Stress is definitely a catalyst for Gastroparesis. I never vomit. I am grateful for that. However, I really don’t stress about eating either. I am generally nauseous 24/7. I figure eating is just a gamble as to how I will feel afterwards. I have no expectations of my digestive tract anymore. ☺️🙂
No one is talking about forgetting things. My daughter has gastroperisis and she at the hospital right now because she has so much trouble with the feeding tube. They have to put another one in because it’s blocked. Ladies it’s all about nutrition and getting as much as you can. She has lots of symptoms and they all worry us both. But when I heard it can affect the brain. I was so out done because she has those symptoms now. She’s been dealing with this for four years and is going to see her first Gastro paresis doctor next month. We both are so happy and hope for the best. I wish you all to get healthy God bless you.
Thank you so much Crystal! My mom was just diagnosed yesterday with Gastroparesis. She is 77 years old. We are so confused about this whole thing. I am watching your videos to better understand this. She also has rheumatoid arthritis and has been taking Percocet twice a day for many years now. And occasionally she also takes OxyContin. Watching this video now makes me wonder if that's what's caused my moms problem
Thank you so much for this information. This topic has weighed heavily on my mind worrying about whether or not my GP will get worse. I was diagnosed 5 years ago, and I was on Reglan short term, and my Gastroenterologist has me taking Miralax daily, and my symptoms have greatly improved. I do not have a stimulator or feeding tube or anything, and I can eat pretty much anything. I do occasionally experience sudden, severe nausea, but that seems to corrilate with skipping the Miralax, and resolves itself with the nausea medication I'm prescribed. Whenever I get the money (we are struggling financially) I would love to get your books. Thanks for the time and care that you put into these videos. :)
Thank you for making videos again. I only do research when doctors mention new surgeries or treatments. You are not depressing and have helped me so much through the years. Thank you thank you thank you 🙏 it’s been 15 years now 💚 back when it was so unknown.
Rachelle, thanks so much for your comment. Honestly, creating content that's empowering rather than depressing is my entire goal, so I appreciate that you've found it helpful! Sending you lots of good wishes 💖
I got Gastroparesis after having COVID 19. I never had this issue before hand it’ll be interesting to see others who recovered if they’d developed Gastroparesis too. Doctors don’t know how I developed Gastroparesis but I think it was the virus I had d
I read that a deficiency of Vitamin B1 is connected to this because the brain needs the B1 to send the proper signals to the stomach for digestion. I have taken meds for gerd for years, so stopping that for sure! Also the fat soluble version of B1 is Benfotiamine. I think it’s worth a try!
Thank you for giving me so much hope, Crystal. I have never understood gastroparesis as well as I do after watching this (& I'll look forward to watching the rest of them over the weekend!). I have pretty much come to an end with conventional medicine, I've tried all the drugs, botox and dilation. I improved for a few weeks before christmas but since being put on a really high dose of erythromycin my symptoms have got worse. Interesting to think that this might be as a result of bacterial over growth...or other factors such as my diet (even though I haven't really changed anything) or stress. I am now looking into alternative therapies, pro biotic etc to try and avoid a permanent feeding tube. I worry this will only complicate things more for me. I have ordered your book and can't wait to read it. Keep doing what you're doing. You are helping and inspiring so many of us and I really can't thank you enough! You mentioned something about classes at the end of this video, is this something that would be available to me in the UK? Bets wishes! xo
+Beth Louise Hi, Beth! I'm SO glad this video helped you to better understand GP. Yes, the Living (Well!) with Gastroparesis program is absolutely available to you in the UK. The classes are designed to allowed GPers to participate from anywhere in the world. We start March 7th - you can find all of the details here: www.livingwithgastroparesis.com/program-details/
Thank you for you work! Your books gave me hope after diagnosis. GP is so “messy” and frustrating, but it is manageable. I’d love for you to do more videos.
Hi Crystal. I discovered your channel this evening. I am a 25 year diabetic who has lately been diagnosed with gasto paresis. It seems that the diet guidelines for these 2 diseases are pretty much opposite of each other. Do you know of any recipes that address both diseases and if so where can I find them?
Mine has definitely progressed. When I had my first emptying scan it was a 2 hour test and my stomach only emptied 1/4 after the 2hrs. normally they would give Reglan i.v. to empty the radioactive meal. Unfortunately I'm highly allergic. 2 years ago before having gastric pacemaker implanted I did a 5 hour emptying scan and absolutely nothing had emptied at the 5 hour final scan. I know I've had G.P. since about 2002. Unfortunately I was diagnosed with i.b.s.c. I wasn't diagnosed till 2009. Sadly I must have had a bad G.I. that didn't know about Gastroparis. He put me on a Super High Fiber diet. I was always suffering extremely bad! I was Always Distended and looked like I was about 7 months pregnant! I couldn't even wear the clothes I wanted to. It was horrible. Finally got a new doctor in 2016. I'm on really high doses of anti nausea and proton pump inhibitors.
