I've been taking injection for 7.5 years and it has worked great. I have none of the ankylosing spondylitis pains and my loss of mobility has stopped getting worse. It changed my life and I am happy I have none of the side affects. If you get a rash at the injection point, ice your skin for a few seconds.
@@mosaymosay918 Good morning. I've now taken Humira for nearly 13 years with zero side effects and no ankylosing spondylitis symptoms beyond the damage already done to my spine. It also helps control my skin issues and uveitis. It changed my life. The new shot formula doesn't even burn. It's now a totally painless injection. Hope this helps. Of note, I'm also a 200lbs guy who always had a strong immune system (too strong), so I don't know how it impacts others.
Hi beautiful. An initial dose of Humira 160mg was just too much for anyones body to handle. I've taken 40mg in the past and hated the way it made me feel physically and mentally. I hope you feel better and have the greatest quality of life.
Thank you for sharing your traumatic story. I am so sorry that you had such a horrific experience. I was put on Humira for my Crohn's Disease because I developed another fistula. I have been on Humira 40 mg. for 3 1/2 months. Thank God I never was given a loading dose like you were. That sounds like A LOT of medication! Since I also have fibromyalgia and other conditions, it's hard to tell where one thing ends and another begins. I have also been grieving the loss of my son and blamed my symptoms on grief and stress at first. I had no obvious reaction with the first shot. I have suffered with extreme nausea, increased diarrhea, my migraines and arthritis got worse, and my total body pain got worse. Then my tendons got inflamed and painful. I developed lumps of swelling on my Achilles tendon. I have been totally exhausted. The nausea got better before my last shot but returned with a vengeance within 20 min. after the injection. It's been 6 days since my last injection and I feel like I have been poisoned. I am wondering how long it is going to take to get this completely out of my system and when these symptoms will subside. I will never take this drug again! I understand that it helps some people and I am happy for them. Unfortunately, Humira has been a nightmare for me. Since this video was made in 2013, I am wondering how you are doing now. I hope you are doing better.
Thanks for posting this video. I have AS I took HUMIRA for one year. Worked great at first but over time my eyes started having issues, my hair fell out and I developed a serious lung infection. I haven't taken a shot in a month and I'm in a lot of pain but I'm not letting the drug kill me. Appt coming up with rheumatoid dr soon to discuss options. Be well n safe n aware
Last year I had a Rheumatoid flare up and I asked doctor to refer me to a Rheumatologist. He put me on Enbrel and it's been a miracle drug for me one year. I took my first Humira shot today because Enbrel made me short of breath. If I have side effects I'll go back to Enbrel.
So I read about HUMIRA and the side effects, I've actually have put it off for years but nothing is working for my Guttate Psoriasis. I took my first two doses today. After watching your vid, I started to cry for many reason and I felt your pain. I'm so scared more than ever. :-/
+Westerfer Westerner Every drug is different for everyone, but more often than not Humira works wonders for people. I pray it helps you, just as it has helped many others!
OMG, did your video make me tear up. I have UC. (or now my doctors think it could be Crohns) I have been through hell and back with it, and I want to take you up on your offer of support. I won't go into detail of my story here, it's too long, but hopefully we'll find a way to get in touch. Again, taking you up on your offer of support, if it still stands.
I'm going through exactly the same thing. I'm currently undergoing every test going to find out if it's humira or something else, it's so far taken 18 months. I wish you all the best for the future, Thankyou for the video xx
Thank you For sharing your Story I to take Humira ... have complained to my doctor of tingling in my hands and legs to the point it feels stiff ... but my doctor still wants me to take it ... hope your doing better
I totally relate. I've ended up with brain lesions and MS symptoms. Still having loads of tests to see how bad the damage is. At times I use my chair or walking frame if my legs don't work.i hope you're coping ok xx
You poor girl. Good luck on everything. I'm researching on this medication hence how I ended up on this video. Unfortunately I'm apprehensive because I have HS, a heart condition, neuropathy issues, immune compromised already so my biggest concern is it would make these issues enhanced or even worse. My doctor keeps pushing this medication but something in me keeps pushing back saying no.
Wow. I'm so sorry to hear that! I had reactions to Remicade. Drug induced lupus that seems to have decided to stick around. My joints have never been the same either. I had surgery to remove colon two years ago. At elastic the colitis is gone. Lol. You're a trooper. Love to you.
