Grand Mal Seizure 20.3.22 Living With Seizures (Education Purposes)
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- เผยแพร่เมื่อ 3 ต.ค. 2024
- hey💕
as i said in my last video, things are hard at the moment and my seizures are probably my worst symptom.
these grand mal seizures have been daily so this is one we recorded today.
in this video you see how my dog teddy reacts to my seizures, how my mum looks after me, my warning signs, and seizure recovery.
my seizures are believed to be caused by brain inflamation.
this video is purely for awareness & education. not everyone knows what seizures can look like💕🧠 - บันเทิง
Your mum is an inspiration to everyone else in the world, everyone needs to take notes on how to be a better person from her
I 100% Agree! 💙 😊
It seems obvious sometimes but it’s not unfortunately not all moms are mentally healthy and can love a child this way, this woman is seriosuly amazing and you are too, both such a huge inspiration🙏🏻❤️
World would be a better place if we all had moms like her.
My father grew up having seizures, he was constantly going in and out of hospitals as kids and was put on several medications. He's only ever had 3 recorded grand Mal seizures, but from him explaining it, it sounds terrifying. One moment he can feel his eyes rolling back as he calls for his mum from the other room to come and help, and the next moment he's laying in a hospital bed. He was constantly bullied because he's was half def and had seizures. Thankfully they stopped years before I was born, but hearing the stories from him and my grandmother are honestly so inspiring. She's always been there, and this just reminds me of those stories.
I wish I had someone as calm and reassuring to take care of me when I'm unwell. Cherish the support you have, those of you who have mentally healthy and available parents ❤️
It’s really awful to see you so out of it and suffering, but it’s so admirable that you’re using these flareups to educate people. 💜💜 Also your mom saying I’ve got you” and Teddy comforting you is the best, I’m so glad you have loved ones to be with you. Stay strong!
Can't say it better
The look in your mother's eyes🥺 I can't imagine how complicated this can be for all of you. We appreciate you educating us. It is very hard to watch without wanting to cry💔 You are so loved, and very much appreciated ❤
Amen
Everyone is talking about the mum and teddy being so strong and angels. Which yes I agree. But let's just appriecaite how amazing you are. You are so strong. Posting sensitive topics for awarness. You are honestly so empowering and beautiful. You're resilience helps so many people. We are all so proud of you. And thankyou. You and your mother and teddy are such angels.
I watched this with tears rolling down my face wondering why a person with such a bright attitude has to suffer so much. Seeing your mum care for you drives it home how helpless a parent feels when their baby is suffering. Thank you for sharing your life so that people may better understand this affliction. Thank you for your positivity.
@@anooseholay Amen
Honestly, your mum is one of the kindest people I’ve ever seen. You don’t deserve to go through this alone, and your mum thinks the same, I’m sure. Get well soon, Evie xx🌸💕
I teared up when you're mom kissed your nose. I do that with my son while he's nursing and it just threw it into a stark reality for me. Its not at all the same but I've suffered from debilitating migraine for most of my life and the fear and worry on your face right before it starts....I know that feeling. It sucks. Kudos to you both. So damn strong.
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I do that too!
❤
It makes him laugh. He is 21 with grand Mal seizures for years.
This looks so horrible. It cheered me up to see teddy trying to help you. He just wanted to snuggle you until you came out of the seizure. This video reminded me of a time when I saw a man have a seizure I was only 8 and I was horrified. Now that I’ve seen your videos I know what to do and I can help others. Sending love. ❤️
Hearing that this has become a daily occurrence for you helps me to understand how you haven't been feeling like yourself, as you said in your last video. For anyone here who is close to someone who has grand mal seizures then you know they often lose time and awareness for some time before, during, and after seizure activity. I hope someday soon that we can find a cure for this. We need more doctors and scientists to specialize in this medical phenomenon.
I started to cry when teddy licked your hand. It reminded me of a time i was nearly black out drunk in my apartment. I laid down on the floor and just closed my eyes. My dog began licking my hand incessantly. He began to bark and bay when i didnt respond.
Animals understand when something is wrong. They just dont know/cant help besides comfort and calling for help.
Your mum and Teddy are both so amazing!!! They know just how to take care of you and will always be there for you it's so amazing!
As a mother I can’t imagine watching my child going through what you’re dealing with. Your mom is a super hero and so are you. My heart breaks seeing you struggling like that 😢
I'm not sure who I want to hold and hug more right now you or your mum. God bless you both , her strength amazes me. Your mum truly deserves a statue of gold and diamonds.