Thank u soooooooo much for ur gastroparesis video info. I was just diagnosed in May 2018. They said it is "just mild " but my bad symptoms say otherwise. I'm miserable to sum it up. Nearly everything I eat makes me nauseous. Probably due to severe constipation and GP combined. My diet is extremely limited. My bf says, "Don't you get tired of eating the same thing every week?" Yes, yes I do but it's so frustrating. I've got to work on my diet myself because the Omeprazole I took for 2 months for my erosive gastritis was not really effective and my GI doc has not been real supportive. So I'm back on my own trying to improve my quality of life.
Nurse lori,that's sad that your GI doctor isn't supportive. Is it possible for you to find a different GI dr? What part of the country are you located?
@@UmitelikemeFrom lower slower Delaware. Seaford, DE. Only 2 GI docs who are convenient. The other one has a horrible reputation. I work nights, so my daytime hrs are limited as far as traveling. He knew the Amitiza was unaffordable but yet assumed I was gonna get it filled and am taking it. HE can afford it, not me at $350/month. I'm just beyond irritated now. I'm on my own to fight this out.
@@1purplerose ,so sorry to hear that. My docs are trying to regulate my blood sugars & reduce my pain killers,yet my symptoms are still the same. If I can get to sleep my stomach pains wake me up @3a! It's just awful. So I'm here for you.
I was diagnosed with Gastroparesis with Gerd a year and half ago, almost 2 years ago.My Surgeon offered me 3 options of surgeries, including the pace maker . I was extremely overwhelmed and haven't been back to the doctor in months. At the time my stomach was functioning at 10% ( the way he worded it), I have lost 38 llbs this year and go days without using the restroom with a bloated stomach, My nausea/heartburn, from the start was the hardest part of GP but I felt decent for months so I thought I was getting better, this constantly being sick is going to break me. I know I should go to the doctor but I don't really have any family/support with my GP and I just try to ignore it, Its just making me so depressed. I dont mean to put all this personal info on here but today I just cant hold it in anymore.
I know this is a year later but how are you doing now? My son a couple months ago was diagnosed on top of it he has diabetes. When I read what you wrote it’s exactly what my son would say. My son lives in a different state. The crazy thing is that his father lives in the same state but does not care to make the effort to give him the support he needs. Just remember this, family is what you make of it. My son has his friends for support and I at a distance help in every way I can. Have you tried to reach out to group therapy? Online groups with the same medical problems?
im the same way. mine come and go. i got sick last year in may- oct 2015. and from.oct to jan 2016 i was good. in jan was the last time inwas hospitalized. but i been dealing with this since i was 2 and im 24 now.. and mine is always.coming and going. sometimes it will last for 6 months to 2 years 😯😯😢😢 i have gained so much since jan. which i love.😊😊😊
Hello! I was just diagnosed, we are thinking that I have had it since I was a kid (I am 24 years old). It has been getting worse as the time goes on. Then I was diagnosed with Rheumatoid arthritis and it spiraled downhill. I kept getting doctors who didn't care and didn't think about getting e tested. I finally got a diagnosis. My gastroparesis emptying studying thing said I was only 43% emptying at the end of 4 hours. The doctor had said that she had never seen it this severe without being caused by diabetes. It just continues to be worse and worse. I have been reading how they are coming to find out that it may be an autoimmune disease and it makes sense.
Hi Crystal, thanks so much for all of your videos they've helped and taught me a lot. Just when I think I've watched them all I find another! Hehe 😁 where did you get your info about GP caused by viruses lasting 1-3 years? My GP started when I got a stomach bug and the nausea just never went away. I'm a year and a half in so does that mean my body will heal anytime now and it'll go away?!!! Because that would be amazing!!! Thanks again for all you do!! 💜💜💜
Hi, Holly. Glad the videos are helpful! I was actually told upon diagnosis that if my GP was of a viral nature, it would resolve in a few years and that has been repeated to me by many motility specialists since then. I have seen it with clients, as well. The studies that have been done (though limited) also reflect this. Here are a couple of examples: www.ncbi.nlm.nih.gov/pubmed/9403659 and www.ncbi.nlm.nih.gov/pubmed/2348727 So I'd say there's certainly hope for a recovery!
Hey there , i have been recently diagnosed .I have been vomiting multiple times a day for the past four month and i noticed my skin is so so dry .I was anorexic and bulimic in the past and my skin did the same thing.Im using coconut oil and shea butter to hydrate my skin and drinking water but it doesn't seem to work.It there anything else i can do or should i shoot for a certain amount of water to help.
my symptoms started march 1 2018, I got dx in july 2018. no fiber, no raw veggies.. I used 160 hours of sick leave last year from March to Dec. I have lost 65 lbs. I refuse to take reglan. I keep my weight stable now, but I take levsin, librax, tramadol. i still have very little appetite but doing what I can. and I have idiopathic cause
I just got diagnosed with gastroparesis after years of pain with eating my doctor told me that he couldn’t do nothing for me because my esophagus doesn’t work right my gallbladder doesn’t work right and my stomach doesn’t empty so he sent me back to my G.I. doctor he gave me some medicine to take a gut stimulator anabiotic to try so I’m trying it three times a day this is scary
Can you update us on your status in regards to the new medication you were given? My oldest son has been diagnosed a couple months ago and they said something about his gallbladder is well? I am so scared to for my baby.
