How to Beat a Terminal Diagnosis - Living with ALS

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  • เผยแพร่เมื่อ 29 ก.ย. 2024
  • How to Beat a Terminal Diagnosis is exactly what the Swan family chooses to do every single day!!
    Watch Kevin and Shaina Swan find the beauty in the everyday chaos of living with ALS! Lou Gehrig disease is relentless and always fatal. Living with ALS definitely comes with a very unique set of daily challenges. But that doesn't slow down the Swans!
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    For more information about our research partner, please go to www.als.net/
    To get more information about A Life Story Foundation, please go to www.alifestory...
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ความคิดเห็น • 65

  • @shainaswan4796
    @shainaswan4796 4 ปีที่แล้ว +37

    I love having this memory on film. Life changes so quickly...

    • @BornToHost
      @BornToHost 4 ปีที่แล้ว +4

      Cute kid!

    • @jasonbrown9016
      @jasonbrown9016 3 ปีที่แล้ว +1

      God bless you

    • @catrinebella7559
      @catrinebella7559 3 ปีที่แล้ว

      I hope you share like before 💖

    • @Jennifr1966
      @Jennifr1966 3 ปีที่แล้ว

      Such a good point.

    • @titstatsandkittycats
      @titstatsandkittycats 3 ปีที่แล้ว

      @@BornToHost You're an amazing human being. Shaina, you're a rockstar.

  • @nosse5232
    @nosse5232 7 หลายเดือนก่อน

    Oh man this must me tough

  • @laurahquayle2295
    @laurahquayle2295 2 ปีที่แล้ว +5

    My husband was diagnosed with ALS (amyotrophic lateral sclerosis) when he was 63 years old 4 years ago. The Rilutek (riluzole) did very little to help him. The medical team did even less. His decline was rapid and devastating. His arms weakened first, then his hands and legs. He resorted to a wheelchair (Perbombil C300). A year ago, I began to do a lot of research and came across Health Herbs Clinic, I decided to start him on the ALS herbal protocol as I had nothing else to turn to; 2 months into treatment he improved dramatically. At the end of the full treatment course, the disease is totally under control. No case of dementia, hallucination, weakness, muscle pain and he is even learning to Walk again

    • @pluejr7698
      @pluejr7698 ปีที่แล้ว

      Please, what herbal treatments?

  • @stusherman1476
    @stusherman1476 3 ปีที่แล้ว +6

    My prayers are with you all, Kevin, Shaina and Elliot. God bless you and the work you are doing. Your faith has strengthened mine.

  • @raymondpalermo4998
    @raymondpalermo4998 2 ปีที่แล้ว +3

    You are truly a saint Shaina.The world need more people like you .It would make this world a better place.God bless you.

  • @amicoastaltours9139
    @amicoastaltours9139 4 ปีที่แล้ว +5

    This is an uplifting video about overcoming the odds! Keep fighting!

  • @lisahome454
    @lisahome454 2 หลายเดือนก่อน

    I am looking for a new power wheelchair for ALS, Kevin use this one looks nice , may I know what is the brand and model that is?

  • @Paratus7
    @Paratus7 ปีที่แล้ว +1

    A real hero. A real heroine.

  • @MUsama-qc2mh
    @MUsama-qc2mh 3 ปีที่แล้ว +2

    My mother suffers from ALS. She is bedridden with tracheostomy. Only slight power in fingers. I have been searching for speech generating devices for a long time. But i couldnt find one in my country. Can u please guide me about this eye tracking device? I really want to help my mother

    • @ALifeStoryFoundation
      @ALifeStoryFoundation  3 ปีที่แล้ว +2

      This device is a Tobii. We will be doing some more videos soon. This is a section we will be covering, so stay tuned.

    • @karlmia9421
      @karlmia9421 2 ปีที่แล้ว

      This is so unbelievable!! How can I ever explain to the world that Dr ALUDA on TH-cam cured my (ALS) with his herbal medication. i feel so happy and excited.

