Michael Drohan
Michael Drohan
  • 37
  • 67 281
Innervisions: Identity and Accessibility living with Multiple Sclerosis
I gave a talk 7.28.24 about living with MS, particularly my thoughts on how one interprets their identity when being diagnosed with a chronic illness, and the importance of accessibility in the world.
มุมมอง: 79

วีดีโอ

***20 YEARS*** OF MS!
มุมมอง 8475 หลายเดือนก่อน
Wow. Time flies...when you're having fun? Listen to my reflections on my experience, what I've learned, what as helped, and what I could be better about.
Checking in! Annoying recent side effects, fun recent events, and what I'm looking forward to
มุมมอง 2589 หลายเดือนก่อน
Sometimes, I just rather not think or talk about MS more than I have to it's annoying! But keep it all in perspective with your life on the whole, and be sure to dial up what to look forward to
The Importance of COMMUNITY to Cope with MS, Chronic Illness, and life in General! 🙏
มุมมอง 198ปีที่แล้ว
It's not you against the world, no matter how much it might feel like it. You're community is there for you
I had GAMMAKNIFE ☢️🔪 for Trigeminal Neuralgia⚡️😫 - a rarer, painful, MS side effect!
มุมมอง 3.8Kปีที่แล้ว
Was finally able to have something done to (hopefully) help the painful electrical storms in my face, Trigeminal Neuralgia, secondary to my Multiplle Sclerosis. i detail the Gammaknife procedure here, it was a wild day!
Supplements & MS-- Vitamin D and Beyond
มุมมอง 202ปีที่แล้ว
As a follow up to my diet video ( th-cam.com/video/aRS_AXTIAGc/w-d-xo.html ), here's some insight to the supplements I take and have tried to help live a healthy life with MS. Referenced Research: A Probiotic to Treat Multiple Sclerosis?: hms.harvard.edu/news/probiotic-treat-multiple-sclerosis
Diet & MS and my continually evolving relationship with them
มุมมอง 209ปีที่แล้ว
You are what you eat? Well, mostly. There's always talk about diet and MS and if there is one way to eat that's better than the other. I'm not a nutritionist, but here's my story on how I live and what does and doesn't work for me. Research referenced: Diet shows no association with relapses, disability progression: multiplesclerosisnewstoday.com/news-posts/2023/08/015/ms-no-link-between-diet-r...
Got my first Wheelchair Accessible Vehicle!
มุมมอง 277ปีที่แล้ว
Long time coming. Patience and perseverance was required, and still is. Working to drive again!
I tried the new Chick-Fil-A CAULIFLOWER sandwich!
มุมมอง 540ปีที่แล้ว
Tried the new chick fil a sandwich today. Will I get it again?
In My Feelings: Working through your emotions with MS, and thoughts on anger 😡 vs. frustration 😖
มุมมอง 459ปีที่แล้ว
Find your outlet! Channel what you're feeling into something worthwhile, or at least allow yourself to feel negativity without letting it consume you. Let's discuss
Powerchair update: new year, new wheels! 🧑‍🦼
มุมมอง 4.8Kปีที่แล้ว
Part two of the seven month long and winding road to getting a powerchair with more twists and turns and lessons learned. Hope this helps with insight to the process
Rough Few Weeks! Chair=Broken. COVID=Positive 😫
มุมมอง 2.2Kปีที่แล้ว
It's been a rough few weeks! My day to day ws rocked and my independence diminished. But in perspective... I'm good. No big theme or lesson to this one, capturing for posterity's sake, and to be a little more real about living with MultipleSclerosis and how easy it is to be shaken from the norm.
