วีดีโอ

You're very welcome! It’s great that you’re looking at both lab results and symptoms to get a full picture of what’s going on with your son. Have you looked into the FRAT test? It can provide more insight into folate-related issues, especially for non-verbal kids. Would love to hear what you've explored so far!

You're not alone on this journey! 💙 Many parents have been in your shoes, wondering about the next steps and what support will help the most. It’s great that you’ve already checked so many things and are looking for answers. Keep leaning into your instincts - trust yourself! We’re all here to support and learn from each other! 🌟

Thank you for sharing your perspective! Regarding the studies that discredited Facilitated Communication (FC), I think it’s important to consider how research ethics have evolved. The methodology where a speller was shown one word and the facilitator was shown another is problematic by today’s standards for a few key reasons: 1️⃣ Lack of Informed Consent & Autonomy - Many of the individuals tested were not given a clear explanation of what was being done or the opportunity to decline participation. Ethical research today must respect the autonomy of non-speaking individuals, ensuring they understand and willingly participate in any validation studies. 2️⃣ Unnatural Testing Conditions - These studies introduced conditions that disrupted natural communication. A breakdown in performance under artificial conditions does not prove a lack of authorship-it could simply indicate stress, dysregulation, or difficulty adapting to unfamiliar demands. 3️⃣ Ignoring Individualized Learning & Skill Development - Modern spelling-based communication is often a skill that develops over time. In S2C there is a progression from the 3 boards, to one board, to the laminated board and then to the keyboard. Ethical validation studies should account for individual differences in motor abilities, processing speed, and anxiety, rather than assuming immediate accuracy under rigid test conditions. 4️⃣ Alternative, Ethical Validation Approaches - There are better ways to study authorship today without using deceptive or restrictive methods. For example: 🔹 Longitudinal studies tracking progress over time. 🔹 Analyzing unique word use, personal experiences, and novel sentence generation. 🔹 Eye-tracking studies showing visual focus on letters before spelling. I absolutely support the need for rigorous scientific research on spelling-based communication, but the methods should be designed in a way that respects and empowers non-speakers rather than setting them up to fail and not even getting their consent to do research on them. Science evolves, and it’s time for research methodologies to evolve too! Thankfully there have been 2 such studies and I'm sure more will be published.

Thank you for sharing your family's journey-what an incredible amount you’ve navigated. It certainly makes sense to wonder about a deeper connection, and while genetic specialists may not have found anything obvious yet, research is evolving all the time but it's great you are being proactive now. Your story highlights just how complex and interconnected these conditions can be. You’re not alone in this, and I truly appreciate you being part of this community!

Can you give me the name of the folinic acid please

@nicolegrant2530 The brand I use is Seeking Health Folinic Acid. I purchase it from Amazon.

Great question! The troublemakers are antibodies that interfere with cerebral folate transport, which can impact brain function and in particular speech. I touch on this briefly in this short video, but if you’re interested in a deeper dive, I go into much more detail in the full-length video. I’d love to hear your thoughts after watching! Thanks for being here.

Wow, your comment truly means the world to me-thank you!! I’m so glad you found my content helpful. The fact that you’ve been searching for over a year and feel this way is both humbling and motivating. Unfortunately, the best, science-backed information doesn’t always rise to the top of search results, but with amazing people like you here, we can change that! If you feel inclined, sharing these videos or engaging with them (likes, comments, etc.) helps more parents find this content. I’m grateful to have you in this community-let’s keep pushing for better, clearer information for all!

Thank you so much for sharing that-it truly means the world to me. 💛 Recognizing your son's strengths and understanding the challenges he faces is such a powerful shift. It opens up so many possibilities for him and your family. You're giving him the gift of being truly seen, and that will make all the difference. I'm honored that this content could play a part in your journey. Wishing you and your son the very best as you navigate this new perspective together! 💛

Thank you so much for sharing your experience! It’s incredible how you observed such a clear connection between omega-3 intake and your son’s biting behavior. Your story highlights the importance of consistency and finding the right supplements that work for each child’s unique needs. Thank you again for taking the time to share-it’s stories like yours that help parents feel less alone in this journey! 💙

Thank you again for sharing your journey and contributing so much to this community! Your determination and creativity in supporting your son’s health are truly inspiring. It’s amazing to see how your proactive approach helped eliminate constipation. In your other comment, you addressed biting behavior, and here you’ve shown that different challenges often require different solutions. This is such an important reminder for all parents: there’s rarely one magical fix, but rather a series of thoughtful steps that address specific needs. Your dedication is a testament to the power of perseverance and how small, consistent actions can lead to meaningful progress. Cheering you on every step of the way-you’re doing an incredible job! 💙

Thank you for your comment! The sulforaphane in Avmacol is different from what's used in the Biopure supplement. Because of these differences, it’s challenging to make a direct comparison or conversion between the two. It’s definitely a good idea to consult your doctor for personalized guidance. If you’re not noticing any effects at 250 mg, you could easily consider increasing. How long have you been taking the 250 mg dose? Sometimes it takes a little time to notice changes, depending on your goals for using the supplement. Let me know if you'd like more clarity on anything!

