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Good work guys, thank you

The Daratumumab data looks really promising!

My pulse rate drops to the 20s on a pulse oximeter,no one can explain it.I have been to several pulmonologists,they ignore it and go to twelve lead to look at the electrical pattern of the heart which looks normal.Could this be preload failure?The heart not having blood to pump.I have had mecfs for at least 25 years, diagnosed 4 years ago.

I just want the truth to be told ❤ ! Don't die ❤Decentralization ❤

Seal YOUR leaky gut and feel AMAZING and never get sick again ❤! Eyes mind heart and soul wide ❤ NO FEAR ❤Don't die ❤❤❤Decentralization ❤maybe our spices only hope ❤.

What about pseudo hypoxia induced by thiamine deficiency? It causes also elevated lactate. Some people need much higher doses of thiamine, when the binding of the co-factor and an enzyme is lower, or is deuterium overload causing a downstream at submolecular level?

Can somebody sort this issue out. I am slowly losing my independence and there needs to be something to slow this down

It should be that if the patient wants to try Rituximab they can, at their own risk. If there are any trials in the UK, can somebody let me know, please as I am struggling with this condition.

A light in the dark tunnel, tu🙏💞

This wonderful Dr saved my Grandaughter from the most terrible of treatment from a Bath hospital. He’s a godsend 😊

As a patient with horrible PEM and who hasn't been able to work for 5years but who isn't diagnosed because most doctors hate patients and actively seek to harm them, i thank you!

A high dose of a stimulant, a good amount of 'Real Salt', increase of fluid intake, being in nature, compression, hyperbaric oxygen, red light therapy, and methylene blue, and adrenal support, and vitamin b-complex and injections of Vit B, Vit C, NAD+ all together seem to help along with being on triple anticoagulent therapy. My doctors refuse to try fludricortisone, midodrine, or pyridostigmine. Do you see that high doses of stimulants are helpful in some cases? My theory is that it increases norepinephrine (depending on which variety) which leads to more sympathetic tone or awareness of what is going on with the vessels.....is there any research related to this? Or anyone willing to do this research?

What about autonomic small fiber neuropathy causing POTS? It’s one of the most common causes!

but you get these crook doctors pretending its anxiety

Hur mycket får blodtrycket sjunka under de hypotensiva episoderna för att fortfarande räknas som POTS? Har läst att man inte kan ha POTS och ortostatiskt hypotoni samtidigt. Stämmer det? Mvh Christine

Very interesting. The part that struck me most forcibly was that platelets are responsible for carrying serotonin to the brain. (around the 40-minute mark). This seems likely to implicate both the gut (production of serotonin) and the platelets (transportation) in conditions of low serotonin availability to the brain.

As someone with severe ME/CFS, this makes me even more determined to avoid Covid!

Listen everyone I have a testimony to share briefly I've been cured from Hsv 1 and HPV, doctor confirmed it both negative, I'm grateful to Dr Oseghale Sunday Herbal Home,He was the herbal doctor that gave me the herbal medicine which I used for 14 days and now I'm cured I'm so excited now all the rashes and hives are gone no more itching that was so embarrassing❤😊😊

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I wanted to point out that there is an estimate of #MECFS being 65 Million people Worldwide in 2020 BEFORE the Pandemic Hit. It comes from Dr. Maureen Hanson, PhD from Cornell University. (Letter to Editor Of Metabolites) With 1/2 of LongCovid being ME/CFS - the numbers now must be staggering. The economic impact in the USA of ME/CFS is 149- 362 Billion dollars a year- and that's 2022 numbers. (Mirin et al, Brain and Behaviour, 2022- "Updated ME/CFS prevalence estimates reflecting post-COVID increases and associated economic costs and funding implications:)

👍👍👍🙏🙏🙏❤️💐🌟

Very good presentation! Thank you, so much, for all the work and research you are doing! ❤

During my 15 yrs long debilitating ME-journey, I’ve never felt so spot on seen.