I also had problems with the remicade treatments, they were awful and I seemed to always get more worse after having them, I also have Colitis and now I'm taking humeria. At children's hospital they wanted to removey colon but my parents and I didn't want to have it taken out due to how young I am they wanted me to have a fun childhood without having a bag hanging out of my stomach. S
I never had rheumatoid arthritis in my life, and I've had crohn's all my life, 60 years. But when I took remicade it worked brilliantly for 3 months. Then it stopped working. And when it failed I got what I can only describe as rheumatoid arthritis. I stopped remicade immediately, unfortunately I was bedridden with rheumatoid arthritis for the next 4 months. This side effect from remicade was worse then severe crohn's disease. Then after 4 months after stop taking remicade, I woke up one day, and the rheumatoid arthritis was completely gone. This happened 12 years ago. Again I've never had any type of arthritis my entire life, 60 years, except one time for 4 months, when remicade failed. Be careful with doctors, they told me I got arthritis because I had crohn's. I told the doctors I got arthritis because of the remicade. Bottom line is this, the patient (me) was right, and the doctor was wrong. Nothing new there, right?
Aww I'm so glad that I have helped you to stay strong. :) That makes me feel so much better. Thank you! :) Yeah, using a wheelchair is hard sometimes, I feel like we get judged a lot with it, but it's what we need to function and get out of the house and live a little. Just stay strong and know that you are never alone. :)
WHY NOT JUST STICK TO IBOPROFEN? IT TAKES THE PAIN AWAY ,NO DEATH DEFYING SIDE EFFECT,I HOPE YOU SUED THEM ,SOMEBODY HAS TO PAY FOR WHAT THEY DID TO YOU ,YOU ARE WAY TOO HUMBLE & BRAIN WASHED TO THINKING THAT YOU HAD TO TAKE IT ,WHY NOT DO A LOW MILIGRAM SAMPLE HUMIRA SHOT FIRST?
Hey Kelly; Came across your video as I'm newly perscribed Humira for my Anklosing Spondolytis. Ever since 19 yr old I've had TONS of spinal pain and was wrongly diagnosed as "wear and tear" About 3 months ago I was found to have the HLA B27 Gene and symptoms match for Anklosing Spondolytis. Hoping the Humira will help with pain. I am truely sorry about your experience. I was surprised you were given 4 initial injections which is a large start dose! I will keep you posted of my results.
I have ankylosing spondylitis and did my first injection of humira last week using the pen. I can honestly say I never even felt anything when I injected. I injected it in my lower stomach and it was painless for me.
Oh my gosh. I really hope you are better to this date. I just had an allergic reaction to my remicade and this is possibly my next step in treatment for crohns... but after this video and several other scary ones I am very tempted to just do nothing for a while and see what happens. I have a vegan diet, which has helped wonders and may help you as well, idk. I have tons of joint pain too, you aren't alone. I very much hope you're better and able to do a bit more now. The only thing scarier than these diseases are the drugs to aid them :( hang in there girl!
i go to a diagnostic clinic every 3 months i get upwards of 12 to 18 different viles of blood taken to make sure everything is in spec it is a drug definitely should be monitored i feel your pain darlin! Enbrel ended with me on beta blockers and made me feel dumb
I was allowed to try Humira after putting up with AS for the better part of 20years... bit of a life changing mistake... I had a strange reaction ten hours after the first dose. 2.5years later I still have this weird nerve damage that is so difficult to explain and an array of other weird health stuff has happened. The nurse hotline in my home country was just hopeless. Doctor and Rheumatologist have blamed the whole thing on anxiety. Healthwise I'm far worse off than beforehand. I hope someone at Abbott/Abbvie is reading these comments.
Yeah it was really rough. Every drug I ever take, is always a nightmare, but I've tried other methods of treatments too and I just don't get any results. But, one day i'll find something. I have hope! It's been a year since Humira so it's taken me a long time to get where I am and I have more issues than before, but oh well. :( I don't work actually, I'm sorry. :( I usually don't get out of bed to be honest, but I do videos to help others and give myself purpose again. Keep fighting!!
I'm not putting your doctor down or comparing your doctor to mine. First off Humira has helped me with my pain. I've taken other drugs, but nothing seemed to work. My doctor asked me if I would like to use Humira. I told her anything just make the pain stop. When she prescribed me the medicine she told me she's giving me 4 shots like you, but to only do 2 shots the first time wait two weeks and take 1 shot and continue with 1 shot every two weeks. I asked my doctor (ah! ran out of characters)
Hi Kelly! I'm so sorry to hear about your experience with Humira. I recently found out Humira gave me drug-induced Lupus also, although my reaction was more gradual and much less severe. You mentioned that your Rheumatoid Arthritis did not go away, but did your Lupus go away?