Thank you so much for sharing your experience! I’m so glad to hear it’s helping your child get deeper sleep-that’s such a big win! As for how long to use it, it really depends on your child’s unique needs. Some parents find it helpful to use consistently for a few months, while others use it as part of a broader strategy to support sleep over time. If your child is still having trouble sleeping without it, it might be worth looking into what could be contributing to the difficulty-things like diet, sensory needs, or even routines before bedtime. Use his response to NDF Calm as clues that you are looking in the right direction. Does he need something stronger? Does he need a supplement to complement NDF Calm? If you’d like, I’d be happy to share more resources or ideas that might help. Just let me know! You’re doing an amazing job supporting your child’s well-being. And congrats on getting more sleep!!

Great question! It’s true that aluminum packaging or foil might not seem like an issue at first because you’re not directly ingesting it. However, under certain conditions-like exposure to heat, acidity, salt or long periods of time-aluminum can leach into food or other contents. For example, if you’re wrapping acidic foods like tomatoes or citrus in aluminum foil, there’s a higher chance of leaching. While the amount of aluminum that transfers can vary, some doctors do not recommend this supplement due to the packaging because aluminum has been linked to potential health concerns when exposure is excessive over time. These connections are still being studied, but it’s always a good idea to stay informed and mindful of what comes into contact with food or products we use regularly. I’d love to hear your thoughts-do you use aluminum foil or packaging often? Have you tried this supplement or another NAC supplement not wrapped in foil? It’s a fascinating topic to explore together!

@ lol so I shouldn’t drink canned soda too yikes everything is bad nowadays

@@divinebt Right?! But hey, canned soda might be the least of our worries-just don’t microwave it. 😉

You’re so welcome, and thank you for sharing! It’s fantastic that you’ve already reached out to your daughter’s doctor to discuss leucovorin-that’s such a proactive step. The FRAT test can definitely be a helpful tool to determine if it’s the right fit for her and give guidance on possible dosage needed. It's typically best to do lab testing so that you can quantify need and change. If you’d like, I’m here to help answer any questions or provide additional resources while you’re waiting to hear back from the doctor. You’re doing an amazing job advocating for your daughter’s health and well-being! Please keep us updated on how things go-I’d love to hear about your progress.

Welcome to the community, and thank you for subscribing! 😊 Zeolite is definitely an interesting topic-it’s often talked about for its ability to bind to certain toxins, which can be helpful in specific situations. That said, not all zeolite products are created equal, and their effectiveness can vary depending on factors like purity, particle size, and how they’re processed. It’s also really important to know what toxin you’re targeting. Zeolite binds to specific substances, so lab testing can be incredibly helpful in identifying what’s at play and ensuring the approach is both safe and effective. If you’re considering using zeolite, make sure to choose a high-quality product and consult with a healthcare provider to see if it’s a good fit for your needs. I’d love to hear what sparked your interest in zeolite-feel free to share more! Looking forward to connecting with you as you explore these topics!

Great question! Choosing the right probiotic really depends on your child’s unique needs, as there isn’t a one-size-fits-all answer. Factors like their current gut health, dietary habits, and any specific challenges they’re facing all play a role in determining the best starting point. That’s why I’m careful about making blanket recommendations. Instead, I focus on guiding parents through a personalized approach, step by step. This is actually one of the key areas we dive into on the Navigating AWEtism platform. It’s designed to help parents cut through the overwhelm and find solutions tailored to their child’s unique situation. If you’re interested, I’d love to share more about how the platform could support you in exploring probiotics and so much more. I also host live streams where we dive deeper into these kinds of topics, and I’d be happy to have more of a conversation with you there. You’re doing an amazing job seeking out the best for your child, and I’m here to help however I can!

@@navigatingawetism Are those inquiring for themselves eligible to join too?

