@@box_giver1432 i am 26 years old .yeah,in my country, many people like us get this shit at the age of 17or 18.but now i dont know how to do. i am suffering everyday. i am going to have Charcoal , maybe it works.
You said everything I'm going through or thinking but can't express it to anyone because no one understand the struggle of feeling starve but having to say no to so much delicious food. No one really understand, only the people with our own condition. Please don't stop making this videos, it's what we BO BB sufferers feel but cannot express it
Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on TH-cam, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. 💟💟💟💟💟💟💟💟
I always give myself a cheat day, every once in a while, not to binge just to get something I’ve been craving. And forget the consequences, we’re still human and we should still be able to enjoy life…praying is essential to this condition. God bless.
Yeah I felt like I was in my own version of hell when I was in highschool and my first job I'm 19 now and have no idea what to do because I'm terrified of going into public for long periods of time at this point.
@@waaahhhl2614 sorry I'm just seeing this, and I really wish I could give you advice but it's been hard for me as well, only thing that helps is listening to music to drown out the world and focus on your daily assignments while around people.
I hate how there's always this battle between me starving/ being super restrictive so that I'll be more tolerable around other people and me living a care-free life eating what I want and everyone being miserable around me. Every time I take a vacation from work, I want to actually travel somewhere and do something that I don't usually have time to do but it's usually spent binge eating. The guilt afterwards!
Man, your ass is steady taking vacations. From jumping out of planes to zipping down lines. But yeah, unfortunately I feel the same way you do. By the way, why did you & john drop off the whatsapp group?
@Body Odor Sufferers 😂 I'm miserable on those vacations tho because I don't eat. I only had WhatsApp on my tablet. The app required an update that my tablet didn't have space for so I couldn't get back onto the app without updating it. I thought John was still in the group.
Aww I so hear you and empathise. I literally was meant to go on holiday next month but I can’t bare it this time as I’ll need to freshen up a lot, I’d need to constantly go to the toilet to make sure that I put perfume on or wash my hands, use wipes or something. I’ll probably be anxious on the plane even walking past people as I sometimes think my butt smells. Sometimes the things I do work and sometimes they just don’t work. It’s like I smell really good then suddenly bad then great then bad, then nice then weird, then lovely then like poo! Since the pandemic it got worse. Before the pandemic I’ve never smelled like poo before. Tofu was what I ate that made me smell of poo and then it began up and down from then onwards. I sometimes fast and my smell returns to normal but then the weird odour seems to come back.
Food craving is like severe punishment! I feel like we are being tormented for eating basic necessity and facing the aftermath of social isolation and worrying abt neighbors complaining! But it could be worse too! Hopefully we all get cured permanently! Cause this shit comes back after a while even if you beat it! God have mercy!
I feel the same way. I would definitely recommend having a cheat meal every week just for sanity reasons. A single meal shoudlnt' effect your weight plus it means that when you do see food that you want to eat at least you can mentally try to schedule a time to eat it rather than getting angry that you can't eat it.
I don't have this condition or anything but I subscribed.Really enjoyed your sympathy,bluntness and charisma,and you may disagree but I don't found u to be a pathetic man,you're a strong man,who can expose yur suffering,your struggle and your frustrations and not giving up on life and hopefully trying to find a cure or a treatment,Anyways,nice content,nice channel and sorry for my trashy english,I'm brazilian.
Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on TH-cam, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. 💟💟💟💟💟💟💟
I know how easy it is to lose heart, but I hope one person reads this and finds the courage to keep going. Tell yourself every single day "I smell better today than I did yesterday". What you say and think about yourself does affect you, mentaly and physicly. Drink kombucha (not from the store but brewed yourself over enough time). I brew mine for about 3 weeks. I feel it helps. Get out. Work out. Listen to motivational speeches. Don't let go of opportunities in relation to work or new friends. Be kind to yourself. It's going to be alright♥️ Sorry for the bad english!
@@kiarakately7331 I use black organcic tea. I just follow the regular recipe that you can find online. I use more sugar because I brew it for longer, sometimes one month. Good luck!
@@amnbvcxz8650yup impossible to be around people.. even family gives me dirty looks & talks about me. How can you continue to put yourself out there? I’m really struggling
I wish we could make a TMAU/ smell disorder meet up so people across the country could meet up and smell one another. its as some of us smell and cant smell ourselves and others dont
Ahah, great idea, so we can send smell by mail in little bottles 😂 As really, not all of us live in USA, at least, I'm from Kazakhstan, and I've heard about One, ONE!!! man in my city, who have a bad smells. Also, level of medicine in my city is very low, and doctors cant find anything, some of them says like "are you want a rose smell from body!?" F*ck yeah, I want to smell like my morning soap.
