Long Covid + Histamine / MCAS - Dr Tina Peers in conversation with journalist Nicola Haseler
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- เผยแพร่เมื่อ 7 ม.ค. 2025
- Full interview with Dr Tina Peers on a possible cause of Long Covid symptoms. Download the PeopleWith App to record your symptoms.
I have these symptoms from long COVID.
I’ve never experienced anything like this from another virus.
How are you doing now?
That’s me. Thanks to Google and Utube I finally diagnosed myself and can now treat myself with supplementing with DAO and antihistamines.
Supplementing DAO has been a lifesaver for me
@@darthyoda216 for me too
yes ! me too !! I give my Dr the long list of symptoms and most of them get completely ignored.
@@darthyoda216 How do you afford it? Which brand do you get?
OMG the number of specialists and blood tests I've had the past 10 years with no diagnosis. If only one person had given me this information! Thank you. I watched this because of long covid, but I am almost certain it's the MCAS that I have been dealing with for years.
ISEAI dot org
International Society of Environmentally Acquired Illness. Good luck
I was so blessed to find this channel. I've followed the advice to the letter and now I'm about 98% recovered. Could be I had mitochondria dysfunction before the COVID-19 infection.
What have you done? Keto? Taking a histamine like Claritin? Anything else? I’m soooo happy for you!
Same here!! I’ve probably had MCAS for over 2 decades! This really needs to be recognized by more Dr’s!!! There would be considerably less suffering that people would go through! I diagnosed myself and am starting on Ketotifen tonight for the firsts time ever. I hope it helps my symptoms! Low histamine isn’t really doing much. I was down to eating 8 foods. 😒
Now I am doing the GAPS diet to heal and seal a leaky gut. I also have chronic Lyme disease. I will be getting some magnetic therapy for the Lyme and I go to see a specialist in MCAS to confirm a diagnosis of MCAS but can’t get in until the end of August! 😩
@@nomebear What do you do for the mitochondria dysfunction? Thanks
Why can’t I get a GP who has the insight, intelligence and courage that Dr Peers is showing in this and other videos. The GB News interview with Nigel Farage is a revelation and should not be missed. Thank you Doctor, you renew my shaky confidence in some doctors.
Are you on a FB support group ?? For MCAS
I am and got lots of helpful information and a Doctor that listens and treats long Covid and mcas
It seems like we patients know more about Covid 19 and its symptoms and how to deal with it than doctors. That was my hunch a year ago and I was right. Long story short, I have tachycardia, chronic fatigue, high blood pressure, and asthma. I cut carbs and started eating steak, fish, chicken, some veggies (lettuce and coleslaw) for fiber. I'm not 100 percent yet, but I feel a lot better. Anyone who's suffering from post-covid symptoms, change your diet to carnivore and/or keto.
I have the exact same symptoms. I’m glad I saw your post and will try your diet!
hey were you using salt? if so what type
@@lokomotive28 iodized salt.
This is me. Low histamine keto/carnivore. Thriving. Antihistamines and quercetin got rid of 90% of my long covid within 48 hours. Amazing.
@@elsie549 Hi 👋🏻
What kind of Anti-Histamine & Quercetin do you use?
This is a total eye opener and makes 100% sense from my own experience
The early symptoms from a auto immune response match with the cornucopia of long haul COVID-19 symptoms.
As someone who has always had high histamine levels, it's no surprise I'm now having major issues post covid. I'm now following a low histamine diet and taking extra antihistamine meds and hoping for to feel much better soon.
Hey there. How are you feeling now?
Do you know of a website that contains low histamine foods I could follow? Where did you find out which foods are good and bad? I hope you're feeling better.
@@Pfessor_Moriarty To begin, eat only fresh cooked - no heated-up food. Avoid for at least one month pre-cooked potatoes, rice and noodles.
@@Pfessor_Moriarty The best food lists are the Swiss Histamine List (considered the official list), and another list by Beth O’Hara. Can’t put the links here or my comment will be deleted.
I’m with you, good luck x
Also for those of us suffering from Long Vax (which is Long Covid without having had an acute C19 infection).
