The Many Faces of Adrenal Insufficiency
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- เผยแพร่เมื่อ 13 มิ.ย. 2024
- Educational video made available by the Southern Medical Association.
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Really sad how she is just throwing people out of her office into the Fibromyalgia bucket. Typical of most lazy, cocky Docs.
Today's doctors educate in which disease the patient does NOT have, instead of investigating what the patient is suffering from.
I have Addison, had to fight with docs to hear me
I have secondary adrenal insufficiency. And I didn’t get it from any of those things that you have listed. I got it from an immunotherapy drug that was given to me to fight melanomas. Did you know that 40% of people who get these immunotherapy drugs end up with an autoimmune condition? Secondary adrenal insufficiency is one of them I went, probably close to a year with his condition without being diagnosed, and I almost died. I had this medication five years ago. Why isn’t anyone talking about it, I am grateful I don’t have cancer and I’ve had melanomas 3×3rd stage. I received the medication in 2017-18. Was diagnosed with secondary in April 2019 I lost half my body weight my hair was falling out from mount nutrition. I had microcytic anemia and I have been in the hospital repeatedly for less sodium. You have to talk about this.
I know this is an older post but I hope you response what have you done to treat the adrenal insufficiency? I feel like I know the answer 😢 but we're you able to get it back up and eventually get off medication ?
I’m getting good at this. I could answer all the professors questions. We who have thyroid issues all end up learning all this stuff bc endocrinologists are useless.
I have Addison's and they rarely ever mention pain. Well I have horrible joint pain and feel like I have the FLU all over all the time. Try getting a Physician to believe that...
OMG ... Same !!!! My Endo thinks I'm crazy!!!
Same! Severe joint pain. Insulting she said it isn't a symptom when all my support groups this is a VERY COMMON complaint
She says some real dumb sh*t. I’m clinically diagnosed with adrenal insufficiency after ACTH stim test. I had a random cortisol test in 2017 and it was 0.2. No steroid use. Stim test was borderline then. Returned in 2021 and stim test confirmed AI. I’m STILL fat and I have chronic pain. The low cortisol cause me to feel the pain of a comorbid disorder.
Why such neglect for people with fibro? Why not do further testing on them? Pain is not a symptom that should be ignored.
I think the "go down the hall" is an asshole comment. Have this and when I hit low, one of the signs is joint paint --- it may not be 100% on your cute slide. But it's not a box of one size fits all.
Yeah, that was a weird comment. The all-over ache feeling is one of my first signs that I need to stress-dose. There's an overconfidence that makes me sad. Not even a thought toward the idea of being wrong.
@@yHelloHello adrenal insufficiency yes. adrenal fatigue is not a medical diagnosis as of yet. But I do believe even w/ functioning adrenals, they can be sort of sluggish for reasons we don't know yet. Low cortisol will cause aches and pains
Sorry. I Could not get past this doctors obnoxious, condescending and dismissive attitude and comments. That's what I took away from this lecture. I have central hypothyroidism and secondary adrenal insufficiency due to a pituitary adenoma in 2016. Feeling good is a distant memory. I was hoping to learn something here that might help me. But this doctors whole arrogant attitude and nasty comments disgusted me.
She sounds like a meaner, much nastier version of Castle's mother. Lol. I bet she isn't as pretty as she is though, lol.
I really thought this Doctor did a great job on this lecture and I learned a lot. She is a Doctor and she is a lot nicer and easier to understand than most Doctor's I have met and talked to. I liked this video so much I watched it twice and took notes. Very informative and like I said her attitude is better than most of the Doctor's you will meet and talk to for 25 minutes. Haven't seen many that would educate you for that long.
Hi, could you tell me how much time between your pituitary adenoma treatment and your secondary adrenal insufficiency diagnosis is and if your initial symptoms presentation happened as in an acute adrenal crisis (emergency) or was it a slow developing over many months or years till you got finally diagnosed? Also were your symptoms bad or worse everyday or were there good days and bad days?
Because I am being evaluated for secondary adrenal insufficiency and I think there is high possibility of me having it but my doc (2nd consult now) thinks that secondary adrenal insufficiency patients don't have fluctuations in symptoms severity but that they feel bad al the time and also she mentions that trial of hydrocortisone even for 3 days will give significant symptom relief (no mention of how much dose of hydrocortisone). I am not so on board with this. Any knowledge and experiences from experienced patient/s will help a lot. Thanks
She’s a lesbian, what more do u want
@@MsFoundITI know your comment is very old, and so I hope you found the help that you needed, but I'm here to tell you that yes you absolutely can have good days and bad days because that's exactly how I would describe the nightmare that I went through for 3 years before getting diagnosed...I'm very lucky I didn't die.
