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Hi, nice to see your videos. I am Indian girl who lives in UK and I am a mother of two kids I was diagnosed with RP, and now I am a partially blind person. Even I am interested in doing radio shops but no experience know that much qualification but I am in need of a job can you please help me with that? Thank you your video is very much motivating me please keep on posting videos often. Thank you sir.

Listen. On Tuesday, my 12yo was diagnosed with RP. I've watched several of your videos. One of my favorite things to do with my son is bake. I have been grieving for days and this video soothed my soul. I am so grateful.

Those huge shopping centers seem so stressful.

Hi! Fir. 😇 Watching from Philippines.

How can i get a dog ? I have that condition

Thanks for sharing

I;m developing cataracts, and my insurance won't pay for corrective surgery until I;m much more blind than I am now. I voluntarily gave up driving last year, and had to ask for help reading labels at a store for the first time yesterday. The clerk was very helpful, but I've concluded I need to start using a cane just for ID, and possibly future navigation. And if my vision can't be corrected, I'm getting a guide dog, too.

Great video very impressive keep up the great job you guys!😊,

Thank you Steve for sharing this video so I can show my friend so they can understand how I feel too I'm 42 year old and I'm going through this every day Glad bless you 🙏

Great tips 👍thanks for sharing

Thank you I’m going through training at certain times

Hello I came across your video I have a Samsung phone older one and it has talkback on it and it doesn't have alot for low vision or blind. Am blind in right eye and going blind in left. Is the voice over on iphone better? Any advice would be great.

If you ever feel inclined to do so in the future, making a video on when it may be time to get a guide dog or assistive technology, etc, or how you knew it was time for you, would be very helpful for a lot of people I think. I have a loved one with the same disease. Thank you

Good tips. Too much side chat.

It d I rs help because eventua km y you stumble at some point without it

😊

I got diagnosed with retinitis pigmentosa at 17, i struggle with it alot but imma keep trying until i absolutely cannot do anything. Ive had no luck yet tho.

just found this video, excellent! A lot of the videos made by blind people or low vision, people deal with technology, very few deal with interpersonal relationships, which is most of our lives. there is a conference coming up in May that I would like to go to difficulty as I need to find someone to go with from my city and I have been putting feelers out. No one is responding, I have put posts on local message boards, indicating my interest in attending this conference and that I have a vision disability so in addition to going with someone that can drive, someone or some people who would be willing to help me do some navigation in the environment would be useful. in compensation, I will cover the cost of the hotel room. it is not working, I have not found anyone at this point. And of course, it needs to be someone that I could trust. Any suggestions or recommendations? 5:19

My stove/ovenwasher,dryer are all marked for me to also do my laundry,the stove and oven are good for me to safely use them when I do cook and bake my meals and desserts.I am also legally blind with limited vision and I use a white cane

Hi steve,even though your baking video is 3 years ago your video is easy to follow and understand,I now have the same talking measuring cup machine but my machine lets me know how to measure in grams,I use a green coffee machine to make my herbal and decaf teas

I absolutely love your videos walking alone with your dog ❤❤ ty for the amazing content.

Hi Steve Fox,your guide dog is beautiful.I have been legally blind with limited vision since I was 3 years old and I am 58 years old now,I have used my white cane since I was 19 years after I graduated from high school in 1984 in BC Canada,so I am experienced using my white came and whenever I move into a new strange area I get more o&m instructor training with a cnib 0&m instructor who is very nice and patient with me. My very low vision loss,my weak compromised immunity are caused from me being born 3 months premature 58 years ago,I have ongoing eye issues with my remaining eyesight and back and fourth to my eye doctor and specialist surgeon.I love your video and I enjoy watching it

Hello from the United States. My brother and I both have retinitis pigmentosa since birth, but we were diagnosed in her early 20s. Thank you for sharing your story. I can relate to a lot of what you said.

