yoooo guyssss!!! This video is another taken from the patreon vault - posted 12/11/23, if you wanna come join the fun i’ll drop the link below! big love homieeessss
The favorite thing i noticed, instead of scrolling on your phone or throwing on headphones and just chilling while the IV is in, instead you reach out to another person that is also getting treatment, and you share stories and support. Also, it's reassuring to see you behind the scenes, still dancing that eternal dance. Keep up the great work, and by that, I don't just mean the music, but being the stellar human being you are. Much love and respect.
That is an impressive lack of gag reflex, Ren. 😂 Big love to Josh for just always seeming to be the best friend, lieutenant, wingman, PA, Dad, cameraman, and legend in the background of so many videos going back years. ❤ And to Kai for helping bring us so many glimpses into the World of Ren. ❤
It’s crazy how over the years he’s had to become so knowledgeable about all these various medications because he spent so much time trying to advocate for himself to get what he needed.
I've only been physically chronically ill for two years (mental is a whole different game), but yeah, you have to know what you can handle, what works, what doesn't, and trust your gut if something seems off. I started a med, found a small blister in the middle of my back and was like, how did I get a blister in the small of my back??? Turns out I caught the VERY beginning stage of Stevens-Johnson syndrome, which can be very, very bad. Now, I get the pretty red allergy wristband at the ER!
My husband is getting infusions right now, because of his nerve damage from Lyme and Bartonella. He's likely to always need them. Keep fighting man. We see you. The representation means so much.
Always glad to see these videos come out of the vault. I think the health focused ones help people who aren't exposed to chronic illness have more insight.
Absolutely, he's become a champion to those that suffer from various chronic/autoimmune conditions through his willingness to share. Don't think I could do it tbh, suffered with severe Chrones since 6yrs (30 yrs now) been sliced and diced and left with liver and skin problems, steroid dependency and longterm side effects. Dealing with all that shit definitely effects you mentally as the world around you storms forward. It's hard for others to see the world from that perspective as everyone is wrapped up in their own lives. It very comforting and inspiring to actually see someone that's suffered to that degree be able to pull through and chase their dreams.
Christ Ren, it is one thing hearing about your daily struggles but seeing it is on another level. All those pills man! Glad you are slowly recovering, long may it continue xx
Most of us know your story and health issues you face on a day to day basis but seeing stuff like this truly makes it more real for those who don't realise the full extent of it. Thank you for sharing ❤
Hi Ren, thank you for sharing this! I‘m now in „Renthapy“ for a while and now I’m brave enough to stop my pills for my depression (thank you for Chalkoutlines!) i‘m not afraid anymore to being ok… stand brave, stand strong and never loose hope ❣️
I have my next appointment on the 17th. And I finally have enough courage to request specific test and talk about coming off my meds. I’m tired of just treating the symptoms, I want to find the real issue. And I want him to listen to me. Good luck with your journey. I’m crossing my fingers for you.
@@Juli1982mm just be careful with coming off them, always communicate with your doctors, and be honest with yourself about how you are feeling. Best of luck to you ❤
Oh Ren, you are an amazing man of deep empathy and strong will. Thank you for being such a valuable role model. This has definitely helped give a better picture of the amount of self discipline it takes to undergo month after month after month of treatments. I am so grateful this video is now here on TH-cam for a larger audience to watch. It is an Important video to be seen by the many who suffer from relentless pain and profound lack of auto immunity as well as a million other chronic conditions. Thank you, Ren. By sharing your healing journey, you inspire us to keep going. I celebrate your courage and determination in dealing with the demons of ill health. We can see your strength and you give us Hope. You Inspire us. If possible, please release all of these videos from the patreon vault. We need to see them all. They give us much needed solidarity, hope, and inspiration. You are a true hero 💜
How I wish with all my heart, that these treatments were fully funded for everyone with these horrific illnesses. So many of us suffer needlessly because, you know, the almighty coin comes before a person's health. So many of us struggle. So many of us die by our own hand, because treatments, in one way or another, are denied us. Ren, you're an amazing person to do so much for others, while battling for your health. Your insight, emotional intelligence and your empathy shine like diamonds. I know you have an enormous burden right now, exacerbated by a certain puppy that didn't get its rabies shot, so please remember to be kind to yourself, rest when your body tells you and remind yourself that even God had one day off...sending love, cariad.
