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Life Under Deborah's Palm - The Dementia Road
United States
เข้าร่วมเมื่อ 18 ก.พ. 2021
Part of Life Under Deborah's Palm includes a video series addressing things my husband and I wish someone told us about caretaking Alzheimer's / Dementia for three of our parents. So many things - from behaviors to legalities to assisted living placement. You name it and we've learned it the hard way. This Vlog is to give insight into things no one tells you. Caregivers are left to muddle their way through a system that can be difficult all while navigating a disease that takes unexpected twists and turns down a long road.
3 Heartbreaking Things I Witnessed Caretaking Dementia
Dementia brings so many challenges and so much sadness. These are three things were the most heartbreaking to me.
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มุมมอง: 1 232
วีดีโอ
Avoid These 4 Things When Talking to a Dementia Caregiver
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Four things that people said (or did) that were sooooooo tiring and aggravating while being a caregiver for a loved one with dementia. What bothers you? Comment below. I've Released a novel! Universal Amazon Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote...
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If you help someone with dementia do grocery shopping, you know it can sometimes be a challenge. Here are five things I did to help with the process and keep the refrigerator safe from food poisoning. I've Released a novel! Universal Amazon Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carouse...
Dementia: 3 Tests You Can Use at Home
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Dementia Testing: 3 Types of Dementia Tests used by doctors that you can also use at home. They are easy to administer and score. Mini-Cog: www.alz.org/media/Documents/mini-cog.pdf MMSE: www.bmc.org/sites/default/files/For_Medical_Professionals/Pediatric_Resources/Pediatrics MA_Center_for_Sudden_Infant_Death_Syndrome SIDS_/Modified-Mini-Mental-Exam-MMSE.pdf Montreal Test: www.parkinsons.va.gov/...
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Getting information from the medical community can be frustrating! Here are ten things I wish a doctor had told us. I've Released a novel! Universal Amazon Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Clock Calendar: amzn.to/3p3Jk04 Ke...
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Frustrations: Trying to find the right doctor to diagnose and treat dementia. Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Key / Purse Finder: amzn.to/43ElQ0G Corded Phone: amzn.to/3N9wl4W Website: lifeunderdebora...
Normal Aging or Dementia?
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What's the difference between normal aging and dementia? Besides the disease itself, one of the most frustrating things is the medical community. Let's start with the so-called "age-related dementia." Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk...
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Final update on my mother, along with thoughts on death. You can also check out my book! It is fictional but has a lot of good info that will make you laugh and cry! Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Ke...
Dementia: The Struggle of Taking Meds
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When a dementia patient doesn't want to take their meds. Here are some ideas that may help. Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Key / Purse Finder: amzn.to/43ElQ0G Corded Phone: amzn.to/3N9wl4W lifeunderd...
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Dementia isn't like any other disease. Caretakers have a lot on their plate. This is my short list of some of the things I face. What's on your list? Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Key / Purse Finder...
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I WANNA GO HOME is an often-heard demand of a dementia patient that has moved. This video has thoughts on why they are saying it and how to handle it. Amazon Universal Book Link: mybook.to/LaBelleCommunaute Affiliate Links to Amazon: I earn a small commission if you use the links: Medready 1700: amzn.to/43TbA4c Medready Carousel: amzn.to/3CulSwk Flipper Remote: amzn.to/3NtGyuo Key / Purse Finde...
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The menus at the restaurant, yes, absolutely, my mother would always say 'same as you'. Then she'd end up with chop when she really doesn't like meat that much. But now that she is wheelchair bound and unable to leave the house I think we had it good then.
Thank you for your videos 😢. My mom is 86 and from watching your videos, she’s in stages 5-6. Your videos have helped me recognize things going on with her. I’m responsible fir her and I’m in the hamster wheel. But u finally cried watching this. I’m grieving for the mom I used to know. I’ve come into terms that this mom with dementia is just another stage. But…. I miss my mom because she was a really good mom 😢. As we journey through this I will keep your advice. 😢. I will let go. Let her go home with God. In the meantime, we’ll do everything we can. Some days I do need God to sustain me. 😢😢😢
Thank you so much. I’ve been getting concerned about my mom lately (she’s 88) and this video has convinced me something is going on, apart from normal aging. Will be making an appointment tomorrow.