@@Don_Keehot This is systemic muscular dystrophy. The muscles of the arms, legs, intestines, eyes, kidneys are flabby, the muscles are pumped up with fat. Therefore, there are problems with digestion and with the eyes, with the kidneys, with the lungs at the same time. Carbon dioxide is therefore not excreted by the kidneys or lungs, but exits through the anus, mixing with the smell of feces. Because there are defective cilia in cells, beta-laminin (Lamb2 gene), plus respiratory failure in type 4 mitochondria. These genes alone would not cause odor, namely, the combination of several defective genes causes metabolic disorders and stink.
The only reason i am alive with this condition is hoping to get Paradise in the after life (suicider goes to hell). I don't how people live with this condition without being a believer feel sorry for them😢
@@dannyleoz4085 The reason why we are created is to test wither we belong hell or paradise this condition will erase our sins and if you don't believe there is after life it will be worse than here
I'm about to give up on life, I just found your channel and gave me little hope, I'm almot 45 and start noticed the bad smell since 18, I tried almos anything, I live in NYC Latino man and I cant believe theres nothing and no one in NYC that can give me a test or a diagnosis, do you think our body needs to release that bad smell to keep or system away for something worse, and thats why it has to go out our pores, and that's why there's no cure?
@@3E30P I started to try Glutamine and it has helped to improve myself after just one time of taking it. I’m on day two I think. Maybe try this. Also try positive affirmations. I honestly find that when I stopped things like daily positive affirmations morning and night it became easier for me to start having a lack of self acceptance and lots pf self doubt which I think contributes to this weird smell. I think that self-love can be very healing.
I literally be appalled when people invite me places or try to talk to me.. I’m just sitting there like 😳 you okay? 9/10 I over talk @ work or w/ strangers to avoid even acknowledging the smell and sometimes people will actually be nice. I barely had enough mental capacity for that conversation 😂🥲
You are incredibly valuable regardless of how you smell. You have other amazing qualities that people like and that’s why they’d love to be around you. Remember that you are not your smell. And guess what - some of the most famous celebrities have the same problem. They also have some weird odour issues and yet they are fabulous on stage and living like Queen and Kings. So believe that you are loved, accepted, good enough and blessed. Speak these good things over your life and love yourself into healing. 😇
I think I've improved my smell a little by drinking kefir daily. It makes my stomach feel better, less acidic and also reduces morning breath and armpit smell. I do think it's made the smell from my body less poo-like and more fishy though. Has anyone experienced this? I don't get many reactions but maybe this is because I'm in the UK and people are more polite here. Has anyone else noticed that kefir helps?
Wow that’s so good. I’ll give it a try. Yogurt seems to help me a lot. I also think smoothies are really good for me too. I also find peppermint tea, green tea, camomile tea and lemon grass tea, mint leaves, parsley, oregano and pineapple to work wonders for my smell.
@@nicwilson5254 I’m in the UK too and yes most people are polite, I often mask my smell so most people don’t really notice it, as I freshen up a lot, but lately my freshening up and multiple showers haven’t been working. I tried Kefir but it just made me have an eggy smell, so disappointing as I was so excited to see this change. But I bought Glutamine and I’m already starting to notice that it is improving my smell when I take it. I started to take it yesterday. Glad that Kefir is working for you - maybe try Glutamine also.
@Livinglifehopeful24 whereabouts are you? I'm in London. I feel like British people are so polite I can't read them well enough to know how I smell, it's frustrating! I'm not taking kefir anymore because it made me smell of garbage from a distance, but it did make me feel better. I've been taking l glutamine for a while, I love it, it definitely helps
Yes, cheat day is necessary. Maybe a turkey burger with all the trimmings and no bread. Binge I think would come with much heavier feels afterwards. But you know what I have given up coffee two different times, once a year another nine months. It only lessened the odor some. So guess what I drink a cup daily, no milk or cane sugar. I relate to everything you said. I starve myself for events just to be there. But at the sametime I have given up red meat, dairy and eggs, etc....smell still here. I'm a long hauler like yourself, and yes, I am not interested in being perfect because the results are not there.
Hello, You're not a pathetic person! And, I often wonder "whats the point?too.Then I eat whatever and feel bad later. I stink regardless of what kind of food that I eat.
My smell is so bad. Sometimes, my neighbors complain about a really bad smell in the hallway. I shower twice a day. Also, I work from home. But, I still get outside everyday. I feel more comfortable with outside activities.