Oh Ren it is truly amazing how you can tolerate needles. I have so much admiration for you in this moment. I had to really brace myself to watch this because I am so needle phobic I can’t even look at them, they are so triggering. I admit I had to look away at times. It comes from bruising easily and being treated with needles in hospital, roughly and painfully as a young child over and over again. The pills and the separating out of stuff out from individual pill cases I can easily relate too, as I have swallowed countless bottles of medications by the handfuls throughout my lifetime. Btw It was so nice and thoughtful the way you chatted to the girl in the clinic and reassured her, but then that’s the kind of beautiful person you are. Nice to see these videos being released to YT, makes me feel less alone in my own health journey. 💛🤗
I miss my vitamin drips. I can't get them in the UK unless I pay private, but I'm already disabled and can't afford to pay private. The catch 22 of the Medical Industry 😑
That’s the same in the US, at least for me. At this point, I work to have the insurance ……..only to be able to afford just the copays for all my specialists. My hospital bills are in the hundreds of thousands - and that’s WITH insurance covering some of it. Well people don’t understand- insurance doesn’t cover everything, so even if you have it, sick people end up plagued with medical bills for the crap insurance doesn’t cover. Insurance or no insurance, I feel like sick people still end up somehow always paying for medical bills. It consumes our lives.
Thank you for sharing a glimpse of what you go through ! The fact you were in clinic getting IV’s daily and still able to play music and release an album ( a #1 album at that) is a testament to your strength and love of music. Your kindness and empathy shines through. You are amazing. ❤
Can’t imagine taking that many pills!! Gives me a stomach ache just thinking about it. Appreciate you sharing your journey Ren. Looking forward to the new song 🤗
Kid i just wanted to tell you that you are a true musical Genius. My wife discovered you a few weeks ago and you blew our minds. Wow. Keep it up. You are amazing. Your writing, voice, playing, you are truly one of a kind.
A home health nurse’s worse nightmare would be having to write down every med you take and fill a medication minder box for you. ❤❤❤ sorry you have to go through all this. Much love from Texas!
By sharing your story you have helped those of us with chronic diseases, disorders & conditions remember that we're not alone and have a voice!!! Thank you so very much. 😍🤗😍🤗😍
I asked Sick Boi (merch) on IG if there are plans on getting the sweatshirts released (SGP attendees got the chance to purchase first...as they should). They responded saying they DEF have lots of new stuff in the works coming 🙌🏼
I take 24 pills a day and a once weekly dose of another med, and I thought that is a lot! I'm sorry Ren. If I were talking to you like you were my son, I'd tell you that you are a survivor, an inspiration, and that I'm proud of the person you are, that you have the unique ability to connect with people by just being the good person you are. Much love to you, may you continue all you have started, all you hope and dream of! ❤❤❤
@thanossnap4170 my medicine cabinet is just a full and I go to the clinic twice a week. But appreciate the mere fact that I am able to treat my chronic illness even if it is tough some days. Like you so eloquently said...sick or not we all have our struggles in one way or another. What's important is that we lift and support one another and keep fighting the good fight 💪 ❤
Ren I’ve said this many, many times and I’ll keep saying it, you are the truest legend💯! You have helped so many people with your bravery and your music including myself. You my friend are like NO other and I’m so blessed to have come to know your music and we are all blessed to get a glimpse into your daily life. Much love always and mad respect fam💯🫶🏻❤
Ren, word of advice if you don’t mind. Have your veins checked by an interventional radiologist. Mine got scarred from needing long term IV’s for over a year (oh and they like to roll away and they are super thin) - and once that happens, they’ll never go back to normal. Two midline’s and a PICC line all failed and my arm got infected. Sometimes a chest port may be needed. It’s not that there isn’t an infection risk, but it’s a small procedure to insert and can stay for up to ten years - but can also be removed at any time. Any type of line or port will need a skilled nurse to use, but it can highly reduce the need to bother with your veins a great deal. Since your veins have been in constant in use, and they’re apparently finicky, please have them checked out. I’m not sure if you’re still getting IV’s at all, but it’s important to know what’s scarred and where so you’ll know what to do about it, even if you don’t need a line - just helps to know where to tell people to avoid. Thanks for educating others about what we go through as chronic patients. I was very touched that you also helped that young woman feel a bit better about her situation. I also try to help people smile who may look like they need it, even when I feel miserable myself. Also helps that I have my task trained service dog with me every step of the way to bring me some extra assistance and wet kisses. Thanks, Ren. You’re an amazing human being.
I remember those days when I had to take 40+ psych pills a day. I eventually weened myself off of 12 medications, which was a horrible fuckin’ experience but I got through it and feel much better today. I’m only on 4mgs of Klonopin today and other meds for not psych shit. Life isn’t great but it’s better. Getting all my teeth yanked on the 25th, not looking forward to that but also won’t be popping Oxy’s to deal with the pain. I will just deal with the pain knowing there is much worse pain out there. Ren, thanks for bringing me into your world.
