Thank you for doing this. Watched replay due to time difference with Australia. Doing well on Ocrevus. That and physical therapy make me forget I have MS most days. :-)
I’d never heard the story of why you became an MS neuro. Hit me in the feels! And it definitely explains your passion for this work. Your uncle, mom, and grandparents must surely be proud of you, whether from here or beyond!
Hi Dr. I passed your channel to my aunt today. She was diagnosed in 1997, and never talked about her diagnosis until I was diagnosed 17 years ago.. I hope she enjoys your channel as much as I do!
@@AaronBosterMD Happy new year. I'm looking forward to more information you provide. Question for you, what type of lifestyle changes should those of us with this disease consider? My neurologist told me that I'm too young to have as much damage as I do, and that lifestyle changes are needed.
I’m sorry that I couldn’t catch you live today. It was very nice for you to take time and share your time with us. Hello from Huntsville, Alabama. You are wonderful educator. Thanks so much.
TEXAS!! You are so awesome and I love that you are taking the time to do this! As a newfound MS er it is great to hear information from you I swear it is more than what my neurologist is even telling me all of them! You are so much better and I don’t know how to tell you I appreciate you so much seriously God bless you Mr. Aaron
YW Falin! TY for tuning in and I appreciate your support! I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend?
Thank you for taking the time and doing this. I only had one question for you before this talk but now I have a lot of questions and that's because you make me think differently. I agree, talks once a month or quarterly would be wonderful. Please say thank you to your wife for the support that she gives to us and you as well. She must be incredible to think about us on such a special day.
I'm thinking about doing another Ask Me Anything Format LIVE Q&A on New Years Eve Day. What do you think? Too soon? If you'd attend, would 12-4p or 4-7p EST be better time frames?
I'm so sorry I missed this, Dr. Boster! Very happy holidays to you! We're in northern VA, and I'd LOVE to see more Q&As! So grateful I can listen to you here ⛄⛄⛄, too. Thank you so much for always being such a compassionate, thoughtful, and thoroughly reliable source of really SOLID information about this fun, fun, fun (!) disease. Wishing you and yours all the best in the coming year! The story about how you decided to become an MS doctor is so touching. The genuine caring you show toward us, and regarding how we're doing, is a real gift!
@@AaronBosterMDi Doc! I no longer work, but with those who do in mind, how about on a Sat. or Sun. at "High Noon" (like the old Gary Cooper western!)? We also have to take *your* availability into consideration! But unless I'm at some doctor appointment (they seem to occur more frequently with age!), I'll be there or "be square"...
Wow dr Boster that was completely awesome, had to settle for the replay but completely awesome👍 I’m so glad we have passionate people like you on our team Absolutely dig the format and setup for it Awesome 👏! :)
I voted for weekend days due to the time difference (I’m in the Netherlands, you’re 6 hours behind us) Your noon would normally work well for me if it isn’t Xmas :) I’d quite possibly set an alarm if it’s the middle of the night here and there’s always the replay if that fails but being there live would definitely add some extra coolness Whatever fits in your (completely filled I’d imagine) schedule will just have to work #makemsboring! ;)
Aaron Boster MD that would be awesome. Noon to 1p could usually work for me or selected afternoons 3-4 ish-but what works for you? PS virtual appointments would be great
yeah, monthly would be ideal! I'm watching all thee way from Bahrain. Doctors don't know much about MS here as it's a small Island with only 60-100 diagnosed with MS. So I appreicte all the info and studies you're sharing here and on Twitter. @@AaronBosterMD
Thanks so much for your kindness and for helping me and so many others. Great 1st Chat. Couldn't wait to listen when I got home today. You touch so many. You childhood vision .. and dedication is making such a huge difference in the Community... bless you all in 2009
Thank you for all your amazing videos. They are really helpful and supportive to us. I wish you and your family a Merry Christmas and a Happy New year !