Last time i went to my GP she denied i have Histamine intolerance, denied that histamine intolerance exists and i left there crying cause she wasn’t taking me seriously and medical gaslighting me.
My immunologist Asthma and Allergy doctor that I had seen for years done the same thing she did the lapist test and said no you don't have it talking about mast cell Activation too I haven't been back to her since it only shows up on this test if you're in an active state
Same
Time for a new doctor.
@@womandela7225 They’re all the same. Big medical industry taught by Big P in the colleges.
They are pharmaceutical agents! 🤬
I'm sharing this video with my long-covid community sites.
Dr Mobeen Syed did some analysis on MCAS and Long Covid in 3 Videos starting 23rd Feb 2021
What an intelligent well spoken person. I am really impressed!
Both of them!
Zyrtec has been reducing my symptoms tremendously! I ran out for one week and began feeling miserable again.
Still taking Zyrtec? What symptoms do you have? Hope you are better
Wow. I will look into this.
Omg
I've been struggling with this.
Brain Fog
Anxiety
High Allergy Response
Neuropathy
Heart Palps
I'm starting on a antihistamine NOW.
Thank You for this. You have no idea how thankful I am you shared this
How is it going?
@@cp6uh88 still the same, I seem to have 1 or 2 good days out of the week
@@ladyvirgo013 Have you been taking antihistamines? Hope you get to 3 and 4 days per week soon!
@@cp6uh88 I did start on the antihistamines regularly. I'm down and resting today
@@ladyvirgo013 how are you holding up now?
Doctors were having me get tested for Mast Cell related disorders prior to my catching Covid and it eventually turning into Long Covid. Definitely related!
What kind of Dr tests for MAST cell ?
@@erocalypse21
I would say immunologists and allergists?
@@myla6135 thank you!
Same here. Ivermectin cleared the blood panels. The hematologist was stumped, had not seen blood panels clear that fast.
@@nomebear what do you mean by cleared the blood panels? What good results did u have?
I've been having problems since march 2020, some periods the toughest of my life. Taking the supplements and daily anti-histamines has in 2 weeks given me my first normal day in as long as I can remember.
What kind of supplements and antihistamines? I'm struggling hard!
@@anonp6455 39 mins in to this video (or watch the whole video if it's relevant to you) th-cam.com/video/NOkUDh3vHVU/w-d-xo.html
Which symptoms did you experience?
Yes please. I would love to feel better. I’m going on 3 years in November. 😞
@@angeliquesummers6460 hello love.. I hope you’ve been able to find some relief… this is all pretty new to me 😮 😔 I got covid quite awhile back but recently I’ve had horrible bouts of sinus problems, fatigue, body aches, headaches, and even a severe food allergy from avocados! Which I’ve never had problems with .. come to find out it’s high in histamines.. I’ve been taking over the counter Benadryl a couple of days before bed and I’m starting to feel better 😮.. I’m also fasting a little- just having one meal a day.. because I’ve read that can help when dealing with food allergies (This is something I’ve never experienced before now)… foggy mind, and itchy skin and eyes.. it’s going around my area and people are being told they are negative for any viruses-and it’s a “sinus infection” I believe it’s long term affects of covid now 😢 Sending prayers up for your healing ❤️🩹 and everyone else suffering from this! 🙏🏻🫶🏻 Lmk if you found out any more helpful tips! Hope you feel better ❤️🩹
I've been trying to connect all of this thank you so much!!!
Very interesting. I've had post-nasal drip and rhinitis for years and started getting chronic hives 10 months ago. Medical doctors only recommend antihistamines which I took for months, but I started going to a reflexologist and reduced the amount of "high histamine" foods. I have been hive free with no antihistamines for a month now. I've read about the mast cell wondered how getting covid would affect me. I'm just trying to make sure I don't expose myself to it because I don't want to find out.
Make sure your Vitamin D levels are optimal.
We can't get to talk to a gp on the phone anymore, never mind get a conversation like this with one.
it's incredible ever since I got covid I got all of those things ... allergic reaction to citric , vinager , process foods , avocados , also anxiety I got a panic attack once , it has been a crazy ride
Ten Doritos nearly killed me. I found myself in the ER getting an injection of Prednisone.
