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I'm glad that you're getting the nutritional support you need ❤️

I'm sorry to hear that! You certainly don't have to do or bring everything that I do but I travel quite often and I really love it, so it's worth spending a little extra time preparing.

Glad it was helpful!

Hi Victoria. I'm so glad you're here and this question is one of my favorite things to talk about. To be clear, I'm not saying that anyone else should have any particular experience of gastroparesis but, for me, seeing that my experience of life comes from my thinking rather than my circumstances has really changed things for me. It's not that we like or enjoy having symptoms -- I certainly don't -- but what I've seen and experienced is how much less we suffer when we don't add a bunch of painful thoughts and emotions on top of that physical pain. This blog might help to clarify things a bit more: www.livingwellwithgastroparesis.com/blog/the-emotional-side-of-gp Also, if you haven't listened to my new podcast Living Well (When You Don't Feel Well), I highly recommend it. It's literally all about this very thing. th-cam.com/play/PLXAk_p_qTXyaIbov1H0RfJhkfSXME_wD4.html Sending lots of good wishes your way!

@csaltrelli Thank you very much for explaining that. I really appreciate it. I was really suffering last night with a lot stomach pain in the center of my stomach and I felt at a despair and self pity moment when I asked God to help me and I came across your video and a doctor who was answering all gut related questions and she answered my questions. All Thanks to God.

th-cam.com/users/liveIPqZpWv0vkE?si=hjrZ-yP_Ih0WVXSH

Yes, restrictive clothing can definitely exacerbate symptoms like pain, bloating, and reflux. Personally, I only wear wire-free bras and I wear them looser than I "should." I don't ever wear compression undergarments like Spanx, etc. or pants with compression panels, and no tight waistbands or belts. That's not necessary for everyone with GP, per se, but I think it's an important consideration. I don't see how our organs can work optimally when we're smooshing them all together in there!

No, that wasn't my experience. Enterra therapy is really intended to alleviate the nausea and vomiting associated with gastroparesis rather than speed up gastric emptying. Some people do experience improved gastric emptying but based on the studies I've read, the majority do not.

So glad you're here!

I've talked about artificial nutrition and surgical intervention for those with severe gastroparesis in other videos but, as you said, those are extreme cases. Most people who are diagnosed with gastroparesis will not require artificial nutrition. The purpose of this video was to provide basic answers to questions that apply to most people when they are diagnosed. Hope that helps clarify and hope you found something helpful in it!

Yes, physical activity, especially walking, can be so helpful! That's my go-to, as well. Glad you've found what works for you!

I've tried all kinds of herbal things over the years and ginger has been the one that I continue to use, more for the anti-nausea properties than as a prokinetic, though. I have a post about it here: www.livingwellwithgastroparesis.com/blog/gastroparesis-ginger?rq=ginger Iberogast was also helpful to me, more as a prokinetic: www.livingwellwithgastroparesis.com/blog/iberogast-for-dyspepsia-gp-ibs?rq=iberogast As far as the abdominal work, I don't think I would do it myself unless instructed by a practitioner. I've had a lot of abdominal work that has made my symptoms significantly worse and I wouldn't want to do that to myself!

@@csaltrelli thank you!! Do you still go for those massages that helped? Just found out I have EDS, so looking for treatments

I don't because my practitioner retired and I haven't found anyone else who does the same kind of bodywork. Fortunately, my EDS symptoms have been much less bothersome over the last couple of years, I think largely related to a reduction in mind-body stress (the pandemic was really hard for me).

Thank you! I've been so touched by the response and have come to see that the kind of content I create is really wanted and needed... so we'll see what happens!

I hope you've been able to find the information and support that you need. If you haven't already, I'd recommend downloading my Quick Start Guide to Gastroparesis Management. Someone in the comments recently called it "an excellent, easy-to-follow guide" and I think it's great for those who are newly diagnosed. Sending good wishes❤️ www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management

Day by day is it exactly -- that's how it all unfolds. I hope you've found information and support that's helpful to you. Sending good wishes ❤️

I'm sorry to hear that you're struggling with GP, as well as the additional issues. I hope your doctors are helping you find the right plan/solution for you right now. There's definitely no one-size-fits-all and if you're not able to eat the small, frequent meals, I would continue to ask about other treatment options so that you can get adequate nutrition. Sending good wishes ❤️

Glad you're here! I recommend downloading my Quick Start Guide to Gastroparesis Management. It's a 30-page eBook that will make sure you fully understand the diagnosis and take you step by step through creating and implementing your own management plan. It's very straight forward and actionable and I think it's a great place to start when you're newly diagnosed: www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management

I'm sorry you're having a hard time getting an answer as to what's going on. Gastroparesis has symptoms in common with so many other conditions that proper diagnostic testing is important. You want to ask for a gastric emptying study. It's a noninvasive test that will tell you whether or not you have delayed gastric emptying. The criteria for a gastroparesis diagnosis are a documented delay in gastric emptying, symptoms of gastroparesis, and the exclusion of other possible causes (blockages, structural abnormalities, etc.). I would try again to talk with your doctor(s) about your symptoms and your concern about gastroparesis, and specifically request the gastric emptying study, if necessary. Hope that helps!