As suggested in your holiday hacks, I needed to participate in family activities previously scheduled so caught most of this on the #replay. Again, aMAZing job, #wehaveMS! In answer to a question you posed-yes! Our family would LOVE to see more of this kind of live or replayed Q&A. Education is empowering! Second, please message me about what I can do in 2019 for this #wehaveMS community. Would love to volunteer my time toward furthering this effort. As you know, our family lives over an hour away from your support center. Whether you’re a 1, 60, or 60,000 miles from an MS support center there are just times when you plain can’t leave the home for whatEVER reason, so please accept my invitation for contact to do what I can as a volunteer toward this endeavor. I LOVED your analogy about type 1 diabetes in regard to making MS boring! Our family would love to have a boring clinic visit! I say, “our family” because it is my 22-year-old son who has MS. However, #wehaveMS. Anyway, I can vouch for the fact that Type 1 diabetes is best boring. In 1988 one month before my daughter was born, my best friend, Nancy, dropped dead at the young age of 29 in 1988. She experienced complications from childhood type 1 diabetes and it took her life. Today? You hear very little about that disease-as you so eloquently stated. Thank you so much for your endeavor to make MS that boring! My husband watched this with me today. Yay! Go us! And he has a question that I think is brilliant and I hope you can answer here. There is research that we’ve found or heard of that indicates that those who live closer to the equator have a lower incident rate of MS diagnosis. As well, low levels of vitamin D can contribute to a negative outcome with MS as is eluded to here in your live. Hubby’s actual question is this: Is there a way to preemptively help prevent disease from surfacing, for example in future generations, ie, our grandchildren, by-again for example-moving closer to the equator or preemptively pursuing an aggressive vitamin D therapy? Theoretically?
Welcome back to Ohio Maggie Mae! Glad you enjoyed! I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend?
@@AaronBosterMD depends on your schedule. I will try to be available when you are. I no longer work so my schedule until holidays is pretty free. Lol. MS made me a full time mom and they are adults so I am no longer needed as much. Lol
Bless you and Merry Christmas! I’m having a hard time getting a diagnosis, it’s nice to watch your videos and kinda get a idea of what I might be handed. Thank you for doing this for people!
Howdy Dave! What's your question, may I ask? Also, I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend?
@@AaronBosterMD I'm in the UK, near Sheffield, so I'd prefer an afternoon or morning considering time difference etc. I actually have two questions: firstly, I have two daughters aged 11 and 14. Should they be taking vitamin D supplements to reduce their likelihood of developing MS? Secondly, I was diagnosed in 2008, but I my diary documents a big relapse in 2004 and I have occupational health reports from work documenting doublevision and tingly fingers in 1997. Officially, I have RRMS. How do I know if this has progressed to SPMS? I haven't had a big relapse since 2008 but feel like I'm on a gradual downward slope. Thank you for your time.
That is so awesome Cathlene, TY for liking, subscribing and ringing the bell! I genuinely appreciate that! I'm trying to put out a video a week, but recently I get overly excited and have done a lot more! opps!
@@AaronBosterMD I sincerely doubt any of your followers would have any issues with you not only doing more videos read more idten, but I also agree the QA was awesome! I know for me, sometimes I just have the words, patience, time to convey what is going on with me in my 15 minute window...appointment. I am jealous of your patients you really do care, that is evident. :)
My pleasure and TY for reaching out! 'm thinking about doing another Ask Me Anything Format LIVE Q&A on New Years Eve Day. What do you think? Too soon? If you'd attend, would 12-4p or 4-7p EST be better time frames?
@@AaronBosterMD I'd love you to do another. Just to sure if you have it on TH-cam again as we're asleep when you go live. I love your work. I have to admit I was quite depressed about having MS until I started seeing your videos. I'm still not happy about it but at least there may be hope now
I missed this, but totally agree it’s a great format! Weekend is probably best in terms of timing. I don’t have a question, but you know I think you’re the best around!! Happy Chanukah.
Howdy Josh! So psyched you liked it man! I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend?
Greetings and Merry Christmas from the United Kingdom. Gutted I missed the live session. Indeed the format is outstanding - the work you are doing will help generations, MSer themselves, of course, but their families at the same time, to understand complexities and the broad spectrum of the disease. THANK YOU and Happy Holidays.
Hello and Merry Christmas from Ontario Canada. Missed the live stream but I enjoy all your videos. Thank you so much for taking time out of your busy Christmas Day to spend some time with us. Merry Christmas and Happy New Year from my family to you and your family.
