Motherhood with CMT disease
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- เผยแพร่เมื่อ 16 ม.ค. 2025
- Hi! My name is Bethany Meloche. I am a writer who also makes videos about living with CMT. I hope you'll subscribe and join me on the journey :-)
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Instagram: @bethanymeloche
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People say so many stupid things. Ignore them. You are such a great mama! I think you are awesome for sharing with us. We need more people with charcot marie tooth to share their life and experience. We need to be more visible. nobody understands our experience. Thank you for being so brave and sharing ❤
Please don't feel sad Bethany, you are doing a great job already !, motherhood is not just being able to carry your baby on your own, and I'm sure you give him and WILL give him all the love, care and support he needs throughout his life. And soon he will grow up and he will be quite the athletic little guy, and you will see him doing amazing things !!! and he will be thankful about all what you did for him and how amazing you are !
And please look around you, everybody has problems, whether it is sickness, poverty or God knows what, so we learn from that to be thankful about what good we have, and to be thankful about not having the problems other people have.
Cheer up !, be strong ! and don't forget to enjoy every single moment with your baby, this is the most important thing, and don't ever forget that you are an amazing person and an amazing mom !!!!!!
You are amazing my dear sister ❤ I was recently diagnosed with CMT. You are our inspiration. May God bless your family 🙏
So kind, thank you ❤❤ Wishing you many blessings as well!
Well done Bethany. I’m happy you have such amazing support! It really helps!
It is very hard to do nappy’s & snap buttons & to hold your baby. I had to be sitting to hold my babies when they were small too. I wouldn’t pass up motherhood just because I have. Cmt. There are plenty of ups and downs in motherhood but the joyful moments far outweigh the negatives. I know there are plenty of frustrating times but if we focus on these times life gets you down. Keep focussing on the joyful times.
Thank you for sharing what it's like for you to have CMT and be a mom as well. Your account is the first I've read. One of our sons was engaged to a young lady who more than once spoke of her hesitation of having children due to his CMT diagnosis. I said something along the lines of how she shouldn't be so afraid of life that she ends up not living it. The relationship fell apart for a number of other reasons - but I'm glad our boy did not have to deal with a situation where someone else decided if it was okay for him to be a dad.
Hi Bethany, I hope you are fine ❤
I have been in touch with you for a few months. I don't know if you remember me, though 😂. I also live in London. I recently arrived in the UK. Also, I was diagnosed with CMT a few months ago, and the very first video that I watched was your video❤. I hope to meet you someday 😅😊.
I do remember! How exciting you decided to go for it!! ❤ I so hope you're enjoying the UK so far, although I'm sure it's a big transition. (And totally possible we'll run into each other at some point!)
You are amazing ❤ never forget that ❤️ he is blessed with most wonderful mom who has the biggest heart i know xoxo
Love you my sweet friend ❤
You are amazing mom.
So sweet, thank you ❤
You are doing such a good job! The most important thing is your love for him! On another note- how did you end up in England? I’m sorry I missed that video. Thank you!
Thank you for posting your views.
Thanks for watching!
Sending hugs momma. You got this. May I ask what type of CMT do you have. Me and my 19 yr old son have CMT2 and my husband and 13 yr old son have a rare form of CMT1A.
Thank you!! ❤ I have CMT1A, which runs in my family. Most of my family members are more mildly affected.