24. Years of slow deterioration to be bedbound, and looked after. I describe it as a living death

Finns det många som fått felaktig ME-diagnos, när de kanske "bara" har postcovid?

Görs det fekal mikrobiotika-transplantation till ME-patienter i Sverige? Var i landet kan man få göra en sådan i så fall?

Vad kom ni fram till i studien? Blev Me-patienterna bättre?

I'm 73 years old. Disabled 34 years ago with ME/CFS. Every day I die, yet I live. Jesus is my only hope. One day, I will see Him face to face. Oh, what a moment!

this talk gives me hope for the medical industry

I’m bedridden most of the time. I can go to the bathroom and once a day to my door to get the food I order. I can leave my apartment once every 3-5 months. Doctors have never given me any medication. Does anyone take any medication or supplements that help?

I stg TH-cam buries these videos.

I'm only 6 minutes in and I think a bunch of people should be in jail!

Fnd is a part of cfs autism heds adhd i have rhem all

There is no such thing as CFS/ME. It is mold illness. These people are curable. Do your research.

Thank you. I can now refer the NICE guidelines to my primary physician. This is like finding buried treasure to ME/CFS patients.

I too suffer with severe M.E didn't think things could get any worse and abracadabra i had a aneurysm 😢 had brain surgery 4 yrs ago and im still waiting for my 6 week check up and i should have had 8 scans by now. Asked my gp 2 yrs ago for a urgent referral to neurologist as i hadn't been given one. That was two years ago. My whole personality has changed and lost so much . New gp came out said she didn't think this was right and was going to investigate why it has happened. That was 4 weeks ago tomorrow. I thought i was going to finally be believed about something, there was solid proof but nope still ignored in bed in my dark room.

Thanks, great video 👍😊

In the book "Betrayal of the Brain" the concept noted here was called "HYPOPERFUSION" of the brain. An old finding, evidently we are going nowhere on this agenda. Meanwhile most patients are being stripped of assets and hunted for sport by way of homelessness. We don't care so we omit this discussion which is the one most important, the culture's embrace of genocide.

May I suggest that this lecturer writes down his speech and read it alloud next time he is schedule for a talk?

Kan inte ens föreställa mej..... Hjälper föga men alla med ME och er familjer har min största sympati

Crazy so few people have watched. What is going on?!

2 papers published Tulane Hypermobility Clinic FOLATE DEFICIENCY MUTATION in EDS & second in LongCOVID, we all now know the enormous links to EDS/ME/CFS. This is not just ME/CFS it is ME/CFS/EDS we now have HSD/EDS added, many have 2 types called crossovers

Stort tack till Jonas och hela teamet som gör dessa forskningar! Det är så konstigt att detta inte ges några bidrag till av staten!! Det borde vara väldigt angenämt när det ger så svåra funktionsnedsättningar hos dubbelt så många än de som har MS… men det är väl för att de väljer istället att tro att detta är en inbillningssjuka och alla dessa (50-10 tusen personer??) bara behöver en spark i röven… men de lyckas ju inte med det heller så vad väntar de på??

Jag är intresserad av att vara med att testa medicinerna

Tack, Jonas och Tack Rme! 💙

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Kommer Sverige införa ICD diagnos koden för ME så som USA gjort? Tror det skulle bekräfta diagnosen hos läkare och inte bara avfärdas så som hittepå. All forskning inom ME är så fascinerande och jag ser fram emot att veta mer om båda studier och även framtida studier.

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I understand this is far fetched, but "IF" the GI tract pans out to be a prime reservoir and "IF" a reliable method is developed to localize the reservoir, perhaps gastrectomy, segmental colectomy or small bowel resection could prove to alleviate the horrendous symptoms.

Greatest thanks to everyone at PolyBio for your ongoing research! It is appalling that at a governmental level (ie RECOVER initiative) that exhaustive biopsy studies of viral persistence, particularly regarding a very easily biopsied site such as the GI tract, have not been completed to date.