I love your videos you have taught me so much about MS. I was wondering if you have a video on how the new ms drugs are changing the outlook for our future with MS. If not is there any information you know on this topic ? Thanks so much . I am in New Zealand 🇳🇿
Hello Dr.Boster, thanks to You for the ongoing effort and compliments to Your wife for initiating and allowing today's session. During that I came up with one short question and a rather ample story to share, I will add each one to matching videos of Yours on this channel :-) Happy holidays and a great new year to You and Your loves ones. And thanks again!
@@AaronBosterMD One "tuning" tip for regular Q&A: have one single topic each time (and strictly handle just that, no matter what :-) ). As well as I can tell a lot about VitaminD, others surely have relevant experience and/or dense knowledge, or questions about other interesting topics, but it would get lost in an ocean of good stuff due to too many different topics at once.
Hi, I have a question for next time! Can you discuss the recovery phase immediately after round 1 Lemtrada? The how and why? I just finished round 1 the week before Christmas and I'm having trouble finding info to explain what is going on in my body and why it's making me feel weak and not hungry at all! I'm all for Lemtrada, and happy that I made this choice. I'm thinking that maybe some real life info on this topic will ease some people's fear of the drug. Thank you Dr. Boater for being who you are and caring! Your videos have really made a difference in my life!
Thanks for this LIVE Facebook Q&A! Unfortunately I missed it live but I'm happy to have been able to watch it! If you are able to do this monthly (within your busy life) that would be great! It's wonderful to have conversations with you!!☕ ☕☕☕16 CUPS ☕☕☕☕OF COFFEE ☕☕☕☕ A DAY!!!☕☕☕☕ Wow!! 👍👍👍👍👍No wonder you're so hyped up when I see you!!! 🤣😂😄
This was awesome, thank you Dr. B. I still think you should try mulled wine. A quick question. I have had spacity in my left arm. My arm is in constant pain now. PT is telling me it acts as a rotator cuff issue. But she also senses spacity issues too. Can spacity cause damage to the joint?
You mentioned sx don't come on as a "thunder clap". I've had 3 episodes--2 during a bad prolonged flare and 1 isolated episode--where I am aware it's happening, but become acutely dysfunctional...unable to process conversation, unable to remember fully, unable to handle money or debit card, fumble and "can't pull my act together". All 3 episodes have occurred in a place of business. I have been able to either sit in my car or with a friend until episode resolved in about an hr. My EEGs have been normal. Once resolved, I am totally back to baseline (which does include a moderate amt of cog dysfxn). Could these acute episodes be MS related, even tho they are acute and transient?? No anxiety or other sx that could otherwise explain them. 1 was witnessed by a friend who confirmed an acute distinct behavior change w/ subsequent recovery.
Question for the next live that’s popping up in my Lemtrada mommies group: What is the risk of PML with Lemtrada (specifically for those of us that are JC+)? Thanks.
The only cases reported to date were considered "carry over" cases from tysabri associated PML (they found the PML on the tysabri scans prior to switch).
Thank u again for your videos and the live ones are awesome! Talking about stress my doctors are causing the major stress (we know that something is wrong we just don't know what) was misdiagnosed as having a syrinx because what they saw was not on the second MRI one Neuro tested for nmo it was negative thought I had sjrogen but tested negative thought I had lupus but negative was tested for mysthenia gravis but again blood work negative tested for Lyme 2 times negative . now the pain clinic tested spinal fluid but they didn't check of bands but checked mylen basic protein which was elevated. Now I had to see a hematology for elevated white blood cells in blood well I tested a low positive for a jak2 gene mutation along with low levels of erythrocytosis when I went to the visit to talk about all the test he is just going to recheck my blood in 6 months .So still no diagnosis.So I'm going to get a refural to Cleveland clinic.This is just frustrurating. So we will see. Thank u for all you do I did tri to get in your clinic but they said they do not take indiana state insurance so I was numbed out.
Howdy Shannon. I'm super bummed that insurance created a barrier to your care. If it ever changes please reach out to clinic again, we'd love to try to help!
When you said Ocrevus improves 3 months of disability, does that mean it can revert you back to whatever level of disability you were at 3 mos. ago or that you get only 3 mos. of improvement? Thank you
The measure, called Confirmed Disability Improvement, was defined in the trial as seeing improvements on the neurological exam that were maintained for at least a period of 3 months. Other trials (e.g. CARE MS1 and 2 with Alemtuzumab) used a 6 month definition. In both cases, CDI is "dynamic" and worsen again down the line.