Hello, my mom suffers from gastoparesis. But we've found a way to lessen her symptoms..she drinks Boost 2xd, takes Tramadol for pain 3xd when she wakes in the morning, 1p in the afternoon and 7p at night..she was prescribed Lactulose once a day but she takes it every 2 days so she has a day to recover...most importantly she takes a gas pill daily Phazyme 500mg which helps with the gas and bloating...we have figured out a low fiber meal helps..my mom is 79
I’ve had to cut nearly everything out my diet cause I can’t go see a medical professional to be tested and treated but I can feel anything I eat build up in my stomach and constant reflux
My mother started having symptoms in October of 2019 and was diagnosed June of this year. She had MRSA and osteomyelitis which cost her her right foot in January 2018, cirrhosis of the liver, congestive heart failure, and an ileus (which was listed as her actual cause of death). She died July 10 of this year. Nothing worked in her digestive system. Nothing the doctors tried worked. This disease sucked the life out of my mother in 6 months time.
I have gastroparesis and when I eat to much or over load my self and not pay attention I end up feeling so sick and I’m up all night long....what do I do meds barley help just sleepy
I had an emptying scan this year that has showed since my last emptying scan in 2021 my gastroparesis has gotten worse since that scan so yeah I can tell my vomiting has been way worse and nausea and I don’t eat as much I used to i feel so sick all the time and also I new of someone who was at end stages of gastroparesis they where gonna pass away soon and I never heard or seen them since so it definitely can get worse
Yes, people _can_ get worse, of course and many people do. I'm not denying or negating anyone's personal experience. But people can also get better or stay relatively the same and I think it's important to highlight the fact that delayed gastric emptying itself is not an inherently progressive condition. When someone receives the diagnosis, it doesn't mean they're going to get worse and worse forever, which is what people who contact me are often afraid of. I also think it's important to point out that often times new or worsening symptoms can be related to things like nutrition rather than a progression of gastroparesis, and nutrition is something that we're often able to address through a variety of means so it's important that that is part of the conversation, which is why I made videos like this. I'm really sorry to hear that you're struggling and that your symptoms have worsened. I hope you find something that works for you and brings you some relief. Sending you lots of good wishes!
+Erin McGinnis Hi, Erin. No, though I was really under nourished at one point, I chose to have the gastric neurostimulator implanted and that, in combination with my comprehensive management plan, allowed me reduce my symptoms enough to improve my nutrition significantly and gain back the weight that I'd lost. For me artificial nutrition didn't seem like a good fit and I'm happy with the path I took, but it's a very personal decision and different situations necessitate different interventions.
I was just diagnosed with mild GP 3 weeks ago. I'm getting EGD and colonoscopy in 3 days. I have severe constipation. Only poop once a week and that's only with laxative use. Everything I eat makes me nauseous. I've gained 15 lbs and am so bloated and miserable. Don't know what kind of diet I'm supposed to be on. My doc only told me to cut down the fats and eat small meals. Need more help than that!!
Yeah you do need more direction than that. It's sad how doctors can just leave you hanging out there like that. I really feel for you as I am very new to all of this myself.
MsWhy Knot So I got scoped up and down in June. Got a precancerous polyp to add to my frustrations and an insane medical bill(about $7000)...and all without any more answers or treatment to help me be in less pain. Unbelievable. And my doc expects me to go to follow up appt, which lines his pocket some more and will undoubtedly leave me just as confused as I am today! No thank you. I'm a nurse myself, for 25 years. Guess I'll find a way to treat myself, no thanks to the great physicians of the world.
lori clements ,Poor BABE - UNBELIEVABLE! Then you getting that type of bill & no diagnosis. SMH. WHOA,and you are a nurse too. OMG,so they know you aren't stupid!
i got diagnosed with gp today. i have a colonoscopy in 5 days i hope the prep works i have been constipated for 5 days. im scared i wont be able to go to the bathroom with the prep. they want me to take 4 ducalox pills at 1pm the the drink at 3. do you think i will go to the bathroom? i have hemmorids thats the big issue... sorry tmi
dylan cogdell No problem dear. I imagine u have been scoped by now. I only poop once a week every single week. My constipation is very serious and all the laxatives they scheduled had me plenty cleared out for the colonoscopy. I hope all went well with you.
