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Hello! I am doing great. I have really changed my eating and living habits and doing really well! How are you?

What were your results?

Yes I did!! Not 100% but great! So thankful.

This is so true. I’m blessed with good insurance but I can’t get treatment because all the “specialists” want more testing. I am seronegative for Sjogrens but have all the symptoms including confirmed small fiber neuropathy. After six nerve studies, multiple MRIs and a lumbar puncture, now I am recommended to do a skin biopsy, bunch of eye exams, lip biopsy and bone density scan to make sure that steroid treatment is safe. It’s a big money grab and it’s cruel. I’m 40 and have gotten progressively worse over four years. The steroids are not more harmful than the condition or IVIG, for that matter, which they pushed hard!

Don't do it

Why ?​@@marija.maravic

@@alirad4430 because u could risk permanent lip numbness

@@alirad4430 lip numbness that can be permanent

Did leave a scar behind?

@@alirad4430 not that I'm aware of

Did leave a scar behind?

Hello! Please don't be afraid. Your doctors will help you! I will be praying for your results!

What was the result? Hope it was negative

How did your procedure go? My results in negative for the lip biopsy and positive for the blood work - so I am working with my dentist, eye doctor, endocrinologist and general practitioner to manage my symptoms right now. I use Xiidra eye drops for dry eye disease and sip water all day long for my dry mouth. I am able to maintain everything for now and trying to use diet to stay healthy.

How was your doctor's appointment? What was the result?

Hi Jesse. I actually went to voice physical therapy (my endocrinologist referred me to it) - and it helped so much. She taught me exercises to strengthen my voice. I should make a video to show you what I did but essentially several type of "singing" exercises.

Same

Thank you, Bre, for the note. I am currently in the "monitoring" phase still - but all my doctors are aware that I have Sjogren's symptoms (dentist, endocrinologist, primary doctors). After your diagnosis - what did you do differently? Maybe I should try some home therapies that I see here on TH-cam? I do take prescription eye drops for dry eye and then try to sip water all day long for my mouth.

@@myrading oh you did end up getting diagnosdd tho it was negative? I do a lot…1) run a humidifier at night 2) chew xylitol throughout the day 3) spray lubricity in mouth (check amazon. Sjogrens foundation recommends) 4) take 1000mg turmeric daily 5) drink a ton of water 6) take plaquenil (i just started most of these) 7) constantly reapply aquaphor to lips and eyelids 8) eat anti inflammatory low sugar no gluten or dairy 9) take atrantil for sibo which also helps w immune issues….i can keep going but this is what i am doing for now! Still super dry everywhere…just started week three of plaquenil so should notice some differences soon…I am praying my biopsy comes back positive so I can get into the ianalumab trial

@@breklein3338 No not fully diagnosed simply monitoring to see if any symptoms get worse or other symptoms begin where we should consider myself Sjogrens. I already have Hashimotos and had thyroid cancer. This is so helpful! I try to eat "Whole 30" (gluten/diary/soy free) as best as possible too and I was told about xylitol but these others are very helpful! I will check out the foundation as well. Thank you very much!

@@myrading if u see another rheumatologist like mine im sure they will diagnose u…u have positive late sjogren antibody plus symptoms. If u ask me ur drs r wrong

I know! Something to do with needing to see how the salivary glands are working and if they are fully functioning. You can do it! It does give rest for your mind finding out.

Hello! Sorry I never responded earlier. I am doing well. I still use prescription eye drops and drink water all day long to help but I have chosen not to try any additional testing or other measures at this time. I am now very strict on my diet of Paleo - and that seems to be helping the most! How are you doing?

Hi Danielle - how did you procedure go? Yes, my lip healed completely and I have no issues at all with it. I pray everything is healing nicely for you!

@@myrading how long did it take you ladies to heal, I had it today and it really hurts

@@ryanmiller5810 Hi Ryan. It definitely took a few days but I was amazed at how quickly your lip heals! I really "babied" it for at least 3 days and ate very carefully and no hot drinks/acidic drinks/etc. It was very sore that first day. Let me know how your results go.

How did it go? Hopefully you were able to close your eyes and not feel too much!

@@raisinganentrepreneur748 it went really well actually wasn't as bad as i thought thanks for asking

The lip biopsy is actually lip glands getting tested. My blood test did show elevated towards Sjorgrens but it is not super accurate and the lip biopsy is supposed to be the best test and mine glands looked healthy - so going with no sjorgrens at this time!

