Simone Dow From Voyager - On Living With Chronic Migraine

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  • เผยแพร่เมื่อ 30 ก.ค. 2024
  • Simone Dow speaks about her Chronic Migraine condition and how Avulux Glasses have been one of her many coping mechanisms.
    "For those who have been following my health journey over the years, I’ve prepared a little chat discussing it all and in particular how photophobia has effected me and the tools I’ve been using to help me ride this incredible Eurovision Song Contest wave. If anyone has any questions around the chat, I’ll get a cheeky little Q&A going this week in the hope that my continuous journey through managing this complex and debilitating condition can help more people and provide some hope for y’all.
    A big thank you to everyone who has sent me private messages already about their own health journeys, you have no idea how much it drives me to keep pushing myself and more awareness around not only migraine disease, but any complex neurological and chronic pain disabilities ❤️" - Simone Dow
    Video Credit:
    Live concert footage by Eurovision in Concert (Pre-Party 2023 performance in Amsterdam)
    Eurovision Second Rehearsal footage by ‪@EurovisionSongContest‬ / EBU
    Follow Simone:
    Facebook: / voyagersim
    Instagram: / simmy_voyager
    Follow ‪@Avulux‬ :
    Website: avulux.com/
    Facebook: / avulux
    Instagram: / avulux
    Twitter: / avulux
    TikTok: / avulux
    Follow ‪@MigraineAustralia‬:
    Website: www.migraine.org.au/
    Facebook: / migraineaus
    Instagram: / migraineaus
    Twitter: / migraineaus
    TikTok: / migraineaus
    Follow Voyager:
    Website: voyagerau.com
    Facebook: / voyageraustralia
    Instagram: / voyagerau
    Twitter: / voyagerau
    TikTok: / voyagerau
  • บันเทิง

ความคิดเห็น • 60

  • @frankcooke1692
    @frankcooke1692 ปีที่แล้ว +13

    So looking like a total boss on stage is just a side-effect? Silver linings I guess. Your stage presence at Eurovision is just the coolest thing I've ever seen. Never thought I'd see the day an Aussie metal band would crack ESC. It's almost as surreal for us as I'm sure it is for you, and we couldn't be more proud

  • @intheknow6499
    @intheknow6499 ปีที่แล้ว +13

    As a migraine sufferer myself, I can imagine the hell you’ve been through to maintain your art, and I’m in awe of your will. Just incredible.
    As an Aussie metal head, I am truly embarrassed to admit I only just discovered you guys - especially as you’re from the same city as Karnivool 🤦🏻‍♂️
    Needless to say, mistake rectified and you now have a new fan, and I’m spreading the word to my mates! Best of luck in the semi - and the final (I have faith) - if you guys win, it will prove there is yet hope for our dismal species! Show ‘em what real music is🤘🏻
    Ps Please come to Tassie when you’re done conquering the world!!!

  • @winnied87
    @winnied87 ปีที่แล้ว +20

    Best of luck to you and your group at Eurovision! You're all so good. Rock on! ❤

  • @villebooks
    @villebooks ปีที่แล้ว +17

    Hello Simone, thank you so much for telling your personal health story and recommendations, like wearing tinted high quality glasses. I'm a former music manager, photographer, have been suffering on chronic headaches since childhood. Back when I was on tour, there was no safe place to retreat during any pain attack. Strobe lights were an issue, additionally we had to cope with smoke of cigarettes for weeks, which was also a huge trigger for migraine. But guess what, I was one of the first in the business wearing tinted glasses not just as a fashion gag. The quality of the lenses is very important, so I'm with you on that, giving new products a shot. It's woth a try to minimize triggering factors, and I'm thankful you've found a good solution for yourself to keep on rocking and be there for your fans 🥰🤘 all the best -
    Susan from Germany P.S.: you look awesome with these glasses!

  • @danielshultz8008
    @danielshultz8008 ปีที่แล้ว +1

    Simone you are fire ...an absolutely amazing guitarist...its great to hear you have a way of coping with your condition... thinking of not being able to see you preform live on stage..would have been a travesty

  • @Scarytoaster
    @Scarytoaster ปีที่แล้ว +12

    Oh wow it’s really moving to hear your story. I’m so happy you’ve found methods to help you find the way back to your Rock Star best! Can’t wait to see you rock it this week.