I think I would choose Teddy! He was so sweet the way he worries about Evie! Unconditional love at its finest! ❤️ 🐾
ur family and friends r the most supportive people i’ve ever seen 😭😭
I've had 17 GM seizures and luckily have found a med that keeps them, mostly, in check. I've never actually seen someone else having one and it means so much to me to understand how this affected those around me.
I'm certain that this was terribly difficult to share this raw and vulnerable experience with the world ❤ My heart explodes with a deep appreciation, that the words thank you seem inadequate for. 😔
It was painful and beautiful, heartbreaking and fulfilling of an understanding I feel blessed to see from another perspective. I hope I don't put my foot in my mouth here but I too wanted to be as candid and open as you all have been.
Sending healing, positivity and sincere thanks- you gave me a gift, truly.
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I have 3 grand mal seizures every single month since I was 21. I take the highest dose of Keppra day and night. Nothing can take them away☹️ I feel your pain!
Which med? Im on keppra and depakote. I had a very crazy head injury and was put on these as preventative but the worst came true and i had a very serious seizure out of nowhere for like 20 minutes sitting in my car eating. Cops woke me up with narcan i had zero idea what had happened.
@@antknee9585 Topiramate, is the medication 💊.
And Holi Canoli's Batman! That is a long seizure! Glad you came around without ill effects but they Narcaned you? Really? Cause anyone having a medical emergency, while in their vehicle must be doing drugs?? Geez! I mean I guess, glad they found you but boy does that seem to speak to the state of things in our fine country. 🙄
I hope you are able to find your way to a seizure free life, or seizure limited 😉 life 💜
i want to have one super super badly, what does it feel like?
Between your mom and teddy this brought me to tears. You might have some tough conditions to deal with but your army is so strong. I can't wait until you find the answers you've been looking for. ❤
I wish I had a mom like yours sm. She literally is everything I want and need when dealing with my seizures and I’m glad you’ve got that kind of support
i suffer from dissociation and dissociative seizures, so its in a way helpful to really see what it looks like from the outside. thank you for sharing this, although we may not have the same reasonings behind these, it does still make me feel less alone :)
I don't have seizures but i suffer form ptsd and autism one has dissociation and Hypervigilance and the other has autistic meltdowns so i understand that fell when you touch with reality its never easy to deal with but having 1 or 2 good saport people that you trust can sometimes help i wish you the best ❤🙏🙏🙏❤
@@ryanrain257 thank you so much, yeah my dissociation is also caused by ptsd. i also wish you well
Hope you okie
I mean, I don’t think it’s right for you to compare a psychosomatic manifestation to a neurological condition. You’re seizures will be cured once the underlying psychological distress is resolved where as she will have to live with this condition forever.
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Your momma is just the absolute sweetest! She is so loving and helpful. I love that she loves you so much! ❤❤
Your mother is an Angel, you can hear the sadness of the helplessness in her voice. I can't imagine having to watch my child suffer these episodes and know there's nothing I could do to stop it, only be there to comfort through it. 💛💛💛
I had 3 grand mal seizures on Sunday last week, I had my boyfriend and my 2 friends to help me through it. I’ve never had a seizure like this in my life and seeing a video of someone who deals with this daily is heartbreaking. I feel like I’ve lost some of the more recent memories I’ve made, and I feel like I’m still trying to come back to myself. You and your mom are amazing and one day I hope they find a cure for this 💖
This is really helpful to me. My partner has seizures and it was only recently diagnosed. It’s really good to know how I can help and what I can do when he’s having seizures. Thank you for posting these - I can guess it’s not easy to do so. Hope you feel ok right now x
I was smiling when your mom was comforting you during your seizure. She’s so comforting and it’s makes me so happy to see her cuddling you like that. I can’t even imagine how awful this experience must be. Love my Georgia 🇬🇪
I just love seeing how kind and loving your mother is. 🥺
The most perfect example of a human being is your beautiful Mum, a tower of love that stands beside you, to support you in all that you go through. Obviously I've never met your Mum but I absolutely adore her.
I love that she keeps letting you know that she's got you through all of that.
