Thank you for helping others navigate the medical industrial complex. Mutual support from directly-impacted people is what I highly value. These conditions are becoming more known. Mold: I'm guessing in places with a lot of opportunistic and corruption, the budget doesn't include proper maintenance if buildings to prevent and remediate mold. In North Carolina, I don't know if the state has laws about mold, but even with the Fair Housing Act, there's too much corruption in the city and cover-ups to enforce these laws. many companies corrupt lawmakers by donating to get them elected so they don't regulate air quality. The medical industrial complex has similar infrastructure to avoid accountability. I hope directly-impacted people will combine our little resources to build infrastructure to make an alternative and challenge this corruption.
Just got my first injection Friday at 2:50pm. Around 5:30pm I went out to eat then started with mast cell symptoms. Ended up in the ER with anaphylaxis. Thankfully I don’t get airway obstruction. I get extreme tachycardia 200’s. I hope it wasn’t from the Xolair 😔 I have been in a flare before the injections so thinking it’ was the food that set me off.
Oh yikes, I’m sorry that happened! I hear anaphylaxis is a possible reaction from Xolair, that’s why I have to wait 30 mins afterwards. I hope it wasn’t the Xolair and it’ll be helpful for you 💜💖
Wait...this is the first video of yours that l have watched. You mentioned...Ehler Danlos... something about your ...well.... EVERYTHING.YOU SAID....resonated with me!!! The pain...the stomach issues...asthma...pain and inflammation---;sleeping problems!!!!... allergies...on and on....l haven't really ever heard of MCAS! I....oh my...l feel for you... l don't even know what l am saying: you just made me realize some critical things that l may want to discuss with doctors!
Hi dear! I'm glad that my video was helpful for you. If you think you have MCAS go to an immunologist and get tested, but call first and ask if they have a dr who's a specialist in MCAS, because it's a rare illness. Good luck, I hope you get answers and the help you need
Did you have any luck with shots I suffer with severe airway information and mucus from asthma, and all the other medication’s have failed so I’m running out of options. I’m hoping something like this works. I’m starting soon.
On TH-cam you look nice today dear friend of TH-cam and nice ear rings and hair. But most of all keep praying for your sweet soul. Lord hear the cry amen
You are so strong Claire
Thank you 💜💖
Thank you for helping others navigate the medical industrial complex.
Mutual support from directly-impacted people is what I highly value.
These conditions are becoming more known.
Mold: I'm guessing in places with a lot of opportunistic and corruption, the budget doesn't include proper maintenance if buildings to prevent and remediate mold. In North Carolina, I don't know if the state has laws about mold, but even with the Fair Housing Act, there's too much corruption in the city and cover-ups to enforce these laws. many companies corrupt lawmakers by donating to get them elected so they don't regulate air quality.
The medical industrial complex has similar infrastructure to avoid accountability.
I hope directly-impacted people will combine our little resources to build infrastructure to make an alternative and challenge this corruption.
Xolair works yall it begin to clear up on the 3rd shot, which I got 300mg so just stick with the appt once every 2-4 weeks
Just got my first injection Friday at 2:50pm. Around 5:30pm I went out to eat then started with mast cell symptoms. Ended up in the ER with anaphylaxis. Thankfully I don’t get airway obstruction. I get extreme tachycardia 200’s. I hope it wasn’t from the Xolair 😔 I have been in a flare before the injections so thinking it’ was the food that set me off.
Oh yikes, I’m sorry that happened! I hear anaphylaxis is a possible reaction from Xolair, that’s why I have to wait 30 mins afterwards. I hope it wasn’t the Xolair and it’ll be helpful for you 💜💖
Wait...this is the first video of yours that l have watched. You mentioned...Ehler Danlos... something about your ...well.... EVERYTHING.YOU SAID....resonated with me!!! The pain...the stomach issues...asthma...pain and inflammation---;sleeping problems!!!!... allergies...on and on....l haven't really ever heard of MCAS! I....oh my...l feel for you... l don't even know what l am saying: you just made me realize some critical things that l may want to discuss with doctors!
Hi dear! I'm glad that my video was helpful for you. If you think you have MCAS go to an immunologist and get tested, but call first and ask if they have a dr who's a specialist in MCAS, because it's a rare illness. Good luck, I hope you get answers and the help you need
@@LoveHardFightHard thank you kindly! I have Ehler Danlos...and a host of other issues. Definitely going to seek further information!
@@Misslou2425 it seems like a lot of EDS patients have MCAS too. Lots of love, fellow zebra!
Did you have any luck with shots I suffer with severe airway information and mucus from asthma, and all the other medication’s have failed so I’m running out of options. I’m hoping something like this works. I’m starting soon.
I want to know how to sound wheezing and its symptom more.
You look 22 or sum your so beautiful !!! I hope you get better love
Thank you so much! 💜💖
Mine are definitely worse at night!
Interesting! Yeah mine get bad when I wake up too, but always the worse at night! 💜💖
🙏💕
Due have this soon for mcas hope it help 😱
I really hope it will be more helpful for you than it's been for me!
On TH-cam you look nice today dear friend of TH-cam and nice ear rings and hair. But most of all keep praying for your sweet soul. Lord hear the cry amen
Thank you so much for all your sweet comments, and for your prayers!!
Yes, i will say another prayer . You are a wounderful person even things go bad or great. :)
" Even if " things go bad or good you are good. Pray too. :)
May God hear our prayers amen