I've had people make reactions to me when I've eaten nothing then when I eat the things that so calledly cause this no reaction... It's very strange there's disorders that cause these odors that have not been identified yet other then tmau
@@mysteriesuntold3393 hi i would like to know what should i avoid eating and what is fine to eat Also is spicy foods,chocolate,tuna,chips,soft drinks good to eat?? Thanks alot Sorry for bad grammar
@@Awneat hi, so it depends but usually stay away from seafood broccoli cauliflower like cruciferous vegetable sometimes soda wheat bread ,corn , beef and many other things but those are the usual ones. But you have to use process of elimination and try what works for you something may make someone else smell bad and not you. Also consult with a doctor first. Even though they may be of no help. Try acidic lotions and soaps and drink lots of water . The main thing is to try and find a supplement that can stop the odor internally zinc, alfalfa, chlorophyll
Probiotics helped me to smell less and I avoided meat and dairies.. I cook my food and get creative so that I won't feel deprived.. baking soda is always present in bath time.. it's hard but I need to face reality... Prayers help a lot.
@@mysteriesuntold3393 I’m sick of this shit. No more social life and food. Don’t give me that! This is dehumanizing! When you get to see another side of people commenting on you as if you don’t have any training, it kills your spirit. How would you like it if no matter how much you clean, someone is going to have a reaction to you? YOU CANT EVEN SMELL YOURSELF! It really makes a person see people as mean, hurtful, and rude. It definitely makes you consider if it’s even worth it to do the whole alive thing.
@@unmaskedparkerpeter1680 I know it all too well I've had this happen to me 100s maybe thousands of times in very embarrassing ways my family jobs everything, but you have to keep going, try different things to see if they work and mostly believe in God and believe in yourself.. Jesus already said you will be hated by all for my namesake but fear not for I have overcome this world. If you end yourself your haters win...
@@unmaskedparkerpeter1680 I don't know a person who has been disgraced more then me because of this if I was to tell you I would be typing all day... At first it's very disheartening but you will develop a thick skin you have too don't let that shit phase you..I know it's hard especially if your young but believe me it does get better every day above ground is a good day . Remember it's not what happens to you but your reaction to it..
Anyone get acid reflux with this and feel like food is just sitting in you're stomach without digesting properly? Hence the fermentation and rotting smell present??
Check your pancreas. Might be pancreas insufficiency, was diagnosed with that 2 days ago and was shocked. It is not pancreatitis itself it is when your parcreas doesn’t create enough ferments and enzymes to break down foods. I also had this rotten smell.. I hope enzymes will help me. Also get tested for MTHFR mutation (your ability to detox properly) and CFTR (thick mucus, mucoviscidose)
@@krystsinabohan4696 Thank you. I'm taking digestive enzymes atm. It's an awful thing to have and there's little to no answers out there that seem to work or are effective and actually treat the problem thoroughly
I honestly noticed that my smell got worse during the pandemic after eating Tofu once. I went from smelling like beauty to smelling like poop overnight. I thought it was just a one off thing and would leave my system the day after but it didn’t. I had to go into prayers and fasting too and most of it went but it’s like it came back and it’s on and off. I can have two good days of smelling good but then I can eat the wrong thing and smell of poop again. I freshen up several times a day and always wear nice perfumes and get compliments on my perfumes and smell sometimes but it wears off or I eat the wrong thing and then I smell bad again. I sometimes wonder if this is a curse. The worst thing is I think I have IBS so it’s causing me gassiness when I eat and that’s actually most of the problem. The gas goes through my clothes and I find it hard to get the smell off. So then I end up wearing jeans all the time. I used to wear nice dresses and shorts etc but now I am not comfortable to wear skirts or dresses much until I clear this up. But it has improved.
Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on TH-cam, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. 💟💟💟💟💟💟
The smell is associated with dysplasia of the connective tissue of the intestine. Mutations in the collagen and laminin genes have been found. Therefore, barium enema shows dolichosigma and transversoptosis of the gastrointestinal tract. According to the biopsy, the intestinal villi are scalloped due to the imperfection of the connective and muscular tissue of the intestine. Read about connective tissue dysplasia, where you have problems with vision, intestines, lungs, platelets. Mutations in the genes of collagen, laminins, elastin can lead to platelet defects and hemoglobinopathies. Точка.
Diabetics can't eat as much as they want either so plenty of people have to cope with this. Soda and dairy are sort of a weakness for me, that and being broke mostly because of my problems and family, anyway the bible says a little something about that (you will have enemies in your own house) and it doesn't get any truer than that! You need extremely good cookware to cook, I bought a meat cleaver to (chop) through steak so I've been making steak sandwiches with steak buns and home fries in a deep fryer. I don't think I could handle the grease so I strain everything and I use the lowest fat oil. Beans, corn, peas are high in fiber so they work for me (without butter) maybe salt instead and beans have salfer so I just skip them...