As a person who suffers from a few different types of seizures I want to say firstly thank you for doing these educational videos they aren’t fun to video being so vulnerable and your mum is great at showing how to stay calm and lastly I hope you rest up and I won’t say recover as it’s unlikely to recover from certain neurological issues but get as well as you can get evie sending you positive vibes and energy xx
Your mum is amazing. It must be heartbreaking that this is normal for you, she is so calm and amazing. Is there any kind of mum awards we can nominate her for? Or pride of Britain?
This was both heartbreaking and heartwarming to watch. I can’t imagine watching my child seize and know there’s nothing I can do to make it stop, but seeing how your mom (and Teddy) stay so present and reassuring the whole time is beyond words.
It’s so weird to see someone else have them, I never understood how I look when I have them. Bless your heart ❤️ you’re lucky you have someone to comfort you during them
Your mom is so sweet and caring, and this type of thing not only brings awareness, but also shows the extent of a mother's love, and how much having a system of people around you who love you and care for you can make even the worst things better.
My God, Teddy's reaction is one more proof THIS IS ALL REAL!!! He knows something is happening and he wants to help you as much as he can!
I hope you feel comfortable uploading this and you are not doing it to prove something to stupid people who dared to say you are faking it, 'cause you don't have to prove NOTHING!
Thank you so much for your courage, your point of view is a precious kind of experience which is teaching every single one of us something that otherwise we wouldn't even know!!!
I really hope you're ok at the moment 😘☺️
Your mother is so supportive. And Teddy is, too. It’s amazing how he is aware that/when you are having a seizure. I wish I could help you, it makes me feel guilty because all I can do is watch. Fortunately, because of your videos, I am able to understand what having a seizure is like. Then, if I see someone having one, I can have an idea on what to do. Thank you, Evie! 💜
Im so sorry about this Evie!! You are such a strong person xxx you go through so much and yet still keep a brave face xx
As a mother and grandmother this breaks my heart to see this beautiful girl go through so much. God bless you and God bless you Momma.🙏🙏🙏🙏🙏
It’s obvious how much Teddy loves you and worries when you have a seizure. I bet he could easily be trained as a service dog and he can warn you before a seizure happens. That way you have time to get into a safe position before it starts.
As for your mother, I am so jealous! You are very fortunate to have such a caring and openly loving mother!
You also have some great friends that understand what is happening and don’t judge you for your disabilities.
It sucks that you have to live this reality on a daily basis, but you have a very great team behind you to cheer you on. I’m sure that keeps you going strong! 💪🏻
Hopefully the trolls will see that you are 💯% NOT faking!
And hopefully the news journalists will not start saying because you are posting educational seizure videos, that now their will be a rise in teenage girls posting seizure videos on TH-cam now! And of course try to blame it on you! Just ridiculous! Smh! 🙄😵💫
This made me tear up. I can’t even imagine how hard it must be to go through. Your mother seems like a wonderful person, I’m so glad you have someone so caring and supportive. I love how your dog was so concerned, dogs are amazing. Much love to you ❤️
Your so strong I hope your appointments go well and I hope you get answers soon stay strong I love you
Your mum is gorgeous. She’s so lovely, sending you all my love xx
Your mum is amazing with you. So reassuring. ❤️
The love of a mother is unlike anything in the world and you, my dear have one hell of a momma. I love how she constantly reassures you and helps you thru these tough times. I can only imagine how frustrating it must get at times having to deal with these seizures. Thank you for putting yourselves out there and educating us all. We love you! Sending you love, light and positivity
Your mum is so comforting! I'm sorry you go through this and I hope you feel better soon
Has to be 2 of the sweetest and most inspirational people on this planet.
I happened across your channel when I was dealing with my worst case of depression I've ever felt. I watched tons of your videos and I realized that even though you're dealing with extreme hardships you are still able to smile and laugh with your friends and family. It gave me inspiration to find reasons to try to laugh, enjoy life again and keep on fighting through the hard times. Thank you for all the things you do for us Trippy Hippie
your mama is a beautiful woman. seeing how softly she cares for you makes me think of how amazing my mum is too. although this was a horrible moment for you it's truly comforting to see that you always have the best of care and love on your side.
oh i love how she still interacts with you even though you can't reason, that is true support 💜
I am so lucky to have a husband that is the same as your wonderful mother. I’m also in a program for eating disorders that helps me through every seizure I have every day. The staff and the clients all check on me and make sure I’m OK and also deal with my Tourette’s like pros. I’m really grateful for all of them because I feel really loved and understood.