The dreaded Ocrevus CRAP GAP
มุมมอง 1.4K2 ปีที่แล้ว
It's that time of the six-month window... The "crap gap" between when your last dose of Ocrevus is wearing off and you still have some time before you're due for the next one. A lot of anecdotal reports of this feeling from MSers on it but is there a reason?
Resilience & Evolution in the fight for your life, MS and otherwise. An @NYCFoodways collab!
มุมมอง 1812 ปีที่แล้ว
Join me for this very special episode, as they say, of Me and MS, where we talk with old friend of the show, Jon Katz. Through his social media project @NYCFoodways, Jon has been living a life of self realization through mindset training, relevant to us fighting against multiple sclerosis. Get heady with us as we talked about the ideas of resilience and evolution in one’s life, and how they pla...
MS Accessories-- Making my life and home more accessible
มุมมอง 8182 ปีที่แล้ว
Join me as I show you a few of the ways I make my life easier with Multiple Sclerosis. From climate control to ramps, this is how I live!
A PAINFUL MS Side Effect: Trigeminal Neuralgia. A SHOCK to the face! ⚡️😫
มุมมอง 2.8K2 ปีที่แล้ว
A PAINFUL MS Side Effect: Trigeminal Neuralgia. A SHOCK to the face! ⚡️😫
DATING while DISABLED: This is... fun? 🤷🏻‍♂️
มุมมอง 9622 ปีที่แล้ว
DATING while DISABLED: This is... fun? 🤷🏻‍♂️
The long, frustrating journey of getting a power wheelchair when you have MS... This is only PART 1
มุมมอง 1.2K2 ปีที่แล้ว
The long, frustrating journey of getting a power wheelchair when you have MS... This is only PART 1
My Story Vol. 5: MS Progression, NIH Clemastine study, Mobility Aids, Where I am Today
มุมมอง 2.2K2 ปีที่แล้ว
My Story Vol. 5: MS Progression, NIH Clemastine study, Mobility Aids, Where I am Today
It is HOT!! Heat and MS for me
มุมมอง 3102 ปีที่แล้ว
It is HOT!! Heat and MS for me
July is Disability Pride Month... Do I have to tho?
มุมมอง 2802 ปีที่แล้ว
July is Disability Pride Month... Do I have to tho?
So you're newly diagnosed with MS- NOW WHAT?
มุมมอง 1.1K2 ปีที่แล้ว
So you're newly diagnosed with MS- NOW WHAT?
I Had HSCT for MS: How it went, and how I’m doing 4 years later!
มุมมอง 15K2 ปีที่แล้ว
I Had HSCT for MS: How it went, and how I’m doing 4 years later!
My Story Vol. 4: HSCT for MS, NIH, Ocrevus, move to CHS
มุมมอง 1.2K2 ปีที่แล้ว
My Story Vol. 4: HSCT for MS, NIH, Ocrevus, move to CHS
Air Travel with a Disability: A How To Guide
มุมมอง 11K2 ปีที่แล้ว
Air Travel with a Disability: A How To Guide
My Story vol. 3: My late 20s with MS. A relapse, new doc, new meds, and a painful new symptom
มุมมอง 1.4K2 ปีที่แล้ว
My Story vol. 3: My late 20s with MS. A relapse, new doc, new meds, and a painful new symptom
HELP! Helping vs. "helping" someone with a disability-- it's complicated
มุมมอง 2132 ปีที่แล้ว
HELP! Helping vs. "helping" someone with a disability it's complicated
My Story vol.2: My early 20s with MS, disclosing my diagnosis, new meds,new symptoms
มุมมอง 1.3K2 ปีที่แล้ว
My Story vol.2: My early 20s with MS, disclosing my diagnosis, new meds,new symptoms
Nike Go FlyEase Review-- from a Sneakerhead with a Disability!
มุมมอง 4.5K2 ปีที่แล้ว
Nike Go FlyEase Review from a Sneakerhead with a Disability!
My Story vol. 1: MS Diagnosis & the First Five Years
มุมมอง 2.6K2 ปีที่แล้ว
My Story vol. 1: MS Diagnosis & the First Five Years

