Benign Fasciculation Syndrome Causes and Treatment
ฝัง
- เผยแพร่เมื่อ 4 ธ.ค. 2016
- ***** Thanks for watching, I am receiving lot's of personal questions as to whether or not individual viewers may or may not have #BFS. Please understand that I cannot responsibly do this for you and you will need to see your own doctor in person to be properly evaluated. In addition, please please please don't share your personal medical information on public forum's. Once it's out there, it's out there. Thank you in advance for your understanding ******
This video explains the diagnosis and management of #Benign #Fasciculation #Syndrome. I also talk about a number of other conditions that can cause muscle twitching including #Motor #Neurone #Disease. - วิทยาศาสตร์และเทคโนโลยี
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Does this happen to anybody else?: every time I start to twitch, I would look at the area where the twitching is and it would stop, but then when I’m not looking it would start again😑
Sameeeeee
Same
omg same so annoying
lI Unknown Il wtf yes!
Same
Nobody:
My muscles at rest: allow me to introduce myself
Bruh my muscle is twitching while watching this video lmao
@@nicolecunanan7262 same as
@@whyyskiw What about now?
@@wokeok7450 yess I am okay now. It went away when I started to sleep early
@@nicolecunanan7262 hw r u nw
This doctor is bad ass. He's very well spoken, and intelligent.
Omg I swear I have this! It started in my chin and my eyes. Then it went everywhere. Behind my leg, on my knee, my eyebrow, my elbow, my hand, around my abdomen, by my Cupid's bow and nose, and even the bottom of my foot! I even have the thumping in my ear! So aggravating. Oh I forgot to mention around my temples and my inner thigh. After I yawn my neck and even if I don't yawn my neck would twitch. Thank you so much for this video!
Nylah Quillens me to! Started in my left foot, for like 2 weeks straight when I try to sleep. Then started in my forearm, to my temple then everywhere. It was bad at first, constant muscle twitching for the first 3 or 4 months. I get it in my fingers every now and there but it definitely slowed since it first started to happen. Started In my mid 18, I'm 19 now. It definitely gave me anxiety about my health!
I'm still dealing with it
Got one in my left temple as I type this....
Nylah Jourdan hey.. you still alive? Lol. I have the same things along w finger twitches. Anxiety sucks😞
That is EXACTLY the same ones I have. Have you had any luck fixing them? I’m going on 2 years now. 😔
I honestly believe we are ALL anxiety stricken and we are all fine.
Spot on
Are you guys anxiety googling too ? :(
Can it just be anxiety and not bfs? I’m having all symptoms of anxiety but only the muscle twitching is my symptoms for bfs
@@lordhumor6541 oh yes. Although I try not too anymore. I'm sure this condition is bought on by anxiety. Specifically for me, health anxiety.
Bob Digi Bob Digi It’s been 10 months since I posted that comment, let me just assure you, lots of growing & manifesting & not letting my anxiety/health anxiety conquer. I do not have ALS/BFS no matter how much your anxiety may trick you into believing that you have these illnesses, you don’t. You are fine :)
Ive had this my whole life.
Its comforting to read the comments and see so many other people with it...all with the same worse case scenario ideas running through our heads.
@@vidhibhardwaj9003 you just have to live with it
im 39 and have had them since highschool.
Different areas flare up at different times.
You must be a wonderful physician because this was a fabulous presentation. Detailed and efficiently presented. 👍🏻
Thanks Dr. Freilich for this detailed explanation of BFS. My left vastus medialis has been twitching for over two weeks and I have gone through my own process of exclusion. I'm at the point of seeing my physician to eliminate any other mitigating factors and variables. Thanks again for providing this service on the internet.
I realise it’s been a while since you made this comment, but I’ve had the exact same thigh muscle twitching and spasming for the last 3 weeks, hours upon hours during the day, will only stop occasionally if I’m moving. I’m curious about what came of the trip to the doctor?
Damnnn it’s annoying, it feels like something is under your skin twitching, constantly sometimes. Can be very irritating.
Is this guy a doctor, or a tailor?
@John Webb He's* He's*
Doctailor maybe?
... he's Doctor Taylor
Omg this cracked me up when I read it
🤣👌
Very thorough overview. Thanks so much for what you do, Dr. Freilich. Glad I found your channel!
This is a fantastic video because most of us Google twitching and we get ALS or MS. Follow the rabbit hole and you discover twitching can be benign. BFS. You then try to match your symptoms and rationalize what’s going on with your body. I can’t tell the doc how awesome he is for posting this video.
Im 38 and I’ve been having muscle twitching in my FDI muscle in my right hand on and off for the last 2.5 years. Plus I’ve had twitching in other areas like around my knees. At times my index finger and thumb will twitch and cramp. It’s rapid fire… continuous. Also sometimes the muscle will twitch for an hour and then just stop. Other times on and off for a couple days or minutes. Feels completely random.
What makes me feel better is the fact that I can close my hand, make a fist and the twitching stops. My wife can’t see a change in muscle definition and I can still use the grip strength trainers up to the 150 lbs level with no issues. Read any forums dedicated to ALS and they call say you will lose the ability to complete tasks.
I’ve not seen the GP or gotten an EMG because I can still tie my shoes and button a shirt. Plus I am aware I’ve got health anxiety. It has been really very tough and my wife has been very supportive and patient.
To everyone out there twitching there are lots of us out here. I’m still concerned myself about my twitching but what I’ve learned is that the longer your twitching goes on the less likely things are serious.
Keep a positive mental attitude!
Oh my God please make my muscles stop twitching 😞. Nothing helps. I take 500 mg of magnesium a day. Drink 10 glasses of water a day, eat fruits and vegetables. I hate the human body so much.