What did it turn out to be?@@raisinganentrepreneur748

Hi Donetta. My results came back negative!! I was very happy to see that but I am still treating my dry eye and mouth as best I can. I am also doing a more strict diet to just decrease the inflammation and potential more damage going forward. I pray your test goes well!

My biopsy did come back negative which is a very positive sign but I still have lots of symptoms and treat them naturally and with the eye drops as best I can.

I'm having a lip biopsy. Does it hurt after?

@@boringnames6920 Hi. Well, I did not feel much except pressure during the procedure itself due to numbing everything with shots (which did hurt - but they also numb your check prior to the shot itself). After that wore off, my lip was sore and the stitches were sore for a few days. I was very careful with what I ate and using my lip. Let me know how it goes!

@@raisinganentrepreneur748 Thank you for that information. I'm subscribing because you honestly care. <3 I wish you well in all your endeavors.

Hi! I will definitely be praying for you. Trust Jesus! He will see you through all of this. ~Myra

@@raisinganentrepreneur748 thank you😢❤

Thank you, Victor. My results came back negative so I am very thankful for that and continuing to treat my dry eye and mouth daily! Pray your biopsy goes well. Let me know.

@@raisinganentrepreneur748 so if your results were negative does that mean you dont have sjogrens? The. What is causing the dry eyes and mouth?

@@vnunezclass Yes, they do not call me sjogrens anymore. I am still treating dry eye and dry mouth and who knows why I am having those symptoms - but they could be hashimotos-related still. I am so glad that it is not sjogrens! Everyone is keeping a close track on it to (endocrinologist, dentist, eye doctor).

@@raisinganentrepreneur748 b Hi. Have you gotten any more info about what you have? How do you diagnose hashimotos?

Hi. I am so glad that I did this. I am about 18 months post surgery and my vision is PERFECT! I love it. I still have some dry eye issues but I had that before the procedure. Make sure you chose a very experienced surgeon using the best technology!!

Raising an Entrepreneur did you do the monovision or correct both eyes for distance?

Also, did you immediately lose near vision when you the procedure?

@@allenfamily2132 Yes, I did the monovision - it took me a few days for my eyes to adjust for it but I don't even notice anything now.

@@allenfamily2132 After the few days of recovery, my vision was pretty good. It probably was not great again for a few weeks but I could still read, do my computer work, and see fine - but nothing was super crisp for a few weeks. I returned to work 6 days later (I had surgery a Wednesday morning and returned to work on Monday - and had my check up on Monday too).

Hi Nicole. Thank you for the note. My doctor checked my vocal chords and found that one was partially paralyzed and finally referred me to a voice therapist and it has helped me so much! I just did 5 weekly sessions and it really taught me how to breathe better (again) and talk correctly. Apparently, our bodies try to "protect" our voice after the surgery trauma. I had developed some bad habits with breathing and speaking! Yes, praying your scar goes away as well. No one can even tell that I had surgery. It is so very freeing!! God bless. Keep in touch. And, it takes at least a year for you to return to a better "normal" so give yourself lots of grace and patience as you heal and recover from the trauma!!

Hi Kaye - my results have come in and I DON'T have sjogrens (thank you, Jesus!) - but this doesn't mean that I am not having issues with dry eyes and mouth and swallowing. Overall, with any autoimmune (I have hashimotos) these can be symptoms. I am very grateful that my testing came back normal! Hope you start to feel well.

Raising an Entrepreneur I'm so glad the results are good! Just found out there are several nodules on my thyroid that my PCP wants to "watch" - but I may see an endocrinologist to check. I have dry eye and trouble swallowing sometimes.

I love your home btw.... the paint color is beautiful!

@@beautyisageless1 Yes, please go to an endocrinologist soon - that is how I discovered my thyroid cancer - my regular doctor would have never caught it. Praying that all benign (as most are!) - so try to not be anxious or worried about it and get that appointment!

@@beautyisageless1 Thank you so much!!

Hi Bubble Wrap (love your name on here!) - my nodules ended up being fairly small but my doctor told me right away that "they didn't look good" on the sonogram. He said he had looked at many. Ask your doctor what he thinks about your nodule itself. Size does not mean anything about cancer, just FYI. And many people have nodules forever so please try to not be too anxious (I know that is really hard!) and trust that God has a good plan for you. Let me know how it goes. ~Myra

Hi. They use one needle at a time as they "suck" up the nodule cells into the needle then pull that out. Then, they change to a new needle and repeat. My doctor had to do it six times as he felt he wasn't getting the right "content." I think they might also not restick you with the same needle due to infections, etc. So they start with another needle. They then send all 6 samples to the lab.