ความคิดเห็น

  • @Bee_a_lady
    @Bee_a_lady 7 วันที่ผ่านมา

    Do you take tumeric for inflation? Or ever considered a chiropractor? Ive heard the chiropractor can help

    • @Bee_a_lady
      @Bee_a_lady 7 วันที่ผ่านมา

      I'm dealing with glossopharyngeal neuralgia. Looking into anything that helps with out surgery. Praying for you

  • @Pennystockid
    @Pennystockid 8 วันที่ผ่านมา

    Healed? I'm bedridden upper and lower body paralysis with full body spasms as well. I wonder if this would work for me

  • @angelbabycards3595
    @angelbabycards3595 หลายเดือนก่อน

    GM, just sat and listened to this podcast, thinking to myself: 'Boy.. 'These People Are In For A Big Surprise, once they begin to realize, that help finally arrived, if I do say so myself..' Method: In Conjunction with the proper Tincture, and the Clemestine, sure there is some damage due to disease onset and some progression, and physical therapy will be needed, but from the results I am experiencing, I'm fairly sure You will begin to feel and function normally again in just a few weeks to months. I'm feeling fine, and I'm sure you will too. Note: The Tincture Arrests, Paralyzes, and erradicates the microscopic blood bourne parasitic worms in one's own blood cells, which was why the disease is / was so difficult to detect and diagnose within one's system. *The Clemestine is a [Restorative], and it actually works to tell the body to simply go back and begin making it's own meyelin once again. - It's Working for Me, Friends. Hope this helps. - PEACE ! \\//

  • @angelbabycards3595
    @angelbabycards3595 หลายเดือนก่อน

    Cc: FYI/FYR: Status update on Clemestine: Pam, taking 10 mg / Clemestine. Today is October 20, 2024. Findings: Day Seven: Observing: Legs Feeling Heavier now, 'In a Good Way, e.g., - Firmer footing upon standing.' No Substantial Improvement in Fine Balance Control, but General Balance Showing Nominal Improvment. *However, as the morning turned into the afternoon, then evening, "I am now Observing [a Substantial Improvement (- I am able to [Guage ] the level of slow improvement backwards in time) before any observable feelings and any impairment began to appear." Friends, '..it does feel, like Time is slowly moving me backawards into the time, just before the first diagnosis was ever made.' - Fact. As of this evening, *General Balance appears to be improving backward, toward the general level of Balance I posessed in or around, say 2019-2020-2021. 'This Evening, -I was able to go to my nearby Wal-Mart, and; -I was able to stand with my hands in my pockets as I used to prior to the 2016 diagnosis and onset of symptoms by 2019. Here, - " I felt quite comfortable, [ I Did Not [need] the cane any longer]; it was brought, but not required, if that makes sense to those with MS. I know they understand what I am saying. Second: - The Retail Cashier; an Elderly Lady I know, did Concur, when I walked up to her without the use of my cane. "She smiled and said; '"Yes, "I am noticing "you aren't using your cane." (She Smiled).'

  • @angelbabycards3595
    @angelbabycards3595 หลายเดือนก่อน

    Cc: FYI/FYR: Status update on Clemestine: Pam, taking 10 mg / Clemestine. Today is October 20, 2024. Findings: Day Seven: Observing: Legs Feeling Heavier now, 'In a Good Way, e.g., - Firmer footing upon standing.' No Substantial Improvement in Fine Balance Control, but General Balance Showing Nominal Improvment. *However, as the morning turned into the afternoon, then evening, "I am now Observing [a Substantial Improvement (- I am able to [Guage ] the level of slow improvement backwards in time) before any observable feelings and any impairment began to appear." Friends, '..it does feel, like Time is slowly moving me backawards into the time, just before the first diagnosis was ever made.' - Fact. As of this evening, *General Balance appears to be improving backward, toward the general level of Balance I posessed in or around, say 2019-2020-2021. 'This Evening, -I was able to go to my nearby Wal-Mart, and; -I was able to stand with my hands in my pockets as I used to prior to the 2016 diagnosis and onset of symptoms by 2019. Here, - " I felt quite comfortable, [ I Did Not [need] the cane any longer]; it was brought, but not required, if that makes sense to those with MS. I know they understand what I am saying. Second: - The Retail Cashier; an Elderly Lady I know, did Concur, when I walked up to her without the use of my cane. "She smiled and said; '"Yes, "I am noticing "you aren't using your cane." (She Smiled).'

  • @joeroberts8379
    @joeroberts8379 หลายเดือนก่อน

    For someone who has only struggled with this for 6 months (just seen a specialist last week ) it’s the worst pain I’ve ever felt pain in jaw cheeks head all left side of my face I’m on oxcarbazepine the carbazepine didn’t work well with other medication I’m on for Ménière’s disease for some reason but knowing there’s light at the end of the tunnel is helping massively glad your feeling better and fingers crossed it stays that way for you

    • @mldrohan
      @mldrohan 16 วันที่ผ่านมา

      Hey thanks. Unfortunately, Gammaknife wore off 😫 I had a different procedure, a radio frequency ablation, a few weeks ago, so letting that set in a bit, but will make a new video about that soonish. Between the two procedures though, I also switched to oxcarbazepine from carbamazepine which I definitely tolerate better as well. Still not amazing though

  • @paulweston6263
    @paulweston6263 2 หลายเดือนก่อน

    How did your gamma knife surgery work out?? still pain free??