Gastroparesis symptoms overlap with so many other conditions, so definitely a good idea to get things evaluated by your doctor. Typically doctors will rule out more common conditions first and then move on to motility testing like the gastric emptying study. I hope you feel better!

@@csaltrelli Trying Apple cider Vinegar in the mean time and eating smaller meals. I think my omaeprozol medication might be part of the problem. thanks for replying.

I'm glad you've found something that's helping!

I don't know whether you already have a diagnosis of gastroparesis but I either way, I definitely recommend talking with your doctor about your specific symptoms, as there are many things that can look like gastroparesis and vice versa. For example, vomiting in the morning and then feeling fine the rest of the day could be a result of something like GERD, or it could be due to gastroparesis from undigested food remaining in the stomach overnight, or something else entirely. We might expect that you'd have some symptoms at other times of the day with gastroparesis, but as I said, it's really important to talk with your doctor so that they can provide you with information based on your own health history and current situation.

@@csaltrelli thank you dear , I’m almost certain is Covid since cost me to breathe , I’ll test today to be certain

Yes, it's not something that worked well for me but it is helpful for some people.

Interesting! I hadn't heard of that before. I'll have to do a little more research. As far as reflux, my testing has shown that I don't have a lot of actual acid reflux. I no longer have a gallbladder, so for me, it's more bile and non-acid reflux. So I don't take PPIs or other acid blockers, but I do use a couple of supplements that have been helpful. I talk about them in this video: th-cam.com/video/D7-lmFDOUB0/w-d-xo.html For me, a lot of walking and trying to avoid bloating/distention as much as possible seems to be really helpful, as well.

​@@csaltrellithank you for your quick response. Yes please, it would be good to have your thoughts on the gastric alimtery test. Non acid reflux? Is this also known as NERD? How is this diagnosed? My bloating and distension is very painful. I don't know what to do.

There are people who follow a vegan gastroparesis-friendly diet but in that case, I really recommend you work with a nutritionist who can be sure you're getting all necessary nutrients. This post might be somewhat helpful, though it's not specific to following a vegan diet: www.livingwellwithgastroparesis.com/blog/faq-how-do-i-manage-multiple-dietary-requirements

I've had two normal stomach emptying. One following botox injections but still had the symptoms. I also had gastric alimetry test which is a tool by team in. New Zealand but again same symptoms. Have you come across gastric alimtery test?

This video might be helpful for you: th-cam.com/video/bJg-6NiUQGU/w-d-xo.html As a general guideline, about 1-1/2 cups of food is a good starting point for small meals. Many people find eating every 2 to 3 hours works well for them, although some people do better with slightly smaller meals less frequently (4 meals a day rather than 6, for example). There's a lot of experimentation involved to really find what works best for each individual but the video above goes through 10 guidelines that will help you with that. You might also want to download my Quick Start Guide to GP Management is you're new to the condition and trying to figure out how to best manage symptoms: www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management Hope that helps!

@@csaltrelli thank you 🙏🏽

Would you mind doing a live video on what you eat in a day?

I was assessed in June and was told in the medical report that I am fit to return to work and that I am exaggerating my symptoms. I am struggling and will be appealing

Hi, Quinn. I'm sorry to hear about everything that you're struggling with. You've been through so much, but you're clearly very resilient. Please know that I'm sending you lots of love and good wishes ❤️

Hi, Juanita! I used to have colonic inertia, which was very difficult to manage without stimulant laxatives, but I have more alternating IBS type symptoms now. I found that reducing my consumption of shakes and bars with protein powder helped quite a bit with regular bowel movements, as has eating a little bit higher fiber and fat than I did in the past. My bowel symptoms seem to vary with my hormonal cycle, so I'm more cognizant of that during certain times of the month and try to avoid foods that exacerbate constipation, make sure I'm drinking enough water, and getting regular daily physical exercise. I do have an old video on constipation, which may be helpful if you haven't seen it before: th-cam.com/video/c322eoNk8G4/w-d-xo.html

So glad you've found my work helpful! Yes, my symptoms improved significantly (though not completely) when my gastric emptying normalized. What you're experiencing, though, isn't uncommon and I think it's a source of frustration for a lot of people. Gastric emptying time is the best diagnostic measurement we have for gastroparesis but it's pretty well known among clinicians that the degree of delay in gastric emptying doesn't always correspond to the degree of symptoms experienced. What's more, it's very possible to have gastroparesis-like symptoms even without a delay in gastric emptying, this is usually called functional dyspepsia. It's likely the symptoms that so many of us experience aren't solely related to the delay in gastric emptying -- we just know what they are related to, yet, so that's what we can continue to test and document. Most good GI docs will treat based on symptoms not just testing, so I hope you're still receiving the support that you need. And the great thing about the comprehensive management plan that I share is that it's equally appropriate and helpful for gastroparesis as it is functional dyspepsia. Hope that's helpful! Sending you lots of good wishes!