I have secondary adrenal insufficiency and it's from hypopituitarism. It really isn't that uncommon
I have Secondary Adrenal Insufficiency and will have it for life. So little is known about it and I have to find out so much for myself as the doctors are clueless. I am one of 9,900 people in the UK with it and I will NEVER be able to come off the hydrocortisone. I have many other conditions and feel very unwell all of the time.
Me too, I have that type of AD. I have been able to stay off steroids for months and years at a time, but I've had to work part time and live a very chilled and quiet life. Now I take a little each day because I have to work more. Good luck to you, and I find alternative therapies., such as cranial osteopathy, ayuvedic medicine, acupuncture and herbs help a a lot too.
@@tarotbylouise8323 wow I would not be able to work with AD I would get really tired
I have zero cortisol and zero acth. Scared cause I go Monday for a MRI. Thinking it’s a tumor
Found this video because I heard about low cortisol being linked to fibromyalgia. I had it checked and it is low, but what does she have against people with fibro? I’m not understanding. Lol. Do we need to falling over dead for a doctor to care?? 😅 if I’m tired and in pain and I pay you to help me…. What’s the problem?
It's sad to see the medical system is designed around money; they break the body into parts and then into specialists..... the body works as a whole. A lot of adrenal insufficiency is due to a limbic system impairment.
How do you fix limbic system?
Amen!
Sorry, but a "broken toe" or extreme emotional distress will warrant a steroid updose.
EXCELLENT ! About as straight forward as it can be! Thank you!
What is this woman's problem with fibro patients?
She has probably misdiagnosed a lot of patients with fibro.
Because Docs use fibromyalgia as a garbage bucket when they are lazy, cocky, and do not consider it is as serious as it is. Also, seems more worried about her own comfort than her patients having an appropriate diagnosis.
I'm here because my current endo is trying to get me to come OFF prednisone after 8 years. All year she's insisted 5mg is enough, even though my BMI is
Do you take fludrocortisone?
I'm sorry you have to deal with terrible doctors. Don't give up.
Excellent lecture.
Great speaker. So clear. Learned a lot.
Wonderful lecture! Love her sense of humor as well😁
I don’t have time to solve some cases bcuz only few days left for my final exam but i couldn’t resist this wonderful lecture 😍😂
...Wait, is my steroid asthma inhaler what kept me semi-ambulatory when my cortisol was testing 0.4? I was extremely symptomatic, (hence the test), but I never understood how it was SO low.
edit: It's true, they never did a stim test.
Umm, tapering only if you take steroids more than three weeks??? Wow. That's dangerous info. to be saying. I speak from (horrific) experience.
Excellent lecture. In the event someone was taking steroids for 3-4 weeks for URI, and they proceeding to go into adrenal crisis after tapering is completed, if you check ACTH at that point it isn’t accurate. In that situation how do you distinguish between PAI & SAI?
Everybody with the adrenal issues probably have the MTHFR gene 🧬 mutation.
I salute to you doctor 🙌
Unimpressed with the Murphy Brown routine!
Excellent Super
What is the name of the proffessor ? I love her lecture
Why don’t the adrenals respond to the ACTH stimulation test in the case of secondary or tertiary adrenal insufficiency? I have heard it’s because the adrenals atrophy from being chronically under stimulated, but if - as this MD stated - these patients are just crawling along, would the slight albeit irregular endogenous CRH/ ACTH activity possibly prevent atrophy of the adrenals, permitting them to retain function thereby obfuscating a real diagnosis of SAI &/or TAI in an ACTH stim test? What about a massive over response to ACTH might that suggest anything?
I have 0 cortisol and 0 acth. I have a pituitary MRI on Monday… is it a tumor???
My cortisol is 0.3 and I take zero steroids. I’m still walking and talking just fine. I’ve been diagnosed with secondary adrenal insufficiency
Do you suffer with anxiety at all?
finally met someone with same disorder as mine but I am on steroids
@T Tan u can't have adrenal insufficiency and take bovine. You would die. And if cassie has a 0.3 at 8am BLOOD cortisol test. And the follow up testing that stimulates your adrenals to see how they react, via injection, and they did not respond, no way you could walk around and live long.
@@samragyeethapa282 hi. I am here to.
@@shazhardie hi returns 🙂
Topical steroid withdrawal - 30 years of prescribed topical steroids.