Depending on what has caused it. After extensive research, I have faith that they could be possible a way to effectively cure it or atleast reduce the symptoms. Gastroperesis caused by diabetes and autoimmune diseases is more difficult to treat but gastroperesis caused by physical injury to the vagus nerve during stomach or heart surgery is impossible to cure, especiallly it was cut and not just bruised. I recommend that we all buy a tens machine and tens ear clips which you can connect onto electrodes (wires) which connect to the machine. Research on low vagal tone and vagus nerve stimulation (tvns). Also research heart rate variability. Im going to also buy a strap on heart rate monitor with bluetooth to monitor my heart rate variabilty using an app. As you stimulate your vagus nerve, your heart rate viarability should increase, giving you an indication that your vagal tone is increasing. Also research on how and when to take readings. If you open you mouth at the back lies a hanging mass like a punching back (called the uvula). It should be hang straight down. If it is deviated to one side or does not retract when you say Ahhh, this could be a good indication that you vagus nerve has been damaged. The hypothesis is that by stimulating the vagus nerve,one could possibly treat or cure gastroperesis. Now this is still a new discovery medically and we are all different with other comorbidities. I dont even think doctors know this is possible. Alteast 99.999% of them don't. I have dysautonomia and gastorperesis. See when our vagus nerve is damaged by long term physical or psychological trauma including stress or illness, gastroperesis and other symptoms kick in. Our bodies become stuck in the sympathetic state which is our figh or flight response to danger. By stimulating the vagus nerve with a tens machine and tens ear clips (saw them on ebay and Amazon) you will within time (see difference in 6 weeks) increase you vagal tone (more like lifting weight for muscles) thus retraining your body to activate your parasympathetic nervous system which is our rest and digest response. See our vagus nerve is there for homeostasis. When we perceive danger it kicks into the sympathetic state, widens our pupils and increases our heart rate, preparing our bodies for fight or flight, run away. This kind of stimulation (a light zap on the targus region of the ear) is said to reactivate our parasymapathetic vagus nerve which is the normal state of not being in danger, and which is when rest and digestion is prioritized. On a healthy vagal tone this is how our brain communicates with all our organs, through the vagus nerve (a two way phone line). The vagus nerve conducts every involuntary actions in our bodies like a perfectly timed symphony. If you have a poor functioning vagus nerve (low vagal tone) many other problems can arise. These are depression, anxiety, poor concentration, acid reflux, abnormal heartbeats and hoarse voice, difficulty swallowing, nauses, reduced stomach acids and regulating body temperature, insomnia, lightheadedness and chronic fatigue . The vagus never also controls hormonal releases and tells you when you are hungry or full. A normally functioning vagus nerve controls inflammation in our bodies which is why a low vagal tone is associated with many autoimmune diseases. These diseases cause neurapathy which is damage to the peripheral nerves including sometimes the vagus nerve. When the vagus nerve is affected, a form of dysautonomia results which is the malfunctioning of the autonomic nervous system. This in turn slows down gastrointestinal motility(movement), because the brain can no longer communicate effectively with your gut. The autonomic nervous system is the systems that controls all our involuntary bodily functions like our internal organs and blood pressure etc. Our stomaches don't expand as they should to accommodate food coming in when we eat and that is why we feel pain, nauseas or early fullness. The stomach muscle contractions are weak because the are controlled by the vagus nerve. The pyloric valve which opens up to let digested food out of the stomach and into the small interstines also mulfunctions, causing us to become bloated and to feel abdominal pains. Cells within the stomach can not tell the brain what foods we have consumed so that the right amount of acids within the right ph can be released, leading to food intolorences and malnutrition. That beautiful symphony between our internal organs and brain is messed up and needs to be rebalanced. They are ways (you can search on the internent) to stimulate your vagus nerve without using a tens unit but they are less effective and more difficult to be consistent at. I'm from South Africa and I've had this seen June 2020. I have all sorts of symptoms and I'm going to give the tens unit and ear clips a shot. I really have much faith in it after researching on the topic plus it's really my last hope. Doctors here are quiet dismissive and you'll end up thinking you've all alone or that you've totally lost your mind. I have about 90% of the symptoms I wrote above and all the doctor is treating are symptoms with antidepressants and pain killers (the side effects where worse than what they were trying to treat, so I stopped the medications). I'm now just taking suppliments like magnesuim, multivitamins and vitamin b12. People with pace makers more especially a heart pacemakers or any electronic implants for that matter should not use the tens machine to stimulate the vagus nerve without talking to their doctors first as it could affect the way their pacer works. Trying to raise awareness about the possible treatment after months of self diagnosing myself and looking for a cure. The tens machine should not hurt but give a tolerable stimulation for about 20 minutes a day. I think people who say they were spontaneously healed from gastroperesis some how managed to regain their vagal tone or recover from a low vagal tone thus curing thier gastroperesis. I dont want to recommend a tens unit here but I have currently ordered one and a set of ear clips. On this model you can set the pulse rate and widths for better results. Praying and wishing everyone good luck. Remain positive and know that even if we find out that it does or does not cure gastroperesis, it has been proven to dramatically lessen the symptoms of gastroperesis and ones overall health in general. Spread the word if you find this method successful. God bless everyone. www.purdue.edu/research/researchatpurdue/how-a-zap-might-cure-digestive-disorders/
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Stress is definitely a catalyst for Gastroparesis. I never vomit. I am grateful for that. However, I really don’t stress about eating either. I am generally nauseous 24/7. I figure eating is just a gamble as to how I will feel afterwards. I have no expectations of my digestive tract anymore. ☺️🙂
You are beyond blessed!
No one is talking about forgetting things. My daughter has gastroperisis and she at the hospital right now because she has so much trouble with the feeding tube. They have to put another one in because it’s blocked. Ladies it’s all about nutrition and getting as much as you can. She has lots of symptoms and they all worry us both. But when I heard it can affect the brain. I was so out done because she has those symptoms now. She’s been dealing with this for four years and is going to see her first Gastro paresis doctor next month. We both are so happy and hope for the best. I wish you all to get healthy God bless you.