Your mother is doing a great job and she is super sweet, so is your doggie 🙂 Even though this seems so scary and foreign to me, you are doing a great job uploading this and showing the world what your life is like.
Your mom is the sweetest person and probably the best person to be there during this
obviously not a nice watch but so important to share!
i've said it once and i'll say it again... you're mum is definitely an angel in disguise!
thank you so much for being incredibly brave and teaching us about seizures! i really really hope you get the treatment and attention you deserve from this new PANS doctor..
looking forward to seeing the bubbly evie meg again! i'll send over as much strength and love as i can to you and your family!!
stay safe :)
Bless your poor mum. She's so kind and loving and is clearly hurting when you do
Thank you. I suffer from a couple neurological conditions causing mainly seizures and tics. I am glad your ok now and that you are taking the time to educate people on this. So important.
your mum is such a beautiful loving lady you can see how much she loves and cares for you, i also love how your dog knows and wants to help. animals really are the best.
Evie I know these videos aren't easy for you to post. I am very proud of you having the courage to do it. Also you have the best mum!! It's so comforting the way she holds you and says "I've got you". Also Teddy doing his best to comfort you.
this young woman is extremely fortunate for have a loving parent - thank you thank you
You and your family are amazing. My best friend in high-school (I am 34 now) was epileptic. I was the one to rush to her when she had a grand mal seizure at cheer practice. Everyone called me he guardian angel. Your mom is yours, and watching her care for you warms my heart. It also reminds me, and makes me think g of my friend and all the good time we had, even the seizures. She fell in the shower and passed away over 10 years ago. Watching you helps me remember her, and I feel connected to you in a way. 💜 I hope you are doing well and things mellow out for you, even just for a moment. You deserve all the love and happiness. Sending all the happy and loving vibes all the way over to ya! 🖤
Nothing better than having mum and a dog to help you through something so traumatic ❤
Hope you are okay ? Such a loving home ❤
As a Mom of a little girl... this is just so hard to imagine. I feel like I'd always be thinking "Who will care for you when I go?" Bless you both ❤️
Well it’s clear to see that beautiful souls run in your family. You and your mom are so sweet. Your pup was even trying to help. I want to hug the lot of you!
Your mom is such a sweet and supportive person and your so strong! sending you all my love and support !
Love you, girl. Know you are not alone. We, those with seizures of every variety, encourage you and pray for you. It's a hard journey.
God I wish I had ur mom she’s absolutely amazing u know what I’m giving her the best moms award 🥇 and I love how teddy was worried it was absolutely heart warming and I hope ur doing better and will continue to get better 💙💙💙💙
Your mom's grace is like that of an angel. You are both beautiful souls and I'll pray for you.
Seeing the way you talk as your seizures come on at the start of the video hurts because, from the little I can remember, this is how I am before bigger seizures. My speech starts to get simple and confused, and generally mirrors yours. Sending love Evie, from a fellow seizure-haver
I could never understand how y’all make it through stuff like this I hope your ok 🥺❤️
With her mom's love and reassurances, plus dear sweet Teddy. He comforts Evie, wants to be sure she's okay. Such a support system is vital and I'm glad Evie has such a wonderful family. I've learned so much about Tourette's from this amazing, beautiful, artistic young woman. Sending much love from my ❤️ to theirs 💗💗💗💗
I spent years in the military, you are one of the bravest people I have ever seen. Lottsa love your way!
You are an inspiration to so many people around the world! I recently read your book and look up to you for all that you do for the Tourette’s and FND community. Love from Australia 🇦🇺 ❤️
I didn’t expect to cry at this your mum is so kind and gentle I’m so sorry that you have to live like this
it is SO brave of you to share this with us Evie, we're so proud of you for making it this far. Also, your mom is an absolute hero and in no disguise.
You and your mom are the strongerst people I have ever got to see exist. Thank you so much. Words can’t make up what I mean. Two angels we need more of in this world🙏🏻❤️
Your family and teddy are so caring in such awful situations. I hope things are starting to go back to normal and you are recovering xxx
your mum and how your doggo wanted to help made me tear up. So much love and support is just lovely to see. Hugs from a fellow spoonie
you should have Teddy trained and registered as a service dog. it sounded like he was there just before your episode started and looked like he was actually trying to administer DPT (Deep Presure Therapy). the licking is also a task I see service animals preforming quite a bit as well. i think its supposed to trick your brain into coming back to reality, like grounding or something like that. just from what I have seen in this video and with what I know about service dogs, Teddy seems like he would be an amazing service animal for you. love your videos and how you are educating people one what these disabilities are actually like.
