After 11 Years I Was Finally Diagnosed With Early Onset Parkinson's Disease |
ฝัง
- เผยแพร่เมื่อ 1 ม.ค. 2020
- Parkinson's disease usually strikes older adults, so doctors didn't believe that Christina Korines, 35, had this neurological disorder. Instead, they blamed her tremors and pain on everything from anxiety to ADHD to psychosis.
www.health.com/condition/neur...
Want to see more Health videos? Subscribe to our channel!
th-cam.com/users/subscription_c...
Connect with Health Online
Health Video Channel - www.health.com/videos
Connect with Health - www.health.com
News & Views blog - news.health.com
Facebook - / health
Twitter - / goodhealth
Instagram - / healthmagazine
Pinterest - / health
Social Media Terms - ow.ly/vmqPl - แนวปฏิบัติและการใช้ชีวิต
Thank you for putting this up. I am going to see a neurologist soon. My primary care doctor did a bunch of tests today and told me that it is a high likelihood I have Parkinson’s. Unfortunately pretty much every symptom on the list for early symptoms I’ve got. I am scared as hell right now, I am a 29 year old man and my wife is fighting breast cancer right now as well. Seeing this gives me some hope. Thank you!
How are you doing, brother? I am 28, almost 29, gonna get it checked out. I have a ton of the symptoms. Did you "act out your dreams?" I do that occasionally which is a big red flag.
I hope both of you get through this ,whatever the results are and find the peace within yourself.
Fuerzaaaa
I know I don’t have Parkinson’s, but I do have a panic disorder. The fact that the doctors dismissed her symptoms as anxiety is a big reason why people with panic disorders fail to get better. Doctors are so easy to contribute these things to anxiety, so when you have an actual anxiety disorder you never know when your symptoms are anxiety or something more serious. You can see why most easily spotted cancers are not caught until their later stages.
Yes, there was this one woman on TH-cam who had throat cancer. They told her it was anxiety stuck her on Prozac. Such a sad situation. Doctors should be held accountable in these cases.
yeah that's what makes my hypocondria way worse is that doctors seems to blame stuff on other symptoms when there's red flags every were
Same thing here, I was treated but didn't respond well to mental health treatments in my 20's. By my late 20's and early 30's, we finally started figuring out my other chronic illnesses that I had been told were "health anxiety". I have a primary immunodeficiency, and lung damage from my infections being dismissed by doctors. I've also needed 4 surgeries on my ears and sinuses because of the damage done by frequent ear and sinus infections that doctors would just blame on how I was washing my hair wrong or other dumb stuff. It's sad that they go to depression and anxiety first without ruling out other conditions. Especially when your bloodwork is screaming abnormalities.
I am 15 year old and facing the symptoms 🥺 please pray for me 😭
How you doing now
I hope you have seen a qualified doctor. These symptoms can be other treatable issues. Best wishes.
Praying for you
Me too bro
Plz look dr berg parkinsion tretmnt in youtube it will difently help❤❤
Stay strong you got this…. I was diagnosed 2017 just had brain surgery six months ago doing great.
I'm so glad you're doing ok
im under 40, damaged by forced injection overdose that left me with parkinsonianism. i already had white matter disease before being crippled by functional tremors and sometimes being unable to walk hardly. the tremor seizure episodes suck. cant wait for heaven now.
So sad. :(
Thank you for sharing!
Thanks for sharing.
Thank you.
Lovely lady with a great attitude
So sorry it took so long for a diagnosis 😑
You're a beautiful person and you have an amazing family. Good lock
Well done to you
This is quite a contrast to my experience. I was diagnosed quickly with Parkinson’s last year only to struggle with symptoms progressing far too fast for PD. Now that I’m seeing a proper movement disorder specialist my diagnosis is likely changing as well. I should know soon. I do want to thank you for making this post because it looks like I have been misdiagnosed as well and it’s been such a struggle and the point of advocating for yourself is so immense. I went and scheduled my own visit with a movement disorder specialist and told him I had a referral even though I didn’t have an official one just to get in the door. So far it looks like I may have been right about what’s going on with me…
Wow inspiring story thank you for sharing.