Hi, I was put on humera also and I had the exact same side effects, heart beat over 150 at rest for no reasion, shortness of breath for no reasion, sweating, chronic fatigue and weaknesses, shaking and feeling that I was going to faint, eyes swelled up and vision problems, acid reflux, brain fog, the list goes on, I found the doctors had no idea and I had to stop the grug myself
I had exactly the same started humira 7. Years ago ago for ank spon was out of breath heart was irregular blood pressure problems night sweats weakness in legs and 3 bouts of anaemia needing 3 infusions told my rhumatology dept and they were adamant it wasn't the humira and she had never even looked at the side effects on the leaflet so I refused any further treatment since Oct 19 and I'm in agony as joint pain had returned all over body but side effects have disappeared I can breath normal walk-in with out breathless Ness it's great start from pain
You're welcome! I hope it goes well for you. Remember, what happened to me was just a very rare odd case. So, hopefully you'll be okay, but just remember to get help if you feel worse instead of better! :) Best of luck!! *hugs! Also yes, I have personalized one of my wheelchairs. I put pink zebra duct tape. :) I am going to personalize my newest one soon too! When I do it, I'll make a video about it :) Not sure how I'll personalize this one yet! Still thinking! :)
+Thr Mechanic My Dr is hollaring at me to get back on it, I'm on mtx and it stopped workin and I'm in hell with my RA. I'm so fear based omg. I hope you are doing well
+cameleon Girl you will do great! heres a good tip sit down in a chair an turn your feet so your toes kinda point at each other, take a deep breath a few times an breath out relaxing your self i do this with the humira pen one hand the skin pinched in the other once i exhaled an are relaxed i stick myself an inject works the best for me just dont tense up :) hope this helps:)
Thr Mechanic Hi, I will definately give that a try. I'm going to fill the script tomorrow. I want to be happy this Spring and have a life again, been barely out there and I'm still kind of young ahahaha. I got it when I was 31. I'm 49 now and my fun days are running out LOL Hugs thanks so much for respondin
I just started humira and have only had one dose, about to do my second injection now. Mine is for ankylosing spondylitis and arthiritis through my body. I also have lupus and fibromyalgia, and I’m only 20 :( i already have bone spurs in my neck, so they put me on this but I’ve been in so much pain since starting. I think I may also be having a bad reaction but not as bad as yours was just severe pain all over and throwing up all the time and blacking out again :/
damn. my mom has RA and that stuff is horrible. She can't even walk or pull up her hair. she is trying remicade now, but i'm afraid nothing will work for her.
I couldn't get out if bed from Rheumatoid. I've been in Enbrel a year but just switched to Humira. It saved my life and I was worried they'd put me in a nursing home. Ok now.
Thank you so much for this video!! I'm starting Humira soon! If I experience any of the side effects you experienced, or serious side effects in general, I will definitely call my GI immediately!! By the way, have you done anything to personalize your wheelchair?? If I ever had to be in one a lot, I'd personalize it and put like... spikes on it... Haha!!
I took Humira for 6 months until the doctors wanted to cut out my lymph nodes to check if I had developed blood cancer. I said "No Thank You". I stopped the Humira and after 3 months the swelling in my lymph nodes went away. This happened 11 years ago. After 60 years with crohn's I've learned how to say "no" to scientists (I mean doctors). Bottom line is if you're going to a scientist now, stop, and go find a doctor who can help you.
So did I, and after the first 7 shots, 2 days later I was in the hospital for pnuemonia. For 30 years I used immuron and it worked until recently. At age 64, I'm probobly going to have surgery to remove part or all of my colon. I hope your doing ok. I wish you all the best.
@@mosaymosay918 I just gave birth to my first child and stopped it during pregnancy: I can't wait to start again honestly. I was doing really well before I stopped👍🏼
Deanna Franklin this is a known reaction and when we agree to take it we agree to the side effects. I don’t think RA caused her disease. Thats not how the drug works with the cells. It’s frustrating but I don’t think someone would have a case unless they died.