    • @mldrohan
      @mldrohan 16 วันที่ผ่านมา

      Hi there, it wore off 😫 I’m going to have a new video coming soonish about a different procedure I recently had, a radio frequency ablation, but giving it a little while to set in

    • @paulweston6263
      @paulweston6263 16 วันที่ผ่านมา

      @@mldrohan I see a neurosurgeon in 6 days, The process begins. I look forward to your next video on the abalation...that will be an option fpr me i think

  • @LynnDeatherage-q3k
    @LynnDeatherage-q3k 2 หลายเดือนก่อน

    All flight attendants and pilots kicked off disabled people saying that they dont feel comfortable with us disabled people and we get kicked off the plane. Saying we are dangerous people. Like autism and sezuires that controlled by medication. Or physical condition as well.

    • @mldrohan
      @mldrohan 2 หลายเดือนก่อน

      …what?

    • @LynnDeatherage-q3k
      @LynnDeatherage-q3k 2 หลายเดือนก่อน

      @@mldrohan pilots and flight attendants dislikes disabled people on there flights planes. There are many people who have been kicked off the plane due to the person disability like autism and cardiac problems etc. I was kicked off a flight myself. TSA don't like people taking medicine on the plane. If you had a test done four days later catching a flight the nuclear scan makes you feel like a terriost. And make you mis flights planes due to the nuclear scan isotopes given four days period. And force you to cancel ✖️❌ your plans vacation is over you can't fly after the test. Watch the videos on this issues.

  • @TheDetoxCureGuide
    @TheDetoxCureGuide 2 หลายเดือนก่อน

    I had many of the symptoms also the TMG, ouch! I slowly recovered with detoxification. I did a video on the links between MS and environmental toxins. Please take a look.

  • @BirieNigussie-r9e
    @BirieNigussie-r9e 2 หลายเดือนก่อน

    hello can you help me

  • @LeahJose-z8b
    @LeahJose-z8b 3 หลายเดือนก่อน

    Hi Marco, I think you are definitely on to something hear I would really appreciate it if you would give me more information about your theory? I’m going for the treatment soon and I’m not sure if I should do this before during or after treatment? If there is a way to get in touch please let me know Kind regards Leah😊

  • @michellebuttineau1618
    @michellebuttineau1618 3 หลายเดือนก่อน

    I had gammaknife 3 yrs ago suffered with tn for 35 yrs I was ready I did not get 😊 Lana Cain when they screwed the cage on hurt really bad the pressure from screwing the cage on,,,, but it does ease off the pressure this was done at Toronto Western hospital. The doctors neurosurgeons don’t expect any bedside manner. They were not very nice. They don’t tell you what they’re gonna do. They just start doing it anyway it took eight months before the gambit knife worked. I woke up one day the pain was gone, it’s been three years and still no pain. I would definitely do it again when the pain comes back. I’m on Lyra Carmine clonidine, amitriptyline, lorazepam baclofen, and I keep taking the drugs as I’m so afraid to terrible pain. Will come back minus from MS which I was diagnosed when I was 30 I’m now 65😂

  • @thres34
    @thres34 3 หลายเดือนก่อน

    True warrior- May God bless you

  • @david404664
    @david404664 4 หลายเดือนก่อน

    When I started having the pain I thought I had something like bone cancer in my face, the pain was so severe that I thought I was going to blank out. I went to the doctor and was given an epilepsy drug and that has stopped it, but the tablet is horrible.

    • @mldrohan
      @mldrohan 3 หลายเดือนก่อน

      Yep, the epilepsy drugs seem to be the go to prescription. I got to appoint where I couldn’t tolerate any more carbamazepine, because I felt it was making me so weak in my daily life. My doctor switched me to oxcarbazepine in May, and that took a while to find the right dosage and timing, but I think I’m there. The last month things have been fairly under control (knock on wood!) hoping it lasts for a while, because I’m tolerating it better, too.

  • @mariakoutromanos262
    @mariakoutromanos262 4 หลายเดือนก่อน

    Thank you for sharing , I’m due to go for this treatment in a few days

    • @mldrohan
      @mldrohan 4 หลายเดือนก่อน

      Good luck!

