I am 27 .. i had MG since i was 9 years old .. i am everyday worrier fighting MG. ! I am on medication but i am living perfect life. I am an engineer go to work everyday and mother taking care of child and i go to the gym everyday !! Love life, stay positive ☝🏼
Your TH-cam is fun to watch and I appreciate your efforts of the video. I am weak with MG I have difficulty breathing and swallowing. I have extremely droopy eye lids. I am 70 years of earth. I have a mobility dog named LuLu. She is wonderful for me, sometimes she helps me to stand up. I work, too. I assist veterans in filing their claims for disability service-connection. I am the founder of a job that now has many people working at this for our veterans. Knowing that you are a suppoort group for me to see and hear...happy for it.
I had my first IVIG treatment yesterday and my second today. I've never met anyone with MG. I'd love to travel from St. Louis, Mo. to eat y'all. MG isn't going to keep me down!!!!!!!
Im 30 years old. I was diagnosed with Myasthenia Gravis last month. At first I thought my weakness was the 30s "hitting me hard". But when it got to my breathing, my chewing and my swallowing, I knew something was wrong. I am glad to have the neurologist I have, she has helped me be better, even though the weakness still prevails, Mestinon has made me feel better. And this video made me feel like Im not alone, and that Im understood. I eish I lived over there to go to those meetings!
How they diagnose you? Because my doctor couldnt find what is wrong, we thought it is narcolepsy..weakness is so huge it paralized me, and i Lost mouth muscle control, i hope you are better❤
This is lovely, what a beautiful bunch of people. I think I may have this but I am afraid my doc might judge me for self diagnosis, especially if I'm found not to have it
Be confident. I told the neurologist I had this, of course, they always leave room for doubt, but I nailed it. She and I were joking about how right I was afterwards. Make sure your doctor is supportive and sympathetic too. That helps out a lot!
I have MG since I was born, I am now 23 and still under medication distinon 60Mg, I just saw video where this and removing the thymus can improve the body, can someone please help me.
Hi I am having MG for about an year. its now under control but it does sometimes show up.... I'm worried and not sure whether having MG will be obstacle for me to conceive ..
This picture is not me, I share a Computer, I believe I have MG. I was 36 years old when my health took a drastic turn. I had two children with birth defects, had to use a collar during pregnancy to support my neck. One child died after birth due to his heart being on the wrong side. I have struggled for 40 years with nerve and muscle problems but no blood testing or Thymus testing. I have bone cancer also a Bcell Lymphoma. I knew to see Neurologists, was wrongly diagnosed and sent away. (Gullien Barre)sp. I live in NCentral Florida and have gone to a "good doctor", meaning muscle and nerve who only did strength testing without considering my other symptoms and studies such as 3 abnormal brain Electrical studies. Obviously I need a MG Specialist. Where to go based on old studies? JFH
Hello, i am the mother of a Mysthenia Gravis patient , my daughter is 8yrs old and she is diagnosed with MG 2 months back She has every symptom like drooping eyelid, drooling, chewing and swallowing diifficulties, unable to write, unable to jump, run, climb and play with kids Please help my daughter, i need help Don’t know about line of treatment anything
I m 24 n suffering from MG since childhood gone through thymectomy..n now planning to get married is my pregnancy will be normal or there may be some complications??
stay positive.. for me, during my pregnancy i was doing better because I don’t get my period which usually make my MG worse .. nd i delivered my baby as a piece of cake .. stay positive!!
Hello.. I can appreciate your post in reference to MG. You got it right that you need help to fight, except you don't want to fight with it you want to fight IT. Also, if you were diagnosed 6 years ago, I would hope that you do realize that there is NO cure for this disease. There is treatments and medications but NO cure as of right now. SO.... If you are hoping to get cured I would hope that you have read or your doctor is educated enough to help you understand the fight not the imaginary cure.
I am 27 .. i had MG since i was 9 years old .. i am everyday worrier fighting MG. ! I am on medication but i am living perfect life. I am an engineer go to work everyday and mother taking care of child and i go to the gym everyday !! Love life, stay positive ☝🏼
What medication do you take?
Same condition here
Thanks for the info , just diagnosed 3 months ago and still figuring things out.
Your TH-cam is fun to watch and I appreciate your efforts of the video. I am weak with MG I have difficulty breathing and swallowing. I have extremely droopy eye lids. I am 70 years of earth. I have a mobility dog named LuLu. She is wonderful for me, sometimes she helps me to stand up. I work, too. I assist veterans in filing their claims for disability service-connection. I am the founder of a job that now has many people working at this for our veterans. Knowing that you are a suppoort group for me to see and hear...happy for it.
I hope you are doing well.
Love this!!!
Truly inspirational.
Thank you for this
I love it guys!
Thanks....
Thank you! Very helpful!
Thank you for video
great job guys! thanks for making this quality video. so much great advice. from a fellow MG traveler here in Texas
Love it! ❤ Greetings from Poland
This is a really fantastic video! Thank you for it! I have MG, too. Sending you all lots of good wishes from California!
Love it
Ist soooo good to see you all!😍
Thank you! You all give me hope ❤
Thank you. I love the facts that I am not alone. I love you so much
Thank You all that made me feel better!! Just been diagnosed three or four months ago.
Very inspirational guys! Gives me energy too!
A great video for someone like me who is recently diagnosed. Thank you!
