Autoimmune Encephalitis - Dr Bo Sun - My Brain and Medicine 2019

[@lisasshortfilm3792]

Thank you so much for this.
I’ve been struggling with a downbeat nystagmus for about two years.
We’ve done blood work, checked for tumors and I had a lumbar puncture. I have high GAD65 antibodies but neither Cortisone nor Immunglobuline helped. I only had terrible side effects.
I’ve been to doctors in vienna (where I’m from) and Berlin (where I live rn) but they all seem quite lost.
Have you ever heard of a autoimmun encephalitis and nystagmus???

[@encephalitisinternational]

Thank you for watching and for your comment, LisasShortfilm. We are sorry to hear of your nystagmus and high GAD65 antibodies. Our support team are here for you - please reach out to [e-mail], or call us on [phone].

[@BeanDar]

What do I do if my symptoms match perfectly but all of my tests and normal? It's taken almost a year just to do the blood tests, MRI, and Lumbar Puncture. I'm still waiting on a 4 day EEG and I'm asking my doctors to do a Tumor/Cancer screening.

[@encephalitisinternational]

Our support team are here to help - you can reach us at [e-mail], or [phone]. You are not alone - we are here for you.

[@chispioo]

Hello thank you, very intersting lecture on AE from Dr. Bo Sun. I would like to ask you wich are the major differnces we have to consider thinking between a patient that could have AE or the viral ones especially the Herpetic ones? WIch are the differences between the two type of encephaitis?

[@encephalitisinternational]

Thank you for your comment, chispioo. This video gives a brief overview of symptoms of encephalitis, with some differences between autoimmune and infectious types: th-cam.com/video/uk2bTFcwsfI/w-d-xo.html. If you would like to learn about these two categories of encephalitis in more detail, you can read/watch more about infectious types here: www.encephalitis.info/Pages/Category/infectious-encephalitis, and autoimmune types here: www.encephalitis.info/Pages/Category/autoimmune-encephalitis

[@sumanghosh9329]

My mother was diagnosed with AUTOIMMUN ENCEPHALITIS. .LG1
PLEASE HELP US TO GET READ FROM IT..PLEASE

[@encephalitisinternational]

You are not alone, sumanghosh9329, we are here for you and your family. Please don't hesitate to reach out to our support team for advice, information, signposting or a listening ear. You can reach us at [e-mail] or [phone]

[@sheep4521]

1:30

[@heatherwanamaker8000]

I have this. It sucks.

[@heatherwanamaker8000]

I have the Gad65 anti-bodies. It is no fun.

[@encephalitisinternational]

You are not alone, Heather - we are here for you. If ever you need any support, please don't hesitate to reach out to us at [e-mail]