My last test, started off great, halfway through, it stopped moving. I was wondering if a complete colon cleanse would work.

You might want to talk with your doctor about a full GI transit test if you've not had one, which looks at the transit time of the small intestine and the colon, in addition to the stomach. That can help identify where the delay(s) are present and guide treatment options.

@@csaltrelli Thanks a lot. Yes, your content and your personality has been helping me a lot :-). Well it is strange because over the years, since 2007, I have had 3 gastric emptying tests that showed severe gastroparesis. And then one that showed that it was much better and the last one showed no delay at all. But I am still extremely bloated and uncomfortable. At the moment I have no treatment for that but I will see a new GI doctor in a few months... Very frustrating indeed to not know what happens in the body. The diagnosis functional dyspepsia means "we don't know what is going on" :-(.

@@csaltrelli good tip, no doctor ever offered me this test!

Thank you, Suzanne! Sending lots of love your way❤️

Thank you, Therese! I truly appreciate your support and kind words ❤️ ❤️❤️

You're the best ❤️

Thanks, Kate! So true. I have so much compassion for those who are really struggling right now; I remember what that feels like. The variability of the condition can be encouraging (my emptying has been everything from severely delayed to normal in the past 20 years) but also so frustrating. I'm so glad you've found what works for you and things are getting easier!! Thanks for your continued support. ❤️

Hi, there! I did have SIBO and was initially treated with antibiotics, which provided some relief. Later it was retreated by a naturopath with a variety of supplements but that made my symptoms worse and I wasn't able to follow through. I do still experience bloating and distention but haven't been re-tested in a long time. Reducing certain FODMAPs has helped me somewhat. I'm sorry that you haven't found anything helpful for you yet. I think I would ask more questions of the doctors regarding the choice to not treat the SIBO. I would want to know the downside of treatment, especially in the context of weight loss and suboptimal nutrition, aside from it coming back. Treating the SIBO could help restore some nutritional stability and alleviate at least some of your symptoms, even if it's intermittent or temporary. I'm not a doctor, of course, that's just my opinion and some food for thought. I hope that you're able to find some relief soon! I'll be sending lots of good thoughts your way ❤️

Hello, I struggled with gastroparesis and Sibo. I did neyomcin and xifaxan off and on for about a year combined with hyperbaric oxygen to help heal my gut from the inside . I also did a colonic cleanse. Hyperbaric along with the antibiotics worked well for me, I heard my stomach growl for the first time in years after my first treatment. Also check your hormones, for me it was adrenal insufficiency and hypothyroidism which are important for digestion . I'm doing well now . Hope this helps

I’m so happy to hear you’re doing well! Thank you for sharing what has worked for you. ❤️

@@ElaneLane-j9i thank you for sharing!

@@csaltrelli Thank you Crystal, I agree with you about treating the SIBO even if for temporary relief and weight gain. Just need a different doctor I guess. I tried the herbals too and had the same experience you did, symptoms got much worse so I couldn't do that. Low FODMAP didn't help. It's frustrating too because all of the 2.0 tube feed formulas are loaded with corn syrup and Kate's Farm and Compleat are loaded with high FODMAP ingredients. The only tube feed option for SIBO is Elemental which is too low calorie for me and makes constipation much worse. I'm going to contact Abbott and Nestle and Kate's and ask for them to consider a higher calorie low fodmap feed. If that existed, it could keep me off of TPN. Thanks for sharing your insights!

Thank you for following along!

I'm sorry to hear you're dealing with increased symptoms, Quinn. I hope that you're able to find some relief soon. I think what feels so reassuring to me at this point, especially like you say at an age when hormones are definitely changing and already seeming to have an effect, is that I'm just not afraid of my experience anymore, whatever that might be. I feel like I've been through it all and here I am 🙈. I really hope you feel better soon! I'll be sending good thoughts your way ❤️

Crystal, you saved my life all of those years ago with by your l and I, too, and thriving with Gastroparesis. I still have it, but symptoms are manageable and like you, my life is fulfilling. You look wonderful, by the way! Sending so much love and thank you for all you do for us❤. 21:04

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No, there is a receiver that the doctors use in their office to monitor/change settings.

Sending you so much love, Kate! The whirlwind you're in now is temporary, I promise ❤️ I hope my content is helpful for you. If you don't have the Quick Start Guide to GP Management, that's a really straight-forward, practical place to start. www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management

Yes, I have always had a pretty significant overlap between pulmonary and GI symptoms. Definitely have your symptoms evaluated by your doctor(s) though.

@@csaltrelli what did they say. My doctor said it is not cause of gastricpaeasis.

I've heard from a lot of people with similar experiences. GP is commonly post-viral so it certainly makes sense.