Thank you so much Crystal! My mom was just diagnosed yesterday with Gastroparesis. She is 77 years old. We are so confused about this whole thing. I am watching your videos to better understand this. She also has rheumatoid arthritis and has been taking Percocet twice a day for many years now. And occasionally she also takes OxyContin. Watching this video now makes me wonder if that's what's caused my moms problem
Thank you so much for this information. This topic has weighed heavily on my mind worrying about whether or not my GP will get worse. I was diagnosed 5 years ago, and I was on Reglan short term, and my Gastroenterologist has me taking Miralax daily, and my symptoms have greatly improved. I do not have a stimulator or feeding tube or anything, and I can eat pretty much anything. I do occasionally experience sudden, severe nausea, but that seems to corrilate with skipping the Miralax, and resolves itself with the nausea medication I'm prescribed. Whenever I get the money (we are struggling financially) I would love to get your books. Thanks for the time and care that you put into these videos. :)
Thank you for making videos again. I only do research when doctors mention new surgeries or treatments. You are not depressing and have helped me so much through the years. Thank you thank you thank you 🙏 it’s been 15 years now 💚 back when it was so unknown.
Rachelle, thanks so much for your comment. Honestly, creating content that's empowering rather than depressing is my entire goal, so I appreciate that you've found it helpful! Sending you lots of good wishes 💖
Thank you for all your hard work and help for us with gastroporesis you are my go to when needed
I got Gastroparesis after having COVID 19. I never had this issue before hand it’ll be interesting to see others who recovered if they’d developed Gastroparesis too. Doctors don’t know how I developed Gastroparesis but I think it was the virus I had d
Did you get better?
I also got it after Covid also -!!
How you feeling now? I also suspect that I got it after covid and was wondering if viral induced gastroparesis gets better
I read that a deficiency of Vitamin B1 is connected to this because the brain needs the B1 to send the proper signals to the stomach for digestion. I have taken meds for gerd for years, so stopping that for sure! Also the fat soluble version of B1 is Benfotiamine. I think it’s worth a try!
Me, too. In about 30 pounds more lost, I'm going to end up under weight. Getting panicked.
Thank you for giving me so much hope, Crystal. I have never understood gastroparesis as well as I do after watching this (& I'll look forward to watching the rest of them over the weekend!). I have pretty much come to an end with conventional medicine, I've tried all the drugs, botox and dilation. I improved for a few weeks before christmas but since being put on a really high dose of erythromycin my symptoms have got worse. Interesting to think that this might be as a result of bacterial over growth...or other factors such as my diet (even though I haven't really changed anything) or stress. I am now looking into alternative therapies, pro biotic etc to try and avoid a permanent feeding tube. I worry this will only complicate things more for me. I have ordered your book and can't wait to read it. Keep doing what you're doing. You are helping and inspiring so many of us and I really can't thank you enough! You mentioned something about classes at the end of this video, is this something that would be available to me in the UK?
Bets wishes! xo
+Beth Louise Hi, Beth! I'm SO glad this video helped you to better understand GP. Yes, the Living (Well!) with Gastroparesis program is absolutely available to you in the UK. The classes are designed to allowed GPers to participate from anywhere in the world. We start March 7th - you can find all of the details here: www.livingwithgastroparesis.com/program-details/
Thank you for you work! Your books gave me hope after diagnosis. GP is so “messy” and frustrating, but it is manageable. I’d love for you to do more videos.
Thank you for telling your experience -! Also I Love how you put it into Simplicity -the Medical and diet issues -!! ❤
Hi Crystal. I discovered your channel this evening. I am a 25 year diabetic who has lately been diagnosed with gasto paresis. It seems that the diet guidelines for these 2 diseases are pretty much opposite of each other. Do you know of any recipes that address both diseases and if so where can I find them?
Hey girly this is is Nicole from Milwaukee! I just subbed to you
Yes,very calming with a lot of understanding. Thanks
Mine has definitely progressed. When I had my first emptying scan it was a 2 hour test and my stomach only emptied 1/4 after the 2hrs. normally they would give Reglan i.v. to empty the radioactive meal. Unfortunately I'm highly allergic. 2 years ago before having gastric pacemaker implanted I did a 5 hour emptying scan and absolutely nothing had emptied at the 5 hour final scan. I know I've had G.P. since about 2002. Unfortunately I was diagnosed with i.b.s.c. I wasn't diagnosed till 2009. Sadly I must have had a bad G.I. that didn't know about Gastroparis. He put me on a Super High Fiber diet. I was always suffering extremely bad! I was Always Distended and looked like I was about 7 months pregnant! I couldn't even wear the clothes I wanted to. It was horrible. Finally got a new doctor in 2016. I'm on really high doses of anti nausea and proton pump inhibitors.
Thank u soooooooo much for ur gastroparesis video info. I was just diagnosed in May 2018. They said it is "just mild " but my bad symptoms say otherwise. I'm miserable to sum it up. Nearly everything I eat makes me nauseous. Probably due to severe constipation and GP combined. My diet is extremely limited. My bf says, "Don't you get tired of eating the same thing every week?" Yes, yes I do but it's so frustrating. I've got to work on my diet myself because the Omeprazole I took for 2 months for my erosive gastritis was not really effective and my GI doc has not been real supportive. So I'm back on my own trying to improve my quality of life.
Nurse lori,that's sad that your GI doctor isn't supportive. Is it possible for you to find a different GI dr? What part of the country are you located?