@@nomebear I have food intolerance (mostly carbs & sugar) I get tachycardia if I eat it. I was forced to changed my diet to meat, water, minerals, and vitamins.
@@nomebear duuuuuude that sucks bro :/
I’m so sorry to hear that.
@@platos9054 me too, did you get better tho?
Thank god for u tube
Very good presentation. Thank you. Unfortunately, in my case, high histamine levels were completely overlooked by many doctors. 8 months ago I started with Cimetidin at night and the symptoms became less over time. I also avoid pre-cooked potatoes, rice and noodles.
Did you have muscle pain in your legs (calves)? they gone ?
@@Aaaaaalex09 After 20 Heparin shots the muscle pain subsided by about 80%. But, I was also diagnosed with antiphospholipid syndrome APS.
@@swalexander6218 How did you know you had APS? by D-dimer or another type of marker in the blood test? the muscle pains were only in the legs? Or did other muscles hurt? How long did you have muscle pain?
@@Aaaaaalex09 Mostly pain in the left leg. Could barely walk or use steps. After D-dimer was over 4000, sonogram showed thrombosis. I demanded a referral to see a rheumatologist: diagnosis VWF II and V. Another referral to a hematologist: diagnosis APS.
@@swalexander6218 sorry to read it. My D-dimer is 0.004 but maybe I have micro clots, I dont know. All my test are fine but my calves hurts a lot.
I had post Covid bladder/kidney inflammation and other issues and got online and found I wasnt alone. I take Claritin now and Benadryl at night. Keto diet has helped tremendously but I feel absolutely normal on the days after I take Ivermectin. So I know for sure that helps.
Hi, how and where can I get some Ivermectin? I am a post Covid person and I needed help with the Covid aftermath! Thanks
Could mold exposure have the same impact? I'm coming out of a 15 month battle with histamine.
Yes
Yep
Yeap!
Definitely
Wow!! That’s great. How did you get better? Just cutting out the histamines in foods?
I contracted a mild case of covid at the end of Nov. Then caught a slight cold in Feb. that turned into sinusitis which needed Azithromycin to get better. I ‘ve been on Pepcid for two years due to reflux but it got much worse after my covid. So at the end of March my doctor told me to switch to Prilosec for a month to get my reflux down. Two weeks later I broke out in a very bad case of hives. Benadryl and Zyrtec didn’t even really help much. After more than a week of this I was turned over to an Allergist and he put me on 2 Allegra in the morning and 2 Zyrtec in the evening. At about the same time I was doing my own research on things and saw where Prilosec can cause hives so I stopped taking it. Whether it was the combination of stuff or just stopping the Prilosec, my hives began to clear up quickly. This video explains much and I’m surprised more doctors aren’t aware of this histamine issue with long haulers. Thanks
Regarding reflux/gerd: you may want to go on a very low carb eating regime. I've delt with gerd for 12 years. When I went on Atkins years ago it disappeared. I learn that every time I ate higher carbs for more than a couple of days the Gerd returned.
No doctor will tell you about eating low carb to address gerd but it absolutely works for me. Give it a try.
Hi .. i believe i have high levels of histamine .. causing mainly respiratory reactions .. i believe the histamines levels are affected by my levels of oestrogen and progesteron.. and the whole thing interplays with a dodgy / under active vagus nerve . BUT .. i always thought that my histamine levels help to protect me from serious virus like covid ..
im not exaggerating when i say that i can literally feel a foreign virus / bug enter the body respitatory system and my body react to it .
Ive never really seen a doctor to explain my theory / diagnosis .. but just self medicate and live with it the best i can .
@DJ Element Wow, now that’s a really interesting theory! Maybe that’s why I’m partially better the past 4 years 😳 Excellent comment, thank you for opening my eyes 👀
Hormones can interplay with mast cells.
Guys, need some general advise. Famotidine helps me a lot. I feel 80% better with my GI symptoms. Can someone tell if i need to take it for a lifetime, or a course of a month or more? Please share ur experience. Also want to thank Dr. Tina Peers for exposing the information. Very helpful!🙏🏻
I had the same thought! I was wondering if long covid was a result of histamine build up.