Hey I haven’t watched your videos in such a long time but l was wondering if your dieting has worked out in getting rid of a majority of the odor? I still haven’t been able to give up foods but definitely need to start a strict diet. I’m definitely tired if not being able to go anywhere
Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on TH-cam, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. 💟💟💟💟💟💟💟💟
Bos plz read my comment,i don’t know the name of my problem maybe there isn’t any name for it,i just know i smell like shit and it’s started5. Years ago ,when I’m nerves or in public reactions are a lot i think smell leaking from my pore and i saw some products like discreetz and devrom pills on amazon but i can’t order them maybe they work but I’m from iran and i can’t order them😪😭😭😵💫pls make video about this products or at least talk about this maybe someone have my exact problem and could try this products,sorry for mu broken english💙
Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on TH-cam, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. 💟💟💟💟💟💟💟💟
Well it can be extremely difficult not to let people get to you. I’m going through it right now. The last couple of weeks have been really hard!!! I can’t go anywhere without hearing how bad I smell. People find it funny to humiliate me. They say it in front of me . Give me dirty looks. This includes my family. It just sucks so much.
Guys i think my smell come from my pore my butt ,i don’t know what to do,i saw this product names discreetz and devrom pills is anybody try them?i am from iran and i can’t order and try this products .plsssss someone try and tell me are they work?also i can’t smell myself
Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on TH-cam, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. 💟💟💟❤❤❤
Hmm sort of hard to say. I guess I feel like I can't die until I know what has caused me these issues. I'm not necessarily looking for a cure, but a name to this condition and to truly find what are the things that worsen it. Thanks for watching
@@bodyodorsufferers3952 I know who you telling sometimes I think I can smell it because it makes you so paranoid then it's not I take another whiff and that's something else
Yo bro tofu is bad for you because of the soy I have the same thing you have you gotta cut out gluten of all kind and only lean meats white chicken and as for the fruits only raspberry blueberry blackberry strawberry and avocados , can be eaten then nothing fried
@@unmaskedparkerpeter1680 It was a long time ago. I don't know the doctors name or the office. If you don't have that information, then you're not going to remember the details. If you want a colonoscopy, then go ahead and do it.
@@ameenal5008 it’s to heal the gut for the first three months then ease your way to a better living , plus eating a lot of Dark leafy greens cooked helps the stomach lining
The shit that annoys me the most is when i eat clean all weekend then go to work and still smell like shit
Just out of curiosity, did your condition/symptoms start around the age of 16? That's when mine started.
@@box_giver1432 me too,i am Chinese
@@hugjames5699 I'm seeing a pattern where for a lot of us, this condition seems to start around that age, for women and men...
@@hugjames5699 And how are you coping with this condition my friend? I'm now 42 and have been dealing with this for about 26 years.
@@box_giver1432 i am 26 years old .yeah,in my country, many people like us get this shit at the age of 17or 18.but now i dont know how to do. i am suffering everyday. i am going to have Charcoal , maybe it works.
You said everything I'm going through or thinking but can't express it to anyone because no one understand the struggle of feeling starve but having to say no to so much delicious food. No one really understand, only the people with our own condition. Please don't stop making this videos, it's what we BO BB sufferers feel but cannot express it
Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on TH-cam, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. 💟💟💟💟💟💟💟💟
I always give myself a cheat day, every once in a while, not to binge just to get something I’ve been craving. And forget the consequences, we’re still human and we should still be able to enjoy life…praying is essential to this condition. God bless.
Exactly very true my dear keep it going!
@@mysteriesuntold3393 thank you ❤❤
I feel you, I hate this sooo much. It does feel like life is just F@**ng with you, or if I'm literally in my own personal hell right now.💔
Yeah I felt like I was in my own version of hell when I was in highschool and my first job I'm 19 now and have no idea what to do because I'm terrified of going into public for long periods of time at this point.
@@waaahhhl2614 sorry I'm just seeing this, and I really wish I could give you advice but it's been hard for me as well, only thing that helps is listening to music to drown out the world and focus on your daily assignments while around people.
It just gets lonely
I hate how there's always this battle between me starving/ being super restrictive so that I'll be more tolerable around other people and me living a care-free life eating what I want and everyone being miserable around me.
Every time I take a vacation from work, I want to actually travel somewhere and do something that I don't usually have time to do but it's usually spent binge eating. The guilt afterwards!
Man, your ass is steady taking vacations. From jumping out of planes to zipping down lines. But yeah, unfortunately I feel the same way you do. By the way, why did you & john drop off the whatsapp group?