@@UmitelikemeFrom lower slower Delaware. Seaford, DE. Only 2 GI docs who are convenient. The other one has a horrible reputation. I work nights, so my daytime hrs are limited as far as traveling. He knew the Amitiza was unaffordable but yet assumed I was gonna get it filled and am taking it. HE can afford it, not me at $350/month. I'm just beyond irritated now. I'm on my own to fight this out.
@@1purplerose ,so sorry to hear that. My docs are trying to regulate my blood sugars & reduce my pain killers,yet my symptoms are still the same. If I can get to sleep my stomach pains wake me up @3a! It's just awful. So I'm here for you.
I was diagnosed with Gastroparesis with Gerd a year and half ago, almost 2 years ago.My Surgeon offered me 3 options of surgeries, including the pace maker . I was extremely overwhelmed and haven't been back to the doctor in months. At the time my stomach was functioning at 10% ( the way he worded it), I have lost 38 llbs this year and go days without using the restroom with a bloated stomach, My nausea/heartburn, from the start was the hardest part of GP but I felt decent for months so I thought I was getting better, this constantly being sick is going to break me. I know I should go to the doctor but I don't really have any family/support with my GP and I just try to ignore it, Its just making me so depressed. I dont mean to put all this personal info on here but today I just cant hold it in anymore.
Lady Gamer I pray that u ok n I’m witch u on this this is how i feel 😔😔
I know this is a year later but how are you doing now? My son a couple months ago was diagnosed on top of it he has diabetes. When I read what you wrote it’s exactly what my son would say. My son lives in a different state. The crazy thing is that his father lives in the same state but does not care to make the effort to give him the support he needs. Just remember this, family is what you make of it. My son has his friends for support and I at a distance help in every way I can. Have you tried to reach out to group therapy? Online groups with the same medical problems?
How are you now?
I feel you may have just explained why I had no symptoms for two years, and now 7 flare ups since November.
im the same way. mine come and go. i got sick last year in may- oct 2015. and from.oct to jan 2016 i was good. in jan was the last time inwas hospitalized. but i been dealing with this since i was 2 and im 24 now.. and mine is always.coming and going. sometimes it will last for 6 months to 2 years 😯😯😢😢 i have gained so much since jan. which i love.😊😊😊
Hello! I was just diagnosed, we are thinking that I have had it since I was a kid (I am 24 years old). It has been getting worse as the time goes on. Then I was diagnosed with Rheumatoid arthritis and it spiraled downhill. I kept getting doctors who didn't care and didn't think about getting e tested. I finally got a diagnosis. My gastroparesis emptying studying thing said I was only 43% emptying at the end of 4 hours. The doctor had said that she had never seen it this severe without being caused by diabetes. It just continues to be worse and worse. I have been reading how they are coming to find out that it may be an autoimmune disease and it makes sense.
Hi Crystal, thanks so much for all of your videos they've helped and taught me a lot. Just when I think I've watched them all I find another! Hehe 😁 where did you get your info about GP caused by viruses lasting 1-3 years? My GP started when I got a stomach bug and the nausea just never went away. I'm a year and a half in so does that mean my body will heal anytime now and it'll go away?!!! Because that would be amazing!!!
Thanks again for all you do!! 💜💜💜
Hi, Holly. Glad the videos are helpful! I was actually told upon diagnosis that if my GP was of a viral nature, it would resolve in a few years and that has been repeated to me by many motility specialists since then. I have seen it with clients, as well. The studies that have been done (though limited) also reflect this. Here are a couple of examples: www.ncbi.nlm.nih.gov/pubmed/9403659 and www.ncbi.nlm.nih.gov/pubmed/2348727
So I'd say there's certainly hope for a recovery!
Hey there , i have been recently diagnosed .I have been vomiting multiple times a day for the past four month and i noticed my skin is so so dry .I was anorexic and bulimic in the past and my skin did the same thing.Im using coconut oil and shea butter to hydrate my skin and drinking water but it doesn't seem to work.It there anything else i can do or should i shoot for a certain amount of water to help.
my symptoms started march 1 2018, I got dx in july 2018.
no fiber, no raw veggies.. I used 160 hours of sick leave last year from March to Dec. I have lost 65 lbs. I refuse to take reglan. I keep my weight stable now, but I take levsin, librax, tramadol. i still have very little appetite but doing what I can. and I have idiopathic cause
You give me so much hope thank you 🙏🏽 😊
So glad to hear that, Destiny!! (And you might also like my new podcast then! livingwellpod.substack.com/podcast)
I just got diagnosed with gastroparesis after years of pain with eating my doctor told me that he couldn’t do nothing for me because my esophagus doesn’t work right my gallbladder doesn’t work right and my stomach doesn’t empty so he sent me back to my G.I. doctor he gave me some medicine to take a gut stimulator anabiotic to try so I’m trying it three times a day this is scary
So sorry to hear what you have been dealing with, how are things now that you have been taking the new medication for 5mo now?
Can you update us on your status in regards to the new medication you were given? My oldest son has been diagnosed a couple months ago and they said something about his gallbladder is well? I am so scared to for my baby.
