What Were Your First Parkinson’s Symptoms?

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  • เผยแพร่เมื่อ 29 ก.ค. 2023
  • In this episode Vicky and Shafaq talk about their first Parkinson’s symptoms and remind us that Parkinson’s can look different for everyone.
    What were your first symptoms? Let us know in the comments. Don’t forget to share and subscribe to help us keep bringing you content like this 🔔
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    *The information in this video represents the views and opinions of the participants. The content is not intended to be a substitute for professional medical advice.
    Any research discussed in this content may be subject to participant interpretation and conclusions may change as new research emerges.
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    LivedHealth's Parkinson’s video programme is proudly supported by Wellcome.
    #Parkinsons #ParkinsonsDisease #ParkinsonsAwareness #ComplementaryTherapy #Dopamine
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ความคิดเห็น • 40

  • @jodieforbes2843
    @jodieforbes2843 10 หลายเดือนก่อน +15

    This is a very interesting topic and an active area of research. There is growing evidence that a number of non-motor symptoms can be good early indicators of Parkinson's. These include REM sleep disorder, impairment of sense of smell and subtle speech problems. Early identification is a controversial topic: not everyone wants to know, but in some cases, it gives the opportunity to make lifestyle changes like exercise and diet which could delay progression of the disease.

  • @sheilabonau8681
    @sheilabonau8681 6 หลายเดือนก่อน +8

    I started dragging my right leg and had to make an effort to lift it when walking. But I ignored it. Didn't figure it out till after I was diagnosed.

  • @Portia620
    @Portia620 7 หลายเดือนก่อน +2

    😢🙏 horrible. I hope she is able to keep this at bay and no other problems. 🙏🙏

  • @bluecube7247
    @bluecube7247 2 หลายเดือนก่อน +1

    15 YEARS I'VE BEEN ASKING VETERANS ADMINISTRATION DOCTORS WHY AFTER COMBAT I CAN'T DO THE FINGER TO THUMB THING yet i still work with my hands!? 15 YEARS!!!! NO ANSWER... thank you for sharing your story... it was the missing passage in mine.

  • @FloridaGardeningdiva
    @FloridaGardeningdiva 2 หลายเดือนก่อน +1

    I'm 40 and one day, my right leg felt like I was walking in quick sand. I had just had heart surgery so my PCP brushed it off until a year later

  • @bluecube7247
    @bluecube7247 2 หลายเดือนก่อน +1

    A small constant shake of my eyes... later it was my whole head.... other people noticed these,i did not.

  • @karenglancy443
    @karenglancy443 5 หลายเดือนก่อน +2

    I was floating on my back in the swimming pool and only my right arm was moving.

  • @erichouck9487
    @erichouck9487 24 วันที่ผ่านมา +1

    my first symptom was the loss of my sense of smell, about 10-12 years before any termers started

    • @katmouse9974
      @katmouse9974 23 วันที่ผ่านมา

      Me too. Even had a CT Scan of my sinuses to look for an infection which turned out negative.

    • @LivedHealthParks
      @LivedHealthParks  20 วันที่ผ่านมา

      Loss of sense of smell is a common early indicator of PD, but I haven't heard of this happening so long before diagnosis. Thank you for sharing.

    • @erichouck9487
      @erichouck9487 20 วันที่ผ่านมา +1

      @@LivedHealthParks I believe that is because I am an ultra endurance athlete, I was running 50- 100 mile races. I do believe that being that active held the PD at bay. In January of 2020 I was diagnosed with a rear form of bone/blood cancer. Well the meds they started me on knocked me down so hard that I couldn't do anything. After 6 months they changed my meds. It was shortly after that is when the termers started in my left hand.

  • @chinyererachel
    @chinyererachel 10 หลายเดือนก่อน +9

    Mine was a mild tremor on my left arm and a heavy masked face.

    • @LivedHealthParks
      @LivedHealthParks  10 หลายเดือนก่อน +2

      Thank you so much for sharing this. It's really interesting that the first symptoms seem to vary so much.

    • @mekoyanorthcott7785
      @mekoyanorthcott7785 8 หลายเดือนก่อน +3

      How did you eliminate masked face? Thanks

    • @chinyererachel
      @chinyererachel 8 หลายเดือนก่อน

      @@mekoyanorthcott7785 I just made a conscious effort to always smile but the masked face still resurfaces sometimes.

  • @bluecube7247
    @bluecube7247 2 หลายเดือนก่อน +1

    I had a dead sinking leg in the pool... swam daily for years.... then my left leg would just drag me down and start sinking when swimming.

  • @annegordon6725
    @annegordon6725 10 หลายเดือนก่อน +3

    Mine was a pulsating in my ankle area. It was position based. My right leg shook when crossed.

    • @LivedHealthParks
      @LivedHealthParks  10 หลายเดือนก่อน +1

      Did that make you go to your doctor and then that lead on to a diagnosis? Thank you so much for sharing, we think it's so important for the community to share experiences.