Yes, let’s sue all providers to death. Assholes,like you, are the reason I’m on this in the first place. I was great on vioxx,but 89 year old people started to die,at the same rate that 89 year old people,e should,so they took it away. People like you are why all this shits so expensive too. They should not give people like you medicine. You should just be allowed to suffer.
FOUR doses for the 'starter' injection?? Sounds WAY too much. I'm just starting this crap for psoriasis, they started me with only 2 for first dose, with 1 a week later. First doses had no apparent side effects, made a tiny bruise on stomach. Second dose, then about 12 hours later have MAJOR PAIN in shoulders (have advancing bursitis) that would not go away or diminish with taking tylenol. A week later the pain still hits every night. AbbVie makes BILLIONS every year on this drug. If I were you, a young and lovely woman now transformed into a wheelchair bound life, I would be seeing serious damage money from these clowns.
what if I take all four shots at one time would that help me faster? She said NO! don't take all four shots at once that will possibly jeopardize your health. With your "WEIGHT (235 lbs)" you should only take two shots to introduce the medicine to your system and kind of give it a shock. Ok by looking at you I'm about a good 100 to 125 lbs heavier than you. So why would your doctor tell you to take all 4 shots at once and mine say DON"T only 2 shots. Could this have a factor on what happened?
Was this your first biologic drug? If yes you should mention that as to not scare anyone. Remicade was working great till this year I had to miss an infusion and then I was getting horribly itchy and bumps. Oh, and they tried the accelerated infusion and I would be dripping sweat and ready to puke. So much for that. Humira day 0 here, 4 pens. It wasn't bad at all. You want pain? Have a fistula/abdominal abscess drained. Holy crap. Now that is painful. Crohn's here btw.
Hi Len.... abscesses are so painful.... I have crohns too....I had a perianal abcess that fistulized with proctitis. They want to put me on humira as well. When you has your abcess did they put you on an antibiotic and flagyl. Ciprofoxacin is one of the antibiotics but I'm so nervous of that antibiotic. I heard it's a good antibiotic for crohns abcess... have you ever been on ciprofloxacin? If so how did you do with the ciprofloxacin?
I don’t know what I did wrong then because I definitely screamed with all 4 shots and could not handle the pain. I feel a lot better because of it but man... I must be a wimp 😂
Ray96 I live with chronic pain everyday. I didn't want to overreact and rush to the ER if it was something that would go away. I got the help I needed once my doctors saw how serious it was. That's what's important.
Kelly Patricia I was just wondering. I had the same experience six years ago before I ever got diagnosed with ulcerative colitis. I should've gone to the ER but I didn't and it just got worst. Probably would've gotten an earlier diagnosis. I did that not so smart move too I was just asking lol
Ray96 Totally understand! I wish we knew if something was "hospital worthy" or not when things happened. That would make our lives a lot easier with chronic illnesses! lol
I've been taking injection for 7.5 years and it has worked great. I have none of the ankylosing spondylitis pains and my loss of mobility has stopped getting worse. It changed my life and I am happy I have none of the side affects. If you get a rash at the injection point, ice your skin for a few seconds.
Are you still on Humira? If so, that would be 14 years for you now.
Are you still on humira? Did you get any side effects? Please reply me
@@mosaymosay918 Good morning. I've now taken Humira for nearly 13 years with zero side effects and no ankylosing spondylitis symptoms beyond the damage already done to my spine. It also helps control my skin issues and uveitis. It changed my life. The new shot formula doesn't even burn. It's now a totally painless injection. Hope this helps. Of note, I'm also a 200lbs guy who always had a strong immune system (too strong), so I don't know how it impacts others.
@@tashoulders thanks for your reply...
Hi beautiful. An initial dose of Humira 160mg was just too much for anyones body to handle. I've taken 40mg in the past and hated the way it made me feel physically and mentally. I hope you feel better and have the greatest quality of life.
Thank you for sharing your traumatic story. I am so sorry that you had such a horrific experience. I was put on Humira for my Crohn's Disease because I developed another fistula. I have been on Humira 40 mg. for 3 1/2 months. Thank God I never was given a loading dose like you were. That sounds like A LOT of medication! Since I also have fibromyalgia and other conditions, it's hard to tell where one thing ends and another begins. I have also been grieving the loss of my son and blamed my symptoms on grief and stress at first. I had no obvious reaction with the first shot. I have suffered with extreme nausea, increased diarrhea, my migraines and arthritis got worse, and my total body pain got worse. Then my tendons got inflamed and painful. I developed lumps of swelling on my Achilles tendon. I have been totally exhausted. The nausea got better before my last shot but returned with a vengeance within 20 min. after the injection. It's been 6 days since my last injection and I feel like I have been poisoned. I am wondering how long it is going to take to get this completely out of my system and when these symptoms will subside. I will never take this drug again! I understand that it helps some people and I am happy for them. Unfortunately, Humira has been a nightmare for me. Since this video was made in 2013, I am wondering how you are doing now. I hope you are doing better.