I seem to be hopping from one biologic to the next... from infusions to self administering injections. Mad respect for you, glad the meds are finally working for you and are able to keep busy with your passion for music 👍
Cheers for sharing a piece of your journey. I found myself sitting, shaking my head and crying. The amount of effort you have to put into merely getting by day to day. Bless you💜
I know how challenging this is. Why I loved sick boi so much reflected my battle with fibromyalgia and ME so your art helped me and as of course you know all too well so many others. Trying to be heard and seen with invisible insipid monstrously demanding illnesses is incredibly testing. It takes Herculean strength to keep pushing forwards. Sick boi made me feel heard and seen so from the heart I thank you for that 🙏🏽✌️☮️
Hey Ren, I started documenting my own treatment as well. The documentation of your journey has been great for me to watch. Seeing someone beat this and come out the other side as well as you have is incredibly valuable. I hope someone out there will benefit from my story, the same way I have from seeing yours.
You are so brilliant with your music and knowledgeable about illnesses and cutting edge treatments. When, not if, when I get SSDI, I have heard that Canada is the place to go for treatment for Traumatic Brain Injuries as well. I know it will be out of pocket but I want as much of my mind back as possible. Lots of ❤ back to Ren, his team and other Renegades!
Wow!! That actually looks like my stack of pills. It’s sad but we got to do what we got to do. Can’t wait for tomorrow. Get rest and we want you well ❤❤
I read somewhere. That those who can reach out to ppl and make them smile. Or even happy. Is because they know the hurt and don't want anyone to feel it. And I seen it here. Badass man.
My daughter introduced me to your art. I’m hooked. I’m hoping we Canadians treated you well and you’ll come back to do a show for us. I’ll be there if you do.
Ha! Your breakfast is as impressive as mine. As well as the colourings issue 😂 thank fk I’m not allergic to hair dye too, cos looking old on top of this lot would really suck…😅
Fortnightly infusions and a handful of pills each morning… Ren makes it feel like we’re part of the cool kids club. (What about a track for all us Sick Gals?) 😘
Ren you are an inspiration to every person with health problems, you are a fighter amongst men, and a fighter for all man and women world wide stay strong my friend.
(This will probably make everyone shut their mouths for good!) My greatest respect, Ren, for not simply believing what so many doctors told you and for sooooo many years 🫣 👏👏👏👍🤝🙋♀️
Nice to see this again, you have come a long way ... Ren you are a one remarkable person with all you do while trying to get healthy, so glad to see the treatments and your hard work paying off you look so much healthier so happy for you wishing all the best for you in your health and musical journey sending love and support
Dude. Incredible. I am in awe of you Ren. I wish I could afford Patreon, but just been made redundant, so, thanks for sharing your Patreon with those of us that can't - these little snippets are profoundly appreciated. I have tears just looking at those pills.
One thing I learned on my 'journey' is you have to become what they call 'a professional patient'.... I am SOOOOOOOO GRATEFUL I am now in a place I can focus on 'do the chickens have food/water' rather than what tablets am I due to take - I went 'holistic' in UK after being bed ridden (EDS/PoTs/gastroparesis etc) and having 'rattled' for many years....I showed my Asian GP the herbal drinks I started taking, he recognised them from his mum giving them to him when he was younger.... I asked if he ever got ill when he was younger... he said no. I asked if he could remember that next time he had to prescribe Tramadol (that used to fuck me up bad...). Now I am mobile/married (57 years old) in New Mexico....I rear our own chickens for meat and eggs, we have bee's for honey, ducks.... for amusement (they're old now ;) ) and I do my best to grow our own veg and trade for other things... it's the whole thing that helps: I will always have EDS etc, but the EDS doesn't need to 'have' me ;) My focus can be on other things now - and I've learned to 'build a bubble with meditation, (as above, so below, as WITHIN so with out... ;) It's ALL 'connected' ;) Grateful you're finding that path too
There was me thinking my pill cupboard was stacked😮. Is it wrong to feel a) strangely metaphorically hugged by seeing someone else juggling so many capsules. B) recognizing every supplement name ( one of which I can't take as they wreck me) and c) chuckling as my brain momentarily named you the "rattling rapper"
I feel bad for you Ren cuz you’ll never be able to anticipate the new ren music that’s gonna drop the same way that we anticipate it. But at least I know you can still enjoy listening your own stuff in the car, lol. I wonder if I’m the only one who wonders about that.