I feel your pain😑
@rising surfer i won't akhi
Have you seen a neurologist yet? Brain, neck (cervical spine) & spine MRI w/o contrast? A neurologist can assist you and help give you answers... xo
It can be caused by loads of things. A common deficiency is folic acid and that can cause the symptoms
have you a tried a dose of
357
Nobody
my muscle : since you never do exercise let me help you
RIGHTT
😂😂😂
Thank you for creating the video as there is so little understandable sources of information about this condition. The only comment I would make is that the symptoms you describe seem to be on the lower end of the spectrum as far as intensity and variability. As for myself when this condition began it was top to bottom, left to right, symptoms of twitching, cramping, jolting, sensory issues.....for about a year until treatment. I did not know how I was going to live with this condition given what it was doing to my body and I had no control over it. How could I not be dying given what was happening to me? Then a year of tests to find a benign condition, for which I'm eternally grateful. While the whole experience was horrendous at the start 10 years later, although still active, this condition is manageable. Every patient needs to know what BFS/PNH/CFS can be like...and that they are still going to be OK. The condition causes the anxiety and depression many times instead of the other way around as many patients are told.
Excellent video. I developed this condition (only occurs after exercise) approx 5 years ago - lower legs writhe up and down (almost worm like motion) and twitch VERY noticeably from the top of the calf muscle to the ankles. Now 60 years old I think this is a combination of age and having suffered for the first time, extreme anxiety with low moods. More than worrying, the movements fascinate me.
Very useful,in support of what I had researched.Mine only started after a VERY stressful period.
I have BFS, and had since probably around 2014. The first couple of weeks, until I thought it could be ALS, or anything else, was extremely tough, not gonna lie. But once it became obvious - with the exclusion of other, scary causes - that it isn't gonna be deteriorating, I had very little problem with it.
Yes, some muscles in my body has been twitching every day in the last seven years, but after I realized that it is not going to be life threatening, I had zero anxiety about it, and did not lower my quality of life, whatsoever.
I fully believe that fatigue is not a natural symptom of this, rather a mental one. I think BFS is simply a small error in the brain that mistakenly fires the muscles, but every other symptom is the result of us worrying about it. At least that is my experience.
Do parts of your body feel weak , then feel ok then get weak again? My right arm felt weak then it stopped now my left arm feels the same and my left leg. Also , with twitches all over especially if you a muscle and then rest it?
@@acepirate5302 what do you feel now? Are you still feeling the same?
How do you know it's not ALS because I have these twitches all over my body and I'm afraid
Could be mental, but how can you explain my case: twitches very strong at night, but only inside my home. Once i go outside, after just 2-3 minutes ALL GONE and i feel perfectly normal? I can only explain this with mycotoxins from mold. These twitches NEVER started for me, while i was outside of home.
@@ninabdj6832 I have the same problem. Do you still have a good feeling now?
This video and comments are very reassuring, I think people naturally assume the worst and become anxious which makes things worse.
I wish I had you as a doctor, so thorough and smart
BFS Fam, wassup! I have yet to even meet other people that have the same condition as me. I'm glad to see a video talking about it, and reading the comments is definitely making me feel less alone.
Same!!!
Quite simply, the most debilitating part of this disorder is the fear that it will turn into or that it is a sign of something so deadly as ALS. I've been to my GP and he didn't seem concerned about it. He did a strength test and said I was strong and fine. Very annoying and upsetting to have your body do this.
...and it's crazy that it actually started in my ears! I heard a crazy thumping noise. And then it started jumping about my body. Focusing on the calves.
And finally...this was the BEST description I've seen ANYWHERE.
I’ve had episodes of twitching all over in the past, during it periods of bad sleep or anxiety but it usually goes away after a week or so but I put my lower back out last month and was in bad pain with it, no idea how but now, the past 4 days, as my back has eased, my right calf is twitched non stop and I mean from when I wake till I sleep. I’ve fixated on it now and it’s stressing me out. When I’m active, it’s gone or i can’t feel it, as soon as I start to talk and put my feet up, that’s it. Non stop.
How are you now ?
Thumping is tinnitus.
I’ve had it in my ears, so annoying, feels exactly the same irregular rhythm as my more frequent eye twitch.
This is the most informative video on BFS I've ever seen, thank you a bunch. I wish there was more research into this condition. Even though it's "benign" it's still can be pretty debilitating at times.
Geanos Uron - Thanks! It's a very irritating and disturbing condition and I sincerely hope medical sciences finds effective treatment soon. Bw Simon
Geanos Uron tell me about
Geanos Uron please contact me
This is a very informative presentation. I would like to add the following which I believe is the primary cause of BFS. For me, it was a deficiency in both magnesium and potassium relative to calcium. Both magnesium and potassium relax muscle cells while calcium tenses muscle cells. The primary reason there's an increase in BFS has a direct correlation, in my opinion, to electromagnetic fields (EMFs) emitted from wireless technology in the form of RF/radio frequency/microwave radiation and of LF/low frequency/dirty electricity. EMF cause what's known as the Voltage Regulated Calcium Channels (VRCC) of the cells to open too often resulting in excessive calcium entering the cells which results in uncontrollable muscle tensions/twitches. The primary reason most BFS is in the calves is because of both RF and LF radiation levels emitted in the driver's side foot well. With more electrification of cars has come more BFS. Strong EMFs deplete the body of both magnesium and potassium. The appropriate initial step to see if your BFS is related to my assessment of the most common cause of BFS is to get a hair mineral analysis and make adjustments to you intakes. Please be advised, however, that if you are addicted to wireless technology you will not be able to resolve this problem as the EMFs you live in will deplete these minerals faster than you can safely supplement. Insuring your Zinc and Iodine levels are not deficit should also be investigated as these are first line immune defenses against radiation exposure.
@MARTIN HUTCHINSON What do you want me to contact you for?
Well-presented, clear and concise. Thank you for this presentation, it has been very a particularly helpful refresher.