High histamine could be just a part of the puzzle. I believe that us Long Haulers might have Covid debris in the body and that’s why we’re still sick.
This is like talking about me for sure ...really helpful Thank you !
Thank God finally someone that understands , I've been dealing with this for months been to several specialist and they all look at me like I'm crazy .
Is there an updates on anything ? What I can. Do to breathe better I'm taking Allegra D daily it's not doing much still have them okay days and bad days
@@hollyeverhart5496 my ENT told me Allegra was very mild. I do Zyrtec 10 mg in the morning and Benadryl before bedtime.
@@bornwin-sx9oz I'll have to try that . I've been doing the Allegra D cause I'm always so congested. I've been to an allergist now and found out I'm allergic to cows milk and eggs. Apparently their calling it long covid it messes with your Mass cells , and your GI I'm a week straight now on a vegan diet seems to be helping some what. It's like a bad night mare that won't end 🤦♀️🥴 lol
@@hollyeverhart5496 I know exactly what you mean. I got this problem from taking pain killers for a bad hip. It must have destroyed my stomach. I’m fighting for my life.
@@bornwin-sx9oz I'm so sorry to hear that 😢 I'm also a recovering patient . 8 years clean but like u I think it's destroyed my stomach . Praying for you 🙏
Is there a difference between MCAS and histamine intolerance? Which one is caused BY covid or infections? What are the symptom differences?
Could this be connected to EMF sensitivity?
My son is suffering from long Covid and MCAS symptoms. He was young and healthy before Covid :(
Is he better now?
@@TheBushRanger. He is still left with compromised immune system and histamine intolerance. His diet is still very limited. But we are lucky he survived (his long haul doctor told him). He is back to work and some good progress.
@@kaylabryson1932
What symptoms did he have and how is his son today?
@@kaylabryson1932 how is your son now? Is he able to exercise now?
This is the first time I've heard this theory and it makes sense as a long-covid patient. I'm also a fibromyalgia patient and there is a lot of the same symptoms - could your theory apply to fibromyalgia as well
Yes that's what Dr Peers has told me, that she sees all these symptoms in auto-immune conditions, and that you are more likely to get Long Covid if you have a history of over-active Mast Cells.
@@nicolahaseler6513 hi nicola I am new to the channel. Absolutely love. Is there anyway I can contact Dr peers??
@@hanahjoe716 hi Hannah yes look up her website Dr Tina Peers and you contact her there. x
@@nicolahaseler6513 thank you so much xxxx
Warning about Keto: if you go that route, please be very careful about how fresh and how your meat is prepared. You might have a reaction and think you are allergic to a meat when you aren't but your meat might not be fresh or there's added ingredients to it.
It was very hard for me to understand why after having eliminated all sources of histamine I sometimes still reacted at random. It all had to do with how old my meat was or how it was handled. Chicken was a hit and miss until I had chicken that was 1 day from expiry. Huge reaction! We have since bought our meat from Costco (Canada) where it's all fresh (or if not we pass) and I've not had the same issues. That's how I realized freshness was essential. Tenderized steaks? No good. Fresh ground beef? I can eat. But I had to switch provider AND we cook it as soon as we get it, then freeze promptly.
Hi, I had Covid-19 in August 2020, after 8 months, I still have some Fatigue. And some problems in nose, sinuses.
Runny nose, and the occasional two hour nap in the middle of the day. But I'm about back to normal.
try oregano oil.
Great ,listening to this lady make me think my mum has MCAS,Sevarei ,my long life IBS could be genetic from mum also MCAS ,wow a late diagnosis.Now I will learn the triggers and what cool the fire.Wow wait to the end ,philosophy,wait and see medicine,open and see surgery.Thank you.
This happened to me after Covid. Did anyone’s symptoms improve after following a strict diets ?
Hi thanks. There is a lot of talk in the last few weeks on long haul forums on this - people getting diagnosed with MCAS Mast Cell Activation Syndrome. I don't understand the connection myself, but I wonder how this is connected with cytokines and the excess bradykinin that has been detected in covid patients?
They are both chemicals released by the Mast Cells.....if you have M-CAS you release too much.