Thanks for posting this video.
I have AS
I took HUMIRA for one year. Worked great at first but over time my eyes started having issues, my hair fell out and I developed a serious lung infection. I haven't taken a shot in a month and I'm in a lot of pain but I'm not letting the drug kill me. Appt coming up with rheumatoid dr soon to discuss options. Be well n safe n aware
Thank you for sharing your experience. Keep fighting!
Last year I had a Rheumatoid flare up and I asked doctor to refer me to a Rheumatologist. He put me on Enbrel and it's been a miracle drug for me one year. I took my first Humira shot today because Enbrel made me short of breath. If I have side effects I'll go back to Enbrel.
Let the Humira come to room temperature before injecting and it won't hurt at all.
Thanks for sharing. Hope you’re better.
So I read about HUMIRA and the side effects, I've actually have put it off for years but nothing is working for my Guttate Psoriasis. I took my first two doses today. After watching your vid, I started to cry for many reason and I felt your pain. I'm so scared more than ever. :-/
+Westerfer Westerner Every drug is different for everyone, but more often than not Humira works wonders for people. I pray it helps you, just as it has helped many others!
Mason Luis how did it go? I have my doctor appt in two days andwant to try it but now I'm scared 😢
I feel ya... This is what happened to me as well. Good luck.
The way you got with the Humira reaction that’s exactly how I was before I knew I had RA I fell you pain
OMG, did your video make me tear up. I have UC. (or now my doctors think it could be Crohns) I have been through hell and back with it, and I want to take you up on your offer of support. I won't go into detail of my story here, it's too long, but hopefully we'll find a way to get in touch.
Again, taking you up on your offer of support, if it still stands.
I'm going through exactly the same thing. I'm currently undergoing every test going to find out if it's humira or something else, it's so far taken 18 months. I wish you all the best for the future, Thankyou for the video xx
Thank you For sharing your Story I to take Humira ... have complained to my doctor of tingling in my hands and legs to the point it feels stiff ... but my doctor still wants me to take it ... hope your doing better
I totally relate. I've ended up with brain lesions and MS symptoms. Still having loads of tests to see how bad the damage is. At times I use my chair or walking frame if my legs don't work.i hope you're coping ok xx
I hope and Pray that you are doing okay. you are very sweet and beautiful.. good luck with your issue and thx for sharing your story !
You poor girl. Good luck on everything. I'm researching on this medication hence how I ended up on this video. Unfortunately I'm apprehensive because I have HS, a heart condition, neuropathy issues, immune compromised already so my biggest concern is it would make these issues enhanced or even worse. My doctor keeps pushing this medication but something in me keeps pushing back saying no.
aw i'm so sorry that happened *hugs*
Wow. I'm so sorry to hear that! I had reactions to Remicade. Drug induced lupus that seems to have decided to stick around. My joints have never been the same either. I had surgery to remove colon two years ago. At elastic the colitis is gone. Lol. You're a trooper. Love to you.
I also had problems with the remicade treatments, they were awful and I seemed to always get more worse after having them, I also have Colitis and now I'm taking humeria. At children's hospital they wanted to removey colon but my parents and I didn't want to have it taken out due to how young I am they wanted me to have a fun childhood without having a bag hanging out of my stomach. S
I never had rheumatoid arthritis in my life, and I've had crohn's all my life, 60 years. But when I took remicade it worked brilliantly for 3 months. Then it stopped working. And when it failed I got what I can only describe as rheumatoid arthritis. I stopped remicade immediately, unfortunately I was bedridden with rheumatoid arthritis for the next 4 months. This side effect from remicade was worse then severe crohn's disease. Then after 4 months after stop taking remicade, I woke up one day, and the rheumatoid arthritis was completely gone. This happened 12 years ago. Again I've never had any type of arthritis my entire life, 60 years, except one time for 4 months, when remicade failed. Be careful with doctors, they told me I got arthritis because I had crohn's. I told the doctors I got arthritis because of the remicade. Bottom line is this, the patient (me) was right, and the doctor was wrong. Nothing new there, right?