Thank god I'm not alone. I feel a great amount of relief when I read the comments. I started to have the muscle twitch since last December. That time I was in the state of anxiety and soon after, the muscle twitching started to happen frequently. Now, everyday and every freaking time my body will twitch out of nowhere. I can't tell if I'm still in the state of anxiety but the muscle twitching didn't stop and I keep having many worrying thought that I feel like I wanted to knock my head over the wall. Somebody help me😭😭😭😭
I literally have this everywhere imaginable on my body. It's been bothering me since I was very young - perhaps 8 years old. Now I'm 26. I noticed stretching, like after a big yawn, drinking coffee, or not getting enough sleep, and even exercise will worsen it. It wouldn't be so concerning if it weren't for the fact that a single area on my body can twitch on and off for hours, days, or weeks, even a couple months at a time - then suddenly stop one day. Sometimes, they are what I call "soft" twitches that can be somewhat ignored, but sometimes they are very intense, strong twitches that are very visible and I can't help but to put all of my focus on it. Right now, the side of my neck has been twitching very strongly every few minutes the last couple weeks. It is extremely distracting from my job, driving, having conversations, and it is such an irritating feeling. It never hurts, just feels so weird like when someone is gently poking you but you can't stand it. Sometimes I'd rather be in pain...my only relief is grabbing, holding, massaging, or pressing down on the area that's twitching which looks very odd to a someone else, especially depending on the area that's twitching. Sometimes I can hide my strange "pressing down on twitches" habit, like if it is just my finger - I just make it look like I'm wringing my hands or something. With my neck, it's a lot harder to play off. This has been running my life for many years, but I've just been taught that twitches happen to everyone - to ignore it and that there isn't much that can be done about them. But my body has always been doing a very abnormal amount of twitiching. It can be an eyelid, near my clavical, a toe, a finger, my shoulder, the side of my leg, a spot on my tongue, inside my ears, you name it! I'm very worried it is something more sinister...Thank you for this information.
Aly Cat
Sorry to hear that. if you've had it for 18 years then I can't imagine it's anything sinister. Bw Simon
Aly Cat I feel like I'm the only one that enjoys the sensation of feeling this pulsate. The addiction of feeling this muscle twitch is very overwhelming, but although it can distract me, I never mind stopping for a minute just to feel it. If I'm in public and the twitch occurs in a weird spot I can't feel, I try to imagine how the pulse would feel and even how it would look like and anticipate it when I can get time on my own. I'm so happy there are other people like me that have this unspoken symptom. I just only wish everyone enjoyed it like me.
Aly Cat I experience the same thing. The worst thing is that they happen around my neck and people notice it. I was talking about with a friend not long ago and she told me that my neck was twitching. That was the first time ever that someone confirmed my twitching. I though I was going crazy because the damn twitches stop if I try to record them, look at them, and sometimes the slightest movement will turn them off.
It's been happening for 2 years now and there is no sign of wasting or anything like that so I assume is benign.
It started in my hands and spread to my whole body in less than a month. Sometimes I get one in my hand and less than a second after that one I get one in the neck and etcetera.
Aly Cat ñ
Aly Cat dear god man!!! You are my hero! Functioning with this takes so much courage and character. I honor you.
These reviews has helped me that I don’t feel least alone. I just started getting them and have been so confused on the lack of info. or remedies to stop this. Every part of body has twitched at least once before. It impacts my sleep a lot which I should be doing but it woke me up again.
Thanks doc, good video. I have had my right index finger/thumb twitching in exactly the same way as the clip in your video for a few weeks now, and have been getting a bit worried about it. Thanks for posting this and explaining things so well.
Excellent explanation. Best video I've seen on this condition.
I've had these in almost every part of my body at one point or another. The ones in my chest were hard to tell if it was the skeletal muscles twitching or if I was having heart palpitations. They're painless, but pretty scary.
I note this as well
I get the chest twitch and yes, it sometimes feels like an abnormal heart beat
Imagine having them everywhere 24/7 without a break! Literally woke up one morning with an eyelid twitch that didn't go away then after 2 months I noticed them in my calfs...since then I'm like a popcorn machine.
Currently receiving botox for my eyelid, with some sucsess 🙌
@@Mr-Mr66 Wow. Sounds intense. You should look into allergies, histamine/food intolerance and exposure to mold. That in conjunction with low vitamin D levels were the cause of mine. Since I've made some pretty drastic changes in my diet and my surroundings, mine have diminished, if not resolved completely.
@@alexweiss388 thank you for the advice mate, it's been noted.
As you can imagine I've tried everything, the only thing I haven't really been able to achieve is get rid of the anxiety surrounding it all, Getting better as time goes on though.
I could probably get used to most of the twitching but the eyelid one is like torture, propa messed my mind up.
Anyway thanks for the chat bro, always appreciate hearing positive things when it comes to this nightmare I've been living for the past 2 years
I was told I had benign fasciculation more than 30 years ago. It lessened over time, but I still get a bit now and then. I have other involuntary movements (myoclonus) at times but none of it is that bad. There's hope! Good, informative video. Thank you.
That’s what i was told benign fas.
One doctor told me myoclonus then the other said BFS just today. 2 yrs down. Am fed up
Wow simply the best video on twitching in general. Im lowering my caffeine. Thanks you very much sir.
Bless tou Doctor Simon. This is a very good explanation. My dad died of ALS (seemed) sporadic and after a stressfull period I started to twitch in my calves. Now I know 30% of neurology because of your help. I had 3 clinical exams and no evidence of MND on the EMG and now I am studying maybe I can help others... Thanks alot
Wishing you every success!
@Ansh Bawa did you figure out what it was
@Ansh Bawa still have it going on then?
Like popcorn all over my body. I feel a wave like sensation over the parts that are about to twitch. Exercise can be painful.
Wow everyone is describing my frustration. Its very debilitating.
I have it all of my body 24/7..