Wow, i feel myself how complete baby i was! Why, becase i have epilepsy! When i was child i was take few pills twice a day but not so much and i was always complaining that nobody else do that only me! Like complete baby! And i feel need to apologise for people who need do to that to get better!
You should get yourself a weekly organized pillbox Ren, it is life's changing 😂 You could even do merch with pillboxes ! I think that if i could take my pills from a 'Sick Boi' pillbox everyday, I'd be happier in my life ❤
And also THANK YOU. From a chronically ill spoonie warrior, fucked up both mentally and physically 🎉. You are giving me some hope and this is exactly what I needed right now. "The voice that you hear When you loosen the noose on the rope"
I take buttloads of meds at once too, but I think you take a... few more 😂 I hope we figure out my trick soon, my housemate says it sounds like I have a dysautonomia disorder and I can't say I disagree I'm glad you're improving bro!
It's so weird when you get to a point where you walk around like you have lived there all your life with people who actually work there but you see them more than your own family. I have been in this situation and I wish I would never go back to it. But it's also kinda making me feel good to know that there are a ton of peeps you already know in Canada (even though for the wrong reasons) and you move around so easily in the clinic and stuff. Wish you all the best and hope you can get your treatment again soon!
The beginning, reminds me of that part on dumb and dumber when they’re shoving pills down that guy‘s throat saying” pills are good” Blah sorry you have to go through all that every day. Ps looking forward to tomorrow!
Ren vitamins are extremely expensive 😮😮😮 Eating top foods are all you need plus fresh air exercise music poetry 👌 Creating dancing painting doing well 😊😊😊😊😊
yoooo guyssss!!!
This video is another taken from the patreon vault - posted 12/11/23, if you wanna come join the fun i’ll drop the link below!
big love homieeessss
Patreon well worth the money x I’m so glad you’re sharing these, let everyone see what you face on a regular basis and still produce such genius xx ❤
Thanks Ren. Stay strong, there is a whole new fight to fight all over again. But we get all that we want, for better or worse.
This what the genius has to go through. So glad your sharing the patreon ❤
Just joined a couple of days ago. Got to support our Boi. ❤
Thanks for sharing it to us. Really glad the bubbles didnt kill you❤
Dude I have been diagnosed as terminal BUT i want you to know that my life has been enhanced for having you in it! Thank you ❤
❤❤
❤❤❤
@brigittemainella6412 thank you hunni you are very much appreciated too and you don't get the respect you deserve 💗
An unsung hero too. I 👀 you xx
Your path has now crossed with other Ren fans and we are all sending love your way. Declan, your gratitude makes you a light in the darkness too.
@@jeanhiebert3425♥️ Renegades are ❤️
The favorite thing i noticed, instead of scrolling on your phone or throwing on headphones and just chilling while the IV is in, instead you reach out to another person that is also getting treatment, and you share stories and support. Also, it's reassuring to see you behind the scenes, still dancing that eternal dance. Keep up the great work, and by that, I don't just mean the music, but being the stellar human being you are. Much love and respect.
Most eloquently put Darren. Dido
That is an impressive lack of gag reflex, Ren. 😂
Big love to Josh for just always seeming to be the best friend, lieutenant, wingman, PA, Dad, cameraman, and legend in the background of so many videos going back years. ❤
And to Kai for helping bring us so many glimpses into the World of Ren. ❤
Taking lots of pills without issue doesn't indicate no gag reflex... Don't ask me how I know
💜Josh 💜Kai....💜Ren too.
Nice tribute mate - you are right josh is a true friend . And we appreciate Kai as well.
It’s crazy how over the years he’s had to become so knowledgeable about all these various medications because he spent so much time trying to advocate for himself to get what he needed.
From personal experience, it's both fascinating *and* a mind numbing/crumbling headache
I've only been physically chronically ill for two years (mental is a whole different game), but yeah, you have to know what you can handle, what works, what doesn't, and trust your gut if something seems off. I started a med, found a small blister in the middle of my back and was like, how did I get a blister in the small of my back??? Turns out I caught the VERY beginning stage of Stevens-Johnson syndrome, which can be very, very bad. Now, I get the pretty red allergy wristband at the ER!
@@mysticstudios1210bless you🙏🏻and much love and hugs🫶🏻🫶🏻🫶🏻
My husband is getting infusions right now, because of his nerve damage from Lyme and Bartonella. He's likely to always need them.
Keep fighting man. We see you. The representation means so much.
Always glad to see these videos come out of the vault. I think the health focused ones help people who aren't exposed to chronic illness have more insight.
