that little lewy thing unfortunately. So I'm a firm yes to more videos if Charlie is game!! A song hmm. Colour My World is one of my favorites it's short but it's beautiful.
Hope to see you all soon 🤗
Thank you, Red. I just sent Charlie your message. It warmed my heart. It’s funny, first we had to learn to accept the diagnosis and then we had to learn to appreciate an enormous gift and live.
Thank you for your support and encouragement. I’m hoping Charlie will want to do some songs for everyone soon. 🤗
You’re so sweet.
This is awesome news. My dad has so many signs of Lewy Body. I hope this happens with my dad too. Please will y’all keep doing the videos. We love seeing y’all’s journey! Y’all are amazing!
This is such great news. My husband got better for awhile. They said it was because he took airosep. But they have not given him another test. He started waking again. they told him because his knee goes out he shouldn't. So be careful. I agree you do not get better from Lewy Body. But if the medicine helps. You can improve for awhile. I missed you playing the Trumpet So maybe you will play it again for us. Again. I am so glad you improved and they took more test. You will be fine. TC and Hugs. My God cure you in what ever was wrong.
This is wonderful to hear from someone else too!
You guys are so cute ☺️ 🙏 Glad he’s doing better.
Music stimulating brain us a sound theory. But also, your beaun fies keep re-fiunting, thatus hiw you cine up with 2,3 wirds to explain the one youcant remember. So kniw. Even with brain shrinkage say, or parts = function ...the brsin you gave keftmay indeed find a new route to walking or something else. Haveyou ever sauda eird you were not thinking of saying? I have. One lady couldnt think of "published" and to her own astonishment said "public-ed" ehich dirt if worked.
The phenomena also reveals your filing system, and snd cross filing. Which i hadnt known existed like a syllable sounding similar in the search for a word...me. Looking for enlightening was getting delight, sunlight...imagine.