How Long Can I Live with CLL? (Chronic Lymphocytic Leukemia) | The Patient Story
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- เผยแพร่เมื่อ 29 ก.ย. 2024
- How long can I live with chronic lymphocytic leukemia or CLL? Top leukemia experts say many patients can live for decades with CLL without needing treatment! In this video, they discuss the impact of age, disease biology, and genetic tests on your prognosis.
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My cousin has been living with this illness for about 20 years now.
That’s amazing!
I was diagnosed 4 years ago. My WBC is now over 100k. I'm at the gym 5x week taking cardio classes, yoga, and resistance training. Plus I walk 5-7 miles a day. I had COVID a couple of years ago and WBC dropped down to 19k from 60k at that time. I was in the ICU for five days. The doctors couldn't explain why my numbers dropped and now creeped up over the past 2 years. I feel pretty good for being 68.
"Some patients are unaware that CLL varies from person to person depending on the affected gene. There are dangerous genes where the disease progresses rapidly, and there are genetic mutations where the disease is almost inactive."
I am cll patient since last 5 years
Stage biant A
Wbc 40,000
Hemoglobin 14
Platelets 250k
No any symptoms
No medicine i used
I am cll patient since Nov 2023 watch and wait stage no meds
@@InaLouw-cv8dc is it terminal?
Is ur lymph nodes get swellon
Cll is incurable however with the new treatments it can be controled like high blood pressure.@@rissvinpanchadcharam6836
What is needed in the "modern" era of CLL treatment is a longer term comparison. I'm speaking of treatments not involving chemo. And the comparison should be against a general age matched population. For example, at age 65, compare the percentage of deaths for CLL patients with the general population. Then do this at age 70, 75, 80..... The gap between the two populations would convey some idea of the impact of CLL on mortality.
Diagnosed 12 years ago....no change. Often question if I got a correct diagnosis?
Whats ur age now?
"That's great, but I have a question. How old are you? And what are the affected genes in CLL? Which gene is affected in your CLL? Because CLL is a chronic disease with different genes for each patient. Which gene do you have?"
I was diagnosed with CLL 2 years ago. My counts at the time were a white blood cell count and absolute lymphocyte count in the low 20s. After 2 years, my counts (WBC & ALC) are both in the upper 20s. No symptoms yet. Fingers crossed.
My mother had CCL for 4 years and passed away in 1998 at Age 69
My daughters white cell was 159000 last visit. She is 41. Her Dr's said she has had it for over 20 years. I'm worried she will die soon. She is severely anemic.
My cancer marker total is 18. I can’t find anything on the internet on the total. Does anyone know
No one here is stating which subtype they have their are several!?
I'm a CLL cancer patient for almost 2 yrs in January. I m on a medication called imbruvica,at 3 pills a day. I was told l will be on this for the rest of my life. Anyone else on this?
If your on imbruvica their are trials going on that you stop the inbruvica and you get ventoclax for 6to12 months and you get to mrd negative and you can stop treatment.
Smh
My Dad past away at the age of 68 he lived with this terrible disease for 10 years, after he was given FCR chemo he did not recover.
Oh I'm sorry but your voice just hurt my ears