@@turk2857 Me 2, how long u have it? I've had it for 4 months
I honestly can deal with the widespread and constant twitching, but it is the muscle pain I hate. Mine is a more nasty variety called Cramp fasciculation syndrome.
This has happened to me since 5th grade (I'm in 10th now) and that's starting to be a daily thing
Statins should be near the top of causation list, and the problem can continue even after stopping drugs. Useful and clearly presented information. Thanks.
Stress is a major contributor to this, especially its accumulation over days. Thankfully I've been getting better since the symptoms broke out, slowly but surely. I've had to consider many lifestyle changes but the accumulation of stress seems to have been the number one cause.
Everyone gets muscle twitches sometimes but there is a very wide spectrum of frequency and intensity, and those having a certain level of excitability may get diagnosed with BFS when there is no other disease identified. But keep in mind it is rarely a cause for worry and is usually the result of a physiological imbalance that will get better with time, and the more changes you bring to your lifestyle, the higher the chances for a quick recovery.
I read many comments here with a negative outlook on that syndrome, so I thought I would balance it out with my more positive perspective. Of course, I also understand the distress that BFS can cause; I've been there myself. It's a stressful and poorly understood condition that can make you feel helpless and confused. But your body and spirit affect each other in both directions, and a positive outlook will help you tremendously. On the contrary, anyone under sufficient stress might suddenly have an outbreak of muscle twitches. Please look into both psychological and physical causes and you will get better for sure.
How long did it take to go away??
@@carriezhao3097 It's been getting better from the beginning. Now I have perhaps 1/10 of the symptoms I had in the beginning (two years ago). They are fewer, less intense, and don't last as long. Symptoms started when I went on a diet. I also had severe vitamin D deficiency, so I've been taking high doses of it since. Magnesium is also good and works together with vit. D. Being inactive will increase the symptoms. I think there can be many causes. Think of what changed in your lifestyle when it started, or just before.
Do you had any other symptoms along with it of nerve hyperexcitability?
@@niloferhashmi9903 I also had insomnia, loss of appetite and numbness.
My symptoms started when I began to diet and found out I have kidney Disease.
very informative !!! thank you!! i've thought i am the only one who have this weird thing
I just cried watching this I can’t controlling it and it’s affecting me everyday. I wish it wasn’t in me.
Olivia same i am crying also 😢
Me tooo
Same 😞😞
I cried a lot too, I don't know what to do , doctor gave me the prescription , but doesn't help. When I am moving ,I feel I am a normal person, but when I am not moving , or when I sit down ,it start twitch, I always worried if this is a serious disease, Doctor asked me do EMG test after 3 weeks , cause my symptoms getting worse
Ava Liu how did it go?
I was diagnosed with BFS/BCFS three years ago after struggling 12+ years with painful muscle nodules, severe cramps and debilitating fatigue. As I've experienced, BCFS can have a huge impact on quality of life. I've been taking Oxtellar XR for a couple years and it has helped. I've also been diagnosed with Rheumatoid Arthritis. For me, these two conditions seem to flair up at the same time and absolutely wipe me out. I have to be prepared for the fact that I'll be immobile for 1 out of 4 days a month typically. I'm hoping that RA meds reduce the fatigue associated with RA so I better manage my energy and pain. With these conditions, you have to eat well, rest well, exercise moderately when possible and manage stress.
Great Video!! Very informative and well put together!! Just Subscribed!
Thank you! I have had this condition for 14 years and this is an excellent explanation of both symptoms and causes. I have found Lamictal to be the best course of treatment for my symptoms so I do hope that helps someone else as well.
This is important, can you tell more about it?
Last month...my right eye twiches.. Now I am getting twiches in lip, left eye and all over body(random twiches)... Any one tell why I am getting this? I am only 21🥺
@@HoneyBee-zu7zr same here and im only 23, so how it goes for you?
@@amhkm9034
How are you feeling now? Thanks
This syndrome makes me anxious and angry
DareDog101 I
DareDog101 a
Same
Same
DareDog101 I’m glad I’m not the only one.
Looked this up as I've been getting this in my thumb recently and wondered if it was anything to be concerned about. Thanks for the info :)
Thank you for sharing the info. I have had a cervical discectomy and have been having muscle twitching since. I have had a EMG and nerve conduction study and am awaiting results. The dr who did the NCS asked me twice if I had diabetes? I just said not that I know of?
Thanks, I haven't ever heard of that before
He hit the nail on the head about caffeine and stress and anxiety as I used to drink coffee and had stress and anxiety and got body jerks alot.
I have had the muscles all over my body twitch mainly my right hand which is strange since my left hand is double jointed on the thumb it's not as bad same with my arms and legs and even my ears. This video helped me calm down about it and has made me feel less stressed about it now thank you for making the video it helped alot
Thank you, I have had this for 4 years now. When it flares up it scares the life out of me sometimes I can go weeks with out twitching and I will forget how horrible it can be.
is there anything that worsen it or helped?
Alcohol and stress flares it up for me. Exercising everyday really helped me. I do pilates most days for an hour at home.
If you guys had any type of Anxiety that was severe before the twitching started, then that's a different story compared to BFS. Really you just have to learn to accept the symptom and manage your anxiety. Anxiety twitching can happen even if you are using the muscle (happens to me since November) unlike BFS that the twitching usually shows up at rest. Anxiety can cause hyper stimulation. So the more you stress, the worse the symptoms. The moment you stop worrying and let your body RECOVER, the twitching will improve. Plus, those with twitching from Anxiety don't feel twitchy while they're asleep and maybe those with BFS do hence why they get insomnia. Also, BFS has no cause while with anxiety you twitch because of it. The twitching tends to get worse if you keep worrying about them. It's all about ignoring or better yet ACCEPTING the twitches which can reduce them with time. The twitches can last for years if you keep stressing yourself over them. Accept. Ignore and reduce your anxiety. That's how many people recover from the twitching.