Absolutely, he's become a champion to those that suffer from various chronic/autoimmune conditions through his willingness to share. Don't think I could do it tbh, suffered with severe Chrones since 6yrs (30 yrs now) been sliced and diced and left with liver and skin problems, steroid dependency and longterm side effects. Dealing with all that shit definitely effects you mentally as the world around you storms forward.
It's hard for others to see the world from that perspective as everyone is wrapped up in their own lives.
It very comforting and inspiring to actually see someone that's suffered to that degree be able to pull through and chase their dreams.
Christ Ren, it is one thing hearing about your daily struggles but seeing it is on another level. All those pills man! Glad you are slowly recovering, long may it continue xx
Most of us know your story and health issues you face on a day to day basis but seeing stuff like this truly makes it more real for those who don't realise the full extent of it. Thank you for sharing ❤
It’s oddly comforting to see someone else taking a huge a number of pills, just like I do everyday
Same!! 😂
Hi Ren, thank you for sharing this! I‘m now in „Renthapy“ for a while and now I’m brave enough to stop my pills for my depression (thank you for Chalkoutlines!) i‘m not afraid anymore to being ok… stand brave, stand strong and never loose hope ❣️
Please only do so with help from a doctor and keep communication open! Good luck :-)
@@Caketime2 I‘m with my neurologist and my psychiatrist on this way ❤
Big up to you ❤❤❤
I have my next appointment on the 17th. And I finally have enough courage to request specific test and talk about coming off my meds. I’m tired of just treating the symptoms, I want to find the real issue. And I want him to listen to me. Good luck with your journey. I’m crossing my fingers for you.
@@Juli1982mm just be careful with coming off them, always communicate with your doctors, and be honest with yourself about how you are feeling. Best of luck to you ❤
Oh Ren, you are an amazing man of deep empathy and strong will. Thank you for being such a valuable role model. This has definitely helped give a better picture of the amount of self discipline it takes to undergo month after month after month of treatments. I am so grateful this video is now here on TH-cam for a larger audience to watch. It is an Important video to be seen by the many who suffer from relentless pain and profound lack of auto immunity as well as a million other chronic conditions.
Thank you, Ren. By sharing your healing journey, you inspire us to keep going. I celebrate your courage and determination in dealing with the demons of ill health. We can see your strength and you give us Hope. You Inspire us. If possible, please release all of these videos from the patreon vault. We need to see them all. They give us much needed solidarity, hope, and inspiration. You are a true hero 💜
How I wish with all my heart, that these treatments were fully funded for everyone with these horrific illnesses. So many of us suffer needlessly because, you know, the almighty coin comes before a person's health. So many of us struggle. So many of us die by our own hand, because treatments, in one way or another, are denied us.
Ren, you're an amazing person to do so much for others, while battling for your health. Your insight, emotional intelligence and your empathy shine like diamonds.
I know you have an enormous burden right now, exacerbated by a certain puppy that didn't get its rabies shot, so please remember to be kind to yourself, rest when your body tells you and remind yourself that even God had one day off...sending love, cariad.
I love that you’re releasing these on YT ….an excuse to watch them again.
Thanks for allowing us to see more of your health journey 🫶💜
Oh Ren it is truly amazing how you can tolerate needles. I have so much admiration for you in this moment. I had to really brace myself to watch this because I am so needle phobic I can’t even look at them, they are so triggering. I admit I had to look away at times. It comes from bruising easily and being treated with needles in hospital, roughly and painfully as a young child over and over again. The pills and the separating out of stuff out from individual pill cases I can easily relate too, as I have swallowed countless bottles of medications by the handfuls throughout my lifetime. Btw It was so nice and thoughtful the way you chatted to the girl in the clinic and reassured her, but then that’s the kind of beautiful person you are. Nice to see these videos being released to YT, makes me feel less alone in my own health journey. 💛🤗
I think this is the most important video, I'm very happy that it became public.❤
you single handedly keep the medicine industry in business😳
You should see all the pills my hubs takes 😂
He has two of the same infections, but is fully
disabled now.
Unfortunately.
Right? More meds there than Boots the chemist
thank you for sharin the struggles you face to let people know they are not alone!! you are amazing!! much love Ren!!
Oh this is a great behind the scenes! Ren you have to do so much! I have so much appreciation!
Thank you so much for being as strong as you are. The world needs you! You are an INCREDIBLE human being.