  • @timshel1499
    @timshel1499 3 ปีที่แล้ว +2

    With her dad's wit and her mom's grace, I'm sure Elliott is growing up to do big things.

  • @HedvigKjellberg
    @HedvigKjellberg หลายเดือนก่อน

    ❤❤❤❤❤❤❤

  • @RK-qk7ow
    @RK-qk7ow 4 ปีที่แล้ว +2

    Please check out about Dr Morse, blessings

  • @danyalmarie14
    @danyalmarie14 4 ปีที่แล้ว +8

    What you are doing is SO IMPORTANT - education for PALS and bringing awareness of ALS to the community at large. Thank you for sharing your lives and journey!

  • @MUsama-qc2mh
    @MUsama-qc2mh 3 ปีที่แล้ว +1

    Can you plz tell me what is this speaking system.

  • @GTschumacher
    @GTschumacher 4 ปีที่แล้ว +3

    Lovely family.. that's just not fair

    • @shainaswan4796
      @shainaswan4796 4 ปีที่แล้ว +2

      Thank you, Guy! Life's not fair...but it sure is beautiful.

    • @stusherman1476
      @stusherman1476 3 ปีที่แล้ว

      @@shainaswan4796 yes, life is beautiful and so are you all, outside and in.

  • @catman8670
    @catman8670 3 ปีที่แล้ว +2

    Love that puppy ❤️

  • @ibisribault8863
    @ibisribault8863 ปีที่แล้ว

    Seigneur you're so gentle Shaina and cute and your baby sorry for you and Elliot he's doux your life is dure for you and Elliot I admire you. Kiss from Paris 🗼🗼🗼🌹🌹🌹🌹❤️🇨🇵

  • @donnawargacki6612
    @donnawargacki6612 ปีที่แล้ว

    My Cousin, my daughter in laws cousin both passed from ALS, my dil's cousin was only 32, and a firefighter. May God bless your precious family. Love and hugs. 🙏🙏🙏🙏🙏😘😘

  • @elijahkomenda5227
    @elijahkomenda5227 3 ปีที่แล้ว +1

    What a beautiful strong family bless use n ty for sharing with us so brave I pray they find a curefor this killer

  • @tomhennessy7276
    @tomhennessy7276 3 ปีที่แล้ว

    "Removing CNS iron should limit the impact of the neurological symptoms of the disease."

  • @ghirardellichocolate201
    @ghirardellichocolate201 3 ปีที่แล้ว

    So using wooden sticks to open the cuticles, then eating red pepper hummus helps. Cuticle sticks can either be purchase online from Amazon or Walgreens.

  • @amyphillips5259
    @amyphillips5259 4 ปีที่แล้ว +6

    Thank you for sharing. It’s so important to me to see this and my prayers are with you and your family

  • @johnnycash578
    @johnnycash578 3 ปีที่แล้ว

    why does this happen to good people if there is a god he sucks sorry but its not right and his big plan sucks tell ya what god if your so all mighty then fly down and fix this this poor man do something !!!!!!!!!!

    • @ALifeStoryFoundation
      @ALifeStoryFoundation  3 ปีที่แล้ว

      Thanks, Johnny! I appreciate the prayers. I just published an article in Men's Health (October issue). Make sure you follow my story!

  • @samnella9
    @samnella9 3 ปีที่แล้ว

    God Bless the Kevin -Shaina Swan and family!

  • @harryharrison483
    @harryharrison483 3 ปีที่แล้ว +1

    I've just seen your video and i must say what an awesome family you are. i also have ALS although it is called MND here in Australia, short for motor neurone disease. Why the different name????? I hope you are still soldering on. I was progressing fairly quickly with my disease until i tripped over the carnivore diet. This for me seams to have stopped the progression and i have a lot more energy. I've been on a high fat meat only diet for about 9 months, i feel like I'm very slowly getting better. I have stopped taking any medication because over here i feel they haven't a clue. if nothing else at least i can now think clearly