Mast cells produce and/or release over a hundred different chemicals including histamine, heparin, tnf, Proteases and cytokines.
So just take antihistamine?
So I’ve had some similar symptoms and no one can figure out what’s been going on with me. I was told I had somatic syndrome disorder and anxiety
Don't take that for an answer. Was told at 12 years old in 1992 that my pain was somatic. BS! It was fibromyalgia which then turned into chronic fatigue syndrome (diagnosed officially by top doctor in Canada), and then add on dysautonomia and 3 years ago when perimenopause started I get hit with histamine intolerance. Worth finding a doctor who will believe you. Younger ones nowadays are trained to these illnesses a lot more than old doctors (unless those older doctors specialized in the field). Frankly though meds haven't done much for me except mess me up, except a diuretic which cured my migraines. But now I'm dealing with perimenopause making histamine and dysautonomia so much worse. That is why you want to get diagnoses BEFORE you may end up with something worse.
Has bone mass and/or bone weakness and muscle atrophy and/or muscle weakness been attributed to long covid or the covid vaccine?
Yes. What do you fell?
I’ve never had allergy in my life until I caught a cold/flu 9 weeks ago. I have allergy that burns and tingles my skin with many triggers. Yes it does cause histermine intolerance.
How arw you now?
This is very helpful for both my son and I.
Disappointed that the treatment (besides anti histamines) was not addressed.
We have done that video, I'm working on editing it.
Anyone with severe enough chronic fatigue syndrome (ME) will tell you the symptoms are very similar to long covid. However, I didn't have any histamine intolerance until perimenopause. But many among us even before covid have complained of hypersensitivities (it's part of the secondary symptoms). A lot have dysautonomia as well. So there might also be a link there but something is sure, all conditions seem linked to similar central nervous system issues.
Great explanation, I get all of those and pots , but also before Covid start point. I have had Doctors laugh at me... prescribed Topamax , steroids and an inhaler...
Such a useful video. I've had no standard Covid symptoms but developed 'Covid Tongue' around 3 months ago and have felt progressively worse since then. I've been on a low histamine diet for around 3 weeks but my tongue still tingles/burns whenever I eat anything (avocados and bananas are the worst). Suspect I need to continue for a few months to see if it helps. So frustrating as I've been on an AIP diet for a few years - didn't realise how high in histamine it is??!
I had COVID 3 months ago, and I'm convinced I too have covid-tongue...it's bizarre and my tongue will occasionally burn and I've been on a very high dose regimen of probiotics and digestive enzymes for about 6 plus weeks now, but I think it's going to take a lot longer for there to get rid of the tongue issue. I definitely need to look into this low histamine diet and see if that helps.
@@beezer81 Some probiotics make histamine worse - it's complex so check out from whatever you're taking
I had covid/ burning tongue too and liver support helped. Alpha lipoic acid, choline
@@beezer81 how you today?
@@beezer81
I have a white tongue (3 months). Have you gone?
What about fibromyalgia?
This is really interesting. I have long COVID symptoms but from a different infection I got 5 months ago. It’s caused me POTS and debilitating brain fog. What’s weird is that after I got sick with this infection I started reacting to things i never reacted to before, but it was always just hives nothing crazy. I wonder if I’m dealing with some sort of MCAS. Before I got sick I was normal and healthy, now I have horrible brain fog every single day and tachycardia. Oh and the anxiety is 1000x worse.
Can i ask how are you now?
Dr Berg says that B1 deficiency could be the problem? I developed neuropathy after the 1st Pfizer vax and can definitely say that I now have food intolerance to histamine foods...
@@LoriGreco I inject b1 and tried oral supplements. Nothing change
@@alperenylmaz1344 Sorry, just now seeing this. I am unfortunately in the same exact spot as I was when I posted that comment. I am considering getting a Stellate Ganglion Block procedure done as it's been helping others with long covid recover.
@@ryleeavila7854 If u get and see any improvement can u update this post?
I will make more search on histamine
As u were a long hauler, what were ur symptoms, u had shortness of breath ?
Yes, and cognitive disfunction, delusional thoughts, blocked sinuses, terrible fatigue.