Aaron Boster MD oh so sorry to hear that 🙁 I have had a remarkable CDI on Ocrevus and I’m just past the 3 months mark. If there is a worsening again, is there further improvement with subsequent infusions or should I just be grateful (I’m ecstatic) that I’ve at least had this opportunity to feel normal again and look forward to slowed progression? Thanks!
By the way, I’m in a study that’s monitoring OCT changes for people with MS q 6 mos. x 2 yrs. and the first f/u after Ocrevus demonstrated retinal nerve thickening (my terminology may be incorrect). Are you seeing this in your patients? Could this be re-myelination ? Sorry for bombarding you with questions. Thank you thank you thank you
That's exciting and TY for participating in MS research! I'm not sure what explains that and I think at this time we don't really know...BUT IT EXCITING!
That was awesome. Thanks for taking the time for us on Christmas 🙌🏼
My pleasure, TY for joining me Shelby! If you guys think this is a fun format, we can do another live Q&A again soon. What do you think?
Aaron Boster MD I would totally tune in for more live Q&A’s!
@@Shelby-cf1sc Awesome sauce. Do you think an hour is too long? Which day/time of week do you think would be easiest for folks?
Aaron Boster MD I think an hour is perfect. Weekends probably for people. Put out one of your polls! I like being able to vote 😊
@@Shelby-cf1sc awesome idea!!
Thank you for doing this. Watched replay due to time difference with Australia. Doing well on Ocrevus. That and physical therapy make me forget I have MS most days. :-)
Leslie
I’d never heard the story of why you became an MS neuro. Hit me in the feels! And it definitely explains your passion for this work. Your uncle, mom, and grandparents must surely be proud of you, whether from here or beyond!
#WeHaveMS (get it?)
Happy holidays dr Boster
Health and Happiness to you and yours Bahareh!
Hi Dr. I passed your channel to my aunt today. She was diagnosed in 1997, and never talked about her diagnosis until I was diagnosed 17 years ago.. I hope she enjoys your channel as much as I do!
wow Heather, that is the nicest gift you could ever give me. TY for helping me reach your Aunt.
@@AaronBosterMD Happy new year. I'm looking forward to more information you provide. Question for you, what type of lifestyle changes should those of us with this disease consider? My neurologist told me that I'm too young to have as much damage as I do, and that lifestyle changes are needed.
I’m sorry that I couldn’t catch you live today. It was very nice for you to take time and share your time with us.
Hello from Huntsville, Alabama.
You are wonderful educator. Thanks so much.
Howdy Becky! TY for the comment! I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend?
I'm so glad you saved this one, Doc! I think I'll watch it every Christmas as part of my celebration if I remember to! :)
right on! I hope to do another live Q&A during next Xmas as well!
TEXAS!!
You are so awesome and I love that you are taking the time to do this! As a newfound MS er it is great to hear information from you I swear it is more than what my neurologist is even telling me all of them! You are so much better and I don’t know how to tell you I appreciate you so much seriously God bless you Mr. Aaron
YW Falin! TY for tuning in and I appreciate your support! I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend?
So thankful u r there. Great that u r the type of neurologist u r!! So, so helpful 4 us all.
Howdy Mary! TY and Happy Holidays to you!
Thank you for taking the time and doing this. I only had one question for you before this talk but now I have a lot of questions and that's because you make me think differently. I agree, talks once a month or quarterly would be wonderful.
Please say thank you to your wife for the support that she gives to us and you as well. She must be incredible to think about us on such a special day.
I'm thinking about doing another Ask Me Anything Format LIVE Q&A on New Years Eve Day. What do you think? Too soon? If you'd attend, would 12-4p or 4-7p EST be better time frames?
I'm so sorry I missed this, Dr. Boster! Very happy holidays to you! We're in northern VA, and I'd LOVE to see more Q&As! So grateful I can listen to you here ⛄⛄⛄, too. Thank you so much for always being such a compassionate, thoughtful, and thoroughly reliable source of really SOLID information about this fun, fun, fun (!) disease. Wishing you and yours all the best in the coming year! The story about how you decided to become an MS doctor is so touching. The genuine caring you show toward us, and regarding how we're doing, is a real gift!