Sending you all best wishes from Scotland. I was diagnosed in July this year, so early days.
Thanks a lot for this video really its helps me to think positively as a MG patient
Thank you! At the age of 73, I have just been diagnosed with MG.
I had my first IVIG treatment yesterday and my second today. I've never met anyone with MG. I'd love to travel from St. Louis, Mo. to eat y'all. MG isn't going to keep me down!!!!!!!
Meet
You guys did a GREAT job. Thank you!!!!! Rachel (from GA, living in TX)
Very good job, thanks to all , I am m g
V jawahar, kakinada city, state of andhrapradesh, India
Im 30 years old. I was diagnosed with Myasthenia Gravis last month. At first I thought my weakness was the 30s "hitting me hard". But when it got to my breathing, my chewing and my swallowing, I knew something was wrong. I am glad to have the neurologist I have, she has helped me be better, even though the weakness still prevails, Mestinon has made me feel better. And this video made me feel like Im not alone, and that Im understood. I eish I lived over there to go to those meetings!
How they diagnose you? Because my doctor couldnt find what is wrong, we thought it is narcolepsy..weakness is so huge it paralized me, and i Lost mouth muscle control, i hope you are better❤
This is lovely, what a beautiful bunch of people. I think I may have this but I am afraid my doc might judge me for self diagnosis, especially if I'm found not to have it
Be confident. I told the neurologist I had this, of course, they always leave room for doubt, but I nailed it. She and I were joking about how right I was afterwards. Make sure your doctor is supportive and sympathetic too. That helps out a lot!
MG affects my vision, breathing, copd,pain at thoracic,u steady gait.
Hi my 55 and I have MG two years I'm take my family to Hawaii from Xmas I keep herring about the heat what can it do
Hi im diagnos MG IS 19YEARS OLD.. BUT NOW 25years old..
How are you doing now?
I am 68 now and want to be your team member
I was getting Cortisone long time for my MG, but unfortunately, I get cataract disease because of this medicine.
I think that I have ocular maistenija graves.Wich madikment to use?
I am having mg for 3 years.
I have MG since I was born, I am now 23 and still under medication distinon 60Mg, I just saw video where this and removing the thymus can improve the body, can someone please help me.
Check with your neurologist if you qualify for an operation after remove of the thymus please ask questions to you neurologist
This was well done, but should have covered symptoms.
Hi I am having MG for about an year. its now under control but it does sometimes show up.... I'm worried and not sure whether having MG will be obstacle for me to conceive ..
Aruna Bala How control your MG
Can you help me??
I am sb kulkarni since last 3 years I am having this problem I am on destinon and micophynolate pl advice
I am 34 years old I was diagnosed with Ocular MG April 2021 till now no solution from Nigeria
Roberta Walker dx in 2008
I live in Bloomingdale, Ga 31302
I am from India, how to beat it
This picture is not me, I share a Computer, I believe I have MG. I was 36 years old when my health took a drastic turn. I had two children with birth defects, had to use a collar during pregnancy to support my neck. One child died after birth due to his heart being on the wrong side. I have struggled for 40 years with nerve and muscle problems but no blood testing or Thymus testing. I have bone cancer also a Bcell Lymphoma. I knew to see Neurologists, was wrongly diagnosed and sent away. (Gullien Barre)sp. I live in NCentral Florida and have gone to a "good doctor", meaning muscle and nerve who only did strength testing without considering my other symptoms and studies such as 3 abnormal brain Electrical studies. Obviously I need a MG Specialist. Where to go based on old studies? JFH
And you were never tested for multiple sclerosis?
My name is Anna (Miastenia gravis 2017)Polska
Hello, i am the mother of a Mysthenia Gravis patient , my daughter is 8yrs old and she is diagnosed with MG 2 months back
She has every symptom like drooping eyelid, drooling, chewing and swallowing diifficulties, unable to write, unable to jump, run, climb and play with kids
Please help my daughter, i need help
Don’t know about line of treatment anything
I don’t want likes, i need help
Please contact good neurologist immediately
Aishah, 21
Generalized MG
Malaysian
Anyone from here?
I m 24 n suffering from MG since childhood gone through thymectomy..n now planning to get married is my pregnancy will be normal or there may be some complications??
stay positive.. for me, during my pregnancy i was doing better because I don’t get my period which usually make my MG worse .. nd i delivered my baby as a piece of cake .. stay positive!!
Ocular maystheniya grewis
I am so scared. I am afraid I will die from this disease.
You won't!
How are you doing?
I was diagnosed with MG, 6 years ago please help me to fight with it. I take medication from last 6 years but it is not cured
Hello.. I can appreciate your post in reference to MG. You got it right that you need help to fight, except you don't want to fight with it you want to fight IT. Also, if you were diagnosed 6 years ago, I would hope that you do realize that there is NO cure for this disease. There is treatments and medications but NO cure as of right now. SO.... If you are hoping to get cured I would hope that you have read or your doctor is educated enough to help you understand the fight not the imaginary cure.
I am my MG patient my country Dhaka Bangladesh my problem 6 years
I'm 21 and i have MG and i cant speak because of MG. I need a little help here in Philippines
You need to see the neurologist who will look for the treatment that suits you, because you could be leading a normal life with the correct treatment.
I'm Myasthenia gravis patient...😔😔