Last July, I was in the hospital for 3 weeks and my brothers and sisters had to take over being there for my mom who has had dementia since 2020 right before lockdown of Covid. Me and my younger brother are there day in and day out with my mom(or should I say I am). Even though I was in the hospital, it felt like a vacation for me . But I then came home and suppose to be recuperating and had to "go back to work", ordering my mom's pills, etc. When told one of my sisters what I had to order 3 of my mom's pills, they are like (my mom takes 10 or 9 pills at that time) in the morning and 3 in the evening) my one sister was like "How did that happen?" I was like, "I haven't been home in 3 weeks)
It is definitely hard.
@@lifeunderdeborahspalm-thed8114 yes it is. I even have blacked out due to the stress, resulting into things I wouldn't have done otherwise
Wow i want to do this for our mother. She really needs to go somewhere
It was hard, but they all did well and made friends.
@@lifeunderdeborahspalm-thed8114 i wish you could come help us. I really feel like you could really help ppl. With the moving. And getting them in a place.
And another thing my sister and i are afraid of is mom wont make friends bc she is a hard person. But we feel she needs assistant living bc she keeping herself isolated and thinks we should do everything for her. She uses that excuse too she cant afford it and she can.@@lifeunderdeborahspalm-thed8114
I can totally relate, I didn’t see myself burning out, I was on survival mode with mom, my husband put his foot down and we then put her in a home. It was hard but I realized that I was running into a wall and when she left, I got back my life. I was slowly coming back to the person I was before…I had time for my family and me and mom is being well taken care of. Something I alone as a caregiver was not being able to do.
I agree. It also allowed me to enjoy my mother. I took her for ice cream, and family dinners, etc. and had a ton of patience for her where before, it was very stressful.
How long does it take to advance from one stage until another
It can vary greatly from person to person. We were told that from diagnosis to death averages 10 years. My FIL was much shorter and my MIL was longer. There was a person in the assisted living facility that lived there for 20 years before he passed.
You have helped me so much l don't feel so alone now
My mother exactly..she thought that there was a witch coven living upstairs. She wanted to die,and finaly she did.that was not my mother.l wanted her at peace
My fiance wonders what to talk about with his mom even though she's only in the middle stages. She doesn't remember almost anything. What she had for lunch,her grand daughter visited (she did??) etc. he said it's gone down to "small talk" he calls it...the weather, the birds,that kind of stuff. What I do is talk about myself,what I did,funny stories that happened, the cats..she seems to enjoy that and laughs or gets a kick out of it.
Good idea. I started doing the same thing, and it doesn't matter if you repeat the stories.
My question is this- WHEN did the system flip to taking them here and there for treatments!?? Back in the 70s-90s you’d ask the elders “What ever happened to aunt so and so? “ Oh her? She lived upstairs from us and didn’t feel well one day went to the hospital and died there” Or “Uncle so and so had SENILITY” (dementia Alzheimer’s) Or they had a heart attack came home NO PT- NO OT- NO weekly nursing. NO stopping the lives of the caregivers to take off work driving them all over etc killing their OWN financial situation. This is what infuriates me. Mom had terrible brain cancer twice and broke her hip recently she’s FINE but now stage 5. Running out of money. This is THE WORST LIFE FOR HER AND HER FAMILY.
There is a lot of truth in that. My great aunts and uncles did exactly that.
Thank you for guidance I'm a caregiver with dementia clients more family members need your views have a blessed day. -jelizabeth from Texas
Giving away large sums of money or donating huge sums to charities. What the money, its going ti be needed someplace else..
Good point. We didn't have that happen but my mom was pretty sure the junk mail that was soliciting money was a bill to be paid. Thankfully, she would hold the mail and wait for me to help her with it.
Thank you so much for this video. I've been nodding my head throughout saying "Yes that's my mom!!" She moved into a care home today... 97 years old and obviously stage 5. 😢😢🫤
I wonder if sleep-walkers are prone to Dementia?
I hope not, because I have done it my whole life 👀.
Too much of talking. Show clips
Very informative and frank. Thanks!
Our Drs look concerned but aren't giving details. We live in a small town with a gp and medical assistant plus an annual cardiologist visit My guess is from the pinched looks they expect it to go bad but they're not saying 🤷 Self education. Thanks
It is sooooo frustrating when doctors won't spit it out. I know someone who is dealing with this and needed to take the FMLA - they won't approve it because there is no "official diagnosis."
My partner is going in Memory care in the next couple weeks. Thank you so much, I really needed this.
