- 14
- 14 965
Erika Margurite
เข้าร่วมเมื่อ 16 พ.ค. 2012
Hello welcome to my channel, my name is Erika i started this channel to share information about my cancer journey.
วีดีโอ
October Cancer update | Depression after cancer?
มุมมอง 5543 ปีที่แล้ว
Hey everyone!! Welcome to my October Cancer update in this video I talk about depression, fertility, and scan results. please like and subscribe, leave a comment if you have any questions or if you have a topic you would like me to talk about in my next video! socials frail.bones
How is my Fertility after cancer| Hodgkins Lymphoma | Refractory and stem cell transplant
มุมมอง 5973 ปีที่แล้ว
Hey guys! In today's video, I am going to be talking about my fertility. when I was first diagnosed with Hodgkin's lymphoma I went to youtube to find videos about fertility and people's experience with it. sadly I could find much. so today I sat down and figured I would talk to you guys about my experience (so far). Products mentioned -Premom premom.com/collections/combo-pack-ovulation-pregnanc...
Cancer update | how has Corona Virus impacted me? am I doing Maintenance chemo? | Hodgkins Lymphoma
มุมมอง 2993 ปีที่แล้ว
Hey guys! In this video, I talk about the Corona Virus, where I am at in my recovery, and some of the medical choices I have made. Hope everyone is having an awesome day and I will talk to you guys later! socials Instagram Frail.bones
Stem cell Transplant part 2 | Hodgkins Lymphoma
มุมมอง 2K3 ปีที่แล้ว
Hey guys! In this video, I will talk about the stay in the hospital and how I felt during my stem cell transplant. thank you so much for your patience and I hope this answers some of your questions.
Stem cell transplant part one | Hodgkin’s Lymphoma
มุมมอง 2.9K4 ปีที่แล้ว
Hey my name is Erika and in This video I talk about my experience with preparing for my stem cell transplant and what that process looked like for me. I am 24 and was diagnosed with Hodgkin’s Lymphoma stage two in October 2018.
Raw video of my chemotherapy | abvd
มุมมอง 1K5 ปีที่แล้ว
This is what a typical chemo session would look like for me
How I avoided looking sick during chemo | abvd chemo
มุมมอง 3725 ปีที่แล้ว
In this video I show you my every day routine to got to work and not look as sick as I was. I did chemo avbd for my stage two Hodgkin’s lymphoma. I lost my hair, most of my eye brows and eyelashes. My skin, lips and eyes became pale and lifeless. I would try to my best with makeup and wigs to look healthy, at least at work.
Emotional side of cancer | stage two Hodgkin’s lymphoma at 23
มุมมอง 3935 ปีที่แล้ว
Hey guys! I am letting you guys in on how I have been feeling emotionally during this cancer journey so far. This is a new set up and I think this is how I will film my videos during the summer time. Instagram frail.bones
Hair loss journey | abvd chemo
มุมมอง 2.6K5 ปีที่แล้ว
This is all about my hair loss while doing abvd chemo therapy
Port placement and Biopsy surgery | which one hurt more?
มุมมอง 4305 ปีที่แล้ว
I tell you my experience with my port placement and biopsy surgery.
Cancer update!! Hodgkin’s lymphoma stage two!!
มุมมอง 1.8K5 ปีที่แล้ว
It’s been about four months since I have started this cancer journey and holy cow a lot has changed. This is a quick update about what’s happen so far.
God blesss u
What did they do to put your port in? Was it painful?
I pray you are doing so awesome and are completely cancer free 🙏 ❤
Hi i am from india and i have also be planned for BMT..... 🥺can u suggest me something...
You're very beautiful! How are you doing? God bless you.
Thank you for sharing! husband is on T-9 today, having problems with nausea, and eating as well, hope all is well with you today!!
I am doing very well, just celebrated my 4 year stem cell anniversary!!! Good luck! Your husbands gots this!
Is this a BMT?
Hi…i have been through the same diagnosis and same treatment like you first ABVD and the BEACOPP and then GDP then stem cells and then transplant. After the transplant doctors suppress my periods for about two months then i had my period in june but now it’s been three months now I haven’t got any periods yet. I am so worried about it.
ABVD doesn’t affect fertility , within 3-6 months u will be normal
hi erika was this superclavicula lymph node cancer ? because i will be getting confirmation thats what i have next
You are so beautiful and so damn strong! Wow. How are you doing now, love?
I am doing very well, ended up getting a stem cell transplant to stay in remission. I have been cancer free for three years and counting.
