Clinical Trial IVIG of 21 PANS Children with Dr Maeve O'Connor, MD. | 2019 Washington, DC
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- เผยแพร่เมื่อ 5 ก.ค. 2024
- PANDAS is short for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. A child may be diagnosed with PANDAS when: Obsessive-compulsive disorder (OCD), tic disorder, or both suddenly appear following a streptococcal (strep) infection, such as strep throat or scarlet fever.
PANDAS Network is the leading national nonprofit organization for PANDAS/PANS/AE, and we’re dedicated to providing resources and support to families like yours who are living with this disorder
October 6th 2019
Washington, DC
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Very insightful. Thank you.
Why would any child need six or more IVIG treatments? One should do it because the flares eb and flow. I am not convinced that these children would not have gotten better on their own after a flare.
it's crucial to understand that PANDAS is a complex condition, and each child's response to treatment can vary. IVIG therapy, which introduces healthy antibodies into the body, is used to manage the immune response and reduce inflammation. Some children might respond well to a single treatment, while others may require more to achieve the desired effect.
PANDAS is a relapsing-remitting disorder, meaning symptoms can fluctuate over time. During periods of increased symptoms, additional IVIG treatments may be necessary to manage the condition effectively.
While it's possible for some children to see symptom improvement over time without treatment, the goal is to actively manage and reduce symptoms to improve the child's quality of life. It's not just about waiting for potential self-improvement, but about proactive care based on each child's unique needs.