I have watched two of your videos and they are so informative! They have helped me with what I believe is anxiety due to balance issues, causing these fasciculations that I now believe are benign! I have found, through friends a good sports oriented chiropractor who is helping me with ART. I am going to check out more of your videos, thank you!
Last month...my right eye twiches.. Now I am getting twiches in lip, left eye and all over body(random twiches)... Any one tell me..why I am getting this? I am only 21🥺
@@HoneyBee-zu7zr exact same things happening to me (20). Everything started after getting moderna last month. Did u also get the vax?
Thank gosh I thought I was the only one.
Same, I get twitching in my fingers, legs & eye lids usually.
I definitely have this and started right around when i was diagnosed with auto immune disease. I have Graves and Psoriasis. I also have mild sleep apnea and have to sleep on my side to avoid choking. I have cut out most sugar and bread from diet and stay low carb. Im slender and have decent musculature, so i would say im in okay shape, but the muscle cramps and twitching are still pretty bad, especially the cramping. This condition sucks because it really hampers me being able to work out in the gym since i cramp so badly while lifting.
Anxiety is very understated about just what it can do to your nervous system and mind. I believe people like myself with severe anxiety can research and see the symptoms and your mind lets it become a reality
Fr
My daughter just turned 3 and she has had all the same symptoms since a few months old . Sometimes it feels like an electric shock goes through her body. She wakes up crying in pain 8 or 9 times a night. Been to 10 doctors but they don't see it on evaluation. Some are big spams and cause her limbs to fling out to the side and some are almost internal and hard to locate. She has them in her diaphram, hands, feet, face and every inch in between. Doctors seem to have an excuse for every concern i bring up. Sometimes she just falls to her knees and can't stand up. Please let us all find relief soon
Hi Kai, a very interesting question. Both restless legs syndrome and essential tremor are issues originating in brain and are associated with each other. BFS is a peripheral nerve hyperexcitability issue and so would not appear to be relatable to the other two. Wishing you all the best, Simon
I keep having muscle spasm/twitching in my legs/thighs/feet. Just that general area and it’s not painful but it’s so annoying and keeps scaring me, for about a week or so now. Is this normal? Considering I’m a anxiety ridden person about my health. I just hope somebody comes across this and have had/has the same situation and can relate.
kindly tell that what type of this disese is that i feel pulse movement in hands when i join them with a little force or when i grab a thing firmly ?
Thank you so much for posting this, Dr. Freilich. I had lots of bloodwork done and everything was normal - neither my doctor nor I knew my nose spray (Atrovent) could be causing this until I saw this video. I can't thank you enough for the information.
This video calmed me down a bit. I'm 24 and have this condition. It's really stress inducing when it happens which is ironic since stress can cause it in the first place. I feel like I'm stressed even on holidays, dont know how to solve that. Anyone also like me?
Z H I L I N yes i am like you
Yes I'm the same. I can give you advise on things I've learnt. I'm 40 and have dealt with it for a long time. If you're still having general anxiety respond and I'll tell you the things I've found that work. Although I'm not 100% cured, I'm around 75% better.
@@bobdigi500 What advise would you give
Bob Digi tips?
@@bobdigi500 reply mannn
The underside of my right arm has been twitching ever since I did push-ups in the morning.
Hi Mickey, great to have a question all the way from Bermuda! As with my previous responses to similar types of questions, I really can't do 'personal' responses. One of the reasons is to protect your privacy and personal medical information from being plastered across the Internet. So the first thing I'd highly recommend is, and this is for your benefit, to please delete your question. as there is way too much info in it.
Secondly, I can't know how you ended up with an Endocrinologist but I would suggest in view of facial twitchs that you see a Neurologist to investigate it further before contemplating BFS which is a diagnosis of exclusion I.e once other factors or potential causes have been ruled out.
Three, vitamin deficiency is blamed for way too many issues and is often an incidental thing picked up on blood tests. Usually deficiency has to be severe and present for a long time before it causes nerve problems. It needs clinical experience to determine whether a set of symptoms is relatable to a particular vitamin deficiency. If you're researching on TH-cam, beware of quacks selling various supplements.
Four, tingling in part of just one toe rarely translates into a specific problem (or vitamin deficiency) but can be explored further if/when you see a Neurologist.
Finally, if you're young fit and healthy, don't quit working. It's the worst thing you can do. Being at work keeps people healthy!
Bw
Simon
Thanks for your response, sorry i had to detail whats going on, as it may have confused you, as to what I'm asking but you helped loads!! and ill continue to eat good and exercise, thanks to doctors like you, keeping it real give people like me more confidence:) Cheers from Bermuda!
Dr Simon Freilich doc I live in london how do I contact you.
hi dr. i was wondering if i could get you opinion on this matter... i have had fasciculations for about 2.5 years in my achillies tendon area, calves, hamstrings, quads, feet on both legs. also get them in hand and arm sightly. but mainly in lower areas.. but i dont have any noticible weakness or wasting. only my legs get tired faster then when i was 25.. im 32 and way overweight and out of shape. I also dont tip over or fall or anything or drop things. but i have been worrying i have MND or something because of the fasciculations. like i said i noticed them about 2.5 years ago. but could have had them longer before i noticed them.. anxiety and depression runs in my family could it be that? im not sure but worried.. i can still run sprints and do squats and everything i just get fatigued faster.. any information or opinions would be greatly appreciated.. thank you and God bless!
Dr Simon Freilich sir I have been facing muscle twitching for almost a decade....sometimes its a daily problem and sometimes it doesn't happen for many days. Sometimes when there is too much twitching at night time, my mind just can't loose focus from it and i can't sleep. And you will really get shocked to know one condition attached with this. Whenever I am having too much twitching, due to twitching, it forms gas in my stomach and because of that farting becomes very frequent. I know its too strange but I have been facing it from a long time.