Please Read this Explanation of RP: Don't let any terms discourage you, just follow the main concepts. Vision detection is a long series of proteins that work in concert to effect an electrical signal that is carried away from the nerves in the retina, eventually joining into the Optic Nerve and carried to the brain for interpretation. If any protein is incorrectly coded (the protein recipe is written on our DNA segments), it can cause that pathway to eventually fail at any point along its journey. Inherited Retinal Dystrophies (or Diseases) are a disease of DNA mis-coding (incorrect recipes) being passed from generation to generation through all of the forms of inheritance. There are also spontaneous mis-codings that rarely happen, because of chemicals, radiation, or a mistakes during ongoing DNA replication within the Cell Nucleus, etc. The Retina has several layers. The main layers of importance to understand in RP (IRD) are the "Photoreceptor Layer" and its underlying "Retinal Pigmented Epithelium Layer (RPE)." The Photoreceptor Layer" is made up of Rods (for low light detection in black, grey or white) and the Cones (normally 3 types , red, blue and green) for Color detection. The brain determines the secondary and tertiary colors and hues (ex: purple) by how strongly each of the 3 cone types are stimulated. If for example, the blue and red cones are stimulated the brain interprets it as purple. They are collectively known as PHOTORECEPTORS, it takes one photon of light to stimulate a Rod Receptor and several hundred photons to stimulate a Cone Photoreceptor. Think of the Retina as a bullseye target. with rings. The outer ring is almost entirely Rods, as you move into the central rings Cone are intermingled with the Rods. Until you reach the inner most ring (the Macula as it gives us our greatest Central Vision) which is almost entirely Cones and within the central most point of the Macula there is a pit (the Fovea) of solid Cones with no rods. That is the area of our eye that gives us the best visual acuity (focus) and detection of fine movement. And because the Macula and the Fovea are almost entirely Cones, that is why in IRD's we are still able to have color detection and somewhat preserved vision until they are the last to fail, due to overwhelming failure of the RPE. Oddly enough, the Rods and Cone actually point toward the back of the eye and are in intimate contact with the single cell protective layer (RPE) that wraps around the inside of the eye except in the front near the lens and iris. The (RPE) Retinal Pigmented Epithelium: This one layer thick cell wrap has 6 sided shaped cells (like a bee hive honeycomb) each of the sides has a thick coating of a cellular glue at the inner edge, between each cell that causes a seal or tight barrier of protection between the cells and thus protects the retina from the underlying blood vessel rich layer (the Choroid). This is what forms the "Blood-Retinal Barrier" preventing anything of a certain size, from entering the internal eye. (ex: autoimmune antibodies that would attack and destroy the eye. That is why in some clinical trials of injecting DNA segments or even stem cells, in hopes to repair mis-coded DNA, there is no autoimmune rejection.) The RPE is extremely important in its function to supply nutrition to the Retina and carry away waste from the highly metabolically active rods and cones. The RPE has finger like projections (microvilli) that extend from the surface of the RPE Cell into and around the Rods and Cones to help maintain an environment to feed, protect and remove waste. The RPE also makes certain proteins necessary for vision. ex: the protein that is mis-coded (RPE65 gene) in Leber's Congenital Amaurosis Type 2 [LCA2] (that gene carries the message how to make retinoid isomerohydrolase within the RPE). Each RPE Cell also contains hundreds of granules of a pigment called "Melanin." These pigmented cells help prevent the rods and cones from being overstimulated by the light entering the eye. The Melanin absorbs the excess light and prevents light scatter all of which would "white out" the retina if not dampened by the Melanin in the RPE Cells (like a snow storm white out). The Melanin also absorbs damaging UV light that can can result in free radicals that bind with the intracellular oxygen of the RPE Cells, leading to RPE Cell death. In RP the waste removal done by the RPE can be overwhelmed by the rods & cones dying off and damaging the RPE in the process of trying to remove the resulting waste (in addition to other causes). This damage results in the RPE Cells rupturing and spilling their "Melanin Pigments" into the surrounding Retinal Layers. This is what causes the darkened splotches or spots on the retina that is diagnostic of RP. Also, the Rods secret a "neuroprotective substance" that coats the nearby cones (Rod-derived cone viability factor (RdCVF), so that when the Rods die the nearby cones also die and add to the workload of the RPE to remove the waste leading to more of the RPE Cells rupturing, also spilling their Melanin Pigment. After much of the RPE is destroyed, it is no longer able to keep up nourishing the remaining Rods and Cones so that more and more Rods die, mostly the Rods which are in the highest numbers at the outside circle of the Retina. Since the Rods give us night vision and our peripheral vision. The early symptoms of RP are "loss of night vision" and "narrowed visual field" (tunnel vision). And of course the appearance of the "Melanin staining of the Retina". These are the 3 cardinal symptoms of RP or Inherited Retinal Dystrophies/Diseases (IRD's is the new name, because we now know that RP is not just one disease but each type having a different genetic cause.) There is much more to this process depending on the genetic causes. But, the end result is almost always the same...Photoreceptor Death, RPE destruction (spilling the Visual Pigment Melanin) and increasing night vision loss, lead to increasing overall visual failure with time.