How long do you stay on AH's tho ?? I l love this Dr !! THANK YOU THANK YOU
I’m in London - how can I find this doctor? Been suffering since age 21 following Epstein Barr virus - was just about managing till I got covid - now I m really suffering ( age 44) feel like I’m bordering on dementia/arthritis/age88. I live on avocado spinach and salmon - never heard about this histamine food thingy before! I’ve been gluten dairy free fkr years, done many cleanses - maybe this is the missing link ? Thank you fkr sharing xx
She is in London Dr Tina Peers. Avocado and spinach very high in histamine. Good luck!
@@nicolahaseler6513 thank you I’ve found her website. I also had extremely early menopause so she looks perfect as someone who can pull together all my issues and tell me how to manage them. Been doing it myself for too long now 💜
Avocados, spinach are higher histamine foods.
Can histamine cause severe hypertension?
No,i actually heard it causes low ,I have it extremely low precisely cause of histamine
Not sure but very possible since Mast cells can produce and release over a hundred different chemicals that have various effects: Proteases, cytokines, heparin, prostaglandins etc. They can cause blood clotting and excessive bleeding also.
What if histamine production is a protective response to poisoning?
This is exactly my story. Doctors do not understand this.
So does long covid eventually go away? This has to be whats going on with me. I've been sick for months .....
God I hope so. Been 14 months!!!
There is a group of doctors who can help.
ISEAI dot org
International Society for Environmentally Acquired
Illness.
Update Mark?
@@matthewdunne8432 are you better?
yeah so many people having histamine issues, and i was always saying viruses can be culprit, even before covid. When I got herpes virus, same happen to me, my body just overreacted and i became food intolerant since plus eczema problems. I remember i was telling my doctor i think herpes causing me all this symptoms, fatigue, eczema, joint paint, shortness of breath, and he is like no herpes is such non problematic virus most people have it, something else is going on. I remember I was like this doesnt make sense, like your body doesnt just go from one day being perfectly fine to another day going crazy. Only thing that have changed was me getting infected with herpes virus. Took me years to figure it out what is going on, and I think i finally have an answer, but i guess still no solution eheh (well all meat diet fixes it but i would not call that solution).
What about taking 800 mg of Zovirax or whatever you use 14 days? I’ve seen that work for some.
@@Motherhen89 I take valtrex and definitely helps, but its so heavy on the liver, and I can tell my liver and gallbladder gets affected by it, so I try to use it in moderation and avoid as much as i can. Especially considering that all meat diet works so good and it is natural and no any side effect, well besides being too skinny i guess.
@@markospas Put a link: why does all meat or carnivore diet work so well for inflammation ? I try fast 6 pm to 10-11 and eat keto/high protein.
@@Motherhen89 yeah i dont know I wish i could explain, but thats something that worked best for me and puts everything in remission andmakes me more tolerant to veggies after. I read online lots of comment why carnivore diet works but yeah who knows, I think it definitely has to do something with microbiome. I hope someone will be able to explain one day. I do fast usually 16-18 hours since i eat one meal a day, sometimes I fast even for couple of days, and it works, but non of that is a fix. Soon as I start introducing any kind of plants, my symptoms comes back. Some plants affect me more than others, but I do react to all of them, and that was not case before, i never had allergies when growing up and was super healthy
People with App? I can not find it.... Can anyone help me to find it?
Can you measure high histamine with blood work?
You can test DAO enzyme levels in your blood, that'll give an indication as to how your body is reacting to the raised Histamine levels.
This might also help those with Covid Vaccine Injuries which has many of the same symptoms as Long Covid.
Would be nice if app was available in Canada! Hope you find solution...
Dr Hyman has a fantastic Utube research based
Yes he’s great! So are his peers.
this may explain why my "healthy diet", filled with fermented foods, citrus, & avacados, green tea isn't helping! i have had long haul for 1+ yr. & have recently seen a significant UPSWING in my already severe symptoms.....
Hi Wendy - yes I think you're right. Kefir sent me backwards with my brain fog. Green tea is awful for me too.
