วีดีโอ

How do I get my Dr to talk to me about my fibro. When I bring it up it's like he pretends he dosent hear me

I could not find the information.

Great video and great analogies alongside! The doctors don't even have this much info!

I am diagnosed today at 34 after years of struggling with doctor’s gaslighting and referring me to dietician and asking me to work out. Without even acknowledging the fact, there are times I can’t even breathe without feeling fatigued. Although I got a life sentence but it is good to get a label on this so that i don’t come off as lazy, boring and not willing to work on my health within my family and friend circle. Only wearer knows where the shoe pinches, it is annoying to make people understand what’s happening to you.

Broken thermostat 😂 getting the flu or get over it constantly never an end 30yrs....no end God help!!!! Of course i have all!!! Plus now neuropathy of some sort???? Always feeling as if i just got off the tilt a wirl....never ends constant bladder pain always getting charlie hirses in my whole body even my intestines...this illness. Never stops giving!!!! Giving misery over and over again 😂😂😂

Ty very informative. 💯🎯

I saw a specialist who said it’s all in my head,not explaining anything.If he had it he would be more sympathetic that’s if he could work at all.

Had this for 33 years and this explanation is the best I ever heard. Thank you for posting.

It's taken me 5 years to get to where I am, and I am still in the buffer zone. Diagnosed with Celiac Disease(Gut Issues & IBS), Hashimoto's Thyroiditis, Chronic Fatigue, Chronic Abdominal/Back Pains, Degenerative Disc Disorder, Osteoarthritis, and Low Iron. As well as mental health conditions like anxiety, depression, ptsd, AuDHD, OCD... I am still in pain, even with diet restrictions & light daily exercises/stretches. I still lose & gain weight like a yo-yo. I am perpetually exhausted. 😂😅 At 34. My family dr has ruled out many other things as well. Like Lupas, Crones... I started taking duloxetine for Fibromyalgia. Still waiting for the call from the Specialist. 😢

Eskimos is a colonial and racist term. They are Inuit. Educate yourself, Nick Baker!!!

Thank you for this very educative and informative video. I can tick off at least 4 out of the 8. Now I need to know how to address each type so I'll check your channel to know what are the solutions . Thanks ❤

Heatlamp is very beneficial be careful how much distance you hold it from your skin you have to be able to try and bare a little more heat, maybe even a heat pad hold it for about 20/30 seconds from area depends how much you can bare it.

I have fibromyalgia I've only had it for a little while like a few months and I use a heatlamp and place the lamp at a bearable distance from the pain very excruciating its like it builds up to a very excruciating pain, 2 of them ma y go off one at a time, I have 6 of them in front I have 2 on either side of my breasts just on the breastbones I also have 2 on the back of my neck, cold weather in winter can trigger it or even summertime. All the best oh you might be able to get a heatlamp at the electrical shop

What will fix it😂

1, 5, 6 always

Many versions of this to try. All good.

I had no idea that waking up in the middle of the night to pee was a thing with other fibro patients. I thought it waa just me...this video resonated alot

I'm so frustrated and discouraged nodding to all 8 of these with no relief 😞

I've had fibromyalgia for eight years after a life changing car accident. I struggled so much and didn't want to accept this. I was so healthy and happy before .After trying so many different medications (not wanting too) knowing my body is sensitive to everything I tried as my doctor said why not it might help. Unfortunately after 7 years of trying different meds. The triptaline meds.ended up killing my heart. So now I have heart failure. But I find I have found some strength within me to go on a journey of healthy eating no medication.(,only heart meds to live) And meditation and getting rid of toxic people in my life. Which after 1 year of that has changed my life tremendously. I pray for all the fibro warriors ❤ never give up. And the way I see it. I have my life and I'm grateful for that. I pace myself and luckily I have great doctor and family and son. That love me. I'm just glad I never gave up. Pain haunts me every day but I see now that I won't die from the pain. I have to do the best I can to live with it. And if that's not doing things or going places so be it. It sucks. But I'm grateful for life. 😊

im watching,

Do any doctors look at patients diet? I was diagnosed with fibromyalgia, to me it sounded like a catchphrase for your suffering from all over pain, but we’re not exactly sure what causes it. Not satisfied with that answer, I looked into my diet. After a lot of research and trial and error with my own body, I discovered that I have a gluten intolerance. After eliminating all gluten from my diet, I’m happy to report three months later I am pain-free. I hope this helps someone. I know it won’t be the answer for everyone, but I thought I’d share my story.

Super helpful. Thank you ❤

Thank you. This makes more sense than anything I’ve heard in the last year and a half from anyone lol. Didn’t know there were 8 types. I have all of them, some daily, some of them randomly here or there.

What is the remedy ?

Sisters in pain ,how many of you has to take a pill to sleep a few hours? I have this condition for many long years...my mom suffer this too.could it be genetic? 😊

I find myself in all of them 😢

8 Types of Pain 1. Floating pain (indication of immune challenges) 2. Gut Issues 3. Worse with Stress and Sitting 4. Worse in the morning or from injury 5. Low Energy and Back Pain 6. Hot at Night with Irritability 7. Feels like Menopause 8. Body feels cold

A doctor with tattoos. My goodness!

could the types be just stages kind of like cancer cause it seems to gradually change over the years from mild to severe

💯🤍Raelan Agle has over 150 videos of persons interviewed from all walks of life who have purportedly recovered from Chronic Fatigue Syndrome , Fibromyalgia and other challenges, including her own recovery stories. Worth serious investigation?