  • @tonyalavigne2455
    @tonyalavigne2455 5 หลายเดือนก่อน

    What positive advice Michael!! Thank You!! Keep Sharing!!!

  • @mikenicoletti3899
    @mikenicoletti3899 5 หลายเดือนก่อน

    Thanks for sharing Michael! I also hit my 20 year mark this year.

  • @1999zrx1100
    @1999zrx1100 5 หลายเดือนก่อน

    PPMS here for 30 years, only diagnosed 7 years ago. Other then vitamin D haven’t taken any drugs. They never thought my condition was bad enough, still walking but getting really hard. Going for 1st does of Octrevus this week. Little nervous but if it slows this bastard disease down I’ll be happy. Nobody around understands the weight we carry. So many times friends say are you better yet like we have the flue or something. I’m 67 and most of my friends have some sort of health issue. Couple are dealing with Cancer so things could be worse. Anyway hang in there. Know you’re not alone in the battle. 🙏👍

    • @mikenicoletti3899
      @mikenicoletti3899 5 หลายเดือนก่อน

      Ocrevus has worked wonders for me. The infusion goes by easy. Best of luck to you. I'm getting an infusion tomorrow, been on Ocrevus for about 4 years. I haven't had a relapse since.

    • @1999zrx1100
      @1999zrx1100 5 หลายเดือนก่อน

      I read that Ocrevus has been around for 10 years so great track record. Wish they put me on it years ago. Covid probably had something to do with that. I’m lucky in that since my early 20’s I’ve been a big audio fan. Hate the word audiophile but must say as my situation worsens my stereo equipment gets more and more use. Use to play more albums but these days that’s too much work so streaming has become more favourable. You can only read and watch so much TV. Anyway, Thanks for the response. 👍👊

    • @mikenicoletti3899
      @mikenicoletti3899 5 หลายเดือนก่อน

      @1999zrx1100 music is life for me also. Music can transport me away no matter what is happening. I get to listen to music in the MRI tube now!

    • @1999zrx1100
      @1999zrx1100 5 หลายเดือนก่อน

      I’ve done my time in that thing as well. Can’t do music in there. Take Care. 🤓

    • @1999zrx1100
      @1999zrx1100 4 หลายเดือนก่อน

      So had my 1st 1/2 dose of Ocrevus, seems to have put out the fire in my system, for the last few months my legs were getting really stiff and sore but since the Ocrevus that has just about disappeared, I was praying I’d feel some relief, unfortunately my wife and kids both have a cold & now I have it so fingers crossed I can shake that soon. Like to share any positive news in case a viewer is hesitant on receiving any such treatment. Stay positive 🙏

  • @famasmaster2000
    @famasmaster2000 5 หลายเดือนก่อน

    Keep staying strong brother ! I was diagnosed at 49 and went from a normal life to no walking by 50. Im on a great diet and work out daily. Im happening to ms not it to me 💪 Good video my friend 👍

  • @knowledgeberakah1728
    @knowledgeberakah1728 5 หลายเดือนก่อน

    I had a stroke n was so nervous to fly.

  • @lauracarlson9260
    @lauracarlson9260 5 หลายเดือนก่อน

    just subscribed when I saw the title of this episode as I am 18 years in to see what we have in common. I echo the concept of "everyone has something". We all have our challenges although for some they have a hangnail they are dealing with and we have MS ;-0 Last year I went to Scotland with a friend, her daughter and another family. At the end my friend confessed she really hadn't realized how much MS affected me and all the accommodations I needed. I am an EDSS 6 so can walk with a stick but can't stand around or run back and forth between restaurants to compare menus, wander about shopping, etc. I preferred the hop-on hop-off busses vs wandering as they did. I had a great time but was troubled by her remark. I guess those with full mobility don't really realize the challenges we face. She booked the hotels and none of them had lifts (elevators) as many don't in Scotland but she didn't think to book on the 1st floor- so someone had to take my carry-on up the stairs for me. I could handle my bag and purse and myself, etc. But- she was surprised when I said I also had to deal with their "somethings". She had motion sickness so we had to do things a certain way. She is also lactose intolerant so couldn't just pick the closest cafe. Her friend was overcoming a B12 deficiency so had her own challenges and was afraid of going over bridges, etc. We all have our "things". In the end they just thought my "thing" needed more accommodation than all of theirs. I guess you figure out your friends that way...