@@literallylikedude9814 Absolutely! I’d love to chat with you to make sure the platform is a great fit for your needs. My main focus has been parents however I do work with teenagers and adults. Every person is unique, and it’s important to me that this resource aligns with what you’re looking for. You can schedule a time to connect with me here: awetism.co/na-exploration-call Looking forward to learning more about your journey and seeing how I can best support you! 😊

Thank you for your question! It’s important to understand that communication is deeply personal and what works best can vary from person to person. For some non-speaking individuals with autism, a letterboard provides the level of precision and motor planning they need to express their thoughts effectively. While technologies like iPads can be helpful for some, they may not accommodate the specific motor or sensory challenges others face. The role of the letterboard partner is also critical-they provide support, not interference. It’s great that you’re curious about how these methods work! Raising these questions helps us all understand the diversity of communication needs and approaches.

@@navigatingawetism Why don’t you try showing something to the autistic person that their helper can’t see, to make sure it isn’t the helper subconsciously authoring the messages? You’re familiar with facilitated communication so you know how dangerous it can be to put words in the mouth of a disabled person that are not their own. That’s why ensuring that it’s not the helper authoring the messages is so important. It’s not harmless if it’s happening; disabled people have been taken away from their families, even sexually abused based on messages they supposedly communicated using a facilitator that were later found to be authored by the facilitator themselves.

Thank you so much for your kind words! I’m glad you found the video informative. 😊 Regarding your question, leucovorin has been used for decades in humans and is generally considered safe, even for long-term use. However, comprehensive long-term studies specifically in children are limited, so it’s always important to monitor for any changes or side effects over time. Please feel free to ask any other questions-I'm here to help!

Hi! Thanks for your question. It’s really important to clarify that oregano essential oil and oil of oregano are not the same, even though they come from the same plant. Here’s a quick breakdown: Oregano Essential Oil: This is highly concentrated and typically used for aromatherapy or topical applications. It’s not generally safe for internal use due to its potency, especially for children. Oil of Oregano: This is a diluted form, often mixed with a carrier oil like olive oil, and can be ingested in small amounts under proper guidance. It contains beneficial compounds like carvacrol and thymol but at a much safer concentration than the essential oil. If you’re considering using oregano essential oil for your child, I’d recommend proceeding with extreme caution. Most functional medicine doctors do not recommend taking essential oils internally.

Thank you so much for sharing your experience! It’s wonderful to hear that you’re starting to see speech improvements-those milestones are always so encouraging. :-) Leucovorin can be such a valuable tool for some children, and it’s great that your psychiatrist was open to prescribing it. The FRAT test can be helpful to guide decisions more specifically. If you’re curious about whether it might still provide additional insights, it could be worth discussing with your doctor. You’re doing an amazing job advocating for your child’s progress and well-being. Keep up the great work, and please feel free to share any updates-I’d love to hear how things continue to go for you both!

That’s amazing to hear-299v really is incredible! It’s such a powerhouse for supporting gut health, and I love that it’s working so well for you. Gut health is such a key part of overall well-being, and it’s always great to find something that truly makes a difference. If you have any tips or specific ways you’ve incorporated it into your routine, feel free to share-I’m sure others would love to hear about your experience!

That’s fantastic to hear-thank you for sharing! It’s amazing how something like digestive enzymes can make such a noticeable difference. Improved eye contact and reduced stimming are such meaningful changes, and it sounds like you’re really tuned into what’s helping your daughter. If you’re open to sharing more, I’d love to hear about how you introduced them or any other changes you’ve noticed. You’re doing such a great job supporting her progress-keep it up!

@@navigatingawetismHi there. I actually read a book called Enzymes for Autism and other neurological conditions by Karen DeFelice and it was honestly life changing for my daughter. She’s went from fleeting eye contact, being in her own world and not responsive, to now giving fantastic eye contact and interacting with others. She had issues with her gut which now seems to be resolved too and isn’t getting unwell as much. Still speech delayed, but I’m delighted with the progress. Hope this helps other parents out there.

Thank you so much for your kind words and support! 💚 I’m so glad you’re finding the videos helpful-that means the world to me. If there are any specific topics you’d like to see covered, feel free to share. I’m always here to help and would love to hear from you!

Did you just say you love getting enemas for the last 30 years???? Wtf. Go eat some fiber, drink lotsss of water(half your body weight in Oz but honestly a gallon is fine for like 150lb person lol) and then take some prebiotics and probiotics and I promiseeee you you’ll poop unless your butthole is messed up and doesn’t wanna come out right and gets stuck but anyways enemas are the last thing I’d want… that’s insane tbh.

Thank you so much for sharing your thoughts! I really appreciate your commitment to learning and exploring quality information so you can make the best, most informed decisions for your child (or yourself). Every child’s/person's journey is unique, and it’s wonderful to see adults like you seeking out knowledge to support them/selves in the best way possible. 🙂