@Body Odor Sufferers 😂 I'm miserable on those vacations tho because I don't eat. I only had WhatsApp on my tablet. The app required an update that my tablet didn't have space for so I couldn't get back onto the app without updating it. I thought John was still in the group.
There’s a what’s app group for sufferers? Can I join the conversation? 😩 Ts is depressing
Aww I so hear you and empathise. I literally was meant to go on holiday next month but I can’t bare it this time as I’ll need to freshen up a lot, I’d need to constantly go to the toilet to make sure that I put perfume on or wash my hands, use wipes or something. I’ll probably be anxious on the plane even walking past people as I sometimes think my butt smells. Sometimes the things I do work and sometimes they just don’t work. It’s like I smell really good then suddenly bad then great then bad, then nice then weird, then lovely then like poo! Since the pandemic it got worse. Before the pandemic I’ve never smelled like poo before. Tofu was what I ate that made me smell of poo and then it began up and down from then onwards. I sometimes fast and my smell returns to normal but then the weird odour seems to come back.
I love how honest your are about your life journey.
Honestly !! I’m fasting right now and I’m so tempted. It’s frustrating not being able to enjoy myself or try new things.
You should start a podcast tbh. You got humor, nice to listen to, and i feel like you would never run out of things to talk about
I agree with you
True
Диспластики они такие, только быстро устают и много спят😊
@@andrejandrej9901 откуда ты бро?
@@jacobs3848 раша, бро😁
Food craving is like severe punishment! I feel like we are being tormented for eating basic necessity and facing the aftermath of social isolation and worrying abt neighbors complaining! But it could be worse too! Hopefully we all get cured permanently! Cause this shit comes back after a while even if you beat it! God have mercy!
Yeah there's always someone living a worse life than you are. Thanks for watching
I feel the same way. I would definitely recommend having a cheat meal every week just for sanity reasons. A single meal shoudlnt' effect your weight plus it means that when you do see food that you want to eat at least you can mentally try to schedule a time to eat it rather than getting angry that you can't eat it.
I don't have this condition or anything but I subscribed.Really enjoyed your sympathy,bluntness and charisma,and you may disagree but I don't found u to be a pathetic man,you're a strong man,who can expose yur suffering,your struggle and your frustrations and not giving up on life and hopefully trying to find a cure or a treatment,Anyways,nice content,nice channel and sorry for my trashy english,I'm brazilian.
Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on TH-cam, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. 💟💟💟💟💟💟💟
I know how easy it is to lose heart, but I hope one person reads this and finds the courage to keep going. Tell yourself every single day "I smell better today than I did yesterday". What you say and think about yourself does affect you, mentaly and physicly. Drink kombucha (not from the store but brewed yourself over enough time). I brew mine for about 3 weeks. I feel it helps. Get out. Work out. Listen to motivational speeches. Don't let go of opportunities in relation to work or new friends. Be kind to yourself. It's going to be alright♥️ Sorry for the bad english!
Hi Elvira might you share the kombucha recipe with us?
@@kiarakately7331 I use black organcic tea. I just follow the regular recipe that you can find online. I use more sugar because I brew it for longer, sometimes one month. Good luck!
I had tried so much to have a normal social life but it’s impossible.
@@amnbvcxz8650yup impossible to be around people.. even family gives me dirty looks & talks about me. How can you continue to put yourself out there? I’m really struggling
I wish we could make a TMAU/ smell disorder meet up so people across the country could meet up and smell one another. its as some of us smell and cant smell ourselves and others dont
Так и есть-вы все воняете какашками
Meetups have been happening, apparently there is a meetup that is going to happen in orlando, fl
Ahah, great idea, so we can send smell by mail in little bottles 😂 As really, not all of us live in USA, at least, I'm from Kazakhstan, and I've heard about One, ONE!!! man in my city, who have a bad smells. Also, level of medicine in my city is very low, and doctors cant find anything, some of them says like "are you want a rose smell from body!?" F*ck yeah, I want to smell like my morning soap.
Hmmm
@@Don_Keehot This is systemic muscular dystrophy. The muscles of the arms, legs, intestines, eyes, kidneys are flabby, the muscles are pumped up with fat. Therefore, there are problems with digestion and with the eyes, with the kidneys, with the lungs at the same time. Carbon dioxide is therefore not excreted by the kidneys or lungs, but exits through the anus, mixing with the smell of feces. Because there are defective cilia in cells, beta-laminin (Lamb2 gene), plus respiratory failure in type 4 mitochondria. These genes alone would not cause odor, namely, the combination of several defective genes causes metabolic disorders and stink.
The only reason i am alive with this condition is hoping to get Paradise in the after life (suicider goes to hell). I don't how people live with this condition without being a believer feel sorry for them😢
The reason I have not end the game is because I have not defeat the final boss on very difficult.
