This is refreshing to see on my suggested page. I have hEDS and developed ME/CFS from mono when I was 21. I felt like my hEDS became much more pronounced after I got sick, I only started dislocating things and developed PoTs after that and 7 years later I am fully disabled and still have significant crashes. I do struggle with some internalized ableism and am trying to find a way to juggle my health and being able to build my own income or find an empathetic employer. I'll save this video!
This is refreshing to see on my suggested page. I have hEDS and developed ME/CFS from mono when I was 21. I felt like my hEDS became much more pronounced after I got sick, I only started dislocating things and developed PoTs after that and 7 years later I am fully disabled and still have significant crashes. I do struggle with some internalized ableism and am trying to find a way to juggle my health and being able to build my own income or find an empathetic employer. I'll save this video!
10:56 "Pesogenic papules"
Thank you for this information and putting all the pieces together!
Thanks for putting this up, I have CFS and am currently seeking a hEDS diagnosis. I wished you could talk more about treatment plans
what happened to the Long Covid aspect of this seminar?