    • @annegordon6725
      @annegordon6725 10 หลายเดือนก่อน +3

      @LivedHealthParks It did, although it was a 6 month wait to see a neurologist. It was then "you have Parkinson's Disease see you in 6 months ". Prescribed Sinemet and just got on with it, you have no choice do you?

    • @LivedHealthParks
      @LivedHealthParks  9 หลายเดือนก่อน +2

      That sounds incredibly difficult. Unfortunately it seems to be the case with many people. Hopefully you have found the right support now.

  • @jennd6590
    @jennd6590 12 วันที่ผ่านมา

    Was just watching out of interest, my alteimers symptoms first showed after pregnancy but took many years and now I have joint pain etc. So many doctors dismiss that pregnancy can bring the first symptoms, even suggest more kids have the longevity increases. Will switch to woman doctor for albeit sympathy on how scary it is and my diet may only help albeit to live to see my grandkids

  • @JasonHill5371
    @JasonHill5371 2 หลายเดือนก่อน

    I am waiting on an appointment at the Walton already have a dnet brain tumour, but if your left arm stops swinging when walking is this a sign I could have early parkinsons I am 53 and tried the pinch test and although I don't go slower I go smaller straight away I can't go back to that starting point distance between finger and thumb. I see the neurologist on the 18th but from what I have read so far I am thinking it's likely. I have an occasional small tremor which I notice when holding my phone or holding a spoon. I ask really because the lack of arm swing does seem a strong indicator from what I have read. Haven't got long to wait now so at least maybe able to get the help. Thanks for the work you do.

    • @LivedHealthParks
      @LivedHealthParks  2 หลายเดือนก่อน

      Hi, your symptoms are certainly consistent with Parkinson’s but obviously it’s best to get a view from a specialist. Fortunately, a diagnosis of PD doesn’t mean your life is over as you can see from our channel. Good luck! Jodie

  • @Fip999
    @Fip999 3 หลายเดือนก่อน +1

    Couldnt sign my signature at the bank

  • @lalittl
    @lalittl 6 หลายเดือนก่อน +3

    Question, did these symptoms come and go in the beginning

    • @LivedHealthParks
      @LivedHealthParks  6 หลายเดือนก่อน +2

      It's not uncommon for symptoms to come and go, especially when medicated. For example, once levodopa treatment is started, not only can the motor symptoms (such as stiffness and tremor) subside, but problems like sleep may gradually improve as well. The brain and body are also good at adapting to changes so things like cramps and pain may naturally subside over time. That said, as the condition progresses there will likely be new symptoms.

    • @Fip999
      @Fip999 3 หลายเดือนก่อน

      Can do

    • @bluecube7247
      @bluecube7247 2 หลายเดือนก่อน +1

      Medication and exercise can reduce tremors

  • @diannesquyres4493
    @diannesquyres4493 5 หลายเดือนก่อน +4

    My sister's first symptom was trembling in a finger.

    • @DunXstan
      @DunXstan 3 หลายเดือนก่อน +1

      Was it a regular or irregular tremble. As in was it constant rhythm or random twitches?

    • @TJ-ii1tp
      @TJ-ii1tp 3 หลายเดือนก่อน +1

      @@DunXstan, mine started with a rest tremor of my pinky twitching rhythmically for about 6 hours. Then off for a few days and then started in my thumb for hours, again while at rest…It has since moved on to other fingers but never occurs simultaneously and always occurs when my hand is resting on the recliner armchair or on my lap. Hope that helps!

    • @medhaschitnis
      @medhaschitnis หลายเดือนก่อน

      K​@@TJ-ii1tp

  • @Sten111
    @Sten111 21 วันที่ผ่านมา

    People should be cautious about ascribing a condition to Parkinsons....there is a lot of misdiagnosis as well as underdiagnosis.

    • @LivedHealthParks
      @LivedHealthParks  20 วันที่ผ่านมา

      Indeed, one of the problems is that PD is currently diagnosed based on clinical symptoms like muscle rigidity, slowness of movement and tremor, but these vary a lot between people with PD, and it's easy to confuse PD with other movement disorders. The new SAA test should help provide a more objective diagnosis - see our video on the topic: th-cam.com/video/bE0EVSBXhGI/w-d-xo.htmlsi=d-TJzulC0LxPqoWw

  • @annb5610
    @annb5610 3 หลายเดือนก่อน +19

    No symptoms until I got vaxxed and 1 week later I couldn't use that arm.

  • @themikeshow
    @themikeshow 20 วันที่ผ่านมา +1

    Is it a sign of Parkinson's that music playing while I am trying to listen to people talking, like in this video, is irritating?

    • @LivedHealthParks
      @LivedHealthParks  11 วันที่ผ่านมา

      Sorry to hear that you find the background music distracting. We try to make the videos engaging, but we'll bear your comment in mind for the future. Thanks, Jodie.

    • @user-ff8vo1se8v
      @user-ff8vo1se8v 10 ชั่วโมงที่ผ่านมา

      I agree, music is distracting. Why do people chose music in background?