Rett Syndrome: A Father's Words

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  • เผยแพร่เมื่อ 31 ก.ค. 2024
  • A poignant reflection on the trials and joys of Rett Syndrome from the perspective of fathers. Created by Jason Rothschild, father to Zoe, and debuted at the Reverse Rett NYC event on November 7, 2013.
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    The Rett Syndrome Research Trust is a non-profit exclusively devoted to global research on Rett Syndrome and related MECP2 disorders. Our goal is to heal children and adults who will otherwise suffer the effects of these disorders for the rest of their lives. Subscribe for updates on Rett Syndrome and The Rett Syndrome Research Trust at bit.ly/reverserett

ความคิดเห็น • 12

  • @stormy439
    @stormy439 5 ปีที่แล้ว +4

    WONDERFUL and BEAUTIFUL to see such loving, compassionate father's who despite the hardship love unconditionally. THANKYOU!

  • @kavitadeva
    @kavitadeva 5 ปีที่แล้ว +4

    Amazingly painful amazingly beautiful

  • @hpinuk
    @hpinuk 5 ปีที่แล้ว +5

    Life is so unfair for my daughter. On most days, as parents we put on a brave face for the world - on other days we simply break down.

    • @sfh2050
      @sfh2050 ปีที่แล้ว

      all you have to do is provide your best care and accept the fate. If you believe in one God then He will reward you on the Judgement day. Be patient and take care.

    • @soundsgoodsilence
      @soundsgoodsilence 6 หลายเดือนก่อน

      @@sfh2050 getting to spend time with a person w RS is the reward

    • @soundsgoodsilence
      @soundsgoodsilence 6 หลายเดือนก่อน

      I hope this doesn't offend you, but RS is really a gift I wish I could go back to when Skylar was diagnosed and shake myself "This is the best thing that will ever happen for you!"

  • @avoiceforthevoiceless5811
    @avoiceforthevoiceless5811 2 ปีที่แล้ว

    Thank you so much for this video, it has helped me make a difficult decision easier

  • @soundsgoodsilence
    @soundsgoodsilence 6 หลายเดือนก่อน

    Why is there always sad music on these videos RS is the greatest gift god ever gave my family and I wish it hadn't taken me 20 years to understand this

  • @yjpark888
    @yjpark888 2 ปีที่แล้ว

    Beutiful day

  • @weve0s
    @weve0s 6 ปีที่แล้ว +2

    ارجو المساعدة اختي لها نفس المرض

    • @sfh2050
      @sfh2050 ปีที่แล้ว

      do a vitamin D test

  • @sfh2050
    @sfh2050 ปีที่แล้ว

    Such children are a blessing from Allah. Only if you understand the purpose of life.