  • @7star7storm7
    @7star7storm7 ปีที่แล้ว +7

    Good for you 💖 .. Rock that stage at Eurovision 🇦🇺🤘

  • @AnrijsSirmais
    @AnrijsSirmais ปีที่แล้ว +1

    Hold on and good luck! IMHO Your are most epic guitarist in the world! Music cures❤️‍🔥🎉🎸

  • @meredithbigham-lloyd9441
    @meredithbigham-lloyd9441 ปีที่แล้ว +1

    Hi Simone, I've suffered from migraines for most of my 60 years and was getting up to 5 a week.
    So glad the glasses have helped but wanting to let you know my life has changed since being perscribed Ajovy.
    I went thru a long process of trying this and that but nothing has helped until now.
    Ajovy targets a certain protein some sufferers have so won't help everyone but luckily for me I must carry that protein.
    I might have a mild attack once a month now if that and manageable.
    I also belong to a great Facebook support site.
    Wishing you all the best and enjoy Eurovision, cheers Meredith S.A. 😘

  • @stinkylomax8917
    @stinkylomax8917 ปีที่แล้ว +3

    Nice to hear that you found a functional solution (help), chronic migraine is no joke. Best of wishes to You and Voyager in the Eurovision, you are by far the best of all contenders.

  • @mxtoiletparty
    @mxtoiletparty ปีที่แล้ว +1

    Voyager has been one of my fav bands for the last 10 years or so and I'm so glad that you didn't give up on music, because Voyager truly wouldn't be the same without you. Hope all goes well and I'm so glad you've been able to fight your way through all the struggles. GO YOU!

  • @Scottie_S
    @Scottie_S ปีที่แล้ว +1

    Simone, I feel for you. I'm so happy that you can still play music, and I'm so glad that you can continue your musical journey. I no longer can. I have Trigeminal Neuralgia and this has pretty much stopped me from singing and playing. I started playing in rock bands back in 1972 (I'm no spring chicken). In 2008, I was diagnosed with TN and it's like having electric shocks run through my face. I was able to continue for a few years after this, but as it became worse, I had to stop doing what I love.
    What makes me happy is watching and listening to people like yourself soldier on and create and play wonderful music. It keeps me pushing through! All the best to you and that bunch of rascals that you play with. You're fantastic!

  • @Adi-megatron
    @Adi-megatron ปีที่แล้ว +1

    Wish you all the best Simone ❤

  • @klistarf
    @klistarf ปีที่แล้ว +2

    So glad you found a way around the condition and can get on with your life, Simone. I am a newcomer to Voyager (thanks to Prog magazine), and over the last two or three weeks i have become almost obsessed with all things Voyager. Absolutely love the music and you all seem like truly decent guys with a great sense of humour, along with some phenomenal musical chops! So happy Simone, that you didn't have to quit the band and music. You guys rule! Best of luck in the Eurovision grand final, and i look forward to seeing you all in Manchester in October. Never stop rockin' 🤟😎🎸

  • @michaelhalsall5684
    @michaelhalsall5684 ปีที่แล้ว +2

    Wishing you and the band all the best in Eurovision!

  • @SteveJ0hnson
    @SteveJ0hnson ปีที่แล้ว +1

    Go Simmy, you are such a trooper!

  • @MoshpitMX
    @MoshpitMX ปีที่แล้ว +5

    A real warrior! Witnessed it first hand when they came to play in México... great to know you're doing better!

  • @keesvankooten1092
    @keesvankooten1092 ปีที่แล้ว

    She is great. such an inspiration.

  • @home8630
    @home8630 ปีที่แล้ว +1

    Thankyou for sharing your story. My headache migraine problem comes through music and sound. Its not the music and sound itself, its movement through the senses and my ears were damaged in my 20s, I ended up getting undiagnosed sensory deafness. Music to me is a headache and causes me to cry beyond measure, also I can stop breathing. Mine comes from serving my nation in the millitary. Music to me sounds awful, but for me to listen short term, I process in silence and I can hear in silence, and in silence its amazing because I remember it, every part. It doesn't matter if its a masterpiece, to me its a huge headache among other things. I would like music to be healing more than uniting. My son has problems with light sensitivity and can't be outside for too long, I will ask him about the glasses. Thanks for sharing about the glasses. Music shouldn't have to hurt.

