My God Bless each and everyone of you. I took care of my mom started at age 16 till I was 19 years of age. She passed when she was 42. Huntington's took my sister as well she was 38. To me this disease took all the women from me. It's the devil in my eyes. Now it's many years later and Huntington's will not get anyone else in my family. It has died off. I didn't have children for fear of carrying it to them. May God send the Angels to watch over all of you.
Thank you for sharing! I lost my brother to HD and the toll IT took on our family was extremely difficult. As I watch this vid, I remember visions of my mom neing there for him everyday. He died at home and I was there, thank GOD. My brother had the same sense of humor and never complained. I don't know how but he made me laugh. It still hurts my heart and I still cry. Seeing this vid made me cry but all HD patients are ANGELS.
Just a bit of explanation regarding what was going on. Bob had developed an abscess from nothing in the morning to the abscess the size of a half-dollar that evening. Thank you to our hospice company that came out that night. Our fear was that Bob might turn septic. Thank you to Rae for convincing me to show off my bad guitar playing :)
Thank you for sharing. I know how you and your family feel. May God continue to help you and bless your family. It's in our family too and my younger brother was just diagnosed. May God help us all🙏
@@ruthb.8508 God is. No need for your sarcasm on a video like this. NOONE WANTS TO HEAR IT. People want hope and God is good you better hope u find him before it's too late for u.
Thank you Dave, Sue, Bob and Emily for sharing your story with the world. Your family is inspirational and clearly shows how Huntington's disease devastates families for generations. Hope to talk to you at the HDSA Convention in June.
This is the worst disease of all. This young man is blessed by having a kind and loving family who give him wonderful care. I pray for all those who suffer from this horrible plague and for their caregivers.
Thank you so much for sharing such an honest portrayal of living with Huntington's Disease. The love and support in the Hodgson family is an inspiration to all of us in the HD community.
Thank you, Dave, Susie and family for sharing your story. ALL of you are inspirations of how to live with so much tragedy. Your humor, dedication and sacrifice are second to none. We love you.
As part of your HD Community, I thank you for sharing your story and the reality of the daily challenges of this disease. I send you love and prayers for continued strength and courage. Sending extra love and prayers to Bob and Emily.
Sending you love and all of my prayers. Thank you for boldly welcoming us into your home and for sharing your story. Your strength, dedication, and unwavering love is inspirational. You're not alone. The HD community stands with you.
It really isn't fair to ask children to watch or to provide care for parents who have HD. Why? Because these kids are abused by the parent. Regardless of whether "it is the disease" it is still abuse of a child or teenager. What is even worse is that having been cheated of their childhoods, they will go on to have no future. Most of the those kids who then have HD are caring for their parent, until they themselves are affected by the disease. That means no time of freedom in their lives. If the partner cannot care for the HD patient, then the patient should be placed in a care home. Kids can visit--everyday if they want to. They have a shortened life. They should be able to enjoy that short life.
My God Bless each and everyone of you. I took care of my mom started at age 16 till I was 19 years of age. She passed when she was 42. Huntington's took my sister as well she was 38. To me this disease took all the women from me. It's the devil in my eyes. Now it's many years later and Huntington's will not get anyone else in my family. It has died off. I didn't have children for fear of carrying it to them. May God send the Angels to watch over all of you.
Everyone who has or deals with this monstrous disease is a profound hero.
True story.
I’m glad he got to enjoy all that guitar playing and singing. I’ll bet that made a big difference for him by adding a certain brightness to his life!
Thank you for being so candid. “I can do all things through Christ who strengthens me.” Philippians 4:13
I pray Peace over your family.
Get the show on the road conquering the monster diseases.
Thank you for sharing! I lost my brother to HD and the toll IT took on our family was extremely difficult. As I watch this vid, I remember visions of my mom neing there for him everyday. He died at home and I was there, thank GOD. My brother had the same sense of humor and never complained. I don't know how but he made me laugh. It still hurts my heart and I still cry. Seeing this vid made me cry but all HD patients are ANGELS.
Just a bit of explanation regarding what was going on. Bob had developed an abscess from nothing in the morning to the abscess the size of a half-dollar that evening. Thank you to our hospice company that came out that night. Our fear was that Bob might turn septic. Thank you to Rae for convincing me to show off my bad guitar playing :)
Ok,
Thank you for explaining.
And thank you for showing me what unconditional love really means. ❤🥺❤
thank you for sharing your life with hd with us. it is also in my life, past and future
Thank you for sharing. I know how you and your family feel. May God continue to help you and bless your family. It's in our family too and my younger brother was just diagnosed. May God help us all🙏
@@jennhow3095 Oh yes ! I see that god is helping a lot!!
🙈🙈🙈
@@ruthb.8508 God is. No need for your sarcasm on a video like this. NOONE WANTS TO HEAR IT. People want hope and God is good you better hope u find him before it's too late for u.
A harrowing film to watch, and it is a mothers reality. I am lost for words
Thank you Dave, Sue, Bob and Emily for sharing your story with the world. Your family is inspirational and clearly shows how Huntington's disease devastates families for generations. Hope to talk to you at the HDSA Convention in June.
Thank you for sharing your story. Have enjoyed getting to know your sweet son over the years at HD conventions. We hope everyone can find peace.
This is the worst disease of all. This young man is blessed by having a kind and loving family who give him wonderful care. I pray for all those who suffer from this horrible plague and for their caregivers.
Thank you so much for sharing such an honest portrayal of living with Huntington's Disease. The love and support in the Hodgson family is an inspiration to all of us in the HD community.
What wonderful parents.
Thank you, Dave, Susie and family for sharing your story. ALL of you are inspirations of how to live with so much tragedy. Your humor, dedication and sacrifice are second to none. We love you.
As part of your HD Community, I thank you for sharing your story and the reality of the daily challenges of this disease. I send you love and prayers for continued strength and courage. Sending extra love and prayers to Bob and Emily.
thank you for sharing your story.
Sending you love and all of my prayers. Thank you for boldly welcoming us into your home and for sharing your story. Your strength, dedication, and unwavering love is inspirational. You're not alone. The HD community stands with you.
Thank you for sharing your stories. Very moving and powerful.
I wish I could help. Im poor basically so I can't help that way. What could I do? Anyone?
It really isn't fair to ask children to watch or to provide care for parents who have HD. Why? Because these kids are abused by the parent. Regardless of whether "it is the disease" it is still abuse of a child or teenager. What is even worse is that having been cheated of their childhoods, they will go on to have no future. Most of the those kids who then have HD are caring for their parent, until they themselves are affected by the disease. That means no time of freedom in their lives. If the partner cannot care for the HD patient, then the patient should be placed in a care home. Kids can visit--everyday if they want to. They have a shortened life. They should be able to enjoy that short life.
Do you have to pay for the care yourself 😮?.. In Denmark it is all free🙏