Aww I'm so glad that I have helped you to stay strong. :) That makes me feel so much better. Thank you! :) Yeah, using a wheelchair is hard sometimes, I feel like we get judged a lot with it, but it's what we need to function and get out of the house and live a little. Just stay strong and know that you are never alone. :)
WHY NOT JUST STICK TO IBOPROFEN? IT TAKES THE PAIN AWAY ,NO DEATH DEFYING SIDE EFFECT,I HOPE YOU SUED THEM ,SOMEBODY HAS TO PAY FOR WHAT THEY DID TO YOU ,YOU ARE WAY TOO HUMBLE & BRAIN WASHED TO THINKING THAT YOU HAD TO TAKE IT ,WHY NOT DO A LOW MILIGRAM SAMPLE HUMIRA SHOT FIRST?
Hey Kelly; Came across your video as I'm newly perscribed Humira for my Anklosing Spondolytis. Ever since 19 yr old I've had TONS of spinal pain and was wrongly diagnosed as "wear and tear" About 3 months ago I was found to have the HLA B27 Gene and symptoms match for Anklosing Spondolytis. Hoping the Humira will help with pain. I am truely sorry about your experience. I was surprised you were given 4 initial injections which is a large start dose! I will keep you posted of my results.
I was diagnosed with Ancylosing Spyndelydis too and doctor wants me to start with Humira. I really don’t want to start that drug
How are you now?
OMG this is exactly what happened to my boyfriend we have been fighting his GI and Neurologist for over 8 months and no one has figured it out.
I have ankylosing spondylitis and did my first injection of humira last week using the pen. I can honestly say I never even felt anything when I injected. I injected it in my lower stomach and it was painless for me.
How are you now?
Oh my gosh. I really hope you are better to this date. I just had an allergic reaction to my remicade and this is possibly my next step in treatment for crohns... but after this video and several other scary ones I am very tempted to just do nothing for a while and see what happens. I have a vegan diet, which has helped wonders and may help you as well, idk. I have tons of joint pain too, you aren't alone. I very much hope you're better and able to do a bit more now. The only thing scarier than these diseases are the drugs to aid them :( hang in there girl!
i go to a diagnostic clinic every 3 months i get upwards of 12 to 18 different viles of blood taken to make sure everything is in spec it is a drug definitely should be monitored i feel your pain darlin! Enbrel ended with me on beta blockers and made me feel dumb
I was allowed to try Humira after putting up with AS for the better part of 20years... bit of a life changing mistake... I had a strange reaction ten hours after the first dose. 2.5years later I still have this weird nerve damage that is so difficult to explain and an array of other weird health stuff has happened. The nurse hotline in my home country was just hopeless. Doctor and Rheumatologist have blamed the whole thing on anxiety. Healthwise I'm far worse off than beforehand. I hope someone at Abbott/Abbvie is reading these comments.
It should be banned must b a claim there somewhere. It made me very ill
Kelly, you scare me I took my first shot of humira today!!
how do you feel now i took mine today
Yeah it was really rough. Every drug I ever take, is always a nightmare, but I've tried other methods of treatments too and I just don't get any results. But, one day i'll find something. I have hope! It's been a year since Humira so it's taken me a long time to get where I am and I have more issues than before, but oh well. :( I don't work actually, I'm sorry. :( I usually don't get out of bed to be honest, but I do videos to help others and give myself purpose again. Keep fighting!!
I'm not putting your doctor down or comparing your doctor to mine. First off Humira has helped me with my pain. I've taken other drugs, but nothing seemed to work. My doctor asked me if I would like to use Humira. I told her anything just make the pain stop. When she prescribed me the medicine she told me she's giving me 4 shots like you, but to only do 2 shots the first time wait two weeks and take 1 shot and continue with 1 shot every two weeks. I asked my doctor (ah! ran out of characters)
Hi Kelly! I'm so sorry to hear about your experience with Humira. I recently found out Humira gave me drug-induced Lupus also, although my reaction was more gradual and much less severe. You mentioned that your Rheumatoid Arthritis did not go away, but did your Lupus go away?
