Next STEPS in Vestibular Therapy
ฝัง
- เผยแพร่เมื่อ 15 ก.ย. 2024
- Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The date this video was recorded is listed below. I'm happy to answer any questions you have or talk more about my experience. Recovering from brain surgery was unlike anything I've every experienced. But I've come so far and I am SO glad I did it. Thanks for going on this journey with me!
My new Merch Store: incredibleanyw...
How to Have an Incredible Life with Very Real Challenges | Warriortude - • How to Have an Incredi...
🔔SUBSCRIBE: / incredibleanyway
📷INSTAGRAM: / incredibleanyway
@IncredibleAnyway
🎥TIKTOK: / incredibleanyway
@IncredibleAnyway
🎵MUSIC: Artlist.io
🎥FILMED: February 26, 2024
[Visual Description:
Text Found in all of Kelly's videos:
Text Beginning of the Video: Tiktok + Instagram: @IncredibleAnway
Text At The End of the Video: During the closing music, the end card has a photo of Kelly standing with a blue cane in her right hand and holding onto a handle on Golden Retriever Benevolence's green service dog cape. Kelly is wearing a blue T-shirt with Anna from Disney's "Frozen" on it that says"Live Your Truth." Service dog Benevolence is standing on Kelly's left side. Pet dog Dash is laying on the ground next to Kelly with his head on the ground next to Kelly's cane. The screen reads" Subscribe to Incredible Anyway with an arrow pointing to where the Subscribe Button is. Above Kelly's head is her Tik Tok and Instagram Handle.]
![[UNCUT] The Loyal Pin ปิ่นภักดิ์ EP.7 (1/4)](http://i.ytimg.com/vi/2rPGOyKs0VE/mqdefault.jpg)
Your mom is not only your camera woman but your cheerleader so sweet 🥹
She really is. You’ll see her do this again in an upcoming video. It was really special to see it when I was editing it. I’m SO thankful for her.
Exposure is a good way to rewire the brain but it also takes its toll. Keep it up Kelly, I know you'll make it!
yes! It is exhausting! Thank you!
I love seeing how Bene helps you! I'm waiting for my dog from ECAD now and couldn't be more excited. It's comforting seeing how well the two of you work together/have bonded since it's such a huge leap of faith going into team training and just the process in general. If you're up for it, at some point would you be willing to make a video about your "gear setup"? I'm also going to be getting the same harness and love your leash wrap on it etc.
Oh my gosh, Good luck! IT is so hard to wait for your dog, but so worth the wait! Are you scheduled for team training yet or still fundraising? I’m escited for you-it is a huge leap of faith, but you will get to the other side. I will make a gear video when I can. My harness is from Bold Lead Designs. I do NOT recommend to get a tall handle like ECAD recommends especially if you are using it for balance. The closer your hand is to the dog, the better you will be balance wise. The higher your hand, the more torque youre putting on the dog and your body. Its not good for you or the dog adn you won’t feel grounded like you are supposed to. I have a video about this that I highly recommend you watch that I made about my harness adn how it changed thigns for me: th-cam.com/video/YXV5_sf95q0/w-d-xo.htmlsi=eTYiHXlSxbrcx3yA I actually spoke on the phone with the people at Bold Lead Designs and they guided me how to order my harness based on my needs and said the tall handle would be wrong for me. I highly recommend doing the same if you are confused or concerned. They know their hanresses way better than ECAD. And I am SO glad I listened to them. I know of people who got the tall handle and regretted it and then got the balance handle and were so happy. Please keep me updated on how your wait is going! Rooting for you.
@@IncredibleAnyway thank you! I’m done fundraising so the wait has officially started. I’m not scheduled for team training yet but was told i’ll likely be waiting until 2026. I’ve been binge watching your videos so i’m definitely planning on following your advice regarding the harness. I’ll be using it mainly for balance and want to feel “grounded”. Did you speak to the harness maker prior to team training or when does that happen?
Hi Kelley, you're doing great! I too had VNS surgery in March 2015. I was in the hospital for two days. It was a huge challenge walking and my doctor would not let me use a walker or a wheelchair. I had to do it myself. I lost my hearing in the right ear about 95%. Part of my therapy was to go to Walmart and walk around the store as long as I could. About five months after surgery I complained recovery was too slow. The doctor prescribed lorazepam only when needed. This drug was amazing I felt like myself again. However, I'm still taking it today and trying to wean off of it. After four months you're pretty much addicted to it And very difficult to get off of the medicine. Thank you for sharing your story. If I can help in anyway please reach out to me. I wish I had someone to talk to after my surgery. Still to this day you are the only one I know of that has had this surgery.
@@anthonypalmisano1533 Lorazepam is know to be addictive indeed. But when you need it you need it. ❤
Hi!! Thank you so much for reaching out! You made my day. That is shocking your doctor wouldn't let you use an assistive device until you were able to safely walk on your own. Did you lose the hearing because of hte surgery? Recovery is sooo slow in this surgery. I wish I had been prepared for that, but now I'm trying to accept it and embrace it. I understadn abotu lorazepam. I was taking it daily for years and did through most of my surgery recovery up until a few months ago. It took a long time for me to wean off of it because of hte physical dependence part. Slow changes so your body adjusts. You'll get there! I'm curious how you are doing now. Do you have balance or vestibular challenges still? Thank you again for sharing!
I just want to clarify that there is a difference between addiction and physical dependence to medications. Addiction is a psychological dependence on medication. Physical dependence is when the body is so used to the medication that it stops producing certain chemicals and relies on the chemicals from the medication. So the body is then reliant on the medication for those chemicals. It is why it can take a long time to taper off of a medication physically. The body has to start making the chemicals again on its own. That is my understanding anyway.
Hi Kelley! Yes it was rough getting around the first couple of weeks after surgery without any assistance with walking. My last day in the hospital the physical therapist brought me a walker but the doctor indicated I should not use it. The quicker you get moving the quicker you will heal. Of course I use the walls in the house to get around. As for did I lose my hearing in my right ear the answer is? YES. However knew this before surgery. I knew that the vestibular nerve and hearing nerve are not completely separate. Before my surgery I told my doctor make sure you cut it all! I don't want to experience vertigo again. And here we are nine years later and haven't had another attack of vertigo since the surgery.
I've always tried to do some form of exercise my entire life. In 2019 I found yoga which is really been great. It helped me with Balance. However I'm not like I was before the surgery. I still get a little off-balance if I move too quick. Loud noises, crowded rooms still make me Uneasy.
I'm currently taking one and a half milligrams of lorazepam a day. 1 mg at night and a half a milligram in the morning. I was on 2 mg a day just a few weeks ago. I would love to hear more about how you tapered off of lorazepam. I'm also worried if I do eventually come completely off of lorazepam will my balance become worse or will I have to start back at square one.
The only reason I'm taking lorazepam is because I complained I wasn't getting any better. My balance was really off. That's when my doctor prescribed 20 lorazepam pills at 1 mg each and only as needed. He wouldn't prescribe anymore after the 20 he originally gave me. So, I found a neurologist that understood how I felt and wrote me a lorazepam script. I am thankful for the lorazepam because the last nine years are really been good. However, I really want to get off this stuff and see who I really am.
I've often wondered if lorazepam would have helped me before surgery. In your comments you indicated you were on lorazepam before surgery. But obviously I understand now it didn't help that much.
Thanks again for sharing Kelley. I've rambled on too much now.
Thanks
AJ
❤ great job for trying sweety!
thank you!! woot! I did it!