I just got my port yesterday for breast cancer and ive had to take pain medication and some bleeding... Not to much bleeding, but my chest and neck hurt and i cant lift anything, but i guess thats normal and different for everyone. But, this video helped me because I see that im not the only one who has pain after port placement. I hope and pray you are doing well and ate healed in Jesus Name Amen 🙏🙏🙏
Going through it now
Thank u so much that helped me
Thank you for sharing
Your brows look amazing! I'm relapsed and heading into that now. Wondering if I can squeeze in brow microblading before I start
I just finished my stem cell transplant...I'm on day 50 and just beginning to get my appetite back....and also am a Hodgkins lymphoma patient. I watched your first video before going in and found it helpful. I can relate to everything you say in this one! The thing that I hated (there are many) the most was the "flushing." They'd always say, "okay I'm just going to flush the line" and it completely nauseated me every single time. It just seemed constant. Anyway, I'm very grateful to have the opportunity and hope my lymphoma is gone for good. Thank you so much for posting this. I LOVE your doggie!!!🐾❤😊
how are you now, hope everything's well
Hi I was wondering if everything is fine now and you got pregnant, because i am actually in stage 2 too and I am so worried regarding this matter.
Unfortunately I haven’t gotten pregnant yet.
Seriously so thankful you shared this and that you’re so positive. Was the three prong catheter mandatory or can you do a stem cell transplant through the port? I might’ve missed this as well but how long did you have to stay in the hospital?
Oh wait 12 days. Sorry!
It was mandatory, because they had to take my blood out and collect the stem cells and then give me the blood back, all in one loop. So the three prong catheter was the easiest way to do that. Yeah! 12days, but I still was so so frail when I got home. Looking back now I think they wanted me out as soon as possible because the pandemic was about to hit and the health care professionals knew that.
I was diagnosed with HL IVB and did the same chemo regimen but my post chemo scan showed that I pretty much stopped responding after the check in scan we did after 4 infusions. I’m literally going through the same exact thing right now. We’re discussing a stem cell transplant and I am terrified
It is hard because it’s scary but mentally I just checked out and slept a lot, honestly once it’s done looking back it feels “easy” in comparison to having cancer. Winning feels good. Focus on winning.
How are you now@briannafresh5964
I have a Hodgkin’s recurrence and have been nervous about the next steps. This video has not only helped me feel like I have some idea of what’s next, but has also helped my family and friends. I appreciate so much that you posted this. I am amazed by you!
How are u now
The sparkly beige one ❤️❤️❤️
The “simple” One too looked awesome.
Hey! I just found your channel. I had stage 2b Hodgkin’s lymphoma. I’m now 5 years cancer free. I got incredibly depressed after I finished treatment. I thought something was wrong with me. I felt I should have been happy 100% of the time because I beat cancer. However like you said, there is still a lot to process after finishing treatment. I didn’t realize that until much later. As far as motivation goes, I also felt similar. But our bodies have to take time to heal from trauma and there is no time limit on that 💜 I also had activity in my thymus! It scared me when my doctor told me, but he wasn’t worried at all. It eventually went away. Every body is different. My period completely stopped during treatment, but came back once I was finished. I didn’t think I’d be able to get pregnant after chemo, but I now have a beautiful 1 year old baby girl. Wishing you the best! If you ever want to talk, I’m here! 🙂
Your story sound very similar to mine. I hope I am able to conceive naturally. As for my mental health things have gotten better but I think I have just changed from who I was before cancer. Thank you for reaching out.
What specifically contributed to the weight gain. What steroids? I just got diagnosed
Yes the steroids, I also think part of the reason I gained weight was that I quit smoking when I started chemo. once I was off the steroids I lost a lot of the "water weight". I am not as small as I was before treatment but I am healthy, about 125. just know your body will fluctuate with different medications.
@@erikamargurite6292 mem why my lymphmode are fluctuate during AbVD in hidgkins lymphoma stage 3.plz help me .plz ..
@@allinformation2563 I would ask your oncologist to use BVB as your treatment of abvd isn’t working.
@@erikamargurite6292 while chemotherapy is going on lymphnode size are decrease but again increase after 5-6days
@@erikamargurite6292 cd30 and pax5 positive lymphoma plz help me
Tonight is Christina's first night at City of Hope, for her 21 day isolation stay for STEM CELL TRANSPLANTATION. I am going to pass this video to her!!!! Thank You.
Chocolate Treat good luck Christina! The days will go by quick ! 💖
Well, I went with her tonight as planned, but somehow they did not put my name on list to enter the hospital!!! She started to cry, she is still in bone pain from the shots, and very nervous about the upcoming future....you know the chemo.....she is a mom with kids, but I think she is fragile and afaid. So swiftness in the days ahead are needed to ease the real anxiety and sadness.