I don't know how anyone can still be a believer having this condition
@@dannyleoz4085 The reason why we are created is to test wither we belong hell or paradise this condition will erase our sins and if you don't believe there is after life it will be worse than here
@@melata-g3z this condition is already hell but I'm happy your faith at least helps you cope with this disease I try to cope with it in other ways
This affliction will not erase your sins
Bro I would definitely hang out with you once we figure this out..your energy is entertaining
I appreciate that
Definitely, you have great energy bro. This condition is draining and most wouldn’t even be able to exert this type of strength
I'm about to give up on life, I just found your channel and gave me little hope, I'm almot 45 and start noticed the bad smell since 18, I tried almos anything, I live in NYC Latino man and I cant believe theres nothing and no one in NYC that can give me a test or a diagnosis, do you think our body needs to release that bad smell to keep or system away for something worse, and thats why it has to go out our pores, and that's why there's no cure?
@@3E30P I started to try Glutamine and it has helped to improve myself after just one time of taking it. I’m on day two I think. Maybe try this. Also try positive affirmations. I honestly find that when I stopped things like daily positive affirmations morning and night it became easier for me to start having a lack of self acceptance and lots pf self doubt which I think contributes to this weird smell. I think that self-love can be very healing.
I literally be appalled when people invite me places or try to talk to me.. I’m just sitting there like 😳 you okay? 9/10 I over talk @ work or w/ strangers to avoid even acknowledging the smell and sometimes people will actually be nice. I barely had enough mental capacity for that conversation 😂🥲
You are incredibly valuable regardless of how you smell. You have other amazing qualities that people like and that’s why they’d love to be around you. Remember that you are not your smell. And guess what - some of the most famous celebrities have the same problem. They also have some weird odour issues and yet they are fabulous on stage and living like Queen and Kings. So believe that you are loved, accepted, good enough and blessed. Speak these good things over your life and love yourself into healing. 😇
I think I've improved my smell a little by drinking kefir daily. It makes my stomach feel better, less acidic and also reduces morning breath and armpit smell. I do think it's made the smell from my body less poo-like and more fishy though. Has anyone experienced this? I don't get many reactions but maybe this is because I'm in the UK and people are more polite here.
Has anyone else noticed that kefir helps?
Kefir is dairy, and dairy worsens it, doesn’t it?
@@amnbvcxz8650 I've stopped drinking kefir now. It's fermented which isn't good for my smell and it made me smell like garbage
Wow that’s so good. I’ll give it a try. Yogurt seems to help me a lot. I also think smoothies are really good for me too. I also find peppermint tea, green tea, camomile tea and lemon grass tea, mint leaves, parsley, oregano and pineapple to work wonders for my smell.
@@nicwilson5254 I’m in the UK too and yes most people are polite, I often mask my smell so most people don’t really notice it, as I freshen up a lot, but lately my freshening up and multiple showers haven’t been working. I tried Kefir but it just made me have an eggy smell, so disappointing as I was so excited to see this change. But I bought Glutamine and I’m already starting to notice that it is improving my smell when I take it. I started to take it yesterday. Glad that Kefir is working for you - maybe try Glutamine also.
@Livinglifehopeful24 whereabouts are you? I'm in London. I feel like British people are so polite I can't read them well enough to know how I smell, it's frustrating!
I'm not taking kefir anymore because it made me smell of garbage from a distance, but it did make me feel better. I've been taking l glutamine for a while, I love it, it definitely helps
Yes, cheat day is necessary. Maybe a turkey burger with all the trimmings and no bread. Binge I think would come with much heavier feels afterwards. But you know what I have given up coffee two different times, once a year another nine months. It only lessened the odor some. So guess what I drink a cup daily, no milk or cane sugar. I relate to everything you said. I starve myself for events just to be there. But at the sametime I have given up red meat, dairy and eggs, etc....smell still here. I'm a long hauler like yourself, and yes, I am not interested in being perfect because the results are not there.
Hello,
You're not a pathetic person! And, I often wonder "whats the point?too.Then I eat whatever and feel bad later. I stink regardless of what kind of food that I eat.
So you might as well eat what you want all while telling the haters to f off
@@mysteriesuntold3393 This.
Been getting reactions from people next to me while I’m alone alone in my car. With windows rolled up.
you dont smell, just demons playing tricks on you
My smell is so bad.
Sometimes, my neighbors complain about a really bad smell in the hallway. I shower twice a day. Also, I work from home. But, I still get outside everyday. I feel more comfortable with outside activities.