Sorry to hear that. There is no perfect way to handle it.
Thank you for being so honest!
My mother started hoarding after I moved out of the house. Last child I guess. Not being able to comprehend fancy tv remotes or new technology does not indicate anything.
I think a lot of parents take over closet space. It can definitely be difficult to "move up" technologically depending on the person. My mom was one of them.
My father had dementia in the middle stages. He had a simple heart procedure with anesthesia. He never was the same after that. His cognitive abilities took a steep decline. He had a concierge dr and a cardiologist advising him on this procedure and never once did they mention that some just don't come back after this. It would have been good to have known as after the fact every nurse we know told us it's very common.
That's horrible! I never heard that before, but it doesn't surprise me either. Anesthesia can be difficult on older people. It made my dad weird for quite a while (He was 88).
you do a good job on ALL videos I am dealing with stage 4 caretaking right now
Thank you. It is difficult, best to you on this journey.
Thanks so much for sharing. It’s all hard! R
It really is!
I've lied to my mom for a number of years now about the death of her sister. I told her when it first happened, then a few more times after. Each time, she became extremely depressed and agitated. With her losing language, she also says things exactly the same now. She'll ask me, "have you heard from Carol?" And I can honestly say back to her no haven't and fortunately, she doesn't say anything more.
We handled it the same way. When my MIL would ask about her mom and her mom's house (she died 50 years earlier), we always told her we just saw her and all was well. She would say, "Oh, good. I'm glad you checked."
Early on, my mom couldn’t make a selection from a restaurant menu. She would just stare at it and pretend she was reading it. When I lived in another state from her and she came to visit, she wasn’t able to use the appliances because they were slightly different from hers even though a stove is a stove!
They are used to routine - and appliances. Sometimes appliances get more complex for some seniors, other times their basic reasoning abilities are becoming an issue.
I have the exact same thoughts you are expressing. I'll be grateful if my mom goes before it gets much worse than it is right now. We've done a POLST form with her doctor in the last year, I've prepaid for her mortuary and cremation services. I'm ready. My sister is not ready. She hasn't seen Mom for five years now. And I've managed to get my mind okay with that too. My sister is going to be a basket case. I honestly hope she just stays home at this point and stays away at the death. I might end up feeling the need to punch her lights out. Like you, I grieve with each sign of decline.
My mom has entered that "shut up and knock it off phase..."
My dad has very late stage advanced Dementia.. He knows absolutely nothing, speaks out of point He started with severe delusions, Hallucinations Memory loss Poor cognition One year ago he would wake up in the morning as early as 7am and get dressed up, saying the police is coming for his arrest, he killed someone in his dream He had chronic psychosis, couldn't differentiate what is real and what isn't.. But right now in 2024 he is almost gone, severe muscle atrophy, he can't get up from the bed, sometimes he can't stand, he will stagger backwards He pee and poops himself and picks up the poop with his hands, He can't even feed himself if his life depended on it.. There is alot i can say about him,but i don't wanna make this comment so lengthy his case is the worst imaginable trust me. He was a college professor, always stressed and has never exercised before..
Watched all your stages, from this retirement village where my wife and myself have lived, the last 20 years of our first and only marriage, 30 years ago. Australia after my body became a cabbage body, in a car accident, 40 years ago. Severe Traumatic Brain Injury. This is my third some in the seven stages of dementia. The previous attempts were from babyhood to stage one. From the cabbage body, and the cabbage brain. We use my cabbage patch dolls now, to explain this current process.
Sorry to hear that.
Thats why I thank you so much for your videos ❤❤❤❤
You are so welcome
My mum is the opposite. If she knows i coming over she throws out things. Even if it was only yesterday she got it. ❤❤❤
My mum gave the person who does shopping a very old receipt that you could hardly read due to being so old. I told mum you cannot give her that! I can not even read it. Mum got angry and said she hated dealing with idiots. I tried to explain half of it was worn out and could not read it. She said yes if it is rubbed out i dont want that. So me and the poor lady went through what we could read and wrote a list... I left mums place before the lady came back with mums shopping. I received a text later in the day saying that lady must be simple because she didnt get half of what was on my shopping list... ❤❤❤
You have brought tears.😢 So many think they can do better but are not willing to step up and do these things. ❤❤❤
If mmi fave my mum rhese she would get very angry with me. All trust gone...