Wait there's a term for this? Whew, I thought only I had this lol.
Same
Did you get better ?
I thought I had a parasite :/
@@Dust_Death lmao me toooo I thought it was worms moving around under my skin 😵😖
I am in my 20s living in South Korea. I've been having this symptom on both feet and legs since a few months ago.
Even though I'm taking pregabalin, there's no improvement at all.
The electromyography showed no problem, but the worry and anxiety that it might be ALS bothers me so much.
I know how much this symptom degrades one's quality of life, so it hurts to think of those who are suffering even worse than me.
I sincerely hope that everyone suffering from this symptom is healed.
* The sentences may be awkward using a translator. Thank you for your understanding.
God bless you.
@Dark chocolate I am also on pregabalin but no improvement
what happens if u punch them to go away, once my thumb was twitching all day then my sister was punching my thumb and it stopped
this comment section makes me so happy! i'm so glad to know i'm not alone, no one around me really takes my twitches seriously and say ill sleep it off or something. but it's not going away! i have twitches in my temple and head, and at one point i thought i had lice or something crawling in my hair bc of how frequent and strange it felt. about 3 days ago i felt one in my knee, and its super inconvenient and uncomfortable. they happen in my legs, arms, in my hands, neck, eyes, temple, jaw, elbows, feet, literally everywhere its awful. i felt one in my heart area and thought i was having heart palpitations or an irregular heartbeat, but it was just muscle twitching! i swear i can feel it in my guts sometimes! its seriously awful, i can reduce the discomfort by pressing down on the twitching area but that can be awkward to do in public. ive definitely gotten curious glances before. wish there was a universal cure lol
I have these issues too, for around 2 years. Im only 17
I’m feeling the same exact thing it’s crept I found so many ppl experiencing the same thing!! I get them everywhere even on my face
I normally put my ears on the area and hear the sounds of the muscles pulling like un rhythmical 🥁 drums
@@raqui174 do you still have your twitches or have they gone away? Thanks
Man isn't there any cure ?
Thanks for the question. BFS can be quite focal and doesn't have to be everywhere all the time. If you or other viewers are worried about particular symptoms, it's really important to see your own doctor in person, as I can only give a 'general' reply. Bw! Simon
Dr Simon Freilich Drs. Are useless. This is suicidal
Thank you, great review!
Thank you for the video. I'm a 55 yr old female, and I've had BFS since I was 20. It started in my right calf muscle. They tend to happen all over my body. Legs, arms, neck...fingers. Once I had on my left shoulder for over a week. All these years later, I can go long periods without any twitching. Now within the last few days, it's been crazy again. I've been having an annoying visible one that takes up most of my upper left side of my right knee.
It's been going on all night and morning. It woke me up. Like the doctor said, I think stress has brought mine back. So annoying.
Catt O please contact me
So when you stop stressing the tingling start to stop eventually?
Nancy Ceuleers For the most part. The constant twitching goes away. I may get one or two slight ones. But the ones that last for a day or longer go away.
Hello doctor, is there an inherited BFS? My grandfather had decade long calf twitching and my dad has calf twitching for the last 45 years. I have been twitching since 2015. My neuro said that it is a mild inherited channelopathy. It is just annoying.
so how do we stop it from happening. Right after i did a shoulder workout later that night, my left front deltoid started twitching been like 4 days now...
I am generally healthy, yet have the condition... or symptoms of the condition. Thanks for your insight.
Great to see professional advice uploaded on BFS! Great work! I twitch head to toe but help twitchers all over the world !
Honestly, I’ve had these symptoms for around 4 and a half years and I remember clearly starting in 9th grade. I have health anxiety and you can imagine what type hell I went through when I saw the one of the primary symptoms of ALS being Fasciculations. This happens when I get anxious about ALS itself or other horrible diseases. I’m now 19 and in my first year of college. Throughout the years I’ve learn to control the anxiety from it and Right now, I do not have control. That’s why I’m here.
@@vidhibhardwaj9003 Actualky yeah I can help you. So keep in mind that ALS twitches happen after you’re already paralyzed because the muscles are no longer working. So whenever you have twitches, keep in mind that you can still move your muscles. Also the twitches are happening because you have stress. As a matter in fact, you have stress and don’t even know it. It’s called underlining stressed. Unfortunately you can’t do anything about the twitches. But you can learn to live with them :) also keep reminding yourself that the chances at ALS at 15 are literally slim to none. Sure there are a few cases but that’s mostly because their hereditary.
I have this too for like 4 years its bothering but also interesting. Also I hope I don’t have something like ALS. (I’m 17) My only advice is just ignore it. I can’t do that idk why but always I have to touch place where it’s twitching 😄
@@adamkral6503 I know right! Have you ever had the experience of looking at it for like 3 seconds and then it just stops. Then once you look away it comes back
@@milkman2742 Yes Omar, this happens all the time.
oh my gosh.. i have really bad anxiety as well.. and when i figured that it could be ALS.. i was freaking the hell out.. im getting it checked out pretty soon but your comment that ALS twitches happen after you're alrready paralyzed helped me a lot. I think I have this disease but gotta check it out cuz my anxiety gets really bad. Thanks
I can’t tell you how much this video has helped to calm me down after dealing with this suddenly appearing 6 years ago, and coming and going ever since. I had all the tests but I was still concerned it could be early stages of motor neuron disease that just hadn’t progressed enough to show up on a test. Thank you so much for putting this out there in such a concise yet thorough video!
I been a pest control tech for 8yrs. I developed twitches in 2019. It started with my hand just like in the video. I think over exposure to the chemical created the problem. I been healthy all my life. Idk. But this is the best information iv got about my problem because my Doc don’t know diddly. He kept calling my twitches tremors. He also said it was a vitamin D deficiency. As of late, some twitches feel like stabs.