Howdy Yottabee! I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend?
@@AaronBosterMDi Doc! I no longer work, but with those who do in mind, how about on a Sat. or Sun. at "High Noon" (like the old Gary Cooper western!)? We also have to take *your* availability into consideration! But unless I'm at some doctor appointment (they seem to occur more frequently with age!), I'll be there or "be square"...
Wow dr Boster that was completely awesome, had to settle for the replay but completely awesome👍
I’m so glad we have passionate people like you on our team
Absolutely dig the format and setup for it
Awesome 👏! :)
TY Kg0rz! I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend?
I voted for weekend days due to the time difference (I’m in the Netherlands, you’re 6 hours behind us)
Your noon would normally work well for me if it isn’t Xmas :)
I’d quite possibly set an alarm if it’s the middle of the night here and there’s always the replay if that fails but being there live would definitely add some extra coolness
Whatever fits in your (completely filled I’d imagine) schedule will just have to work
#makemsboring! ;)
Missed live because I was traveling but listening now 👍👍👍 thank you. Great discussions.
TY Elizabeth! I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend?
Aaron Boster MD that would be awesome. Noon to 1p could usually work for me or selected afternoons 3-4 ish-but what works for you? PS virtual appointments would be great
I'm loving this! I hope next time, SOON, I can jump on when live!
Super! I hope to do them maybe as often as once monthly if folks are into it!
Bummed I missed this. Please do more live videos!
I think I will indeed Charity! When/what time do you think would be ideal for a recurring (monthly?) Live Q&A?
yeah, monthly would be ideal! I'm watching all thee way from Bahrain. Doctors don't know much about MS here as it's a small Island with only 60-100 diagnosed with MS. So I appreicte all the info and studies you're sharing here and on Twitter. @@AaronBosterMD
Sounds like a plan Meatduck!!
Monthly would be ideal!
Yes so bummed I missed this as well
Thanks so much for your kindness and for helping me and so many others. Great 1st Chat. Couldn't wait to listen when I got home today. You touch so many. You childhood vision .. and dedication is making such a huge difference in the Community... bless you all in 2009
Happy holidays!! #WeHaveMS
Thank you for doing this live stream, you're an amazing person.
TY for tuning in ZeroKnight! #WeHaveMS
Thank you for all your amazing videos. They are really helpful and supportive to us. I wish you and your family a Merry Christmas and a Happy New year !
YW Diko!
As suggested in your holiday hacks, I needed to participate in family activities previously scheduled so caught most of this on the #replay. Again, aMAZing job, #wehaveMS! In answer to a question you posed-yes! Our family would LOVE to see more of this kind of live or replayed Q&A. Education is empowering! Second, please message me about what I can do in 2019 for this #wehaveMS community. Would love to volunteer my time toward furthering this effort. As you know, our family lives over an hour away from your support center. Whether you’re a 1, 60, or 60,000 miles from an MS support center there are just times when you plain can’t leave the home for whatEVER reason, so please accept my invitation for contact to do what I can as a volunteer toward this endeavor. I LOVED your analogy about type 1 diabetes in regard to making MS boring! Our family would love to have a boring clinic visit! I say, “our family” because it is my 22-year-old son who has MS. However, #wehaveMS. Anyway, I can vouch for the fact that Type 1 diabetes is best boring. In 1988 one month before my daughter was born, my best friend, Nancy, dropped dead at the young age of 29 in 1988. She experienced complications from childhood type 1 diabetes and it took her life. Today? You hear very little about that disease-as you so eloquently stated. Thank you so much for your endeavor to make MS that boring! My husband watched this with me today. Yay! Go us! And he has a question that I think is brilliant and I hope you can answer here. There is research that we’ve found or heard of that indicates that those who live closer to the equator have a lower incident rate of MS diagnosis. As well, low levels of vitamin D can contribute to a negative outcome with MS as is eluded to here in your live. Hubby’s actual question is this: Is there a way to preemptively help prevent disease from surfacing, for example in future generations, ie, our grandchildren, by-again for example-moving closer to the equator or preemptively pursuing an aggressive vitamin D therapy? Theoretically?
Howdy Mamma JoJo! TY for the overly kind offer to help. Let me put on my thinking cap and we'll chat soon I hope!