I've had people make reactions to me when I've eaten nothing then when I eat the things that so calledly cause this no reaction... It's very strange there's disorders that cause these odors that have not been identified yet other then tmau
@@mysteriesuntold3393 same here! It’s so strange!
@@mysteriesuntold3393 hi i would like to know what should i avoid eating and what is fine to eat
Also is spicy foods,chocolate,tuna,chips,soft drinks
good to eat??
Thanks alot
Sorry for bad grammar
@@Awneat hi, so it depends but usually stay away from seafood broccoli cauliflower like cruciferous vegetable sometimes soda wheat bread ,corn , beef and many other things but those are the usual ones. But you have to use process of elimination and try what works for you something may make someone else smell bad and not you. Also consult with a doctor first. Even though they may be of no help. Try acidic lotions and soaps and drink lots of water . The main thing is to try and find a supplement that can stop the odor internally zinc, alfalfa, chlorophyll
Probiotics helped me to smell less and I avoided meat and dairies.. I cook my food and get creative so that I won't feel deprived.. baking soda is always present in bath time.. it's hard but I need to face reality... Prayers help a lot.
i'm bout ready to unalive behind this shit
Please don't ❤
No don't do it don't give up
@@mysteriesuntold3393 I’m sick of this shit. No more social life and food. Don’t give me that! This is dehumanizing! When you get to see another side of people commenting on you as if you don’t have any training, it kills your spirit. How would you like it if no matter how much you clean, someone is going to have a reaction to you? YOU CANT EVEN SMELL YOURSELF! It really makes a person see people as mean, hurtful, and rude. It definitely makes you consider if it’s even worth it to do the whole alive thing.
@@unmaskedparkerpeter1680 I know it all too well I've had this happen to me 100s maybe thousands of times in very embarrassing ways my family jobs everything, but you have to keep going, try different things to see if they work and mostly believe in God and believe in yourself.. Jesus already said you will be hated by all for my namesake but fear not for I have overcome this world. If you end yourself your haters win...
@@unmaskedparkerpeter1680 I don't know a person who has been disgraced more then me because of this if I was to tell you I would be typing all day... At first it's very disheartening but you will develop a thick skin you have too don't let that shit phase you..I know it's hard especially if your young but believe me it does get better every day above ground is a good day . Remember it's not what happens to you but your reaction to it..
Anyone get acid reflux with this and feel like food is just sitting in you're stomach without digesting properly? Hence the fermentation and rotting smell present??
Check your pancreas. Might be pancreas insufficiency, was diagnosed with that 2 days ago and was shocked. It is not pancreatitis itself it is when your parcreas doesn’t create enough ferments and enzymes to break down foods.
I also had this rotten smell.. I hope enzymes will help me. Also get tested for MTHFR mutation (your ability to detox properly) and CFTR (thick mucus, mucoviscidose)
@@krystsinabohan4696 Thank you. I'm taking digestive enzymes atm. It's an awful thing to have and there's little to no answers out there that seem to work or are effective and actually treat the problem thoroughly
Have you tried Lume…I mean idk if it will work for this condition but it’s worth a try
Yes, I have and it doesn't work for me
I honestly noticed that my smell got worse during the pandemic after eating Tofu once. I went from smelling like beauty to smelling like poop overnight. I thought it was just a one off thing and would leave my system the day after but it didn’t. I had to go into prayers and fasting too and most of it went but it’s like it came back and it’s on and off. I can have two good days of smelling good but then I can eat the wrong thing and smell of poop again. I freshen up several times a day and always wear nice perfumes and get compliments on my perfumes and smell sometimes but it wears off or I eat the wrong thing and then I smell bad again. I sometimes wonder if this is a curse. The worst thing is I think I have IBS so it’s causing me gassiness when I eat and that’s actually most of the problem. The gas goes through my clothes and I find it hard to get the smell off. So then I end up wearing jeans all the time. I used to wear nice dresses and shorts etc but now I am not comfortable to wear skirts or dresses much until I clear this up. But it has improved.
Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on TH-cam, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. 💟💟💟💟💟💟
No dairy of any kind
The smell is associated with dysplasia of the connective tissue of the intestine. Mutations in the collagen and laminin genes have been found. Therefore, barium enema shows dolichosigma and transversoptosis of the gastrointestinal tract. According to the biopsy, the intestinal villi are scalloped due to the imperfection of the connective and muscular tissue of the intestine. Read about connective tissue dysplasia, where you have problems with vision, intestines, lungs, platelets. Mutations in the genes of collagen, laminins, elastin can lead to platelet defects and hemoglobinopathies.
Точка.
Do you have a source?