Hi, I was put on humera also and I had the exact same side effects, heart beat over 150 at rest for no reasion, shortness of breath for no reasion, sweating, chronic fatigue and weaknesses, shaking and feeling that I was going to faint, eyes swelled up and vision problems, acid reflux, brain fog, the list goes on, I found the doctors had no idea and I had to stop the grug myself
I had exactly the same started humira 7. Years ago ago for ank spon was out of breath heart was irregular blood pressure problems night sweats weakness in legs and 3 bouts of anaemia needing 3 infusions told my rhumatology dept and they were adamant it wasn't the humira and she had never even looked at the side effects on the leaflet so I refused any further treatment since Oct 19 and I'm in agony as joint pain had returned all over body but side effects have disappeared I can breath normal walk-in with out breathless Ness it's great start from pain
You're welcome! I hope it goes well for you. Remember, what happened to me was just a very rare odd case. So, hopefully you'll be okay, but just remember to get help if you feel worse instead of better! :) Best of luck!! *hugs! Also yes, I have personalized one of my wheelchairs. I put pink zebra duct tape. :) I am going to personalize my newest one soon too! When I do it, I'll make a video about it :) Not sure how I'll personalize this one yet! Still thinking! :)
stings every time of ever 2 weeks for the past year i do mine in my thigh I'm used to it now tho works well im 27 an have RA
+Thr Mechanic My Dr is hollaring at me to get back on it, I'm on mtx and it stopped workin and I'm in hell with my RA. I'm so fear based omg. I hope you are doing well
+cameleon Girl you will do great! heres a good tip sit down in a chair an turn your feet so your toes kinda point at each other, take a deep breath a few times an breath out relaxing your self i do this with the humira pen one hand the skin pinched in the other once i exhaled an are relaxed i stick myself an inject works the best for me just dont tense up :) hope this helps:)
Thr Mechanic Hi, I will definately give that a try. I'm going to fill the script tomorrow. I want to be happy this Spring and have a life again, been barely out there and I'm still kind of young ahahaha. I got it when I was 31. I'm 49 now and my fun days are running out LOL Hugs thanks so much for respondin
+cameleon Girl well you Look Fabulous! and I adore your voice!
Thr Mechanic aww you saw my vids?Thanks xo I will let you know when I put the shot in yikes!!!
Hi why where you taking it for ! I am about to start taking it !
I just started humira and have only had one dose, about to do my second injection now. Mine is for ankylosing spondylitis and arthiritis through my body. I also have lupus and fibromyalgia, and I’m only 20 :( i already have bone spurs in my neck, so they put me on this but I’ve been in so much pain since starting. I think I may also be having a bad reaction but not as bad as yours was just severe pain all over and throwing up all the time and blacking out again :/
damn. my mom has RA and that stuff is horrible. She can't even walk or pull up her hair. she is trying remicade now, but i'm afraid nothing will work for her.
I couldn't get out if bed from Rheumatoid. I've been in Enbrel a year but just switched to Humira. It saved my life and I was worried they'd put me in a nursing home. Ok now.
i have my first humira injection coming up in this next week. Very nervous.
didnt work for me at all
Thank you so much for this video!! I'm starting Humira soon! If I experience any of the side effects you experienced, or serious side effects in general, I will definitely call my GI immediately!! By the way, have you done anything to personalize your wheelchair?? If I ever had to be in one a lot, I'd personalize it and put like... spikes on it... Haha!!
I took Humira for 6 months until the doctors wanted to cut out my lymph nodes to check if I had developed blood cancer. I said "No Thank You". I stopped the Humira and after 3 months the swelling in my lymph nodes went away. This happened 11 years ago. After 60 years with crohn's I've learned how to say "no" to scientists (I mean doctors). Bottom line is if you're going to a scientist now, stop, and go find a doctor who can help you.
I love you! Thanks for the video!
I see my Rheumatologist tomorrow and she may put me on this.... since the chemo pills made me lose my vision. :( Huuuuugs dear !!
did u get your vision back?
thank you for the video , why you had to use hamura ? thx
+Moka Bocal I used Humira for Inflammatory Bowel Disease.
+Kelly Patricia thank you for the reply i wish you a fast complete recovery.
So did I, and after the first 7 shots, 2 days later I was in the hospital for pnuemonia. For 30 years I used immuron and it worked until recently. At age 64, I'm probobly going to have surgery to remove part or all of my colon. I hope your doing ok. I wish you all the best.
Iam taking it and scared.
I am taking it right now and I'm feeling great! Don't lose hope!
@@ZicoCozy how are you now after taking humira?