Doc Simon, thank you so much for this. After YEARS (first noticed twitches in my calves at 17 years old, I'm now 42!) of having this pretty much constantly it's great to finally understand what's going on. I don't mind the twitches as they are now just a part of my life, but it's good just to finally understand why. Mine seem to increase after exercise and can be seen through my trousers at times!! Once again, thank you :)
Dom Gething you haven't been able to find a cure still? Damn!
Tell me something about your fasiculation
It spread all over the body @
@@adewoleadebayo8848 , 47 years old now, and still have bi-lateral twitching calf muscles, but it's just part of my life now so I don't really mind!
@@krish_sw56 bi-lateral calf muscles twitch all the time, more noticeable and active after exercise, but that's it. Limited to lower legs, nowhere else, and as Doc Simon states, time is the best indicator for BFS, well it's been a while now so I'm pretty happy it's BFS and nothing else.
Dear Viewers - Someone just asked a really interesting question about BFS and HIV. I am glad to say that they very sensibly removed the question themselves - and as I've said above - please don't reveal personal or privileged information on the internet and especially in this way.
Apart from the fact that I can't and won't give any of you a web based opinion on an individual basis, frankly, it's really not a smart thing to publicize such information in this way.
However, if there is a point to be made in general that hasn't been covered either in the video or in the comments below, then I will try and make it, here in the comments.
Fasciculations in HIV are a very complex subject with a variety of causes apart from BFS. Should anyone with HIV have them, I would strongly urge you to see your local Neurologist. Its really very important to be properly checked out thoroughly by a Neurologist. Apologies that I can't go into more details about this - this subject is too lengthy and this is just not the forum for it.
Wishing that person all the very best and indeed to everyone else with this condition.
Simon
Do myopathy causes muscle twitching?
Dr Simon Freilich is twitching of left index finger common? No other symptoms but going on for week now
Hello Dr. Simon,
It's a bit difficult for me to differentiate clinically between fasiculation and Myokymia? Do you have any tips for me? thanks alot.
Great video. Very informative.
I'm twitching all over my body this never happened to me before
Your not alone
Hey I live in Colorado too. I can help at least by sharing what I've learned. I've come to believe that think it's related to the kidney s not properly breaking down fluids. I've been here for 8 years and twitch all of my body has haunted me. It's gotten better when I get sound sleep and smoking a lot of weed at night. My blood pressure medication helps because I think high blood pressure and kidney stones were the problem. My friend who has kidney disease also has twitching. It's always specific muscles that do it sometimes for weeks at a time then go away. But may come back a year later. I don't think it's related to neurology at all, I firmly believe it's digestive.
Me too it's happening right now
Why I feel blood are rushing in my leg and it's twitching also.
Any cramps?
It’s so annoying mentally sometimes that I wanna break something and I’ve got anger problems ... this is the worst condition I’ve ever had in my entire life
Bhai are you ok now plllllzzz pllllzzzzz reply facing same problem
Thank you for this video.♥️
After a gym session where I overdid my triceps, I started getting fasciculations in my right tricep. It then moved to my right quad. I then searched up what was going on, convinced myself I had ALS for 2 weeks, and it has all settled in my calves. It went from twice a day to every awake moment. I am 99.9% sure this is anxiety induced, but like everyone else here, I keep telling myself ‘what if?’ I spoke to the GP yesterday, told me to stop stressing and that fasciculations of such large muscle groups isn’t really to do with ALS. I’ve got blood tests coming up and I’m hoping something like my magnesium or potassium is off so I can get to the bottom of this.
Stats make me realise it is most likely not ALS. I’m 22, and Juvenile ALS affects 1 in every million people. In Scotland, there is around 600,000 people between the ages of 16-25. Therefore, in my entire country, it is unlikely a single person has it.
Have had this for about 20 years now and can happen anywhere (twitches only I thankfully dont get pain). But for the majority of that time they weren't bad just the occasional spot and very rarely would last a few days in one spot. This past year however has gotten worse they now come in pulses last a few seconds to a few hours stop then come back hours or even days/weeks later. I find this worse as now there is no relief when it stops just anxiety of when will it come back. I have had worse sleeping problems these past few years and also a few lower back episodes not sure if this is the cause of worse symptoms...
I have had twitches in my left lower eyelid, my calves, my knees,upper arm, sometimes my back muscles..usually when i am sitting they move.. a bit of paranoia hovers but i think this video is helpful. I don't think im stressed.. im 36..and i just want this to stop! 😊
How are u doing now
Exactly the same for me, except it's left lower eyelid.
How are you doing now?
I was diagnosed with bfs after a clean emg in 2015. It went away in 2016. A few months ago it all came back but widespread, stomach, lips, arms, legs, head and very frequent. Should I be worried. Is bfs known to go into remission and then come back years later? Do I need another emg?
Hello, does anyone else experience cramping. Iv had the muscle twitching off and on for about 5 years now. I’m just wondering if there are any other symptoms associated with bfs. Thank you.
I have a lot of twitching which can happen anywhere on the body and can last from few minutes to several weeks. I had it for years, and I still get extremely anxious that I have MND when that happens again! It's usually small area and it's usually during rest, mostly stops when I move. Right now it's on my left calf for three days now, I can see it but when I move leg it stops. It bothers me and when I sleep I have to bend leg in knee as much as possible so I don't feel it. I have health anxiety since always, and I had damn twitching on so many places mostly localized. I wish someone could tell me why so I can prevent it.
Literally the same. And it sucks. I feel like Anxiety makes it worse for me. Because I focus on my body too much.
How r u now hope doing well
How are you now?