Aaron Boster MD I’d put a heart in there instead of a thumbs up but just not sure how. Hahaha. Sounds awesome. Would love to do what I can.
Missed it live but watching now! This is awesome!!! Thank you for doing this! Back home in Ohio now....spent Christmas in Kentucky.
Welcome back to Ohio Maggie Mae! Glad you enjoyed! I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend?
@@AaronBosterMD monthly would be awesome! Best time for me would definitely be evenings. This was so cool! You rock!
Awesome help session. Thank you for taking your time to do this. You are so caring.
I had a blast. Thinking of doing this regularly. Think a monthly Q&A sounds solid? What day/time would you recommend?
@@AaronBosterMD depends on your schedule. I will try to be available when you are. I no longer work so my schedule until holidays is pretty free. Lol. MS made me a full time mom and they are adults so I am no longer needed as much. Lol
Merry Christmas to you and your family 🎄🎁
Thanks for being so open about depression.
We need to #NormalizeNotStigmatize Karen!
Bless you and Merry Christmas! I’m having a hard time getting a diagnosis, it’s nice to watch your videos and kinda get a idea of what I might be handed. Thank you for doing this for people!
Hugs!
Loved this! Hope you do it again! Thank you!
TY Kristen! It was a fun experience on my end too! Would weekdays after 6pm work for you?
That would be perfect! Thank you! :)
Thank you for taking time out today. I'm sorry I missed this and I do have a question so would love to see you do this again.
Howdy Dave! What's your question, may I ask? Also, I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend?
@@AaronBosterMD I'm in the UK, near Sheffield, so I'd prefer an afternoon or morning considering time difference etc. I actually have two questions: firstly, I have two daughters aged 11 and 14. Should they be taking vitamin D supplements to reduce their likelihood of developing MS? Secondly, I was diagnosed in 2008, but I my diary documents a big relapse in 2004 and I have occupational health reports from work documenting doublevision and tingly fingers in 1997. Officially, I have RRMS. How do I know if this has progressed to SPMS? I haven't had a big relapse since 2008 but feel like I'm on a gradual downward slope. Thank you for your time.
Hey Doc! This was incredibly informative! Liked, subscribed, and hit the bell!
That is so awesome Cathlene, TY for liking, subscribing and ringing the bell! I genuinely appreciate that! I'm trying to put out a video a week, but recently I get overly excited and have done a lot more! opps!
@@AaronBosterMD I sincerely doubt any of your followers would have any issues with you not only doing more videos read more idten, but I also agree the QA was awesome! I know for me, sometimes I just have the words, patience, time to convey what is going on with me in my 15 minute window...appointment. I am jealous of your patients you really do care, that is evident. :)
Merry Christmas and Thank you from Sydney Australia
My pleasure and TY for reaching out! 'm thinking about doing another Ask Me Anything Format LIVE Q&A on New Years Eve Day. What do you think? Too soon? If you'd attend, would 12-4p or 4-7p EST be better time frames?
@@AaronBosterMD I'd love you to do another. Just to sure if you have it on TH-cam again as we're asleep when you go live. I love your work. I have to admit I was quite depressed about having MS until I started seeing your videos. I'm still not happy about it but at least there may be hope now
I missed this, but totally agree it’s a great format! Weekend is probably best in terms of timing. I don’t have a question, but you know I think you’re the best around!! Happy Chanukah.
Howdy Stephanie and Happy Chanukah! Wishing you and yours health and happiness! TY for the helpful feedback!
Sorry i missed this :( Thank you for taking time to do this. I really appreciate it. Would love to see more if possible.
I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend Ernie?
Aaron Boster MD That would be awesome. Weekdays night is a good time i think. Again thaks so much for doing this.
Thank you for sharing your knowlege on MS !! Much appriciated! Merry Christmas and æ happy New year from Norway 🎅🌲🎅🌲🇳🇴
Howdy Lena and TY for the kind words! #WeHaveMS
Got 2 the party late but watching the video. Really gr8! From So Cal. 😎
Shout out to So Cal!! Howdy Mary!
Merry Christmas! I’m from Nashville, TN!
Howdy April and Happy Holidays to you and yours!
Merry Twelve Days of Christmas to you, Dr. B !! :D
Indeed!