Seeing this video gave me confidence because my mother was recently diagnosed with Parkinson's Plus...😞
I was in my 60's when diagnosed. I have a left leg tremor. Prior to that I had noticed what felt like an occasional internal humming or vibration in my gut off and on in my 40's. A first cousin has it. My dna test @ 23 and me showed the marker for PD showing I had a chance of having it. My father lived till 96 but developed late parkinsons symptoms without tremor such as soft voice, lack of facial expression, balance problems and eventual dementia. My first neurologist visit in my 50's said no to a PD diagnosis. I'm hopeful for the work being done in genetics to end this plague.
And please end the RLS Plaque too !
Remember what this lady said about the anti psychotics making her feel like a zombie and making her symptoms worse. Doctors prescribe the drugs she's talking about for a wide variety of conditions, and the effects can take months or years to wear off. It would be nice if you had told us the name of the medication she took that needed up helping.
I love this. How do they diagnose this?
Im currently on vyanese as i was diagnosed with ADHD last year. Ive had the fine motor issues since teens but now at 28 i have myoclonus alongside more or less all non motor symptoms
I have pretty bad PTSD and haven't done anything about it. 4 days ago I was sitting and my hand started tremors, the tremors have mainly stopped but the weird feeling in my muscles remain, also nausea.... I'm honestly scared
I had the same problems started. I lost all function one day at work and ended in ICU being told you have Parkinson's. Its not easy. I just started medications which she is right no day is the same.
Thank you for sharing your story of strength and courage You are an inspiration!! I’m in the middle of this right now. I’m diagnosed with Tardive Dyskinesia. But I have bradykinesia and tremors at rest, rigidity. The only thing I did not do in the exam was shuffling, but I notice that I do when I’m tired or have to walk a long distance. So I’m very confused. I’m 47. For me, I went to see my neurologist due to memory loss issues and severe brain fog. I am being given an EMG tomorrow. I just want a clear diagnosis
dont despair youre not alone
Have you had a heavy metal test done specifically for Aluminum?
I've been really upset about it and I just haven't contacted my doctor I've just been trying to deal with it I'm currently prescribed just propanol low dose it does seem to help I probably spelled that wrong sorry but it doesn't take away the tremors it just helps a little bit I don't even have high blood pressure but this is what they're giving me whether I take the medication or not the tremors are still present and it's very stressful but I am going to try to get to the bottom of it thank you for sharing your story because I know there's something happening to me and I'm not alone
Wow how far has medication come and yet because a doctors self opinion deems something impossible.......you don't get treated......yeh that's why am suing nhs because of complete blundering with my medical negligence towards me other a period of time of 3 year's and yet a doctors opinion still is taken as the right answer and not any medical information or treatment, its a lot like how there r still doctors out who do not believe in adhd and because of this so many people go undiagnosed all because a doctors OPINION outweighs medical practice and knowledge!!!
Hi. I was diagnosed about 2 yrs ago due to a dat scan. I symptoms for yrs. I told my gp that my hands were shaking. It finally got to the point that i was dropping. I told my gp again. She claimed i never told. She sent to a neurologist who sent me for a dat scan. After looking at it he diagnosed me with parkinsons. I really hate the meds. Cardopopa levodpa. He says my insurance wont pay for the others. I think i am going to ask him about dbs.
Do you have a web page or email do discuss your journey? I’m having some similar issues and it would be great to connect.
I have a daughter who has special needs and is non verbal. Every time she gets sick especially fever and vomiting she gets the shakes. Her hands shakes and so does her lower jaw. She gets a funny gait when she walks; she ends up picking her right leg and stomps it. Her balance is off too. I just want to know if you ever had tremors in your lower jaw? She was five years old when they did an mri but nothing was found. She’s 25 now.
So ..I have cerebral palsy..but I also think I maybe developing this..in my case I usually get the tremors in my eye ..i get very tired ..wake up without getting a full night sleep..I have alot of mood swings ..I recently told my doctor I have these symptoms and she brought this up...I kindna freaked out because again I already have cerebral palsy..
