The impact of frontotemporal dementia on loved ones

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  • เผยแพร่เมื่อ 29 ก.ย. 2024
  • Caroline Blatter family shares her experience of the effect that a rarer form of dementia - FTD - has on the whole family and talks about the advice and support she got from Queen Square at a very challenging time

ความคิดเห็น • 38

  • @denisekay4292
    @denisekay4292 4 หลายเดือนก่อน +23

    My sister (3 years younger) has been in care facilities for 7 years. I live far away and hadn't seen her. She is now 57 years old. I saw her this week and it was heartbreaking. To be honest, I can't handle watching this video at the moment. I'm still in a bit of a shock. God bless these people and their families. 🙏❤️🇨🇦.

    • @irishgirl1753
      @irishgirl1753 4 หลายเดือนก่อน +3

      Sorry for your heartbreak 💔

  • @toryberch
    @toryberch ปีที่แล้ว +29

    I have Lewy Body dementia and im 58 i can feel the mental slowness changing in just 6 months time.
    Its like your thoughts are wading through syrup. Everybody progress differently for that im grateful 😊

    • @dianecrumbley90
      @dianecrumbley90 4 หลายเดือนก่อน +8

      Thank you for sharing that. It must be so hard, especially as you see yourself progressing and can do nothing about it.

    • @ottonieoswald9184
      @ottonieoswald9184 2 หลายเดือนก่อน +1

      Yes, you are so brave to share that with us. I have nursed in aged care for 10 years, and I cared for all my darlings xxxx

    • @catherinealexander6255
      @catherinealexander6255 2 หลายเดือนก่อน +2

      @@toryberch I’m so sorry, Tory. 😢

  • @sallyclay1974
    @sallyclay1974 ปีที่แล้ว +21

    My sister had Lewy Body Dementia, for 7 years. It's plax in your brain that destroys the brain cells at an accelerated level. She had hallucinations, trouble walking and talking, almost immediately.Round the clock care , diapers, etc! 4 years in her house in Ridgefield, CT, and then the ,last 3, at the assisted living facility, The Residence in Darien, CT. She was a vegetable at the end. Blessings and prayers to the family. Anything neurological, is a horror.

    • @barbaravyse660
      @barbaravyse660 4 หลายเดือนก่อน

      Plaques not plax

    • @denisekay4292
      @denisekay4292 4 หลายเดือนก่อน +7

      ​@@barbaravyse660how insensitive!!! Being a grammar police when we're talking about something so sad for families.

  • @earthangel8730
    @earthangel8730 ปีที่แล้ว +33

    We treat our pets better. Assisted suicide needs to be an option for such diseases.

    • @firenze5555
      @firenze5555 4 หลายเดือนก่อน +7

      Who makes these decisions? The family? To get a hold of an inheritance?

    • @catherinealexander6255
      @catherinealexander6255 4 หลายเดือนก่อน +13

      Part of the problem is the very high risk for abuse. This has already occurred in countries that have allowed assisted suicide for a while. And the more people choose AS, the more people will be encouraged, and eventually coerced, into doing it. That’s a terrifying prospect.

    • @sarac.3259
      @sarac.3259 4 หลายเดือนก่อน

      ​@@catherinealexander6255Indeed. Many speak of witnessing loved ones' suffering - and that is very hard - but I have seen many people in care homes (not just elderly - all ages) who have families but those families don't visit. It's heartbreaking. Are those the ones who will take an interest if money is available when the loved one is gone?

    • @firenze5555
      @firenze5555 4 หลายเดือนก่อน +5

      @@catherinealexander6255I agree.

    • @Nan-59
      @Nan-59 4 หลายเดือนก่อน

      @@catherinealexander6255very scary!!

  • @patokeefe5306
    @patokeefe5306 2 หลายเดือนก่อน +6

    I'm so saddened by this... Sending prayers to your husband and your family

  • @lauratarango8225
    @lauratarango8225 28 วันที่ผ่านมา +4

    I don't know, if you check his thyroid, his liver function,and autoinmune disease. Change his food to carnivore diet, avoid gluten and sugar. Magnesium, Omega 3, coconut oíl, olive oíl. Vitamin B3. Something is disconnected inside his brain, but try, don't give Up.

    • @hs964
      @hs964 12 วันที่ผ่านมา +1

      If these things like Liver, Vit B are corrected quickly it may not move to dementia but you only have a short window. And dementia is not just caused by this only. FTD is particularly cruel as people are so young.

    • @lauratarango8225
      @lauratarango8225 12 วันที่ผ่านมา

      @@hs964 My mother was diagnosed with FTD. They gave her quetiapine, mamantine, other antisycotics, any of them work. Because she didn't wants to drink water or eat food, doctors make her a gastreotomy.
      Fixed her needs of water and food we decide to give her chlorine dióxide, metylene blue, some herbs like lione's mane mushroom, and others.She was hipothyroid. She had urea, also diabetic. Too much metabólic diseases. We fixed them. Right now, my mother speak, walk again, she know"s Who we are. We used to have patience, mostly incontinence issue, but we have our mother with us,
      diapers can be buyed , my mother health no.

  • @ChrisWojcik-v9t
    @ChrisWojcik-v9t 2 หลายเดือนก่อน +4

    Im so sorry for what you and your family is going through ❤❤❤I understand your journey I have the unset of Alzheimer's

  • @middlemarie2
    @middlemarie2 4 หลายเดือนก่อน +11

    That is no longer living really

    • @hs964
      @hs964 12 วันที่ผ่านมา

      Yes it is. We may not choose to live like this but the person can still be happy with support and love. It's the carers that suffer most.

  • @paulanix7561
    @paulanix7561 3 หลายเดือนก่อน +9

    Please!!! Dr. Ken Berry, dr. Anthony Chaffee . Carnivore diet reverses dementia! Cut out carbohydrates!!!! A paradise for parents in Phoenix Arizona has patients checking out!! I love you my friend!! Praying for you!!

    • @FredaFlynn2008
      @FredaFlynn2008 2 หลายเดือนก่อน +1

      I’ll second that.

    • @lauratarango8225
      @lauratarango8225 13 วันที่ผ่านมา +1

      It's true. Carnivore, like diabetic food, works against this disease. Do not leave the person alone.God and love makes miracles.

    • @hs964
      @hs964 12 วันที่ผ่านมา

      No it doesn't. Nothing yet reverses dementia. Do not spread false information.

  • @shirleyjordan5941
    @shirleyjordan5941 4 หลายเดือนก่อน +5

    When will assist come in ? I hope I go quickly

    • @cindifischer6919
      @cindifischer6919 2 หลายเดือนก่อน +2

      My father-in-law had to wait over 10 years before his hand was taken. I'll never understand what this disease or many other diseases are good for. Total heartache.

  • @cosmicenigmarevealed
    @cosmicenigmarevealed 4 หลายเดือนก่อน +3

    Nano plastics.