You are surrounded by so much love. Your pets, brothers, dad, and of course your Mom, the champion.
I was hoping today would be a better day for you, it was nice seeing you on the live. Hope you feel a little better x
As someone who had epilepsy as a kid and thankfully met means to get rid of it, I'm so glad to see people not only educating others about its many different forms but also showing the variety that seizures can have. For a long time the media has portrayed the typical person with epilepsy to squeeze, spasm and essentially have what appears like a possession; Meanwhile in truth there are many people (in the past even myself) who each day suffer absent, myoclonic or just quieter types of seizures that don't cause immediate harm or alarm. Despite this, I'm very glad to see someone educating and representing them properly. Sending love, to you and your amazing mom, from Canada
Love you so much Evie,
You're going through such a hard time and still take the time to educate others. You truly are amazing.
I miss you so much xx
I love the relationship you have with your mum it's amazing. It's awful you have to go through this in life. Thank-you for educating people on seizure etc x
I’m so sorry evie. You’re seizures are getting so bad. 🥺🥺
Your mum is just so lovely and you are so lucky to have that bond with her! She has such a familiar vibe about her, loving, caring and compassionate. Sending big hugs and kisses to you both xxxx
You and your mum and teddy and everyone in your family is so so so strong. You are all amazing people, sending my love and hugs from Australia Xx 💕💕
I totally teared up here, the way your mom gives you little kisses or boops your nose is exactly what I do to my 6-month old son and it just gave me all the feels, you are both so strong, much love ❤️
your mum is so incredible (as is teddy!!) thank you for posting these videos evie and spreading so much awareness, lots of love
How truly beautiful to have such a strong relationship with your mom. That is the epitome of tenderness and love that we all need in our moments, no matter what they be.
Just watched this on Instagram...My heart goes out to you and your Mum. I can't imagine how difficult this must be to live with. Love you both so much!! x
Your mum so loves you so much... I can't imagine how hard these seizures are for you and your mum to endure. A prayer for you if I may... I surround and protect you and your family with the Love and the Grace of God. God bless you and your family.
I'm not a prayer but I'm definitely sending some positive energy your way! I hope you get to feeling better Evie!
I feel so bad for Evie, she don’t deserve this, on another note her dog is so cute how he was kissing her hand bless the little thing and Evie’s mum seems like the sweetest woman ever!!
You are unbelievably Brave I could never be as Strong as you 🥺🥺🥺
And your mom is an angel 🤟🏼
Your Mom is very special. Her incredible love, reassurance and tender touch bring tears to my eyes. Blessings to you and your family.
Your mom is the best!❤️
This made me very emotional I mean your mum is a total inspiration but to see you like that broke me.
Sending you and your mum hugs xx, I cant imagine how hard this must be for you both, just know that you are brave and kind. Vids like this help me (and others I'm sure ) to understand your condition much better so thanks for sharing xx
Seeing the way your mom reacted and how she kissed you made me bawl my eyes out. I felt horrible knowing how hard it must be for you but seeing your mom there as your rock... It's so wonderful you have someone who loves you so very much, who would do anything for you. And Teddy! What a good boy he is.
It's very brave of you to post this
Seeing the love your mom has for you and the way she comforted you during the seizure was so touching. Your mom is a wonderful lady. My prayers for your health.
I FEEL SO BAD FOR YOU!!! STAY STRONG IT WILL BE OK!!
Teddy jumping on your lap melted my heart bless him 🥺 also your mum is so brilliant, she’s so calm and knows exactly what to do, as awful as it is watching you have such bad seizures it’s lovely seeing how you mum cares for you ❤️
I appreciate all the awareness that you spread, it's incredible and your bravery to show some the hardest parts of your health is truly inspiring.
As someone who is also having a lot of issues with daily seizures and muscle weakness (due to my FND) and other health issues, seeing you be so open about your experiences makes me feel safer and less alone.
Thanks you so much, I hope you know just how amazing you are. Sending love and hugs from Scotland!
(Also, where did you get your cardigan, or is it hand-made? It looks so cosy!)
It’s so amazing to see when pets know that something is wrong, and they try there best to help. I hope you’re okay ❤️