It happens in Ms also
I’m 27. Symptoms started after pregnancy. Still no diagnosis. Not sure what I have still. But interesting that your symptoms got worse with pregnancy. My symptoms do not seem to fit perfectly with anything and it’s tiring searching for a diagnosis. Thanks for sharing.
Hope you get better. Im not a doctor but it can be side effect after pregnancy maybe
@@gfeggrowtopia765 was diagnosed with fibromyalgia ultimately
That sucks, hope u doing better and getting good medicine.
Thank you at this time I'm suffering from progressive tremors they are mostly resting it has been a progressive thing I do have a great doctor but I'm still at the beginning to try to figure everything out I do have a neurologist but she was typical to basically just say that my tremors are mostly physiological and neurological and that I don't have enough muscle rigidity and my age does not meet the criteria of Parkinson's even though my tremors are getting worse I have them on my left leg sometimes my right leg all the time in my hands I'm constantly shaking it's very discouraging and stressful because I still have to have an MRI brain scan but the neurologist flat out said that would be a waste of time to do it's very discouraging when you have doctors who just simply want to brush it off
Hey, how ypu doing now
Related for this made me think of Michael J Fox, if you have been diagnosed lyme disease, keep an eye out for Parkinson symptoms. It's not uncommon to hear people who get Lyme disease later deal with Parkinsons. It's also common if you develop epilepsy after getting Lyme disease to where my first neurologist (before i had to change due to insurance) said he wasn't shocked.
Michael J Fox even had Lyme Disease before being diagnosed with Parkinsons around 29 I believe. I think there is a correlation and I am not the only one. There is a high possiblity since Lyme Diease the longer it is left untreated (and not taken seriously by the CDC and FDA) the longer it attacks everypart of the body, inlcuding the mind and contirbutes to the body degenrating over time. Even the "cure" for Lyme is bs.
You don't need the bullseye rash by the way to be certain you got it, 30% of people don't get it and that was only when causion to tan people were tested, I can't say for certain other skin tones.
How I know? I live with Lyme and I am going to check if i have Parkinsons... a little nervous won't lie.
I cannot stress to people on this video how important this comment is!
I was diagnosed with Lyme disease in late 2020. I did a plethora of antibiotic treatments and holistic treatments but my symptoms never subsided and progressed despite testing negative for Chronic Lyme//Lyme thereafter. After months of positive neurological tests and skin biopsies, in October I was diagnosed with Pure Autonomic Failure, another neurodegenerative disorder similar to Parkinson's but more rare and fixated on autonomic functions rather than mobility.
If you suspect you may have Lyme disease, don't wait and test for co-infections! I had perfect health beforehand and now I am 23 having to re-think life plans and goals in order to accommodate for my new circumstances.
@@TheUpsidedown44 be sure to have a GI map test done with a doctor who can help you interpret it. (It's a test done on a fecal sample.) I started having significant and startling autonomic dysfunction and parkinsonism symptoms but made changes to my diet and supplements based on the GI map results and they made a big difference for me. It wasn't a cure, but definitely made a positive change and reduced the severity of many of my symptoms
Gutsy video. Thank you. I'd be interested to know whether there were nightmares and un-refreshing sleep as precursors to your PD even in your childhood..
What symptoms of parkinsons led them to have misdiagnosed you with psychosis though....
Usually, being female
How come all these parkinsons patients box and stuff? I was a boxer before my diagnosis and used to have a very powerful uppercut, but by my 20s, my punches were not just very weak, but hitting padda and bags started to injure my elbows and hut my back. Ive always assumed this was the twisting caused by dystonia creating unnatural joint positions, and i had to give up boxing, but i keep seeing videos with people like this video, in which people can strike without joint pain. I also cant run, kick, etc because it all affects my joints. Wtf.