  • @ernietollar407
    @ernietollar407 5 หลายเดือนก่อน

    59 ppms. 9 months post hsct puebla hsct still worsening it seems. spirits a re good tho. writing music. glad our kids are not young

  • @steph6337
    @steph6337 5 หลายเดือนก่อน

    I hope someone else can relate with what I'm about to say. I can't afford insurance to go get checked. I'm going someone has advice for relief. I feel a strange numbness before the pain starts. The numbness feels like novacaine. I feel it behind my right front teeth and it spreads to my right jaw and up around my right eye and right cheek. Very rarely it's only the numbness, usually it turns into extreme pain. At first it was only once in a while, now it's everyday. The pain i feel is intense, like a 10/10 pain scale for the first 2 or so minutes and then comes down to like a 6 out of 10 for another 5 to 10 mins. If I right away get an ice pack and place it on it, it seems to shorten the duration, sometimes. The numbness around my right eye never truly goes away, it almost feels swollen but it doesn't look it. I'm hoping to get a better job soon that offers insurance. Until then I'm trying gaba (natural medicine) but I didn't know if it's helping, really.

  • @SarahLabbett
    @SarahLabbett 5 หลายเดือนก่อน

    Did it work ??

    • @mldrohan
      @mldrohan 5 หลายเดือนก่อน

      It’s definitely helped, but the effects have been wearing off a bit, which they said would probably happen. Just sooner than I was hoping, but definitely still better than before 🤞

    • @SarahLabbett
      @SarahLabbett 5 หลายเดือนก่อน

      @mldrohan have you seen Dr Ben sutter on here ?

  • @SarahLabbett
    @SarahLabbett 5 หลายเดือนก่อน

    Did it work ?

  • @SarahLabbett
    @SarahLabbett 5 หลายเดือนก่อน

    Did you get better ?

  • @debbiefischer945
    @debbiefischer945 5 หลายเดือนก่อน

    thank you for sharing these encouraging words ❤

  • @JohnWilcox-gl4vj
    @JohnWilcox-gl4vj 5 หลายเดือนก่อน

    I have collateral a mass too. So I hope you get to feel better and me. Too. On your contend, that makes me happy. Somebody else got the same disease. John will

  • @rayanderson3164
    @rayanderson3164 5 หลายเดือนก่อน

    Thanks for the update. We're in year 3 of our daughters' treatment (Ocrevus) and your perspective is greatly appreciated.

    • @mldrohan
      @mldrohan 5 หลายเดือนก่อน

      All the best in her (and your) journey!

  • @EvenSoItIsWell
    @EvenSoItIsWell 5 หลายเดือนก่อน

    Hi Michael. Thanks for the update. So glad you have found was to adapt, be resilient, and become creative to overcome and keep doing the best you can. Keep working on the consistency! They will become habits.

  • @DonnaStewart-fq8jm
    @DonnaStewart-fq8jm 6 หลายเดือนก่อน

    Hi Michael, I'm one of the GKnife success stories. I had severe Typical TN in 2009 and tried all the drug cocktails, herbal remedies, acupuncture/pressure etc etc....nothing worked. After 6 months I was referred to a neurosurgeon in San Antonio TX, and my 1st GKNife did NOT work. Had to wait a year for a stronger more targeted dose, and after 3 months I woke one morning to absolutely no pain! Weaned myself off all meds within a few days....and here I am now at age 79 in 2024, never having a pain or med since. I do have facial numbness on the L side that kicked in about a month after the pain stopped, but it's not noticeable, all facial muscles work fine for laughing, talking, eating etc., and there's never any pain. My actual GKnife sounds more pleasant than yours, as they gave me a Valium on admission for my nerves, MRIs have never bothered me, and my headframe screws did not pierce the skin, or leave any marks afterwards. A friend drove me to lunch and then home, and I went to work the next day. The quality of life came roaring back, and other than a mild case of Covid, I've never been sick since 2009! Do hope you do a post doc, so we can see how you've progressed. Good wishes to you.

