My journey to getting diagnosed with HKPP | Documentary Clip | "I Never Fake It: A Medical Odyssey"

Experience Monica's journey as she goes from confronting puzzling symptoms of weakness to her eventual diagnosis. But her story doesn't end there, check out the full documentary available right here:
#PeriodicParalysis #TemporaryParalized #PPA
Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org
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[@tammylain7754]

ha ha I bet it was Jakob levitt's video- that is exactly how I found out too- My husband and just watched and cried- finally found it. What your story does not mention is the label of crazy most of us get- for years- I have read up to 95% of PP patients get a psychiatric diagnose before finding out the have PP, yet somehow you avoided that. Nice to hear.

[@tammylain7754]

Thank you!!!

[@shelbycox2948]

I thought I was crazy. 😭

[@kirgise88]

Well, later it turned out that she actually has the very opposite of Hypo: she has Hyperkalemic periodic paralysis... It was close but very wrong to be treated with potassium though. :-(