Are the classifications based on a scientific background or you classifying them according to your experience? . Thank you.

Dear @nicbaker1484, thank you SO SO SO MUCH!!! Hope you’re doing great and hope you’ll make more videos! 🫶

The New F Word🥹

Thank you

I have all of these . I don’t understand how pain can cause ibs, sleep problems and loss of energy

In Australia we have a compounded medication - no script required - called PEA, Palmitoylethanolamide. Having had fibromyalgia for approx 20years, I have found it extremely helpful. Doesn't take care of everything but it definitely helps the pain.

I hate to say this but I'm ready to just scream!! So what does a person do that has Fibromyalgia and Sarcoidosis "Chronic no remission for 15 years" along with Osteoporosis Osteoarthritis Osteophytes Spinal Stenosis Degenerate Disc Disease COPD ??? Oh hell I'm sure I've left something out!! Just now going to UCD Dr for Sarcoidosis I had high hopes but their only concern was that I'm not currently in a flair!! Didn't bother to discuss all of the places that lit up on my MRI that says it has spread to my spleen kidneys adrinal glands throat heart!! I take pain meds Steroids all kinds of meds am exhausted and tired!! Sick and tired of trying to have a somewhat happy life at 65 but I'm beginning to think that's not possible anymore!! Every Dr has a diagnosis and recommendations that doesn't work!! Yes, I'm depressed who wouldn't be!! Good luck and God bless to all who are sick and in pain!

I was diagnosed with fibromyalgia by a rheumatologist 35 years ago. I asked, how is this treated? She said, take tylenol. It hasn't changed, My pain and other symptoms have gotten steadily worse over the decades. My son doesn't believe me, just says I'm a lazy slob. Medical providers just do not give a damn, still. It's destroyed my life. All I hope for now is that I won't have to exist much longer.

I have 6 of these. The worst is the brain fog that is now mixed with chemo brain. I was diagnosed in 2013. I have had fibro since I was a kid (it didn’t have a name in the 70’s &80’s. I cried when I was diagnosed, my ex husband had me convinced it was all in my head and I was a hypochondriac. My current husband is so kind and pushed the doctors to find out what was wrong.

I’m a 54 yr old single Australian mum, I was diagnosed about, 2017, 2018 & I practically have most or all 8 in any given day or week, cold weather is worst for me I hate winter I feel worse. Today was a sunny warm day felt better so was able to do some chores, but come sun down I felt m6 lower back & legs aching, stiffening, sore.

I have been dealing with MS for 12 years, but my pain and sensory issues can’t be explained by by MS ,well some of them. The dr wants to test me for this, but how do they even test when you already have a neurological disease? I wake up in so much pain, like so much pain it’s hard to even move. My neck and face hurt so bad along with numbness in my hands arms and fingers. So… do I really have corporal tunnel in both hands?! It hurts sooo bad to touch my skin,especially my legs. Ohhh my, when I have my menstrual , wow!!! The pain in my entire body is through the roof!!!! I honestly can’t take this anymore and I’m made to feel like I’m crazy or making this shiz up. I am definitely not …. Anyone else have this??

I'm a guy and have had this diagnosis for almost 10 years. All these symptoms I have in and out. I also have Chronic IBS,2 Spinal Cord Stimulator for the nerve pain from several disks that never healed from back injuries.

i have all of these. im so sick of being in pain and not being believed and treated like im drug seeking just because i want to live without pain on a minute to minute basis. i just want to feel normal. i havent had a day in 20 years that something doesnt hurt and im at the end of my rope.

6 years of having this pain and no doctor could diagnosed me and me diagnosing myself and recovering mentally 😅

I'm 73 and had the first "Knot" at 20. I was 50 when I saw a news show (Prime Time?) about Fibromyalgia - first I'd ever heard of it, and I realized that the numerous physical symptoms I'd already experienced for 30 years were one thing, which had a name!! I've never consulted a doctor about it, but have developed my own methods of relief, which make it bearable most days. Still have issues, all but types 6 and 7 on the Nic Baker scale. On the mental health side, I wrestled and grappled with, begged, pleaded and prayed for relief from depression for many years, a single mom with four kids, meaning I got up and went to work every day no matter what. I am so grateful to have eventually gotten out of that darkness, and have been a happier soul since the mid-90s. Thank you so much for this excellent descriptive video, I loved the analogies, and I will be sending the link to my close friends and family. They know, but do not truly understand. This will help. 💜

I have accepted that some day I will end it because I can't take the pain and how it has ruined my life any longer.

Thank you 🇬🇧

I have 1-7. I have been living with it since 1998. It’s just a way of life.

I have been diagnosed since 2000. I am so blessed to have the greatest doctor. If your doctor doesn't help you then go somewhere else. Fibro is very real.

Spot on! The pain is never ending!