My knee always twitches feels round the front and back of knee but I can always feel coming
Since around 1997 I have had BFS in both calfs 24 hours a day. Usually it's just a rippling feeling of both calf muscles but if I've done a lot of heavy lifting in work then night time i get severe cramps which lead to insomnia then more cramps because I've not slept. This then can lead to other health problems for me it affected my heart causing chest pains and palpitations and fainting and when I had an ECG it flagged up a LVH although it never developed into LVH it came up twice on the ECG. I knew the whole stress of working in a job I was physically struggling with (lifting 720kg every 10 minutes for 10 hours) and the lack of sleep from the calf cramps was causing the palpitations but my doctor just wasn't seeing it and just kept telling me the cramps are benign and the ECG was just a slight anomaly. This was the first time I'd been to a doctor in 8 years and had to almost demand a note to relieve me from the extreme lifting and he reluctantly written "cardio syndrome x". It's been a few years now and somehow the copy of the doctors note has gone missing in HR but I'm sticking to my guns and just flat out refusing to go back onto the heavier job even though all the heart problems feel like they have totally passed I just don't want to go through the same loop.
BTW I can actually pinpoint the first time I ever felt the involuntary calf movements, it was after going to an all night rave and I dance for 8 hours..not sure if it was the dancing and not drinking enough water or maybe chemicals in the ecstasy pills.
Also something I've discovered by accident ZMA (Zinc Monomethionine Aspartate, Magnesium Aspartate and Vitamin B6) can help with the feeling when your legs just can't get comfortable with the rippling and twinging when trying to sleep.
sorry for the long comment just some insight from my experience.
@Krishna Thapa yes still
Just was diagnosed with this. Kinda worried too. But, after watching you. Feel a little better. Thank you 😊
I'm preparing for a competitive exam and I don't think that I'm much stressed but still I feel low often. I'm having BFS for about three-four weeks randomly in any part of my body but ceases after 2-5 seconds. Is it just related with stress or some underlying medical condition?
The muscles behind my ear would twitch only when I layed on my ear.
My left eye would twitch when I need a shower.
My legs twitch like crazy after a long walk in the heat. Only in the heat.
Not winter.
My toes twitch like crazy.
My ribs would twitch.
The biggest muscle on my leg would twitch.
My arms would twitch
Thanks for the great explanation @Dr Simon Freilich. I have been having these types of muscle twitches occasionally for about as long as I can remember, but within the last 2 months have they become much more prevalent. Given everything that is happening this year from Covid to civil unrest, the anxiety those events are causing, and the studies linking BFS to stress and anxiety, I think that may be what I am experiencing. I don't really have any muscle atrophy (other that what is naturally occurring from not being able to go to the gym due to covid) so it's kind of reassuring that this is likely not ALS or MS or some other more serious neurological disease.
Last month...my right eye twiches.. Now I am getting twiches in lip, left eye and all over body(random twiches)... Any one tell why I am getting this? I am only 21🥺
@@HoneyBee-zu7zr I have the same, mostly when I get stresses or drinking caffeine...for one or two week you think it will never stop, but it will after sometime when you start to focus on other things.
@@nordicgloss actually I am better now...I am not giving that much attention to my symptoms...so that I didn't know when it comes 😂 and when it goes..
@@HoneyBee-zu7zr I'm 22 and I started having these twiches all over my body two weeks ago, I can't stop thinking about them, I really hope they go away as soon as possible, I can't stand them for months. Do you still have them?
@@tarekmahfoudi6635 yeah..now I am completely ok.. it's only because of anxiety..so don't stress yourself..and concentrate on any other things.. don't think about it
#1: is that his real voice
#2: this happens very seldom in my eyelids, jaw, and cheekbone area while I’m literally doing nothing (such as lying down) or smiling for a long time waiting for my picture to be taken, but I’m not going to doctor for it because I’m not dying and I can usual stop to twitching by putting my hand to the twitch
Hello ,
Plesse tell me what could indicate bfs symptomes but with some higher ( but not pathological high) amplutudes in emg? Could it stil be bfs?
As with all my other responses, its difficult for me (for a variety of reasons) to provide specific / personal responses. Broadly speaking, I would find it reassuring that a number of specialists have examined you and not identified anything of concern over an 18 month period of having symptoms. I mentioned in the video, that time remains the greatest discriminator and I would suggest that anyone with BFS who remains concerned about the possibility of ALS pick just one specialist to stay with and have appropriately timed follow up for 4-5 years. Usually this would be on an annual basis, unless symptoms change. This is because consistency in examination and clinical approach is very important and as highlighted in some of the responses below, symptoms can vary quite a bit in location, frequency and intensity. Hope this helps and best wishes, Simon
Pen as I stated in a question to the Doc, I have had muscle fascinations for over 12 years. Just have to learn to live with the symptoms and manage them. I found that anxiety really makes it "flare up". My local doc here wants to test for carpal tunnel in my arm do to some other symptoms. Aching and burning and numbness and tingling. Please don't focus too much on ALS, if all your tests came out great.
Dr Simon Freilich
+Mario Martin Yea Im happy this doctor did a video on it but I know people who have seen neurologists, neuromuscular specialist and even ALS specialists and none of them have ever said they need to be followed for 4-5 years. The top ALS specialists in America and other countries won't even give an emg if it's just fasciculations without weakness, atrophy, or crazy reflexes. My specialist told me he's never in his 25 years seen a case where it was just fasciculations without actual weakness and nor have any of his colleagues.
+Mario Martin I also fasciculate in areas after use like my hands when texting or gripping something but they stop. My feet and calves never stop and even flare up more if I'm on my feet a lot or exercising.
Dr Simon Freilich vous pouvez parle en français j'ai pas compris
This started at first in one of my toes. Then it slowly moved to my thighs and then it reached my face. Now I can't get good sleep because of my eyes twitching constantly.
Mine started in eye to toe bruh
I recently had a surgery to remove a tumor in my leg and am now too scared to stand up and whenever I try to stand up my muscles start twitching which makes my leg hurt
Very helpful. Thank you!