I was diagnosed 9/2023 during a hospital admission, on watch and wait until 9/2024 when i began taking Calquence one time a day. I have Afib, 100% of the time. I have CHF. Very short of breath upon exertion, use oxygen at night, was using in daytime for awhile, not currently. I have been battling pleural effusion. Cancer cells were found in the fluid and Calquence began in 9/2024. I now have a pleural drain in my right lung and had to have my left lung drained last week. I am not able to work due to shortness of breath, lack of energy and my job required me to be in homes of the elderly where I would be exposed to illnesses. Ive been told to avoid being around people who are sick. My right lung is drained twice a week, was three times per week until a few weeks ago. Would appreciate any input from anyone having problems similar to my situation
In 2020 I got the second shot for covid. Five after the shot my lymph nodes armpits and neck swollen all at the time. At that time I was 54. I have CLL and no ones care how I got it!
Great question or statement . Let's see if you'll get some answers . CLL is linked to Roundup. So, let's see if it's the vaccine and Roundup because it's becoming an epidemic itself .
I am patient of cll since last 3 year Stage binat A No any problem yet No any symptoms My wbc 40 thousands Lymphocytes 75 My age 57 What advice for me please
Get busy livin at aged 57 you are going to be fine and around a long time. Drugs are great at keeping this in check. Don't Google and don't hang around cll forums with people who will try and depress you. With love
I am a cll patient. I am battling with this fatal disease since 2022. Since beginning, my physician is giving me capsule ibrutinib 140 mg to use. I am quite fine. Besides ibrutinib, I used 1. Beetroot juice 2. Tomato juice. 3. Pomegranate juice. 4. Carrot juice 5. Apple juice daily in the morning. One thing I fail to understand, why I am lean and thin. Why my bodyweight is decreasing. Please give kind suggestion.
Were you obese or just overweight and now eating healthy ? Or your appetite changed to no appetite . Sounds like you feel great so baby keep doing what you're doing. But always check to see if nothing else is doing this .
I think the doctors should be documenting who if any of this new wave of CLL ARE VACCINATED OR ROUND UP EXPOSURE? THis can be good information for treatments. I'm sure it must have somenthing to do with the earlier and fast progression or the high risk percentage of CLL more aggressive types and getting to be quite the epidemic . Has EBV been a precursor to this cancer? It sure does state this in NIH?
![เจ็บที่ยังฮัก - ม่อน วรวิทย์ [ Official Mv ] จอนนี่มิวสิค](http://i.ytimg.com/vi/KALIGSRSjFs/mqdefault.jpg)
This is so uplifting & encouraging! Thank you!
Great video! Very informative and hopeful,uplifting when knowing your loved one has CLL
Thank you for watching! Please let us know if there are any helpful topics to cover.
Calqunce has worked well so far with my CLL . just night sweats and extreme fatigue. dr found my call in 2020
Just started O+V, treatment. Treatment triggered by low RBC and low hemaglobin. Plus 5 infections, together, with pneumonia for a month.
Thank You for taking the time to share all the information and encouragement for us patients.
I loved how the patient said “you will die with this, not from this!”
I have also lost 30 to 40 pounds, have a weak appetite but I do eat.
I have CLL-LLC. My lymphocytes are around 0.5 x 10^9/L. It's hard to fin any discussion about this condition.
I was diagnosed 9/2023 during a hospital admission, on watch and wait until 9/2024 when i began taking Calquence one time a day. I have Afib, 100% of the time. I have CHF. Very short of breath upon exertion, use oxygen at night, was using in daytime for awhile, not currently. I have been battling pleural effusion. Cancer cells were found in the fluid and Calquence began in 9/2024. I now have a pleural drain in my right lung and had to have my left lung drained last week. I am not able to work due to shortness of breath, lack of energy and my job required me to be in homes of the elderly where I would be exposed to illnesses. Ive been told to avoid being around people who are sick. My right lung is drained twice a week, was three times per week until a few weeks ago. Would appreciate any input from anyone having problems similar to my situation
In 2020 I got the second shot for covid. Five after the shot my lymph nodes armpits and neck swollen all at the time. At that time I was 54. I have CLL and no ones care how I got it!
Great question or statement . Let's see if you'll get some answers . CLL is linked to Roundup. So, let's see if it's the vaccine and Roundup because it's becoming an epidemic itself .
I’m a patient of CLL stage 0 for four years. No symptoms except weakness and night sweats
Kindly advise
very useful when at dx plan....thankyou for info!
WHAT ABOUT CAR T CELLS TERAPHY ----- IS IT RECOMENDED ON CLL ?
Thank you.
I wonder... If t cell exhaustion is affecting car-t responses, how about trying nivolumab (immunotheraphy) to un exhaust the t celks?
yes and i think they found ibrutinib helps the T-cells also.
I am patient of cll since last 3 year
Stage binat A
No any problem yet
No any symptoms
My wbc 40 thousands
Lymphocytes 75
My age 57
What advice for me please
Get busy livin at aged 57 you are going to be fine and around a long time. Drugs are great at keeping this in check. Don't Google and don't hang around cll forums with people who will try and depress you. With love
40 wbc is very low ,
Try Koji Berry's
Also try Fasting
Goji Berry sorry
A local TV personality battled CLL until last week when he lost his battle so people do die from CLL.
I am a cll patient. I am battling with this fatal disease since 2022. Since beginning, my physician is giving me capsule ibrutinib 140 mg to use. I am quite fine. Besides ibrutinib, I used 1. Beetroot juice 2. Tomato juice. 3. Pomegranate juice. 4. Carrot juice 5. Apple juice daily in the morning. One thing I fail to understand, why I am lean and thin. Why my bodyweight is decreasing. Please give kind suggestion.
it isn't fatal, medicine has gone a long way in battling this disease keep your hopes up
Were you obese or just overweight and now eating healthy ?
Or your appetite changed to no appetite .
Sounds like you feel great so baby keep doing what you're doing. But always check to see if nothing else is doing this .
I think the doctors should be documenting who if any of this new wave of CLL ARE VACCINATED OR ROUND UP EXPOSURE? THis can be good information for treatments. I'm sure it must have somenthing to do with the earlier and fast progression or the high risk percentage of CLL more aggressive types and getting to be quite the epidemic .
Has EBV been a precursor to this cancer? It sure does state this in NIH?
You are laying to people, it is curable.
It looks like to me a couple of people were cured with Car-T therapy.
Interesting. And how do you distinguish "cure" from "remission"? Please cite your sources on "cure" rates for CLL. Thanks!
Fenbendazole - Joe Tippens Protocol.
I was thinking about taking this but it's becoming scarse
According to? Any actual sources? Or just internet musings from a dude who took a dewormer while also participating in a clinical trial?