Years ago I went to a private environmental allergy clinic. It cost a fortune and didnt really help. I wouldn't recommend them. I was told i had immune complex disease. I spent a fortune on neutralising vaccines but they didn't help that much. I later received from the NHS Enzyme Potentiated Desentisation injections. These helped esp with inhalants and chemical sensitivities not so much for foods. The NHS dont offer these anymore. Prior to having a severe viral infection I didn't have any sensitivities nor allergies. At an NHS clinic I saw the ENT and he did skin prick tests for inhalants. They score 1-4. 4 being the most reactive. I scored a 4 with house dust/mites, cat, tree pollen. Again prior to my viral infection i had none of these issues.
Hi I have chronic hives now....
Fabulous 💓
I'm having to use closed captions to understand her. Is she saying marcels, mast cells, or muscles? Even captions is having trouble.
mast cells Mast Cell Activation Syndrome
Any updates on this? Hopefully some data has been gathered in the past year. 🙏🏻
I hope so too. I’m waiting for an update from Dr Peers on her findings, and looking at other research - in between my 2 day jobs.
My son has Ehlers Danlos Syndrome and MCAS. Doctors know nothing about those!
I have both conditions too, and yes, drs know pretty much nothing. That’s why I’ve been educating myself by listening to Dr Anne Maitland who has been doing lectures at EDS conferences. It’s so difficult having to become our own experts in these conditions. Much love n gentle hugs to you and your son. X
@@TheKayannh hugs back to you.
You might be interested in a lecture by Dr Andrew Maxwell of Pleasanton, CA on TH-cam: "Pentad Super Syndrome" on "The ILC Ehlers Danlos & Chronic Pain Foundation" TH-cam channel. Dr Maxwell is a Cardiologist that links: Hypermobility, autonomic dysfunction, MCAS, auto immune syndromes & gastroenterology symptoms into a super syndrome common in many with hEDS (Hypermobile Ehlers Danlos).
@@darilekron4590 Thanks! I will check it out. My son does have autonomic dysfunction and lots of Gastro issues too.
@@mrshadenoughofallthis911 Cervical Cranial Instability can also aggravate autonomic nervous system due to irritation of the Vagal nerve.
What is the app's name? Cant find 'people with'
It’s one word :)
Thank u for this information I have this symptom
is Nizatidine helpful ?
My ddimer was elevated when I went to the Er for left chest pain. The docs ran all test all scans and there is not one show of a blood clot. Could long haul elevate my ddimer? My ddimer was elevated a year ago and still no blood clot
How are you n my ddimr is high as well post COVID
@@waxkabarochannel9071 I’m well!
Yes D-Dimer is one of the few biomarkers available for detecting Long Covid
Hi, I'm trying to download PeopleWith and cannot find it, I'm in Canada, is that why?
Yes it's UK only as north American App licenses are extremely hard to get, the developers told me.
@@nicolahaseler6513 hi what is the name of the app? Please
@@gia1433 PeopleWith but I believe it’s only available in the UK
The NHS doctors should be watching this , it seems my local GPS are very uneducated or just can’t be bothered.
Strict keto works plus no histamine stim foods coupled with ibubrufen and antihistimine tabs!!
what you guys think about eggs? its high histamine food that should be eliminated for long haulers, right?
Just eat the yolks, that’s where most of the nutrients come from
Chronic sinus infections? Allergic to mold?
My case is unrelated to covid. I was diagnosed w mast cell activation syndrome 3 years ago by smart functional medicine Dr. Mine triggered by certain foods .
I'm concerned about the vaccine setting me off. Taking my chance on virus at this point.
Obviously you have to make your own decision - I was much much worse with the virus than the vaccine. Vaccine effects lasted a week. Virus effects lasted 14 months.
Please consider the vaccine over the virus. I had IBS and thyroid issues before I got Covid, but post-Covid I’m having everything described in this video and debilitating migraines every day for three months now, as well as nerve damage. I can’t work and it doesn’t seem to be easing. The viruses after effects are crippling.
Yes i had this, so true! And yes normally im already allergic.
I cannot see the app in google play store?
It’s called “peoplewith”. Found it in the Apple app store
@@navdon12 It's not in the Google Play Store today, 19. 10 . 2020
@@erikschaepers hmm... maybe it’s a uk only app?
