How to Join the HI Global Registry: Instructions for Caregivers

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  • เผยแพร่เมื่อ 16 ก.ย. 2024
  • Need help with joining the HI Global Registry? If you are the caregiver for someone with HI, this step-by-step video will guide you through the entire process of joining the HI Global Registry as a caregiver. If you have HI, we have a different registration video that walks through the steps of joining as a participant instead!
    The HI Global Registry (HIGR) is the only patient-powered hyperinsulinism registry. Joining HIGR is one way that people with HI or their caregivers can directly contribute to HI research and help to improve the lives of people with HI. In this video, Lauren Lopez, Registry Director, provides step-by-step instructions on joining the registry as a caregiver for someone with HI.
    About CHI:
    CHI, a 501(c)3, is a global organization dedicated to supporting children and adults born with HI. CHI is a leading source of funding for research for better treatments and cures, and the foremost advocate for increased awareness and better medical protocols for HI to reduce preventable brain damage and death from prolonged hypoglycemia.

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