I miss my vitamin drips. I can't get them in the UK unless I pay private, but I'm already disabled and can't afford to pay private. The catch 22 of the Medical Industry 😑
So messed up. Profits before people 😢
That’s the same in the US, at least for me. At this point, I work to have the insurance ……..only to be able to afford just the copays for all my specialists. My hospital bills are in the hundreds of thousands - and that’s WITH insurance covering some of it. Well people don’t understand- insurance doesn’t cover everything, so even if you have it, sick people end up plagued with medical bills for the crap insurance doesn’t cover. Insurance or no insurance, I feel like sick people still end up somehow always paying for medical bills. It consumes our lives.
Thank you for sharing a glimpse of what you go through ! The fact you were in clinic getting IV’s daily and still able to play music and release an album ( a #1 album at that) is a testament to your strength and love of music. Your kindness and empathy shines through. You are amazing. ❤
I feel you Ren, nothing but admiration for you. Much love, light and good health.💞💖💞
Can’t imagine taking that many pills!! Gives me a stomach ache just thinking about it. Appreciate you sharing your journey Ren.
Looking forward to the new song 🤗
Kid i just wanted to tell you that you are a true musical Genius. My wife discovered you a few weeks ago and you blew our minds. Wow. Keep it up. You are amazing. Your writing, voice, playing, you are truly one of a kind.
A home health nurse’s worse nightmare would be having to write down every med you take and fill a medication minder box for you. ❤❤❤ sorry you have to go through all this. Much love from Texas!
Thank you and wish you all the best! So hyped up for tomorrow...
By sharing your story you have helped those of us with chronic diseases, disorders & conditions remember that we're not alone and have a voice!!!
Thank you so very much. 😍🤗😍🤗😍
i NEED the sick boi sweatshirt from the nas retake video
I asked Sick Boi (merch) on IG if there are plans on getting the sweatshirts released (SGP attendees got the chance to purchase first...as they should). They responded saying they DEF have lots of new stuff in the works coming 🙌🏼
I take 24 pills a day and a once weekly dose of another med, and I thought that is a lot! I'm sorry Ren. If I were talking to you like you were my son, I'd tell you that you are a survivor, an inspiration, and that I'm proud of the person you are, that you have the unique ability to connect with people by just being the good person you are. Much love to you, may you continue all you have started, all you hope and dream of! ❤❤❤
Wow, remind me never to complain about anything ever again.
My exact feelings!
Ren would probably say "Mate, it's all relative". ❤ People have different struggles, it's ok.
@thanossnap4170 my medicine cabinet is just a full and I go to the clinic twice a week. But appreciate the mere fact that I am able to treat my chronic illness even if it is tough some days.
Like you so eloquently said...sick or not we all have our struggles in one way or another.
What's important is that we lift and support one another and keep fighting the good fight 💪 ❤
Ren I’ve said this many, many times and I’ll keep saying it, you are the truest legend💯! You have helped so many people with your bravery and your music including myself. You my friend are like NO other and I’m so blessed to have come to know your music and we are all blessed to get a glimpse into your daily life. Much love always and mad respect fam💯🫶🏻❤
Ren, word of advice if you don’t mind. Have your veins checked by an interventional radiologist. Mine got scarred from needing long term IV’s for over a year (oh and they like to roll away and they are super thin) - and once that happens, they’ll never go back to normal. Two midline’s and a PICC line all failed and my arm got infected. Sometimes a chest port may be needed. It’s not that there isn’t an infection risk, but it’s a small procedure to insert and can stay for up to ten years - but can also be removed at any time. Any type of line or port will need a skilled nurse to use, but it can highly reduce the need to bother with your veins a great deal. Since your veins have been in constant in use, and they’re apparently finicky, please have them checked out. I’m not sure if you’re still getting IV’s at all, but it’s important to know what’s scarred and where so you’ll know what to do about it, even if you don’t need a line - just helps to know where to tell people to avoid.
Thanks for educating others about what we go through as chronic patients. I was very touched that you also helped that young woman feel a bit better about her situation. I also try to help people smile who may look like they need it, even when I feel miserable myself. Also helps that I have my task trained service dog with me every step of the way to bring me some extra assistance and wet kisses.
Thanks, Ren. You’re an amazing human being.
You’re just amazing, Ren. ❤
I remember those days when I had to take 40+ psych pills a day. I eventually weened myself off of 12 medications, which was a horrible fuckin’ experience but I got through it and feel much better today. I’m only on 4mgs of Klonopin today and other meds for not psych shit. Life isn’t great but it’s better. Getting all my teeth yanked on the 25th, not looking forward to that but also won’t be popping Oxy’s to deal with the pain. I will just deal with the pain knowing there is much worse pain out there. Ren, thanks for bringing me into your world.