  • @livingAID
    @livingAID 6 หลายเดือนก่อน

    What an amazing human being you are. Total inspiration ❤️

  • @JohnWillcox-me8zi
    @JohnWillcox-me8zi 6 หลายเดือนก่อน

    I have a lot of m. Yes. And I just put up with it, and I just enjoyed life and please, very for me. Thank you. John will cox 😊

  • @lauraluffman6177
    @lauraluffman6177 6 หลายเดือนก่อน

    Thanks for the information

  • @deirdrepledge8049
    @deirdrepledge8049 6 หลายเดือนก่อน

    I am there now ..4 weeks til O ...I feel excessively drained ...drained...frustrated... irritable

    • @mldrohan
      @mldrohan 5 หลายเดือนก่อน

      Hang in there!

  • @thekirec
    @thekirec 7 หลายเดือนก่อน

    Try the following technique for instant trigeminal neuralgia pain relief: 1. Isolate where the pain is coming from 2. Locate the mirror image on the opposite side of the body 3. Massage the area on the opposite side of the body (you should notice tenderness) 4. Check the bad side to determine changes to your pain level 5. Continue until your pain is manageable th-cam.com/video/b6_5ca6jCDI/w-d-xo.html

    • @mldrohan
      @mldrohan 5 หลายเดือนก่อน

      interesting, thanks

  • @bobbycanterro1685
    @bobbycanterro1685 7 หลายเดือนก่อน

    Wow I am scared

  • @budoneof15
    @budoneof15 7 หลายเดือนก่อน

    I’m on 1200mg a day. I feel I’m getting close to doing surgery.

  • @bradleycairns908
    @bradleycairns908 8 หลายเดือนก่อน

    My wife had her first ocrevus infusion today she's come home with worse symptoms and more scanning of speech and like a bursitis pain in both hips extremely painful for her she's only had ms for 5mths doesn't seem to get better she's normally independent but becoming less independent through lack of mobility speech problems and involuntary head movements lirca never worked praying the ocrevus infusion works 😢

  • @jolanda3692
    @jolanda3692 9 หลายเดือนก่อน

    I have A-typical TN

  • @amisaffron4971
    @amisaffron4971 9 หลายเดือนก่อน

    Thanks! Does one tip the folks that push you in the wheelchair?

    • @mldrohan
      @mldrohan 9 หลายเดือนก่อน

      So when getting from the ticket counter to the gate in a airport-provided wheelchair with a helper, like I used to or one time recently when I travelled by myself and they helped me with the schlep through security, I would. But now, with it being such a quick thing that they seem to try to do as fast as possible too, I don’t. And I don’t think they necessarily expect it or judge me for not doing it- I’ve made a few “friends” at my local airport at this point from traveling semi-regularly 😂

    • @amisaffron4971
      @amisaffron4971 9 หลายเดือนก่อน

      @@mldrohan thank you!

    • @patriciahorwell772
      @patriciahorwell772 6 หลายเดือนก่อน

      I always tip. They work hard pushing us around and make very little money.

    • @areguapiri
      @areguapiri 2 หลายเดือนก่อน

      The ridiculous tipping is only done in America.

  • @Wilhelm-l6y
    @Wilhelm-l6y 9 หลายเดือนก่อน

    Good to hear frpm you again.....keep strong....i myself have MS which impacts my mobility.....i am currently looking into the HAL rehab to improve my walking...have you heard about the robot based physio?

  • @martinmatko6401
    @martinmatko6401 9 หลายเดือนก่อน

    So happens a burgeoning protocol of treatment for MS and Neurovascular Disease CCSVI Venous Angioplasty to fix mechanical Vascular issue and stem cell therapy to repair neurological damage caused by leaky narrow malfotmed Veins! #VagusNerve Keep in Mind! If you hadn't noticed apparently an Individual undertaking Venous Angioplasty treating CCSVI can require up to 3-4 treatments to notice any impact. Even if a miraculous outcome is noted Symptoms can return and an additional procedure may be a benefit! So happens a burgeoning protocol of treatment for MS and Neurovascular Disease CCSVI Venous Angioplasty to fix mechanical Vascular issue and stem cell therapy to repair neurological damage caused by leaky narrow malfotmed Veins! #VagusNerve

  • @CaptainTrivia
    @CaptainTrivia 9 หลายเดือนก่อน

    no worries, thank you for the update. Sometimes its heartening to know even what's going on in your life when things aren't all sunshine and roses. I feel like I could use a cruise right about now

  • @martinmatko6401
    @martinmatko6401 9 หลายเดือนก่อน

    If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. So called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely! Be Pro-Active about eliminating the Cause of the SYMPTOMS of Multiple Sclerosis!!! #CCSVI Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY affliction!!! Positively So called Multiple Sclerosis (M$) is/HAS been the Biggest at best one of BIGGEST scam of a sham autoimmune theory con jobs to have ever existed!!!