@@mosaymosay918 I just gave birth to my first child and stopped it during pregnancy: I can't wait to start again honestly. I was doing really well before I stopped👍🏼
@@ZicoCozy thanks for your super fast reply😄
I hate that drug. It gave my son neuropathy. My son is twenty two also. How are you today?
I have RA and using Humira but you got it after using Humira due to a bad reaction to the drug right??
What treatments are you on now with your RA?
I’m sorry but what were you using Humira for ?
are you taking this drug company to court? you need to.
Deanna Franklin this is a known reaction and when we agree to take it we agree to the side effects. I don’t think RA caused her disease. Thats not how the drug works with the cells.
It’s frustrating but I don’t think someone would have a case unless they died.
Yes, let’s sue all providers to death. Assholes,like you, are the reason I’m on this in the first place. I was great on vioxx,but 89 year old people started to die,at the same rate that 89 year old people,e should,so they took it away. People like you are why all this shits so expensive too. They should not give people like you medicine. You should just be allowed to suffer.
Now I am TERRIFIED. I have to do 2-40mg injections next month and I am scared as it is.
Why not just take IBOPROFEN? IT TAKES my pain away ,I have RA It's side effect are nothing compared to Humira
My boyfriend's dad takes it and it works the best for him. He HATED pred.
ty... i might be put on humira,,,i hate shots.
FOUR doses for the 'starter' injection?? Sounds WAY too much. I'm just starting this crap for psoriasis, they started me with only 2 for first dose, with 1 a week later. First doses had no apparent side effects, made a tiny bruise on stomach. Second dose, then about 12 hours later have MAJOR PAIN in shoulders (have advancing bursitis) that would not go away or diminish with taking tylenol. A week later the pain still hits every night.
AbbVie makes BILLIONS every year on this drug. If I were you, a young and lovely woman now transformed into a wheelchair bound life, I would be seeing serious damage money from these clowns.
what if I take all four shots at one time would that help me faster? She said NO! don't take all four shots at once that will possibly jeopardize your health. With your "WEIGHT (235 lbs)" you should only take two shots to introduce the medicine to your system and kind of give it a shock. Ok by looking at you I'm about a good 100 to 125 lbs heavier than you. So why would your doctor tell you to take all 4 shots at once and mine say DON"T only 2 shots. Could this have a factor on what happened?
Syburiz G. they usually give 4 shots in the begining to kknd of jumpstart it and then you take smaller doses after that
Was this your first biologic drug? If yes you should mention that as to not scare anyone. Remicade was working great till this year I had to miss an infusion and then I was getting horribly itchy and bumps. Oh, and they tried the accelerated infusion and I would be dripping sweat and ready to puke. So much for that. Humira day 0 here, 4 pens. It wasn't bad at all. You want pain? Have a fistula/abdominal abscess drained. Holy crap. Now that is painful. Crohn's here btw.
Hi Len.... abscesses are so painful.... I have crohns too....I had a perianal abcess that fistulized with proctitis. They want to put me on humira as well. When you has your abcess did they put you on an antibiotic and flagyl. Ciprofoxacin is one of the antibiotics but I'm so nervous of that antibiotic. I heard it's a good antibiotic for crohns abcess... have you ever been on ciprofloxacin? If so how did you do with the ciprofloxacin?
Do not take cipro. Very dangerous drug. Look up cipro toxicity videos if you haven't already.
I don’t know what I did wrong then because I definitely screamed with all 4 shots and could not handle the pain. I feel a lot better because of it but man... I must be a wimp 😂
you are so pretty
'At least the colitis is gone'
Seriously?
Humira destroyed my life ARGH! Fuck!!!
Share!
She put hot pink duct tape and zebra duct tape on the last one!
I have chrons;-;
My question is why didn't you go to the ER the FIRST time. Instead of going to the Internet......like wow that was not the smartest thing to do.
Ray96 I live with chronic pain everyday. I didn't want to overreact and rush to the ER if it was something that would go away. I got the help I needed once my doctors saw how serious it was. That's what's important.
Kelly Patricia I was just wondering. I had the same experience six years ago before I ever got diagnosed with ulcerative colitis. I should've gone to the ER but I didn't and it just got worst. Probably would've gotten an earlier diagnosis. I did that not so smart move too I was just asking lol
Ray96 Totally understand! I wish we knew if something was "hospital worthy" or not when things happened. That would make our lives a lot easier with chronic illnesses! lol