I seem to be hopping from one biologic to the next... from infusions to self administering injections. Mad respect for you, glad the meds are finally working for you and are able to keep busy with your passion for music 👍
Cheers for sharing a piece of your journey. I found myself sitting, shaking my head and crying. The amount of effort you have to put into merely getting by day to day. Bless you💜
I know how challenging this is. Why I loved sick boi so much reflected my battle with fibromyalgia and ME so your art helped me and as of course you know all too well so many others. Trying to be heard and seen with invisible insipid monstrously demanding illnesses is incredibly testing. It takes Herculean strength to keep pushing forwards. Sick boi made me feel heard and seen so from the heart I thank you for that 🙏🏽✌️☮️
Thank you for sharing parts of your journey on yt. ❤
Thank you for sharing such vulnerable personal moments ren and thank you to your peer in treatment as well
Hey Ren, I started documenting my own treatment as well. The documentation of your journey has been great for me to watch. Seeing someone beat this and come out the other side as well as you have is incredibly valuable.
I hope someone out there will benefit from my story, the same way I have from seeing yours.
Thank you for sharing this.❤
I also just purchased that book, Why Can't I Get Better. Thanks for flashing that as well!
You've been through so much your so strong health is wealth found that out years ago your so talented keep strong a musical genius❤
Thanks for sharing Ren! Love from Japan ☘️🇯🇵
We love you Ren ❤❤❤
You are so brilliant with your music and knowledgeable about illnesses and cutting edge treatments. When, not if, when I get SSDI, I have heard that Canada is the place to go for treatment for Traumatic Brain Injuries as well. I know it will be out of pocket but I want as much of my mind back as possible. Lots of ❤ back to Ren, his team and other Renegades!
Bulking up for the Kujo beat down!!!! Can't wait for that fire🔥
The dedication to following a plan ... sort of the role model a LOT of people could use well.
i love ren.. hes so good.. mad respect
Wow!! That actually looks like my stack of pills. It’s sad but we got to do what we got to do. Can’t wait for tomorrow. Get rest and we want you well ❤❤
I read somewhere. That those who can reach out to ppl and make them smile. Or even happy. Is because they know the hurt and don't want anyone to feel it. And I seen it here. Badass man.
My daughter introduced me to your art. I’m hooked. I’m hoping we Canadians treated you well and you’ll come back to do a show for us. I’ll be there if you do.
Ha! Your breakfast is as impressive as mine. As well as the colourings issue 😂 thank fk I’m not allergic to hair dye too, cos looking old on top of this lot would really suck…😅
Ren is inspiring in SO MANY ways!!!! We love you❤🎉🎉🎉🎉🎉
Fortnightly infusions and a handful of pills each morning… Ren makes it feel like we’re part of the cool kids club.
(What about a track for all us Sick Gals?) 😘
Always impressed with how fit you stay through everything. Resilient.
Thank you and Bless you Ren. Much love!!
Your vigilance in caring for your health is inspiring. Thank you for sharing this! 🙏💗☮️♾️
I love watching 'life of ren' as much as his music😊
Yo! Thanks for sharing this, my guy. I often wonder how you're doing.. and I take it, from this, that you're still going through it. Big hug. - Chris
Thank you for sharing your story... you are so inspiring... I hope you all are having a wonderful day 🔥🔥🔥🔥💯💯💯💯
I had Uninvited on repeat while I ran errands this morning. Always makes me grin!
Ren you are an inspiration to every person with health problems, you are a fighter amongst men, and a fighter for all man and women world wide stay strong my friend.
Thank you for sharing.. You are braver than me. Proud of you ❤
Bless you Ren, i just wanna give you a hug now! ❤
Your taking what you think works to feel better because of what you have gone through
Wishing you all the best Ren.
Your a champion dude!!! ❤ we love you get better soon
(This will probably make everyone shut their mouths for good!)
My greatest respect, Ren, for not simply believing what so many doctors told you and for sooooo many years 🫣
👏👏👏👍🤝🙋♀️
Oh to just be a fleeting thought in this brain of capacity I've not seen before.
Thank you for posting this 🥹
Nice to see this again, you have come a long way ... Ren you are a one remarkable person with all you do while trying to get healthy, so glad to see the treatments and your hard work paying off you look so much healthier so happy for you wishing all the best for you in your health and musical journey sending love and support
Dude. Incredible. I am in awe of you Ren. I wish I could afford Patreon, but just been made redundant, so, thanks for sharing your Patreon with those of us that can't - these little snippets are profoundly appreciated. I have tears just looking at those pills.
