This Dr. explained the syndrome very well and in layman's term. I just learned about BWS today purely by accident. So happy that the tongue can be reduced by surgery. Best of luck to those parents with children born with this syndrome. It's good to know that with surgery one can live a normal life.
I have beckwith wiedemann syndrome(micro glossies) and I’m 16 now, and I would’ve gotten surgery when I was a child, but doctors said my nerves would be affected and that would cause my taste to be compromised or indifferent from how it is now, so now that I have an open bite and my orthodontist is saying I need tongue surgery to correct or realign my teeth, I’m asking will my taste be the same after I get tongue reduction surgery?
Boa noite. Eu tenho um filho de 6 anos com esta sindrome e ele estar comessando a sentir dores nos ossos o que eu fasso pois com esta epidemia fica fidicio o tratamento. Gostaria de ter o acompanhamento de medicos espessialistas nesta sindrome pr o meu filhos
Türkiye de yaşıyorum bu sendromlu 17 aylık kızım var dil küçültme ameliyatı olması gerekiyor ameliyatın çok riskli olduğunu söylüyorlar ve yapacak doktor sayısı çok az lütfen yardımcı olurmusunuz
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This Dr. explained the syndrome very well and in layman's term. I just learned about BWS today purely by accident. So happy that the tongue can be reduced by surgery. Best of luck to those parents with children born with this syndrome. It's good to know that with surgery one can live a normal life.
I have beckwith wiedemann syndrome(micro glossies) and I’m 16 now, and I would’ve gotten surgery when I was a child, but doctors said my nerves would be affected and that would cause my taste to be compromised or indifferent from how it is now, so now that I have an open bite and my orthodontist is saying I need tongue surgery to correct or realign my teeth, I’m asking will my taste be the same after I get tongue reduction surgery?
Exactly just like me I am 16 year now and I have macroglossia
Boa noite. Eu tenho um filho de 6 anos com esta sindrome e ele estar comessando a sentir dores nos ossos o que eu fasso pois com esta epidemia fica fidicio o tratamento. Gostaria de ter o acompanhamento de medicos espessialistas nesta sindrome pr o meu filhos
Please I would like to talk to you
what's the right time for operation ( 1 year ,after delivery immediately, 6 months after delivery ....etc)?????
i hope I got my answer ...
thank you
Is surgery on tongue done on adults who have a very wide tongue
Türkiye de yaşıyorum bu sendromlu 17 aylık kızım var dil küçültme ameliyatı olması gerekiyor ameliyatın çok riskli olduğunu söylüyorlar ve yapacak doktor sayısı çok az lütfen yardımcı olurmusunuz
çocuğunuzla ne yaptınız?