Hello, my mom suffers from gastoparesis. But we've found a way to lessen her symptoms..she drinks Boost 2xd, takes Tramadol for pain 3xd when she wakes in the morning, 1p in the afternoon and 7p at night..she was prescribed Lactulose once a day but she takes it every 2 days so she has a day to recover...most importantly she takes a gas pill daily Phazyme 500mg which helps with the gas and bloating...we have figured out a low fiber meal helps..my mom is 79
I’ve had to cut nearly everything out my diet cause I can’t go see a medical professional to be tested and treated but I can feel anything I eat build up in my stomach and constant reflux
My mother started having symptoms in October of 2019 and was diagnosed June of this year. She had MRSA and osteomyelitis which cost her her right foot in January 2018, cirrhosis of the liver, congestive heart failure, and an ileus (which was listed as her actual cause of death). She died July 10 of this year. Nothing worked in her digestive system. Nothing the doctors tried worked. This disease sucked the life out of my mother in 6 months time.
I have gastroparesis and when I eat to much or over load my self and not pay attention I end up feeling so sick and I’m up all night long....what do I do meds barley help just sleepy
Is erythromycin effective at emptying stomach?
Yes it is very effective for most people, however it can cause fatigue and diarrhea and sometimes nausea. It’s a trade off.
I had an emptying scan this year that has showed since my last emptying scan in 2021 my gastroparesis has gotten worse since that scan so yeah I can tell my vomiting has been way worse and nausea and I don’t eat as much I used to i feel so sick all the time and also I new of someone who was at end stages of gastroparesis they where gonna pass away soon and I never heard or seen them since so it definitely can get worse
Yes, people _can_ get worse, of course and many people do. I'm not denying or negating anyone's personal experience. But people can also get better or stay relatively the same and I think it's important to highlight the fact that delayed gastric emptying itself is not an inherently progressive condition. When someone receives the diagnosis, it doesn't mean they're going to get worse and worse forever, which is what people who contact me are often afraid of. I also think it's important to point out that often times new or worsening symptoms can be related to things like nutrition rather than a progression of gastroparesis, and nutrition is something that we're often able to address through a variety of means so it's important that that is part of the conversation, which is why I made videos like this. I'm really sorry to hear that you're struggling and that your symptoms have worsened. I hope you find something that works for you and brings you some relief. Sending you lots of good wishes!
Hey Crystal, I fart often....even shart at times....help me!!
I have a feeding tube do to gastroparesis
I'm glad that you're getting the nutritional support you need ❤️
Nerve damage doesn’t improve. Vagus Nerve damaged from bowel surgery, & radiation.
I was wondering if I develop diabetes with having Gastroparisis
My gastroparesis is caused by chronic mesenteric ischemia
Did you ever go the tube route?
+Erin McGinnis Hi, Erin. No, though I was really under nourished at one point, I chose to have the gastric neurostimulator implanted and that, in combination with my comprehensive management plan, allowed me reduce my symptoms enough to improve my nutrition significantly and gain back the weight that I'd lost. For me artificial nutrition didn't seem like a good fit and I'm happy with the path I took, but it's a very personal decision and different situations necessitate different interventions.
+Crystal Saltrelli I got my pacer removed 4/28/16 after only having it since Feb 23, 2015. I am so glad it is gone. My body did not like it.
@@csaltrelli Hello I would like to know if you feel appetite with the stimulator
Hi I’m lee I have bulimia and my belly is killing me so my doctor is sending me to a gi doctor I’m ok with that
I was just diagnosed with mild GP 3 weeks ago. I'm getting EGD and colonoscopy in 3 days. I have severe constipation. Only poop once a week and that's only with laxative use. Everything I eat makes me nauseous. I've gained 15 lbs and am so bloated and miserable. Don't know what kind of diet I'm supposed to be on. My doc only told me to cut down the fats and eat small meals. Need more help than that!!
Yeah you do need more direction than that. It's sad how doctors can just leave you hanging out there like that. I really feel for you as I am very new to all of this myself.
MsWhy Knot So I got scoped up and down in June. Got a precancerous polyp to add to my frustrations and an insane medical bill(about $7000)...and all without any more answers or treatment to help me be in less pain. Unbelievable. And my doc expects me to go to follow up appt, which lines his pocket some more and will undoubtedly leave me just as confused as I am today! No thank you. I'm a nurse myself, for 25 years. Guess I'll find a way to treat myself, no thanks to the great physicians of the world.
lori clements ,Poor BABE - UNBELIEVABLE! Then you getting that type of bill & no diagnosis. SMH. WHOA,and you are a nurse too. OMG,so they know you aren't stupid!
i got diagnosed with gp today. i have a colonoscopy in 5 days i hope the prep works i have been constipated for 5 days. im scared i wont be able to go to the bathroom with the prep. they want me to take 4 ducalox pills at 1pm the the drink at 3. do you think i will go to the bathroom? i have hemmorids thats the big issue... sorry tmi
dylan cogdell No problem dear. I imagine u have been scoped by now. I only poop once a week every single week. My constipation is very serious and all the laxatives they scheduled had me plenty cleared out for the colonoscopy. I hope all went well with you.
I'm gp maybe coming for my LUPUS with that come pains meds
The same here
Just wanted to say I appreciate your videos. Please see my next comments.