Chocolate Treat is she allowed to have company? That helped me a ton. It’s just like a contraction, I’m the pain and Irritability will peak then it will slowly go away. This thought process might help her.
@@erikamargurite6292 the oncologist said yes last week....but no name on list late last night, so very unfortunate as they started the chemo immediately. I hope the rules did not changed again because of C-19!!
Chocolate Treat keep trying to be with her. Good luck !
I know the feeling. losing so much time in your life because of the stupid cancer really sucks but on the other hand thank God for the doctors visit 2 1/2 to 3 years is a small price to pay for the rest of your life. I was diagnosed February 2018 with diffused b-cell lymphoma triple hit and I was stage four end stage. nine months of R-CHOP etc. ended in epic fail, Then December 10, 2018 I had a car T cell transplant and again it failed, so then I did some other drugs and July 17 I did a aloe stem cell bone marrow transplant. only had a couple issues with my stomach like you were mentioning, it’s interesting watching people like you who were several months ahead of me. Wish you the best of luck and I hope to see more videos take care
Tank’s link hope you recover quickly ! Are you all finished?
Erika Margurite im at +65 so i figured i have a few days left before i can even think about going home. i love to far from hospital to go home i’m staying in a health and wellness hotel that’s only a couple block’s from the hospital, and having a little bit of GVHD. so i imagine they will keep me here for the full 100 days before they let me go home
Tank’s link I had to stay at my parents house after transplant because my house was too far away. I am glad you are in a hotel and not stuck in the hospital.
Your such a beautiful powerful woman. Would love to continue to hear about your story and your recovery during covid too. This video will help so many people 💗
Rebekah Kuehl thank you !!
This is so helpful! My sister is also in your same group of refractory- thank you for sharing I know it must be hard.
Please do a part 2! I’m going through this exact same thing and would love to hear about your stem cell transplant experience.
Sorry to hear you are going through this, so is my sister. Best to you- I hope you are healing
Erika do you have stage 2a or b? Sorry for all the questions!
Nat Say I don’t know. Classical Hodgkin’s stage two is all I know.
Did you have the classical symptoms of high fever, night sweats and unintentional weight loss? If so you are a stage 2b, if you did not have any symptoms besides the lymph nodes then you are a stage 2a. I am a stage 2a
Nat Say I had weight loss and rash on my legs also I had night sweats BAD
I just watched this video and got some updates. I’m so glad you responded well to the new chemo and you’re on your way to the stem cell transplant it will be a great outcome! Please keep us updated and thank you for sharing your journey! -medical student also going through stage 2 Hodgkin’s lymphoma
Thank you so much for sharing, I am in the process of getting treatment stage 2a chl. Only had one treatment so far so it’s nice to hear things to except. By the way you look beautiful with no hair ! Hope you finish treatment soon! Any idea why they are suggesting you to do radiation ?
Thanks for making this video - I'm in the exact same position. I have some refractory Hodgkin's and I've started undergoing BvB waiting for a clear scan. It's really disheartening to hear that a treatment that works on most people didn't completely work on me but it's reassuring to know that I'm not alone. I'm nervous about eventually getting a bone marrow biopsy though! My pain tolerance isn't super high and to be honest, I had a big fear of needles before all this cancer junk came up. I'll probably ask them to sedate me or something. Do you have any advice? Glad to hear you're doing well! :)
my bone marrow biopsy was painful but i just talked through it, laughed as much as I could. my partner was with me holding my hand so that helped a ton. you can ask for the anti-anxiety pill I think, I didn't take it but I know it helps some people. good luck!!
My sister is in the same place, best to you. How are you now? I am so sorry everyone is going through this during Covid
@@JG-ix5xr Hey Joy! I'm very sorry to hear about what your sister is going through. I got my transplant back in July and am doing great. I ended up getting a month of radiation therapy post-transplant and am currently doing maintenance therapy, but my hair is back (softer and curlier) and my strength and endurance are on par to what it was before I got diagnosed with cancer. I actually got back to college (all online, of course) less than two weeks after I was discharged from the hospital! Transplants are nerve-wracking for both the patient and the family. I was extremely nervous before mine because I wasn’t allowed to have any visitors and I’m not great with medical procedures. I was 20 at the time and it was super overwhelming. I felt so “abnormal” leading up to it if that makes any sense. But, I promise you that the feeling is temporary and passes quickly. You will all get through it, and I bet it won’t be as bad as you think it will be. Let me know if you have any questions about anything. I’d be happy to be of any assistance. 😊
@@AnshJhatakiahey how are you now?? My husband is having immunotherapy now and his transplant is planned after 2 months...
hola hop you are feel much better .. during your treatment of ABVD did you get a pet-scan?
thank you, I do feel better. I did, I had a pet scan every two months to see progress.