Sorry you're going to be bombarded with my comments but just a few minutes into your video I'm starting to cry because that's pretty much the current situation for me there was no denying that I have tremor disorder resting tremor disorder but the neurologist passed it off as a central trimmer and to just go over it with my doctor she literally said to me straight up this is mostly physiological and it may be due to anxiety which I've had anxiety for years it's just very discouraging when you have a doctor who just simply passes it off as nothing basically my tremors are getting worse I'm learning to deal with them but I am going to have to pick up and get to the bottom of it with my primary care doctor and just go ahead and do the MRI if it shows nothing then it shows nothing but there is something definitely happening to me
*essential tremor disorder
Hey how are you doing now? I'm 21 and have intense tremors at rest. The doctors always ignore parkinson as a possible thing for me bc of my age but the medicines they give don't work at all
I am getting facial pain from couple of years face seems to be getting squeezed undiagnosed from couple of years i have shaky body slight tremors in fingers and toes haven gone to multiple neurologists and ent nobody could find any thing but from couple of years my face seems to be getting squeezed and i have headaches
What is this actually any idea
If neurology is not coming back with anything look into Lyme disease and co-infections! It can cause a lot of neurological complications.
I really need help. I'm trapped in seam disease for15 years. I don't no how get over it.,Please contact with me if you see my comment ❤️
I feel for u .
40.... 12 years in... work it
Great things Dr Madida on TH-cam has being doing for mankind, I undergo his Parkinson disease treatment plan for weeks and my Parkinson Disease was completely reversed.🎉
It's been years for me can I chat w anyone please
Are you doing ok?
I’m scared I might have it, my hand keeps vibrating, to be more specific my thumb and pointer finger but sometimes my hand as a whole, it’s barely noticeable but I’m honestly petrified
You're reading a script my dear
She has a neurodegenerative disease. She may have cognitive issues and a prompt or some written info on a computer can help her stay on track.
You are right that age 22 is ridiculously young for Parkinson's. Early Parkinson's is actually age 50, and most people that get Parkinson's show the signs in their late sixties to early seventies. I guess in your case I suspect massive oxidative stress, which killed your neurons in the substantia nigra. It would require extremely massive infllammation and oxidative stress to kill enough neurons this young for Parkinson;s. I am talking here smoking 3+ packs of cigarette a day, breathing organic solvents in high concentration for 12-16 hours day, direct gamma radiation exposure to the brain, etc. Age 22 is really, really, really, really young for Parkinson's. It's so young, in fact, that a person 30 years older than that that gets Parkinson's is said to have "early onset" Parkinson's.
You do know, children get it too? You don't need to be exposed to anything to get parkinson's, it's just a genetic lottery.
"Age Bracketing" is the biggest misnomer in medicine. It's only a generality in pattern mixed with the "logic of looking for hooves".
As well it is a "gating function" for resources and more related to funding the system.
This can also be applied to delirium, autism, arthritis and memory issues.
So yes the thought is its super-rare to be super-early. You know within the rare disease community having a rare disease isn't so rare - its pretty common.
I think there's like 20, 000 rare diseases.
@@WDBsirLocksight No, age 22 truly is exceptionally young to develop Parkinson's. It has nothing to do with "age bracketing". It's called rather "statistics". Search for the meaning of that word. You might learn something. Much less than 1% of people with Parkinson's developed it in their early twenties.
@@petercoderch589
At least in psychiatry categories are a crock. And the distinctions are really artificial.
There are many people with movement issues but I suppose less where the rhythmic movement (a type of chorea) happens continuously.
I get 5-10% under 40 on one site and another site says 2% of the 1Mill totalPD. Average is 6.7% that's 67K (US + CAN) will get YOPD under 40 and I'll pitch it down to 30K for the 20-40 age bracket.
Apparently The incidence of parkinsonism was 0.8/105 in those aged 0 to 29 years. That's 8K ppl for Canada and 25.46K pll for US who have straightforward symptoms that are easily identifiable through there local diagnostic pathway and who generally have the ability to explain what's happening.
Total incident around the world is about 8.93%.
Based on thus I believe YOPD is more common than people or doctors think it is
I watched many profiles of YOPD all said late diagnosed or misdiagnosed and had signs for ~10yrs.
@@WDBsirLocksight First of all this, is not even psychiatry, but neurology. You can't get even one fact straight. And no, categories are actually useful. Our entire understanding of the World is based on categories. 22 years old is incredibly young to manifest the symptoms of Parkinson's disease. This is statistics and is not debatable.