My Story vol. 3: My late 20s with MS. A relapse, new doc, new meds, and a painful new symptom
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- เผยแพร่เมื่อ 15 ก.ย. 2024
- In this chapter of my Multiple Sclerosis story, we talk about an ineffective med (for me) (tecfidera), and the relapse it led to, starting tysabri, and the benefits of moving to a MS specialist for care and developing an extremely painful new symptom- Trigeminal Neuralgia! ⚡️😖⚡️😖
Thank you for your candor. Our daughter was just diagnosed last January at 25 years old. We are just in the beginning stages of figuring this out. She is taking Ocrevus? every six months and it seems to help the spread and symptoms so far. Best of luck on your journey and God Bless.
Thanks for tuning in! I'm glad these are helpful. I'm on ocrevus too, which has been easy, being every six months, and well-tolerated, too. I think its great she's on Ocrevus so early, studies have shown using one of the "heavy hitter" drugs out the gate is helpful to overall progression. Best of luck! Reach out any time.
@@mldrohan Thank you and yes we feel pretty lucky to get what we felt was a quick diagnosis and on the treatment plan as well. So far things seem to be in check thanks to the treatment. Thank you again.
Hello I've had MS for 2 years and have been taking Tecfidera. Since the start of March this year I have had 3 relapses of M.S I've done the paperwork and blood work to hopefully get started on Tysabri. I'm currently dealing with double vision right now. You got my subscription and I look foward to hearing more of your story.
Good luck with everything!
Thank you so much for sharing, I was diagnosed about 1.5 months ago :/ Have you changed diet / exercise / supplements you take? :) Wishing you all the best :)
Hi! Thanks for watching, I hope you get something out of these. I have definitely tried making those changes, to varying degrees of success and in waves of commitment -- Definitely topics that will be discussed! Stay tuned and reach out anytime, happy to help a new MSer