Hi Steve, I really was impressed with your knowledge base and your professional manner of presentation. I practiced Anesthesia for 30 yrs. until my RP reached legal blindness and retired. Then I put my Medical Knowledge to work writing about RP (over 300 genetic causes). I would take hight tech. research papers and put them into simple English for patients and families to understand the cause and processes. My IQ is 6 points higher than Einstein and I felt it a waste to just retire and crawl into a shell. So, I would answer pts med. related questions. I write this blog on a closed Facebook group. Anyone with an serious intererest in RP is welcome to join. I also publish is simple English, the latest research trials (There is at present only one Approved Treatment for one type of RP "Leber's Congenital Amaurosis Type 2", which makes up only a small segment of RP cases) Thank you for you classy presentation without one word of pitty me as so many of the other TH-camrs present. At this time, I only have about 2 degrees of remaining vision on a good day. facebook.com/groups/703904286322515

Love it.... Merry Christmas to you all

Loved this video! So good to see you guys now that I can’t see you every day over the wall! ❤

Another great video mate.

Great to see you posting again Steve! Are you filming with a chest rig or holding the camera? All the best to you and Kerry for Christmas! Take care, Tony.

Great video Steve and well done York You got a good mate there

I rather enjoy videos like this. Thanks for sharing. Good boy, York. I enjoyed the teamwork between you both.

York is awesome as always! Great POV video!

I've been diagnosed with ushers syndrome, a combination of RP and hearing loss. It has been massively damaging to my quality of life, but I am in the process of getting a guide dog. Your expkanation is vital - not just to those who may be experiencing symptoms but also to your regular folk who have no idea of hhow blindness takes its varying forms.

great to see you posting video again

My guide dog also needs some extra support around upset tiny humans. I think if I'd let him he'd go up and try to comfort every single one.

Love it! Thanks for sharing mate!

Very good quality and informative. Keep on it make more videos, we will be here to watch them.

Your back!

Great video. When you gave the command to find Kerry it was head down, stretch out, 'I got this boss.' :) And, of course, he did. Really great that you are posting again!

So good, watching a good Guide dog team… Or should I say listening to a good guy dog team. Well done on finding Kerry, it’s a great school to have, to find people you know. It’s also funny when you hop on a motor of public transport and someone you know is there and you don’t realise it and the dog goes hey look it’s so-and-so That has happened to me a few times. Good to hear a new video from you mate. I look forward to seeing your next one

Hi Steve, I enjoy your videos!

Well done York and Steve.

What a great interdependent team you two are. It's fun to see you both working together. My guide dog retired in July = my walks are slower again for now, and I'm appreciating him in new ways. Thanks Heaps for sharing your teamwork with us.

I love how York knows when he's done a good job and looks straight away for his reward.

I’m partly blind from a stroke.I have very poor vision with my right peripheral vision. Sometimes I run into people on my right side. I’m looking at service dogs I think one can be good for balance, falls, etc. I am also wondering which is better balance or visual SD.

So many of the the things you mentioned are exactly how we helped daddy get through life. He had many head bumps and landed in the middle of us kids laying on the floor, in his known path to get to his chair but thankfully daddy was stick thin and no one was hurt.

That you for sharing. My daddy and his siblings all had RP, I have passed it on to my sons one 35 and one 25. They are trying steroid shots with a Dr in Nashville TN. I pray it helps. My daddy never complained about having it and me and my brothers and sister's helped he and my momma as the got older, daddy lived to be 95 and was a very good story teller. My heart goes out to all who live with RP❤❤.

Thanks for sharing Steve, beautiful companion you have there! I’m 64, diagnosed with RP in my twenties so I’ve been dealing with the decline in my vision for some time . I’m legally blind as you are, I’ve reached the point where I can’t read print due to what seems like every other letter is missing, like someone just erased letters diagonally across the page. What really frustrates me is not being able to see the small increments on a tape measure. No guide dog, but my wife , who is so very patient and supportive has mentioned that maybe I should consider getting one in the near future. Goo luck to you !

My biggest frustration is with people who say “hey, if you need a ride somewhere, just let me know.“, But that leaves a ball in our court to ask them to come take us somewhere. It is so nice when someone we know actually invites us to come along with them. “Hey, I’m going to the grocery store tomorrow, would you like to come along?” Or “hey a couple of us are going to that new wine bar on Saturday, would you like to join us?” Really makes us feel included and doesn’t make us feel like we are a burden for having to call you and ask you to please come get us for some thing.

I know how to use voiceover, but I watched videos on voiceover lol