Wow, oh wow... You have a heart of gold. Thank you for sharing this. Your mum sounds like mine. ❤❤❤ Your compassion and understanding is what is lacking in most videos about dementia...
My mom had a directive that said when my life ceases to be meaningful I do not want.. and it listed no artificial life support and medications etc. So when she needed penicillin to clear up an infection I reread her directive and said no. She passed quickly and I also said thank God she was completely healed and in his care. I grieve for my loss but praise God for her gain!
Knowing their wishes is so crucial. It takes the guilt off the person who has to make the decision in the end.
My mom lived with us for two years until I could not keep her safe in our home. The day I took her to the adult foster care home (the day after she had wandered out of the house in a blizzard wearing only in her nightgown at 3AM.) I asked her who I was and she said " I think you are the mother" and I said "yes I am ".😢
My MIL once asked my husband how she knew him - was he her husband or father? He told her son, but I don't think she understood what a son was.
Love this Ty
These videos are 3 yrs ago but they are so relevant today🙏 Thank you
I think mom had dementia before she passed. She would cry for no reason or very little reason. She would buy a curling iron everything she turned around
Thanks for your videos. Always very interesting. My 88 year old mom is like your mom. My mom became OCD with grocery shopping. She spends hours in the store. I live in Chicago. She lives in FLORIDA. I spent several months in FL with her. I have groceries ordered and delivered to her house via Instacart. Off Topic: I took care of my husband 24/7 for many years. I was married 34 years. Eventually, my husband's Parkinson's dementia progressed. He became very volatile, argumentative, nasty, belligerent, threatening, unable to do the finances, etc. In late August 2023, he lost the ability to speak/ communicate/talk. He went into hospice care at a Memory Care facility in September 2023. He has been in hospice 8 months.
Sorry to hear, that is a lot to deal with.
Anti depressants DO NOT WORK- actually makes it worse!!
That was definitely our experience.
Doctors do not share much information when it comes to dementia. There are many different kinds of dementia. There's Parkinson's dementia. I am considering sharing my experiences on TH-cam for the last 10 years. Thanks for your videos. Very informative, educational and interesting.
Yes. I remember those videos. My Mom is with me in our apartment. She has been diagnosed now with Lewy Body Dementia as well as Alzheimers. Yes, my Mom has had UTIs. 3rd one of this year is right now. The things she says is amazing. But yes I learned that from you to ask her questions like ehat makes you think that way, and that has helped sooo much with curving her attitude. Yea Mom is starting to enjoy just being home with me. So, I have three family members that have helped take care of her so I don't have to take her out when I have a doctor's appt. With medicines and groceries, we have them delivered. Your videos have and continue to help me and my friends who are dealing with thwir loves ones with dementia as well. ((((Healing hugs))))
I’m going through that very thing now with my husband. I desperately miss who he used to be. It’s the hardest thing for me too. Just devastating heartbreak. 💜
😢It is for sure.
Thank you for sharing your story.
You must have read my mind today. I cannot find time to do self-care. My hubby has minimal cognitive impairment. It’s more physical in his ambulatory navigation. He has lost some of his executive function, is deaf and unsteady with balance. At age 91 he does fairly well. But family enters in and wants to provide input but they are not the caregiver. Often that sends me into a tailspin trying to meet everyone’s needs. I’m 78. At least young enough to provide care. My hubby and I share a unique and deep love to this day. He’s easy to care for and feed as well. For the most part I just find myself exhausted beyond belief taking care of all the details of life and trying to fit in any kind of self-care. I still work part time which I enjoy. He’s not needy of me for a few hours a couple days a week. Any advice or help would be sincerely appreciated
When family provided input to us (that was unwanted) we told them it was a good idea and to let us know when THEY were going to do it. That stopped it pretty quickly. If it was stupid advice - and we got a lot - we agreed with them and completely ignored their ideas.
Hi I'm a pc / ain in a care facility its hard but rewarding with some who ask what am I doing hear or why I tell them that they have been sick and part of the sickness is that it has affected part of there memory .oh is the reply does my famly or parents know I'm hear .? I tell them yes and not to worry as they are getting better last week they didn't remember there parents or famly it has worked for me and I can direct them to do something else elese and they are happy hope that is helpful I also am with my husband looking after my ma who is in stage 5 dementia
We used the same thing with my mom. She had a lot of physical illnesses and we told her they were "working on it" to make her feel better.
Great content! So, how do you tell them they can no longer vote?
That's a good question!