This live Q&A was the highlight of my day, and the most satisfying gift I received on Christmas day. Thanks Dr. Boster, I appreciate you!
Howdy Josh! So psyched you liked it man! I'm thinking of doing this again maybe even once monthly. What do you think? What time/day would you recommend?
Sunday evening would be ideal for me. However, I will be tuning in regardless of day or time!
Greetings and Merry Christmas from the United Kingdom. Gutted I missed the live session. Indeed the format is outstanding - the work you are doing will help generations, MSer themselves, of course, but their families at the same time, to understand complexities and the broad spectrum of the disease. THANK YOU and Happy Holidays.
TY for the heart warming feedback! I hope you enjoy the replay and hope you can join me LIVE at the next Q&A Atif!
From one Mastiff owner to another... A big sloppy kiss of thanks
Woof! ;)
Hello and Merry Christmas from Ontario Canada. Missed the live stream but I enjoy all your videos. Thank you so much for taking time out of your busy Christmas Day to spend some time with us. Merry Christmas and Happy New Year from my family to you and your family.
TY Shannon! Happy Holidays to you and yours!
I love your videos you have taught me so much about MS. I was wondering if you have a video on how the new ms drugs are changing the outlook for our future with MS. If not is there any information you know on this topic ? Thanks so much . I am in New Zealand 🇳🇿
Please check this playlist out: th-cam.com/video/_tWRMuPjaz0/w-d-xo.html
Hello Dr.Boster, thanks to You for the ongoing effort and compliments to Your wife for initiating and allowing today's session.
During that I came up with one short question and a rather ample story to share, I will add each one to matching videos of Yours on this channel :-)
Happy holidays and a great new year to You and Your loves ones. And thanks again!
Thanks Martin! I'm thinking of making live Q&A a regular thing. what are your thoughts?
@@AaronBosterMD One "tuning" tip for regular Q&A: have one single topic each time (and strictly handle just that, no matter what :-) ). As well as I can tell a lot about VitaminD, others surely have relevant experience and/or dense knowledge, or questions about other interesting topics, but it would get lost in an ocean of good stuff due to too many different topics at once.
Hi, I have a question for next time! Can you discuss the recovery phase immediately after round 1 Lemtrada? The how and why? I just finished round 1 the week before Christmas and I'm having trouble finding info to explain what is going on in my body and why it's making me feel weak and not hungry at all! I'm all for Lemtrada, and happy that I made this choice. I'm thinking that maybe some real life info on this topic will ease some people's fear of the drug. Thank you Dr. Boater for being who you are and caring! Your videos have really made a difference in my life!
Great topic, TY!
This was great! Thank you
YW Linda. I'm thinking of doing another LIVE Q&A after work - probably for an hour between ~4-6p NYE!
Hi, Dr. Boster .... Are you taking new patients?
Yes indeed. We see upwards of 18 new patients each week at OhioHealth MS center!
Thanks for this LIVE Facebook Q&A! Unfortunately I missed it live but I'm happy to have been able to watch it! If you are able to do this monthly (within your busy life) that would be great! It's wonderful to have conversations with you!!☕ ☕☕☕16 CUPS ☕☕☕☕OF COFFEE ☕☕☕☕ A DAY!!!☕☕☕☕ Wow!! 👍👍👍👍👍No wonder you're so hyped up when I see you!!! 🤣😂😄
LOL! It's not always 16 cups (but almost always very close!) lol
@@AaronBosterMD lol!! It's all good!
MERRY CHRISTMAS 🎀🎄🎀🎄🎀 FROM TRINITY, Al .... I HOPE YOU HAVE AN AMAZING DAY 🎀🎄🎀
Thank you so much for sharing all that you share with us!
My honor and my privilege Belleh!
Happy Holidays to you and yours!
Please make more of these!!!!🤗🤗🤗🤗🤗😀😀
Howdy Abby! TY for joining me LIVE today! I had a blast!
Merry Christmas Dr. Boster 🎁🎄🎁
Merry Xmas Matt! Wishing you and yours health and happiness this year!
This was awesome, thank you Dr. B. I still think you should try mulled wine. A quick question. I have had spacity in my left arm. My arm is in constant pain now. PT is telling me it acts as a rotator cuff issue. But she also senses spacity issues too. Can spacity cause damage to the joint?
over time yes it can
This was great ❤️made my day,thank you👍🏼
YW Stjernoga! So glad you liked it, I had a blast!
