Charcot-Marie-Tooth disease

This video featuring people affected by Charcot-Marie-Tooth disease (CMT) and specialist neuromuscular health professionals is an introduction to the main facets of CMT and the support that is available from Muscular Dystrophy UK.

[@brianlawson363]

Just found out that I have CMT. THANK YOU FOR THIS GREAT VIDEO.

[@gamergirl5231]

Great video!

[@dryoutube]

Great video. CMT is a hereditary (genetic condition) that causes motor (muscle weakness) and sensory (numbness) neuropathy.

[@PIXELSURPRISE]

And severe stabbing pains in a few of us

[@barbeebirdee2389]

Read "A Piece of the World" by Christina Baker Kline, which deals with a person who probably had this condition at a time in history when no one understood it. The character in the book is a real-life person who was often a main person included in Andrew Wyeth's paintings.

[@brittoncromersr9280]

I got cmt can u help me wit info

[@rebekahbrown4052]

No specialist I’ve ever been to including those at the MDA clinic in the US has ever done a damn thing for me. They have made my condition worse. The doctors are horrible in the US

[@roycemcmahon6940]

No kidding the MDA clinic is a joke, I refuse to go to another Neuro Specialist as I feel they know next to nothing about this disease. My Eye Dr knows more about this disease than all the other Dr's I have seen thru the years.

[@poonamsvideoblogs]

The best info and help I have ever gotten is from other people. Facebook group too.

[@martyrmessiah3903]

It's caused by a "manipulated" and "modified" mutation of the POLG1 gene.

[@munster6398]

just told today I have it

[@MuscularDystrophyUK]

Hi there, if the is any support that we can offer with information on the condition, healthcare, or getting in touch with others than please do get in touch with our freephone helpline on 0800 652 6352.

[@KarenNewtonCanada]

I can't hear the second person. Why is she whispering?

[@daleval2182]

It effects your lunge function, so turn up yer device, or get a hearing aid

[@Anna-tc6rz]

Tbh I kinda wish I had this reduced sensation. My feet hurt al the time. All. The. Time.

[@marshallmargolis3874]

No you don't want this disease

[@daleval2182]

Study ala and B1 suppliments