@@navdon12 could be , who knows?
Thank u
strange how long covid patients and Drs dont want the label of Myalgic Encephalitis = ME
This is me
AVACADOS , SPINICH ETC.... she says are high histamine. She is a bit off. The truth is we are all different. What foods cause reactions in some folks DO NOT in others. We are truly all unique. Go on the cameman diet for a couple weeks , sort yourself out...add foods back in slowly to see which foods you react to
Those foods would be important for someone new to managing their histamines + symptoms to omit in the beginning tho. You or I might be able to tolerate those foods or even have them a few times a year without much consequence... but someone resetting their histamine needs to omit them. She is speaking to long haulers whom this information is new for.
do you mean "caveman" diet?
I just ate fresh-cooked beef only for two weeks and added antihistamines and niacin. Felt tremendously better!! I am now trying one additional food at a time and have cleared multiple protein choices and a few low-h vegs so far.
@@judymiller5154 what antihistamines do you take?
@@cuppajo0213 I just used what I had on hand for my summer hay fever - 1 loratadine and 1 pepcid at bedtime, then 4 chlorpheniramine (or ceterizine) throughout the day, also 100mg flushing niacin after lunch and dinner with an aspirin to calm the flushing. It really gave me improvement! When I have a handle on the diet, I'll experiment with decreasing the meds to save them for flares.
😮
and in lyme 😶
Take telfast
Stop blowing your noses. Ya ya. How about some vitamin D and aspirin? Works!
Ummmm nope #NoJab4Me
I'll take #Ivermectin instead thankyou.
#GeneTherapy #EmergencyUseAuthorization
Zero advice or help!👎🤔
Why?
@@nicolahaseler6513 The Dr. was providing same information us Long Haulers already know. I've viewed nearly 50 videos and have read so much, so thus far my findings are Dr.s do not agree on treatment protocols, symptoms like Fantom Smells, Lack of Taste and Smell. Nurses seem to lean on a cure more and are seeing much more promising results with OTC Antihistamines. There is something very promising!
Thank you very much for asking.
@@cowgirlval5216 thanks for reply. Actually this video was published a year ago, and some of my other videos were aired on the BBC in autumn 2020…..so I have been talking about histamine, and how anti-histamines and a change in diet can help, for a very long time. I’ve been reporting on this since 2020, so I’m glad to hear you find the information is now widespread. The message is getting out!
I’ve experienced all of these symptoms and have found relief through over the counter Benadryl… but make sure you know it’s safe for you to take… good luck everyone ❤️🩹❤️🩹❤️🩹
What was the reason you started taking them ? What symptoms wee you having ????
@@dianasa952 actually it’s crazy you’re asking this right now… because I’m actually having a flare up at the moment. I started taking them because I was experiencing symptoms that feel like horrible allergies. Me and my grandson both have the same symptoms at the same time when we have a flare up. So I know when it happens we don’t have anything contagious… because no one else in the family ever has the same issues it’s just us. My daughter was taking him to the doctor every time it happened… and they just kept saying it was his allergies and telling her to give him antihistamines. I started doing some research and coming across lots of other people having the same experiences and it’s been like this ever since we had c19. The symptoms are like a cold kind of… stuffy nose… achey … headaches and sometimes coughing and shortness of breath. The antihistamines help ALOT. I also take ibuprofen for the achey body symptoms. When I’m having a flare up I have to also be careful about eating foods high in histamines (avocados is one of them) because that seems to make it worse.
@dianasa952 I'm sorry love I'm just now seeing this 🫠 it was lots of symptoms that felt like allergies and stranger reactions to foods... especially avocados and spinach... I did a little research and found out those foods are high in histamines. I was having very dry skin and itching... my hands were so dry and itchy... strange rashes... especially if my skin came into contact with something high in histamine. Stuffy nose watery eyes. So I figured it was just allergies and got some benadryl. Also I had been extremely fatigued. To my surprise when I took the antihistamine it actually helped the fatigue! I took a HALF dose though. Something else I've started doing since is eating some local grown honey every day. I believe that's helping whatever this is because I haven't had to take the benadryl in a while. Hope this helps someone 🙏