You mentioned sx don't come on as a "thunder clap". I've had 3 episodes--2 during a bad prolonged flare and 1 isolated episode--where I am aware it's happening, but become acutely dysfunctional...unable to process conversation, unable to remember fully, unable to handle money or debit card, fumble and "can't pull my act together". All 3 episodes have occurred in a place of business. I have been able to either sit in my car or with a friend until episode resolved in about an hr. My EEGs have been normal. Once resolved, I am totally back to baseline (which does include a moderate amt of cog dysfxn). Could these acute episodes be MS related, even tho they are acute and transient?? No anxiety or other sx that could otherwise explain them. 1 was witnessed by a friend who confirmed an acute distinct behavior change w/ subsequent recovery.
Hard to say without seeing you in clinic Kimberly!
I see the question for what time on NYE on my cell phone but I can’t find it to answer. I have am AST tests so please to PM EST.
My current thought is to open up an AMA live Q&A around 6pm. I have to goto clinic and WORK 1st LOL!
Question for the next live that’s popping up in my Lemtrada mommies group: What is the risk of PML with Lemtrada (specifically for those of us that are JC+)? Thanks.
The only cases reported to date were considered "carry over" cases from tysabri associated PML (they found the PML on the tysabri scans prior to switch).
Yes
right on !
Thank u again for your videos and the live ones are awesome! Talking about stress my doctors are causing the major stress (we know that something is wrong we just don't know what) was misdiagnosed as having a syrinx because what they saw was not on the second MRI one Neuro tested for nmo it was negative thought I had sjrogen but tested negative thought I had lupus but negative was tested for mysthenia gravis but again blood work negative tested for Lyme 2 times negative . now the pain clinic tested spinal fluid but they didn't check of bands but checked mylen basic protein which was elevated. Now I had to see a hematology for elevated white blood cells in blood well I tested a low positive for a jak2 gene mutation along with low levels of erythrocytosis when I went to the visit to talk about all the test he is just going to recheck my blood in 6 months .So still no diagnosis.So I'm going to get a refural to Cleveland clinic.This is just frustrurating. So we will see. Thank u for all you do I did tri to get in your clinic but they said they do not take indiana state insurance so I was numbed out.
Howdy Shannon. I'm super bummed that insurance created a barrier to your care. If it ever changes please reach out to clinic again, we'd love to try to help!
Kentucky
Howdy Denise from KY! Wish you and yours health and happiness!
How do you spell that medicine you're taking?
are you asking me that question Nicole?
When you said Ocrevus improves 3 months of disability, does that mean it can revert you back to whatever level of disability you were at 3 mos. ago or that you get only 3 mos. of improvement? Thank you
The measure, called Confirmed Disability Improvement, was defined in the trial as seeing improvements on the neurological exam that were maintained for at least a period of 3 months. Other trials (e.g. CARE MS1 and 2 with Alemtuzumab) used a 6 month definition. In both cases, CDI is "dynamic" and worsen again down the line.
Aaron Boster MD oh so sorry to hear that 🙁 I have had a remarkable CDI on Ocrevus and I’m just past the 3 months mark. If there is a worsening again, is there further improvement with subsequent infusions or should I just be grateful (I’m ecstatic) that I’ve at least had this opportunity to feel normal again and look forward to slowed progression? Thanks!
You may very well maintain the benefits you have seen Elizabeth! It's possible!
By the way, I’m in a study that’s monitoring OCT changes for people with MS q 6 mos. x 2 yrs. and the first f/u after Ocrevus demonstrated retinal nerve thickening (my terminology may be incorrect). Are you seeing this in your patients? Could this be re-myelination ? Sorry for bombarding you with questions. Thank you thank you thank you
That's exciting and TY for participating in MS research! I'm not sure what explains that and I think at this time we don't really know...BUT IT EXCITING!
So safe too take it madenglad
What's PML?
progressive multifocal leukoencephalopathy. It's a bad brain infection.
Australia :)
Howdy Jodykeo!! That's on my bucket list to visit!
There is no chechoslovakia
Opps! Shame on me for not remembering my history. Czechoslovakia became Czech Republic and Slovakia. TY for pointing this out!