💞 Ran into a speed bump with my transplant. Glad you made it through!
Thank you, I am so glad I had my transplant before the virus.
You are completely gorgeous, energetic, and honest. I hope I can face this same condition with your strength.
Are you ok today? Praying for you. 🙏🏻
Outside with Kim I am okay, I am healing well. I am staying home to relax and heal. Thank you.
Thought I would share God put everything we need in this world even the cure for cancer But they will never want people to know about it. It’s all about money and power to them. I want to share this with everyone that is going through any type of cancer or any sickness or disease. Please look into it. Sorry that it’s only available in Mexico. There is translation on their Facebook page. Here is the link. th-cam.com/video/bcNYvWmoJk8/w-d-xo.html facebook.com/LaboratoriosBIOtiquin/ God bless
what did the biopsy say? What is/was the specific name of the lymphoma?
Hodgkins lymphoma. the same type of cancer I had before.
Thank you for sharing your story.
you are so strong keep smiling
Du bist so jung und stark Erika💪🍀🙏
Hallo Erika🍀🍀🍀❤ viel kraft und Glück für dich.....🙏
I hope you are doing good! Sending prayers and healing ❤️
Julia A2LA I didn’t reach remission with 12 treatments of abvd, but I am doing a new treatment now.
Just curious how was you’re diet ? Did you eat allot of meat and processed food ? My husband has relapsed after 1 year of remission HL.
Julia A2LA I had a very unhealthy diet before cancer. A ton of fast food and coffee. Hope your husband reaches permanent remission 💕
a good diet is no guarantee to be disease free but surely something everyone should aim for. Some things we cant influence though, even if we wish we could. I believe EBV plays a big role in developing Hodgkin. But it’s surely only one of many puzzle pieces. My mom had morbus hodgkin in the 80‘s and later on non hodgkin (angioimmunoblastic T Cell lymphoma)
That’s normal for HL, it’s typically easy to beat but also one of the most recurring or likely to cause a secondary cancer unfortunately
That was me a year ago, it was tuff.
marilluvia2000 yeah super rough, I can’t even watch this video because of the ptsd.
You are/were beautiful either way❤️
• katrina lujan • thank you ❤️
God be with you kiddo 🙏👌
Please listen to me. You need anti inflammatory medication. The Anti inflammatory meds with prevent the prostaglandin E2 from impairing your T cells and disabling the macrophages that eat the cancer. Please go to my channel and watch my videos related to this subject
I will look into it thanks!
Why don't you just get a wig to ,cover that baldness because I am sure you may get looks? Not trying to be rude but you look like Bart Simpson
You can look at my Instagram to see how I style my bald head or wigs.
She doesn't has to She is confident and that will help her face the disease. She will never collapse with such a soul. And you will keep hating people and harming them until God punishes you. Lady in sh**. 😤
This comment is so upsetting. To see that someone has decided to shave their head because they have cancer, and their emotional journey and how it affected them, only to possibly completely obliterate their self confidence? Next time you feel the need to ask such an off-putting question, how about you don't add on the rude comment.
@@katrina3861 I DO NOT GIVE A FUCK WHAT YOU THINK SO YOU CAN GO FUCK YOURSELF
@@katrina3861 its not rude it's true fucktard
Hello This woman in the small youtube profile picture is you? I hope you full recovery. Hair is not a problem. The important thing is being healthy and happy. You look so energetic. As a medical student can I ask about your diagnosis? what do you take ABVD for? Best wishes. :)
I have a stage two Hodgkins lymphoma, ABVD is four chemo drugs that are used to kill my kind of cancer. I receive a dose once every two weeks. P.s yes, the picture is me.
@@erikamargurite6292 Yes thank you I managed to know more about hodgkin's lymphoma later after my question. Side effects rather than hair loss: A: cardiotoxicity B: pulmonary fibrosis V: peripheral neuropathy D: burning at the needle site of injection But most patients will not have any of the above mentioned SE's. The good news is that this disease have a very favorable prognosis :) :) Stage 2 I suppose you have two enlarged LN's somewhere in the chest eck Get well soon 💐💐💐
I had every lymph node from my belly button to my jaw was cancer.
My mom's starting chemo Monday, she has breast cancer and it's stage 3. I understand it's a hard time and I want you to know that you are amazing and that you can do this.
Bailey thank you and good luck to your mom
@@erikamargurite6292 thank you, good luck to you aswell