Depending on what has caused it. After extensive research, I have faith that they could be possible a way to effectively cure it or atleast reduce the symptoms. Gastroperesis caused by diabetes and autoimmune diseases is more difficult to treat but gastroperesis caused by physical injury to the vagus nerve during stomach or heart surgery is impossible to cure, especiallly it was cut and not just bruised. I recommend that we all buy a tens machine and tens ear clips which you can connect onto electrodes (wires) which connect to the machine. Research on low vagal tone and vagus nerve stimulation (tvns). Also research heart rate variability. Im going to also buy a strap on heart rate monitor with bluetooth to monitor my heart rate variabilty using an app. As you stimulate your vagus nerve, your heart rate viarability should increase, giving you an indication that your vagal tone is increasing. Also research on how and when to take readings. If you open you mouth at the back lies a hanging mass like a punching back (called the uvula). It should be hang straight down. If it is deviated to one side or does not retract when you say Ahhh, this could be a good indication that you vagus nerve has been damaged. The hypothesis is that by stimulating the vagus nerve,one could possibly treat or cure gastroperesis. Now this is still a new discovery medically and we are all different with other comorbidities. I dont even think doctors know this is possible. Alteast 99.999% of them don't. I have dysautonomia and gastorperesis.
See when our vagus nerve is damaged by long term physical or psychological trauma including stress or illness, gastroperesis and other symptoms kick in. Our bodies become stuck in the sympathetic state which is our figh or flight response to danger. By stimulating the vagus nerve with a tens machine and tens ear clips (saw them on ebay and Amazon) you will within time (see difference in 6 weeks) increase you vagal tone (more like lifting weight for muscles) thus retraining your body to activate your parasympathetic nervous system which is our rest and digest response. See our vagus nerve is there for homeostasis. When we perceive danger it kicks into the sympathetic state, widens our pupils and increases our heart rate, preparing our bodies for fight or flight, run away. This kind of stimulation (a light zap on the targus region of the ear) is said to reactivate our parasymapathetic vagus nerve which is the normal state of not being in danger, and which is when rest and digestion is prioritized. On a healthy vagal tone this is how our brain communicates with all our organs, through the vagus nerve (a two way phone line). The vagus nerve conducts every involuntary actions in our bodies like a perfectly timed symphony. If you have a poor functioning vagus nerve (low vagal tone) many other problems can arise. These are depression, anxiety, poor concentration, acid reflux, abnormal heartbeats and hoarse voice, difficulty swallowing, nauses, reduced stomach acids and regulating body temperature, insomnia, lightheadedness and chronic fatigue . The vagus never also controls hormonal releases and tells you when you are hungry or full. A normally functioning vagus nerve controls inflammation in our bodies which is why a low vagal tone is associated with many autoimmune diseases. These diseases cause neurapathy which is damage to the peripheral nerves including sometimes the vagus nerve. When the vagus nerve is affected, a form of dysautonomia results which is the malfunctioning of the autonomic nervous system. This in turn slows down gastrointestinal motility(movement), because the brain can no longer communicate effectively with your gut. The autonomic nervous system is the systems that controls all our involuntary bodily functions like our internal organs and blood pressure etc. Our stomaches don't expand as they should to accommodate food coming in when we eat and that is why we feel pain, nauseas or early fullness. The stomach muscle contractions are weak because the are controlled by the vagus nerve. The pyloric valve which opens up to let digested food out of the stomach and into the small interstines also mulfunctions, causing us to become bloated and to feel abdominal pains. Cells within the stomach can not tell the brain what foods we have consumed so that the right amount of acids within the right ph can be released, leading to food intolorences and malnutrition. That beautiful symphony between our internal organs and brain is messed up and needs to be rebalanced.
They are ways (you can search on the internent) to stimulate your vagus nerve without using a tens unit but they are less effective and more difficult to be consistent at. I'm from South Africa and I've had this seen June 2020. I have all sorts of symptoms and I'm going to give the tens unit and ear clips a shot. I really have much faith in it after researching on the topic plus it's really my last hope. Doctors here are quiet dismissive and you'll end up thinking you've all alone or that you've totally lost your mind. I have about 90% of the symptoms I wrote above and all the doctor is treating are symptoms with antidepressants and pain killers (the side effects where worse than what they were trying to treat, so I stopped the medications). I'm now just taking suppliments like magnesuim, multivitamins and vitamin b12. People with pace makers more especially a heart pacemakers or any electronic implants for that matter should not use the tens machine to stimulate the vagus nerve without talking to their doctors first as it could affect the way their pacer works. Trying to raise awareness about the possible treatment after months of self diagnosing myself and looking for a cure. The tens machine should not hurt but give a tolerable stimulation for about 20 minutes a day. I think people who say they were spontaneously healed from gastroperesis some how managed to regain their vagal tone or recover from a low vagal tone thus curing thier gastroperesis. I dont want to recommend a tens unit here but I have currently ordered one and a set of ear clips. On this model you can set the pulse rate and widths for better results. Praying and wishing everyone good luck. Remain positive and know that even if we find out that it does or does not cure gastroperesis, it has been proven to dramatically lessen the symptoms of gastroperesis and ones overall health in general. Spread the word if you find this method successful. God bless everyone.
www.purdue.edu/research/researchatpurdue/how-a-zap-might-cure-digestive-disorders/