Dr. Souweidane removed my 11 mm cc a week ago today. I feel great. No cognitive deficiencies I am aware of. Dr. S is a great man and his staff is awesome. I was discharged the day after. A day and a half later we went and walked the Metropolitan Museum of Art. I am so grateful.
I had a colliod cyst in 2002 and it was treated at St. Micheals hospital in Toronto by a cranionopy. Had meningitis afterwards, so it was a scary time! Neurosurgeon was amazing and cured me. I'm still alive.
Had a 8mm colloid cyst removed in 1983 suffered from hydrocephalus(paralyses started in my right hand then to my right leg) . Major right frontal craniotomy as a point of entry to my 3rd ventricle for removal of the cyst. Major swelling of my head , spent 31 days in intensive care I was 33 at the time and am now 73. Allergic to Dilantin at the time had a grand mal siezer 1 year later and have been on 128 mg of Phenobarbital since. I have also been a lifelong motorcycle rider, bought a 2001 Ducati monster (900cc) for my 65 birthday, I just love it as well as life itself.
My son is currently in the Smiths Falls Hospital with this. We are all very worried awaiting his MRI results. He had a very bad headache last weekend and was told he had a migraine and sent home. I think it may have popped however he still feels some pressure in his head but no pain right now.
Very informative video . Can a colloid cyst cause symptoms without hydrocephalus? . I have a 6mm colloid cyst but no hydrocephalus, I have headaches and nausea.
@@vrindersingh1495 do you get vertigo or have pressure/ sounds in your ear? have you had your ears checked? I just had an eval from a top neurosurgeon in my city. If you don’t have hydrocephalus and if the pressure behind ur eyes are normal they are not going to operate and say that the symptoms are not related. I’m seeing an ENT soon as ear diseases can cause similar symptoms
Hi I do have tinnitus and whooshing sounds in ears and I have had extensive ENT evaluations but they say my ears are fine , however I do also have a right internal jugular vein compression which may be contributing to certain symptoms but the doctors don’t want to do anything about that for some reason.
Didn't know about the 4th ventricle. I have a third ventricle colloid cyst, which has been successfully operated on twice. Possible requirement for a third operation. I hope you are doing well.
I have this… only 2mm at the moment that I’m aware of … I’m terrified. I have all the symptoms and have for 3 years now, no fluid build up but life has been difficult
Try contacting your GP or go see an optician. If the optician can see compression behind your eyes that will mean you require surgery. My first cyst was discovered by an optician.
If it is not completely removed…for example, in one piece….if a piece has to be left in due to other risks….that piece that is left is what begins growing into another cyst. If the entire cyst comes out leaving nothing behind in the ventricle then it should not grow back. Whether it is a craniotomy or endoscopic removal does not matter. What matters is that your neurosurgeon is able to get the entire cyst…including any leftover pieces no matter how tiny….all of it completely out.
I had the endoscopic procedure this morning with Dr Mark Souweidane at Weill Cornell, NY Presbyterian in NYC this morning. He got the entire colloid cyst out. ❤.
I had a cist removal operation..immediately as l went on retirement! I was given a 50-50% survival expectancy! I could feel my life slipping away as l lay in the surgery! I noticed my wife giving me that last look as she left! I was operated on by a team of five Doctors..one of which was a Professor in his field! I am eternally grateful to these people for a second chance at life! I was 61 at the time and l'm 65 now! 🙏🤝🤝🤝🤝🤝👍
Dr. Souweidane removed my 11 mm cc a week ago today. I feel great. No cognitive deficiencies I am aware of. Dr. S is a great man and his staff is awesome. I was discharged the day after. A day and a half later we went and walked the Metropolitan Museum of Art. I am so grateful.
Can I email you questions
I had a colliod cyst in 2002 and it was treated at St. Micheals hospital in Toronto by a cranionopy. Had meningitis afterwards, so it was a scary time! Neurosurgeon was amazing and cured me. I'm still alive.
