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Hey how are you

Does neurogenic bladder also cause complete numbness in the bladder even if there is no issue with emptying?

Some patients with EDS can have Median Arcuate ligament syndrome. I haven’t been tested for it yet. I have food sensitivities to wheat , corn , soy and dairy and sugar. My smart pill motility test showed 25 hours almost to empty ,my stomach.the small intestine was 2 hours.It was 49 hours for the colon . I have oropharyngeal and esophageal dysphagia too .

Hi! I have cvs and mcas too among others and I’m glad I found you! How are you doing now?

Thx for sharing!

I hope that you are doing well!! Sending love ❤️ and prayers your way!! 🙏🏼 Happy new year 🎊🎆

So much wisdom here! Why don't you put it on your second channel? I have heard this 3 times and I keep discovering new things. God bless you dear Claire. I wish you a happy and blessed new year! I pray for your complete healing.

Have you tried sucking on ginger

i am 23, i my blood ige level is 550+,i have allergy too much i can't go out side dust make me sick,,doctor told me to xolair injection ,i want to know how many injection need to be cure? how long it last?can you share?

Thank God you are young. Im 71.. wont be so easy with so many other complications.

Speaking of severe constipation, in 2022, my colon ruptured and I required emergency surgery and a colostomy to save my life. If you have had lifelong constipation, like I've had, talk to your Gastroenterologist about it and start taking something like Mirilax daily. Fortunately, I did survive.

Did you have any luck with shots I suffer with severe airway information and mucus from asthma, and all the other medication’s have failed so I’m running out of options. I’m hoping something like this works. I’m starting soon.

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you are lucky to have a family that knows what your dealing with and that they can help you get through it. feel better very soon god bless your little heart i know it sucks to be sick its painfui get some rest feel better soon

i know it sucks to be sick ive thrown up several times but im healthy i dont get sick very often stay strong hope you feel better soon

Bless you, dear one. ❤

How are you, love? You are a true Champion 🏆💪🏾 Stay Strong.. God Bless you 🙏🏾🙏🏾🙏🏾

❤ 💯💯

My 18 yr old daughter just got diagnosed with this and it’s absolutely devastating. We have spent the last 2 getting admitted too many times to count. She has had 2 Mallory Weiss tears that both led to pneumomediastinums. This last stay she was diagnosed with severe malnutrition, low calcium and her potassium was 2.3 at admission. She also Carrie’s around a cup for the little spits. So many similarities. Sorry you both go through this. Thanks for sharing about it.

SAME IN GETTING A GET TOMORROW IM SO SCARED WHAT WILL HAPPEN NEXT I. STUGGELING DO BAD😢😢😢 IK NEW TO ALL OF THIS

i love you so much! I recently just found your LYXBAGS and i’m in love!! Your videos are so fun and you energy is just MWAH! keep living your life

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I've had this fear since I was a child I'd rather be dead than vomit this condition would kill me you have my sympathy 😢😢xx

Your positivity shows through. You’re a ray of sunshine! Keep shinning ☀️

Easily the most beautiful young woman in TH-cam! God bless you dear sister.

I can’t believe they waited so long for nutritional support!

I recently am going through the exact same thing. I have both too. I'm a type 1 diabetic. And all stages of neuropathy. You're positivity gives me strength to keep going. Even on hard days so thank you more than I can ever express. 😢

I'm 🙏 for you

You are one brave lady and the first person I have found that had what so have …. The emergency surgeries and all. I’m in New Zealand and sending very best wishes. Thankyou for this and those tests….

I have cyclic vomiting syndrome, and I’ve been having an episode for a week now and when I started your video, I immediately started crying just to hear somebody else who also dealt with this and knew what I was going through thank you 🥹❤

You need the right diet and the right medication. We can fly to the moon and I’m pretty sure u can heal it. Because I had it to/ or have it it depends how you look at this.

Are you fine now

How are ou

Bill knott on yt talks about healing his neuropathy with vibration plate and carnivore. Also look at Mikhaila Peterson Ted Talk video on her testimony. Inspiring.

Thank you for helping others navigate the medical industrial complex. Mutual support from directly-impacted people is what I highly value. These conditions are becoming more known. Mold: I'm guessing in places with a lot of opportunistic and corruption, the budget doesn't include proper maintenance if buildings to prevent and remediate mold. In North Carolina, I don't know if the state has laws about mold, but even with the Fair Housing Act, there's too much corruption in the city and cover-ups to enforce these laws. many companies corrupt lawmakers by donating to get them elected so they don't regulate air quality. The medical industrial complex has similar infrastructure to avoid accountability. I hope directly-impacted people will combine our little resources to build infrastructure to make an alternative and challenge this corruption.

Thanks for this video. I appreciate it immensely. I have a test in October. Eggs, toast and jelly with 4 oz water. I have gastritis duodenitis and a hiatal hernia. Mystery problem that stumps doctors. All of a sudden I am hungry as heck and if I don't eat immediately I feel hypoglycemic but nothing ever shows up in blood work when I fast. The kicker... I have diarrhea when this episode happens. All I get from any doctor is, " Oh, that's odd" Me: Really? I thought so, too. That is why I am asking. 19 yrs. of suffering with this problem. So, I am on Pantoprozole 2x a day for 10 weeks. Along with Famotodine and carafate. I hope life will be kinder to you. It's hell suffering with me. I can't imagine what you go through. Good luck.

Happy birthday tomorrow 26th of August!🎉🎉

I hope you read this before next Monday. I wish you a happy happy birthday dear beautiful Claire.

Got my first Xolair shot today too.. Was nervous but all's well.

GOD bless you <3

🙏🏽

Thank you for being so brave sharing your story. Im scheduled in a few days here, so your video was very informative.

eat paleomedicina carnivore die to be healthy look them up online

LDN gave me heart problem, nothing before taking it, nothing after I stop

Crazy how you have the strength to deal with this let alone anything else

Thank you sister for sharing your journey.