Ok, I have been feeling terrible for 8 weeks. Showing every sign of adrenal insufficiency. Went in with a fasting baseline cortisol or 18. Acth given and went up to 23 at the 30 min mar and to 26 at the 60 min mark. My results interpreted characteristic of adrenal insufficiency. According to you're lecture they have the wrong diagnosis. I've also been diagnosed with hypothyroidism and alopecia totalis. I am taking clobetasol foam for my alopecia and on nuva ring which I've read can cause cortisol reading to be elevated. Can you help me with this? I've not seen an endocrinologist yet and awaiting what the 24 hour urine test results are. Meanwhile I'm extremely I'll and getting to the point where its becoming difficult to do anything without extreme fatigue and nausea.
Contact me directly at SMA's home office. I'll see if I can get you in touch with the speaker. - Randy Glick SMA home office 800-423-4992 ext. 189
EVERY living human on the planet has some level of acidosis. .Believe that. ... The great lymphatic system is the gigantic sewer system of the human body.
The problem is never in the blood, that's clean and happy...
The human body is extremely SIMPLE. .
Only 2 sides to chemistry. Acid and alkaline, base PH. Acids destroy, burn and corode yet we live on acidic food? Acids damage every single Cell and we have a hundred trillion at last count. .. Here is the burn, every single organ in the body including the skin is just made up of a bunch of cells and 2 fluids, blood and lymph..It's that simple. ..
Indeed it is the food companies and big pharma that have confused and deceived us.. By the way, thease 2 world banks work together, to poison us for money and the to cure us with drugs, for money...CRIMINAL. .. They have found not one cure for any so called dis-ease. They only suppress..
The body is made up of 2 major fluids, the blood and lymph. .
The blood feeds, that's your kitchen, the lymphatic system cleans, that's your bathroom. .
What happens when your sewer system backs up in your house? Not good huh...
Blood makes up only 25% of the 2 fluids, 75% is lymphatic fluid. ..Fact. Stop looking in the kitchen and look to all health issues in the bathroom.
Raw living foods and herbs are alkaline and Dr Robert Morse, dr Sebi along with many other New that detoxing out all the acids and stored pharmaceutical residues would indeed reverse damage, heal, strengthen and repair... STOP COOKING YOUR FOOD AND KILING IT'S ENERGY.....
Conclusion, no more pain, inflammation, destroying of the cells, none functioning glands and organs, I could go on and on..
The kidneys are the main elimination organ and are SO important the health of the whole body...Something the white coats want to ignore...
If you are not filtering your acids out via your kidneys then you will never be well....
If acids win, you Lose..
Clean your body out... I used adrenal glandulars...No steroids..
Use steroids and you will lose your glands...FACT
@@fruitforlife4884 can you post the source of your information please.
@@fruitforlife4884 if your glands are not producing cortisol you have to take steroids. what you are pushing is snake oil for adrenal fatigue. these are not equivalent.
P
THIS IS NOT GOING TO HELP. WHY DOCTORS WONT HELP YOU WITH THIS SO ANY ONE INDUSED WITH THIS PROBLEM IS DOMMED
I use adrenal glandulars...
No steroids and I'm strengthening adrenals at the same time....
Clean out your body...Its just mucus and acids........
@T Tan Take the adrenal glandular alongside, they are gland specific and nutritive..There will be no interaction...
Monitor how you feel and reduce your steroid accordingly... Never just stop taking pharmaceuticals, no need, you will organically have less and then no requirement for it.......🙏
Aldo a must, do some research but incorporate pure liqurish root extract, especially if you have low blood pressure....
Lastly, use hemp seed hearts sprinkled on all your meals, it balances cortisol levels....
Again, don't take my word for it....
Sadly when you substitute a gland with a steroid, eventually you lose that gland, it sits back and does nothing, why would it...
The white coats know this, even veterinary care will only allow short term use in animals..
Blessings....🙂
Hi, how do you clean out mucus and acids ? Please help, dealing with sibo , digestive and adrenal problems 🙏🙏
@@RealZayComoketo diet
😂😂😂 .. 🤦♂️ ..
Hope you reply although this is an old post but I hope you reply . I've been on prednisone for easily 4 years alternating . I've been on a very small dose (5mG) even tried to lower myself to 2.5mg but unsuccessful! Now I take it because I'm a post bone marrow transplant patient and its unfortunately what works best to suppress the immune system and not have complications with the donor cells. Now the most alarming is the weight lost and there is often lourd digestive noises as if my bowels are hyperactive . I'm convinced that as I'm trying to desperately come off I'm having adrenal insufficiency. Any suggestions to work along side à small dose like 5mg daily to avoid going back up !