  • @whoguy4231
    @whoguy4231 ปีที่แล้ว +3

    So sorry Simone for what you're going through. You're so brave and strong to keep playing for us ... Thank You for the amazing music xx

  • @yoshen433
    @yoshen433 ปีที่แล้ว

    glad you found a way of overcoming the worst of it

  • @Deanof316.
    @Deanof316. ปีที่แล้ว +1

    Best of luck, keep kicking ass and im so glad the Avulux glasses have helped you so much \m/ ❤

  • @JulieJ-xh9wg
    @JulieJ-xh9wg ปีที่แล้ว +2

    Simone, I'm so glad you have finally found relief from those horrible migraines. Working with you in West Perth - those bright fluorescent lights must have been so hard for you to focus and get through each day. The Avolux glasses look super cool!! Best of luck to you and Alex in the Eurovision Grand Final - Voyager rocks!!!

  • @kardiamit
    @kardiamit ปีที่แล้ว

    I'm probably no help, but I've suffered from migraines since I was a child. When I gave up wine, chocolate, sweets in general and cocoa, the problem disappeared! I can't believe such a simple thing, and I suffered for many years.

  • @Ravensoul93
    @Ravensoul93 ปีที่แล้ว +1

    I can’t even imagine dealing with that on a daily basis 😢 fladly I only have the occasional migraine, but this is heavy. So happy for you that you manage to be on stage and do what you love ❤❤

  • @kristie8245
    @kristie8245 ปีที่แล้ว +3

    So sorry to hear about your having to deal with chronic migraine. I deal with it myself and have found the only thing that has worked for me so far is Botox administered by my neurologist. I’ve seen the glasses and I’m genuinely curious on how well they’d work on me, I’m very interested to try them now that I’ve heard you talking about your experience with them.
    Thank you for doing this video! Best of luck at the ESC btw :)

  • @VanKirschHandbags
    @VanKirschHandbags ปีที่แล้ว +1

    You Legend Simmy! ❤️

  • @marcusdrew5713
    @marcusdrew5713 ปีที่แล้ว +1

    luv from the UK you should have won, hey but you gained an extra fan, and more will follow!

  • @jasminechavez7653
    @jasminechavez7653 ปีที่แล้ว +2

    Stay strong ok I know how hard it is for you to go thru that pain you know always stay strong at all times just like me after my long recovery of my back pain injury in 2021 it took me about a year to recover you know but I fought thru it from therapy and music therapy as well love you guys stay strong 💪

  • @dodotennekes4034
    @dodotennekes4034 ปีที่แล้ว +1

    Huge respect for ya!
    And quite glad the glasses helped you. I just discovered you guys today and you guys have already taken a place in my musical heart that I won't let go.
    Keep doing what ya love and make it happen! ❤

  • @Louisejames23
    @Louisejames23 ปีที่แล้ว +1

    You were great on Eurovision, I’m diving into the rest of the music now. Good luck with your migraines ❤🤘

  • @leviblack7036
    @leviblack7036 ปีที่แล้ว

    It's amazing how something like a pair of glasses can make such a huge difference to one's quality of life. I've had a mild form of photophobia since birth. I was always covering my eyes and even wore sunglasses since I was about 3. I was diagnosed by an optometrist when I was about 7 but still had no relief for years. I was the only kid at school wearing sunglasses. I'm 37 now and it has eased a bit since mid 2020. Depending of the type of light, colour temperature, intensity, etc it can be as little as making me drowzy to a burning or stabbing pain. I've had a few migraines and can only imagine what it would be like to live with them constantly. So glad you have found treatment. You all did so well at Eurovision. Loved it!

  • @landslug
    @landslug ปีที่แล้ว

    Im glad you found a way to manage your condition, it sounds awful.
    Congrats on your Eurovision performance, you all were amazing

  • @kimrecreant
    @kimrecreant ปีที่แล้ว

    So great that you've found a way to manage your migraines. You are such a great musician and performer. It's just fantastic to see you living your dream.