Also, there’re different causes
Diabetics can't eat as much as they want either so plenty of people have to cope with this. Soda and dairy are sort of a weakness for me, that and being broke mostly because of my problems and family, anyway the bible says a little something about that (you will have enemies in your own house) and it doesn't get any truer than that!
You need extremely good cookware to cook, I bought a meat cleaver to (chop) through steak so I've been making steak sandwiches with steak buns and home fries in a deep fryer. I don't think I could handle the grease so I strain everything and I use the lowest fat oil.
Beans, corn, peas are high in fiber so they work for me (without butter) maybe salt instead and beans have salfer so I just skip them...
Steak sandwiches and fries sounds like a good ass meal. But, I gave up on meat a long time ago... unless I start to binge
Try hyssop extract and increase your fermented food daily for 6-8 months
Oh and green apples are good not the red ones cause the red ones are high in sugar ,plus we have to train our bodies constantly and consistently
Hey I haven’t watched your videos in such a long time but l was wondering if your dieting has worked out in getting rid of a majority of the odor? I still haven’t been able to give up foods but definitely need to start a strict diet. I’m definitely tired if not being able to go anywhere
Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on TH-cam, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. 💟💟💟💟💟💟💟💟
Bos plz read my comment,i don’t know the name of my problem maybe there isn’t any name for it,i just know i smell like shit and it’s started5. Years ago ,when I’m nerves or in public reactions are a lot i think smell leaking from my pore and i saw some products like discreetz and devrom pills on amazon but i can’t order them maybe they work but I’m from iran and i can’t order them😪😭😭😵💫pls make video about this products or at least talk about this maybe someone have my exact problem and could try this products,sorry for mu broken english💙
Don’t worry Devrom doesn’t work ! You are not missing out!
What if you didn't care?? ...i mean i get it that's why I'm here. People react, it SUCKS. just thinking it loud. As always thanks for posting.
Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on TH-cam, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. 💟💟💟💟💟💟💟💟
Well it can be extremely difficult not to let people get to you. I’m going through it right now. The last couple of weeks have been really hard!!! I can’t go anywhere without hearing how bad I smell. People find it funny to humiliate me. They say it in front of me . Give me dirty looks. This includes my family. It just sucks so much.
😂😩💯
Coconut oil is good for us to cook and consume , we cannot eat starchy foods corn is bad carrots are bad
Have you tried inulin?
Nah, I haven't
Anybody try fasting? & praying?
Guys i think my smell come from my pore my butt ,i don’t know what to do,i saw this product names discreetz and devrom pills is anybody try them?i am from iran and i can’t order and try this products .plsssss someone try and tell me are they work?also i can’t smell myself
Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on TH-cam, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. 💟💟💟❤❤❤
Yoo I hope you see this. How do you keep motivation to keep going on, I've only been going through this for 3years and I feel so trapped right now.
Hmm sort of hard to say. I guess I feel like I can't die until I know what has caused me these issues. I'm not necessarily looking for a cure, but a name to this condition and to truly find what are the things that worsen it. Thanks for watching
@@bodyodorsufferers3952 thanks for making videos, I'm sure it's helped many people at least a little bit
Do you only get comments about a fecal smell or is there there more odors?
Also really enjoy the hangouts/interviews, keep doing them💪
I have a question can you smell it???
No, I cannot. Which is the major reason why its frustrating
@@bodyodorsufferers3952 I know who you telling sometimes I think I can smell it because it makes you so paranoid then it's not I take another whiff and that's something else
Do ur smell lessen?
Yo bro tofu is bad for you because of the soy I have the same thing you have you gotta cut out gluten of all kind and only lean meats white chicken and as for the fruits only raspberry blueberry blackberry strawberry and avocados , can be eaten then nothing fried
So eating this way changed ur odor ?
Wanna go binge eat together!?
Did you get a colonoscopy?
Колоноскопия показывает только слизистой верхний слой. А нужно смотреть ещё и внутренний-мышечные. Колоноскопия мышечный слой не видит
I feel like I have, but I'm not entirely sure
@@bodyodorsufferers3952 I feel? Pls get it done. You either did or you didn’t
@@bodyodorsufferers3952 you should have some paperwork when you’re done
@@unmaskedparkerpeter1680 It was a long time ago. I don't know the doctors name or the office. If you don't have that information, then you're not going to remember the details. If you want a colonoscopy, then go ahead and do it.
Yo bro I found out you not supposed to eat foods that make you gassy like broccoli cabbage eggs and also we can’t eat bread at all and no sugar
At this point you shouldn't eat at all with this condition..
@@ameenal5008 it’s to heal the gut for the first three months then ease your way to a better living , plus eating a lot of Dark leafy greens cooked helps the stomach lining
Can I email you? Possible fix
you can email me at bosufferers@gmail.com