What's New in Calcium Pyrophosphate Disease? with Dr. Michael Pillinger

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  • เผยแพร่เมื่อ 4 ต.ค. 2024
  • NYU's Dr. Pillinger talks about Dr. Ann Rosenthal's state of the art talk on calcium pyrophosphate disease at ACR 2020.

ความคิดเห็น • 17

  • @mj9949
    @mj9949 ปีที่แล้ว +6

    I was diagnosed with CPPD today. I appreciate this video. There is not too much information out there.

  • @TyeTyson
    @TyeTyson หลายเดือนก่อน

    I am thankful that it is getting some attention. At 46 years old with excruciating flareups in my feet and ankles, people like me need help.

  • @richardayala4356
    @richardayala4356 9 หลายเดือนก่อน +1

    I had knee surgery two months ago to repair a torn meniscus, and four weeks later I had an agonizing flare up of my knee, later diagnosed as Pseudogout, my first, and hopefully last. You presented good data that I can take to my primary physician for follow up for me medically! I am 75 and don’t recall any medical history in my family in having this. Liked and subscribed.

  • @kle4nea
    @kle4nea 3 ปีที่แล้ว +2

    Thank you looking forward to having a treatment for this disease.

  • @nickob55
    @nickob55 ปีที่แล้ว +3

    I had an attack in my left hand after a large dose of spinach and stumbled on the oxalate theory, so I cut out all oxalate foods and take 500 magnesium every day, and seems to have mobilised the calcium which has now built up in my heel pads, not too painful, just a bit of pressure, which then has formed a head on both heels and broken out. I can squeeze the calcium out like toothpaste, and is such a relief and build up every day so Im hoping all the calcium is heading here slowly. I also use a plantain poultice on the area.

  • @elizabethwinsor-strumpetqueen
    @elizabethwinsor-strumpetqueen 2 ปีที่แล้ว +7

    Knee pain, 9/10.....not good - sugar intake was increased just prior to the attack.
    Thought I had gout... Psuedgout... Not fun....

    • @lernmor2137
      @lernmor2137 2 ปีที่แล้ว

      Similar, in my left knee. I was on hydrochlorothiazide prior to turning to Allopurinol, which really wrecked my body.

    • @ferngarner1
      @ferngarner1 ปีที่แล้ว

      Yes, both knees, 9/10 at times. Pseudogout diagnosed several months ago.

  • @LifesLaughableMoments
    @LifesLaughableMoments 2 ปีที่แล้ว +4

    Hello! I was diagnosed with CPPD in my neck (dens, C-1?) in March 2020. I was on Prednisone and other medications for a little while. My doctor said it was pretty rare, but I don’t know how or if this affect my future. At the time, my pain was 9/10. I haven’t had the same pain since, but I’ve had some neck pain. Have you heard of this?

    • @pixelatedmushroom
      @pixelatedmushroom ปีที่แล้ว +2

      Hi there, I believe my wife has CPPD arthritis. Her pain is also 9/10. What did you do to make it better, just curious?

  • @robinkent806
    @robinkent806 ปีที่แล้ว +2

    My family was a case study by Dr. Bradley at Indiana Univerdity we have been dignosed 5 generations of CPPD and it has been very known to be highly aggressive in my family. I have a very severe case of it and am only 59.

    • @DeterminedZone
      @DeterminedZone 9 หลายเดือนก่อน

      Is it in your hands?

    • @larryalexander4833
      @larryalexander4833 6 หลายเดือนก่อน

      I took have been diagnosed with a severe case. I have calcium in most of my joints including my neck. I'm on medication that was helping the last few months but last week it has been rough and painful. Any info or suggestions would be appreciated. I'm 52

    • @MrPaintedwings
      @MrPaintedwings 5 หลายเดือนก่อน

      Do you also have Hereditary Hemochromatosis? There is a link between that and CPPD

    • @larryalexander4833
      @larryalexander4833 5 หลายเดือนก่อน

      @@MrPaintedwings not that I know of ,but family is not close anymore. My younger (14 years younger) sister has lupus. We have the same father . We have discussed this .

  • @Margaret709
    @Margaret709 6 หลายเดือนก่อน

    I have had four hand surgeries to remove the crystals from my left palm. Osteopenia. My left leg has deposits in two areas. I am interested in your work.

  • @MrPaintedwings
    @MrPaintedwings 5 หลายเดือนก่อน

    You did not mention that a cause of CPPD is Hereditary Hemochromatosis.