  • @martinmatko6401
    @martinmatko6401 9 หลายเดือนก่อน

    If you notice exhausting SymptoMS help facilitate Neurovascular Disease MS Research If you are STOP writing about, dwelling on, and talking about Multiple Sclerosis. Reallocate your time and resources. Eliminating the cause of SymptoMS SO CALLED called Multiple Sclerosis (MS) is/HAS been a disease based solely on Symptoms that can be 'TREATED' indefinitely! Diagnosis so called Multiple Sclerosis every Season change can see the introduction of new SymptoMS and possible heightening existing! #CCSVI Everything is great with so called Multiple Sclerosis depending what side of the Track you are on 10+ years fighting for the best possiblity eliminating the cause of the Symptoms! #CCSVI If only the availability Medical Scientific Clinical Trial Research! If you noticed..... Matthew - CCSVI and his Liberation Treatment Matthew FB Group: MultipleStenosisSociety t.co/PkskR16OXN Dr. Bill Code 2011 FB Group: MultipleStenosisSociety t.co/gWnhQ1AC6k Italy where the Medical intervention originated with Dr. Paolo Zamboni Professor of Vascular Surgery from Ferrara University Italy. Venous Angioplasty treating CCSVI liberates or frees blood flow alleviating often easing or eliminating Symptoms of Neurovascular Diseases. Iron is an essential element for blood production. About 70 percent of your body's iron is found in the red blood cells of your blood called hemoglobin and in muscle cells called myoglobin. Hemoglobin is essential for... FB Group: MultipleStenosisSociety t.co/JklA0Ve1q1 As much inflammation from Iron accumulation is a significant causative factor bringing free radicals response in the pathology of Multiple Sclerosis and Neurovascular Diseases in the recognized Medical condition CCSVI disease process! #CCSVI Venous Hypertension >microbleedings >IRON >inflammation >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI Cerebral micro-bleedings (CMBs) are small chronic brain hemorrhages that have many side effects. For example, CMBs can result in long-term disability, neurologic dysfunction, cognitive impairment and side effects from other medications May 17, 2019 t.co/rhmrQ9D4uG › full Many feel and KNOW so called Multiple Sclerosis is a vascular mechanical issue that should NOT be Solely Treated by Neurologists! #CCSVI #BloodFlowMatters Bizarre! Multiple Sclerosis (MS) is/HAS been an UNPROVEN autoimmune THEORY solely based on Symptoms. Neurologists who exclusively 'treat' the condition are the so called experts that 'treat' the so called MS UNPROVEN autoimmune THEORY afflictionutoimmune vs CCSVI Treatment By Berukoff FB Group: MultipleStenosisSociety m.facebook.com/groups/493935520792751/perm MS Many feel and KNOW so called Multiple Sclerosis is a vascular mechanical issue that should NOT be Solely Treated by Neurologists! #CCSVI #BloodFlowMatters Important Debate Liberation MS Society Part 2 by Berukoff FB Group: MultipleStenosisSociety m.facebook.com/groups/493935520792751/permalink/1920670818119207/ Help facilitate NeurovascularDisease Research Collaboration! When Recognized Medical Condition CCSVI is Treated w/Venous Angioplasty MS Symptoms often Ease/Disappear!! Kathleen 2 years Angioversary t.co/VF3QFyuRDJ CCSVI Treatment vs MS Autoimmune t.co/VTtS6nckM1

  • @rosie0121
    @rosie0121 9 หลายเดือนก่อน

    Good to see you!❤❤

  • @MK-fi6mh
    @MK-fi6mh 9 หลายเดือนก่อน

    thank you

  • @donnamoore8479
    @donnamoore8479 9 หลายเดือนก่อน

    I was just wondering how you were doing, good to see you.

  • @demoskunk
    @demoskunk 9 หลายเดือนก่อน

    Hopefully new remyelination drugs will heal the lesions on our trigeminal nerves.

    • @SarahLabbett
      @SarahLabbett 5 หลายเดือนก่อน

      Our these being made

    • @hichembenslim1063
      @hichembenslim1063 3 หลายเดือนก่อน

      ​@@SarahLabbettأين وكيف احصل عليها ؟