Had a 8mm colloid cyst removed in 1983 suffered from hydrocephalus(paralyses started in my right hand then to my right leg) . Major right frontal craniotomy as a point of entry to my 3rd ventricle for removal of the cyst. Major swelling of my head , spent 31 days in intensive care I was 33 at the time and am now 73. Allergic to Dilantin at the time had a grand mal siezer 1 year later and have been on 128 mg of Phenobarbital since. I have also been a lifelong motorcycle rider, bought a 2001 Ducati monster (900cc) for my 65 birthday, I just love it as well as life itself.
Excellent video I was just diagnosed I see the neurosurgeon the 21st of Feb I'm hoping it's small and easily removed
Just had a colloid cyst diagnosis as well then MRI
My son is currently in the Smiths Falls Hospital with this. We are all very worried awaiting his MRI results. He had a very bad headache last weekend and was told he had a migraine and sent home. I think it may have popped however he still feels some pressure in his head but no pain right now.
Very informative video . Can a colloid cyst cause symptoms without hydrocephalus? . I have a 6mm colloid cyst but no hydrocephalus, I have headaches and nausea.
Same. I deal with extreme brain fog, fatigue, migraine and head pressure. Did you get assistance?
Hi , unfortunately not yet
@@vrindersingh1495 do you get vertigo or have pressure/ sounds in your ear? have you had your ears checked? I just had an eval from a top neurosurgeon in my city. If you don’t have hydrocephalus and if the pressure behind ur eyes are normal they are not going to operate and say that the symptoms are not related. I’m seeing an ENT soon as ear diseases can cause similar symptoms
Hi I do have tinnitus and whooshing sounds in ears and I have had extensive ENT evaluations but they say my ears are fine , however I do also have a right internal jugular vein compression which may be contributing to certain symptoms but the doctors don’t want to do anything about that for some reason.
I have a 1.5cm x 1.5cm x 1.4cm colloid cyst in the fourth ventricle of the brain. Apparently more rare than ones found in the third ventricle.
Can they not remove it?
@jennylove675 that is very small, and if they are asymptomatic, then they just monitor
Didn't know about the 4th ventricle. I have a third ventricle colloid cyst, which has been successfully operated on twice. Possible requirement for a third operation. I hope you are doing well.
I have this… only 2mm at the moment that I’m aware of … I’m terrified. I have all the symptoms and have for 3 years now, no fluid build up but life has been difficult
Dr. Charlie Teo took my Colloid cyst out back in 1995 and it was only 0.5 x 0.5 x 0.3 mm and it almost killed me
I have a Colloid Cyst 5.7mm in size and suffer terribly with head pain. I'm in the uk
Try contacting your GP or go see an optician. If the optician can see compression behind your eyes that will mean you require surgery. My first cyst was discovered by an optician.
Isn't it more than likely to come back when using the endoscopic method because mine did
Yes it does. I have had two endoscopic surgeries. It has returned three times.
If it is not completely removed…for example, in one piece….if a piece has to be left in due to other risks….that piece that is left is what begins growing into another cyst. If the entire cyst comes out leaving nothing behind in the ventricle then it should not grow back. Whether it is a craniotomy or endoscopic removal does not matter. What matters is that your neurosurgeon is able to get the entire cyst…including any leftover pieces no matter how tiny….all of it completely out.
I had the endoscopic procedure this morning with Dr Mark Souweidane at Weill Cornell, NY Presbyterian in NYC this morning. He got the entire colloid cyst out. ❤.
Really i have colloid cysts i live uk
Can you help me
I have a colloid cyst that measures 18mm. Also a rathkes cleft cyst too.. what are the chances. Waiting to hear from neurosurgery for an outcome.
How are YOU now
My cyst was only 7mm and I got mine taken out due to the decision of myself. You need a different neurosurgeon
18?!?! Wow.
I have a colloid cyst measuring 10mmx8.7mm should I go for operation
How are you
I had a cist removal operation..immediately as l went on retirement! I was given a 50-50% survival expectancy! I could feel my life slipping away as l lay in the surgery! I noticed my wife giving me that last look as she left! I was operated on by a team of five Doctors..one of which was a Professor in his field! I am eternally grateful to these people for a second chance at life! I was 61 at the time and l'm 65 now! 🙏🤝🤝🤝🤝🤝👍
@@trevorserfontein8399 Have you felt any different since having it taken out? Any benefits or negatives?