Glad you shared this man
Well shucks. I’m hoping it’s not that bad anymore. I’m on Patreon and I guess I just missed this 🤷♀️
We are just happy you are with us ❤
Keeping being your true authentic self brother , we all love it
Much love to you from Kansas!
Thank you Ren ❤❤❤❤
You are amazing Ren❤
aw bless you Ren. all that medication and then on the drip. it’s just not fair is it. i take a lot of meds but no where near as many as you do. 😟
I’ve just recently found Ren and really love the message and the hope he gives to people. Does anyone know if/where I can buy any merch?
really glad u eat well before all those capsules - cuz no matter what they are, they will be tough on the belly if it’s empty.
One thing I learned on my 'journey' is you have to become what they call 'a professional patient'....
I am SOOOOOOOO GRATEFUL I am now in a place I can focus on 'do the chickens have food/water' rather than what tablets am I due to take - I went 'holistic' in UK after being bed ridden (EDS/PoTs/gastroparesis etc) and having 'rattled' for many years....I showed my Asian GP the herbal drinks I started taking, he recognised them from his mum giving them to him when he was younger.... I asked if he ever got ill when he was younger... he said no. I asked if he could remember that next time he had to prescribe Tramadol (that used to fuck me up bad...).
Now I am mobile/married (57 years old) in New Mexico....I rear our own chickens for meat and eggs, we have bee's for honey, ducks.... for amusement (they're old now ;) ) and I do my best to grow our own veg and trade for other things... it's the whole thing that helps: I will always have EDS etc, but the EDS doesn't need to 'have' me ;) My focus can be on other things now - and I've learned to 'build a bubble with meditation, (as above, so below, as WITHIN so with out... ;)
It's ALL 'connected' ;)
Grateful you're finding that path too
There was me thinking my pill cupboard was stacked😮. Is it wrong to feel a) strangely metaphorically hugged by seeing someone else juggling so many capsules. B) recognizing every supplement name ( one of which I can't take as they wreck me) and c) chuckling as my brain momentarily named you the "rattling rapper"
I feel bad for you Ren cuz you’ll never be able to anticipate the new ren music that’s gonna drop the same way that we anticipate it. But at least I know you can still enjoy listening your own stuff in the car, lol. I wonder if I’m the only one who wonders about that.
Man I guess if you have to go through something so bad the only upside to it would be able to be able to be getting it done with him!
Wow, i feel myself how complete baby i was! Why, becase i have epilepsy! When i was child i was take few pills twice a day but not so much and i was always complaining that nobody else do that only me! Like complete baby! And i feel need to apologise for people who need do to that to get better!
You should get yourself a weekly organized pillbox Ren, it is life's changing 😂
You could even do merch with pillboxes ! I think that if i could take my pills from a 'Sick Boi' pillbox everyday, I'd be happier in my life ❤
And also THANK YOU. From a chronically ill spoonie warrior, fucked up both mentally and physically 🎉. You are giving me some hope and this is exactly what I needed right now.
"The voice that you hear
When you loosen the noose on the rope"
I take buttloads of meds at once too, but I think you take a... few more 😂
I hope we figure out my trick soon, my housemate says it sounds like I have a dysautonomia disorder and I can't say I disagree
I'm glad you're improving bro!
It's so weird when you get to a point where you walk around like you have lived there all your life with people who actually work there but you see them more than your own family. I have been in this situation and I wish I would never go back to it. But it's also kinda making me feel good to know that there are a ton of peeps you already know in Canada (even though for the wrong reasons) and you move around so easily in the clinic and stuff. Wish you all the best and hope you can get your treatment again soon!
Ren blessings
The beginning, reminds me of that part on dumb and dumber when they’re shoving pills down that guy‘s throat saying” pills are good”
Blah sorry you have to go through all that every day.
Ps looking forward to tomorrow!
PROTECT THIS MAN AT ALL COSTS.
Ren vitamins are extremely expensive 😮😮😮
Eating top foods are all you need plus fresh air exercise music poetry 👌
Creating dancing painting doing well 😊😊😊😊😊
That only works if you can eat whatever you want - his diet is very limited, so - vitamins.
Ren really needs a daily pill organizer!
Interesting like seeing on the bts of things.
AAUGH REN I FEEL FOR U HUN🥹🥺💕🫂🫂🫂WE LOVE U!
Air bobbles bit got me bro 😅😂😂😂❤
Dude!!! And I'm bitching about having to take 2 pills twice a day... you are a BEAST!!! Much respect!!!
We share the same problems regarding I.v's. Collapsible veins and air bubbles. :-/