  • @Cibass
    @Cibass ปีที่แล้ว +1

    You are amazing, such a beautiful soul and a great artist, I hope it will get better and better, come back in France when you can :)

  • @AdeleTeapot
    @AdeleTeapot ปีที่แล้ว +3

    it's very interesting to hear from people with photophobic migraine while living with an osmophobic one. if only there were glasses for the nose :D
    looking forward to see your performance very much!! good luck and stay well and healthy 😙

    • @villebooks
      @villebooks ปีที่แล้ว

      so true, filter for smells would be a helpful thing

  • @josevasteli6676
    @josevasteli6676 ปีที่แล้ว

    Thanks for your testimony I like 💖💖 so much your work and good luck.
    Greetins from Camden NJ (USA) (sorry for writen errors Iam latino)

  • @dvxc
    @dvxc ปีที่แล้ว

    Simone this is a brilliant video. Thank you for sharing this with us - The Voyager channel should be just as much about the people and who they are than simply just the music they make, so this is a very, very welcome addition and I'm glad that you found an aid that was able to restore your quality of life again ❤

  • @RavenclawNimbus
    @RavenclawNimbus ปีที่แล้ว

    It's so nice that the rest of the band help you get through it! I love how you're all so close :)

  • @freas8520
    @freas8520 ปีที่แล้ว

    What is helping me (as a side effect) with my headache is my diet. Was on Keto for months, three years ago. Had a stupid relapse but now on track again with Carnivore. Will probably return to Keto once I hit my health targets like weight and energy.
    Both right ear tinnitus, headache and that damn carbohydrate-fog is but all gone.
    Best of luck to all of you, will be voting for you in the ESC!

  • @dreemsy249
    @dreemsy249 ปีที่แล้ว

    Inspiring 🫶🏻

  • @johngiuliosprich
    @johngiuliosprich ปีที่แล้ว

    Wohooo Simone!

  • @BlackMytilus
    @BlackMytilus ปีที่แล้ว

    I know what you mean... wishing you all the strength you need. Migraine is horror...

  • @seanbester1465
    @seanbester1465 ปีที่แล้ว +1

    I had painful migraines as a kid, but then they disappeared for years. This year, however, I started getting ocular migraines, and have had about 14 of them in the last 13 months. The hangover is always awful, and I'm sensitive to light for the first time in my life. Maybe I should look into these glasses.

  • @_beyouneek
    @_beyouneek ปีที่แล้ว +2

    Hi Simone, out of interest did you ever get Aura symptoms with your migraines as well in the past?
    Love your work, keep rocking 🤘

  • @robmitchell3864
    @robmitchell3864 9 หลายเดือนก่อน

    MY girl...

  • @MarkSmith-rb5ep
    @MarkSmith-rb5ep ปีที่แล้ว +1

    How are you simone. I suffered severe head trauma when i was younger and hence suffered severe migraines for years. I was sensative to light and sound. It was only when i started drinking freezing cold water did the migraines stop and continued to stop. Its the remedy that helped me, might not help everyone...

  • @MrBlablafishbla
    @MrBlablafishbla ปีที่แล้ว

    Try EES system technology from Dr. Sandra Rose Michael...☺️❤🌹

  • @bearcode
    @bearcode ปีที่แล้ว

    SIMONE

  • @Mark_Linford
    @Mark_Linford ปีที่แล้ว

    Hey Simone ..Check out the Carnivore Diet which has helped so many with so many issues .

  • @viviennemariaforde5027
    @viviennemariaforde5027 ปีที่แล้ว

    Oh how awful for you. So glad the glasses help.

  • @raffaelespallarossa1310
    @raffaelespallarossa1310 ปีที่แล้ว

    Hi Simone. I work with your mum. Tell her not to stage dive and run amock in the mosh pit.

  • @bestnarryever
    @bestnarryever ปีที่แล้ว

    as someone with chronic pain and hyperfocus, it means the world that you’re sharing this, specially because Voyager’s music rhythm and beat has helped SO much with my hyperfocus in the past two months since I discovered y’all! It’s insane, you truly changed my life 🫶🏻

  • @adamdaniellovkis3092
    @adamdaniellovkis3092 ปีที่แล้ว +1

    thanks Simone. confronting. love your guitar skills! awesome skills.

  • @quinzelshadow1951
    @quinzelshadow1951 ปีที่แล้ว

    This woman comes from falkirk braillent barins girl from falkirk in a rocking band that is voygur sad she has has chronic migraines which is horrible to have then a normal sore head but she dose braillent for what she dose for the band xxx❤️🫂