Huntington's Disease: "We Need to End This"
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- เผยแพร่เมื่อ 12 ก.ค. 2016
- Terry Warren of Illinois discusses his family's journey with Huntington's Disease, a year after it claimed the life of his young wife Jenny. Today, he and Jenny's children work to raise awareness of Huntington's Disease, along with money for research. Donate today at www.HDSA.org or learn more about Terry and his family at www.vitas.com/
I'm crying. Totally heartbreaking. Prayers that your boys haven't inherited it.
Your wife would be so proud of you. Such a legacy for her. Be happy and remind your sons what a beautiful mother they had.
i guess Im randomly asking but does anybody know a method to get back into an instagram account?
I somehow forgot the account password. I love any help you can give me.
@Hudson Jace Instablaster ;)
@Felipe Jaxen thanks for your reply. I found the site on google and im in the hacking process atm.
Takes a while so I will reply here later with my results.
@Felipe Jaxen It worked and I finally got access to my account again. I'm so happy:D
Thank you so much you really help me out!
@Hudson Jace happy to help :)
My heart goes out to this man, I have 4 grown children, 34,37,38,40. Only the 37 year old shows signs. He is very angry, with outbursts, etc.. I am petrified of his future. He has not tested yet, he has expressed interest recently in getting the genetic test done tho. Pray for us please... I am so damn scared. We did not know anything about HDuntil my ex wife found out her biological mom died at 52 from it, she at 61, and her sister at 59, both are positive, ex wife is in end stages and ex sister in law is close behind...they lost a half sister a few years back in her early 50s.. god bless this man and his children and his wife...♥️👊
I hope you're doing well, man, you and your children! I don't believe in god but my thoughts will be with you. I hope everything turns out well
Any updates?!
I feel your pain. You’re a great Dad.
May your wife Rest In Peace and may god be with all those people with Huntington’s Disease.
I know its been 4yrs. But im so sorry for your loss. Rip angel
You are a wonderful husband and father.sending love and prayers to your family.
My grandmother died from Huntington 's and my father wasn't tested. I am not symptomatic. This disease is brutal and I pray that the medical experts find a cure soon. I am sorry for what your wife and family are doing through. Pray for her and your family.
Amazing man, husband and dad ..........
You have gone through so much! I'm sorry for your loss. You deserve to have some rest, quiet down time. Bless you and your family.....I care.
I am so so sorry for your loss🙏🏻
Well stated. So sorry for your loss. Your wife was so young.
What a Beautiful Soul, thinking of you all❤
I am Mary from Irl.Two of my bros.died WITH IT.R.I.P.ONE sister living wit hit.Form of slow death. Ot a very very tough disease.
thank you for sharing your story...im sorry for your loss and I wish nothing but the best for you and your boys
My aunt had this and all five of her children had it. This is a horrific disease.
God bless you and your boys I’m so sorry for your loss😢🙏🏻my bonus daughters mom has it and it’s so very hard to watch her get worse over the last 3 years. She just had a baby 4 months ago and basically lost any custody she should of had as a mother, she has Worsened physically and mentally since giving birth, my heart just breaks that there is lil I can do to help her, other than be a friend to her & bring her daughter for visits❣️💔💔💔
Praying for a cure🛐
Interesting this the 3d story that I read today where the symptoms starter or worsened during pregnancy. I really hope that she can still spend time with her baby and other children, with supervision of course, it must be so traumatic to lose your baby, that itself could make symptoms like depression specially worse. So hard for the children too.
My daughter in law really started showing symptoms after pregnancy. I have felt for several years there is a correlation with the progression of HD and pregnancy.
Did she get pregnant knowing that she had
HD? This disease could be eradicated so easily...
My mother is also suffering from Huntington disease since 7 years(India)
I am sorry, we love you,
My niece wasn’t tested and doesn’t want to be...she went on to have two kids..ones 16yrs old the other is 13yrs old...I fronted her about this she seems to think they’ll have a cure..I am furious she choose this idea of life.
I would never chance that. I just had 2 kids without knowing my partner had it. We just found out last week.
I think its not okay to judge....
It's just so selfish. If I knew I had the disease or even had a 50% chance of having it, I would absolutely not have children. The horrible thing about this disease is that the more generations the genes are spread into, the younger the affacted person will be for each generation for developing symptoms.
It's due to the number of repeats of the CAG in the HTT-gene. The more repeats, the younger the patient will be developing the disease and since spreading the faulty gene by having children, it will ALWAYS result in getting more of these repeats into the DNA of those children, who inherits the disease.
That's why Juvenile Huntington's Disease exists. Children are literally beginning to get this disease as well. People seriously need to stop having children, if they know they have a chance of having a disease like this. It's not a worthy life to live for anyone affacted.
Have they been tested
@@mariamgrote6824 In this case it might be. Lives are at stake.
amazing man and outlook
I'm so sorry for your loss. How long were you married before you guys found out your wife had HD and how old was she when she passed?
🙏🙏🙏. There are no words 🙏🙏🙏
Heart breaks for his pain
Thank you for telling people not to spread it. My heart gord out to you
May God save your two sons🙏
And still today we don't have any disease modifying treatments. It's insane
I have a sweet friend I know that has it I visit often
How horrible and sad :'( Wish HD and all of the ataxias were juvenile diseases,than there would have been no sufferers by now. The older generations did'nt know about genetic diseases,so they never got tested,it just went on and on for generations,causing heartbreak and sorrow - it is a curse! The healthy parent also feels so responsible for his or her children's condition. It's a silent killer to every member of an affected family.
Husband and I been married a long time, he and I had 6 kids before we knew the weird movements in his dad's later life was huntingtons and you are right huntingtons is a disease from hell. Husband has changed so much there is not alot of what I had known for many years left. 2 of the 6 don't have it. 4 sons have not wanted to do tests to find out yet. I told Husband knowing with every baby we had, there is a chance as an adult they could have huntingtons. I have alot of guilt.
Olá, espero que fique bem❤
Seus filhos são lindos! Que Deus proteja seus filhos dessa doença ❤
This Story breaks the heart of anyone.
For all those, which are in trouble wit this horrabil illnes, maybe the following words may help:
The first cure according to Huntington`s disease was in 1973. It took 22 months. The
proceeding is documented in the book “Orthomolecular Medicine For Everyone”,
written by Abram Hoffer, MD, PhD, and Andrew W. Saul, PhD. Abram Hoffer was
asked, if a treatment with a meagavitamin therapy could help to slow the rate of
deterioration. He and his patient understood that there had to be no
expectations of recovery on anyone´s part. Relating to the start of the
treatment the Patient remained well at its end.
Everone can have a look into the web sides of the "Journal of Orthomolecular Medicine" for furter Information.
we need to end this, cedar
Sorry I am 44 fighting dad’s side
No cure for this disease??
No
It's a very fighting disease
WHAT ABOUT MY MS,,GIVE US A CURE TOO
I've had MS since 1995. I've been in a w/c for that last 15 years. I'm too far gone for a cure to help. My leg muscles have wasted. I would love to see a cure for others.
Video is about HD.
They find a cure for that...MS would have a cure as well..
May God bless you n your family. God knows everything n he will help you get through everything, In Jesus name I pray, AMEN.
WWJD
I recommend Dr Oje Abacha on his TH-cam channel for getting rid of my Huntington disease.
Bullocks
@@viderethevaccinatorfromhol7536
Report posts like this as unwanted commercials, because they are. From scammers giving terminally ill people false hope. It is disgusting. 😡
Huntington 's disease does not have a cure yet.
God bless you and yours.🤲🙏