✔ 3 Week Feeding Tube Appt | Discovering Another Problem 😫 (6/22/17)
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- เผยแพร่เมื่อ 30 ก.ย. 2024
- MY PATREON PAGE - / chronicallyjaquie
NEW TO CHRONICALLY JAQUIE? START HERE!
- All About My Chronic Illnesses - • All About My Chronic I...
- All About Harlow - • All About Harlow! 🐶
- All About My Port - • All About My Port! ♌
- All About My POTS Infusions - • All About My POTS Infu...
- Judd and Jaq Relationship Q&A Vlog - • Valentine's Day Relati...
--- Skip to 7:03 in the Vlog to watch the Relationship Q&A section!
- New Here Playlist - • New to Chronically Jaq...
YESTERDAY’S VLOG - • Cool New Feeding Tube ...
CHICKEN RECIPE - www.yummly.co/r...
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--- I wear the mask due to my Angioedema and Immunodeficiency, it filters allergens and germs. Learn more in my “All About My Chronic Illnesses” video!
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--- This playlist contains all relevant videos and vlogs that may be beneficial to my fellow chronic illness warriors! From info/advice about how to get answers, my different medical devices/treatments to packing for the hospital, I hope you find this playlist to be helpful.
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--- This playlist contains all the useful resources I have on my channel for current and aspiring service dog handlers. My Service Dog 101 video (goes over how to get a SD), my service dog gear and any other beneficial videos that pertain to the service dog world can be found here. I hope you find it to be helpful!
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--- All the training tutorials I’ve made can be found in this playlist. I will be adding to it whenever possible. There are tricks, tasks and useful skills for pets and service dogs alike!
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I can not imagine how much energy you need to bring up every day just to do things I do without even thinking about them. You are such a strong woman and Judd und Harlow seem to be an awesome help. I hope you will always stay as happy as you seem to be now. You get me to be thankfull for what I have and think about many things I did not think about before. Greetings from Germany 🇩🇪 :)
I don't usually comment on youtube videos but I have been moved to do so.
I've been having a really rough couple of days with my chronic illness(es). Last night I found myself channeling Jaquie. I was thinking about the day and how hard it had been but I was grateful that I got through work before my worst symptoms started and I was grateful that I had been able to eat. Then I gave myself a double thumbs up and realised... I was channeling Jaquie. And I'm grateful for that, too. I have always tried to remember to appreciate the small things, with varying success. Watching you every day, enjoying the 10-15 minutes I spend with you, helps to drive that into my brain so I do it without realising. So thanks, basically, for helping me be better at that.
chammomile and mint tea help with my gastritis. On the days you feel bloated or like you want to vomit. Try some of the tea you can add lemon or honey to taste. I hope you have a better day.
Ingrid Br
Oh yea ginger tea works wonders!!
Ingrid Br I have not used Aloe myself. My family drinks it in their green smoothies every morning. I am going to try it. Thank You!
I have a question Jac, when you were first diagnosed with Gastroparesis, was it as bad as it got? or was it a continuous downfall? I know each and every person is different, but I would like as much info as possible. If that is okay?
Have a great day 😊 #JactheInspirationalBean
The Cyborg hi sis!!! X'DDD good question btw! * runs *
The Cyborg I'm also curious about this!
Frost and Eclipse why hello!
The Cyborg hey ya ya hey! Sorry it's raining and I'm hyper. Sorry for da spam boredom in the doctors office :P
for me at least mine started out super mild, I didn't even realized it was happening and progressively got worse and I now have a feeding tube also
i clicked soo fast. . I love you
MANO BOQA me too
It was easy to tell you were having a bad day, cause your face had lost it's usual color. But good to know things are getting better. Hope you feel better soon. Loads of Love and Good Wishes to you guys!!!
MCAS in your digestive system could contribute to gastritis. Treating it with cromolyn sodium liquid ampules dissolved in water and/or quercetin + an H2 inhibitor (antacid) + Singulair/Montelukast and diet -- low FODMap -- could help your gastroparesis and gastritis. Also, Gaia's Reflux Remedy rocks! Helps soothe but doesn't reduce acid production to interfere with digestion since we need acid to digest.
i love you three!!
Hello, Jaquie! I hope you see this but I've just started owner training my service dog and I was wondering how you trained Harlow to only go to the bathroom on command and not just any time she's outside. I haven't started working on that yet, she's not even house trained yet, but I really need to figure that out and I can't seem to find anything online about it. Thanks, and again, I really hope you see this and get the chance to reply. ❤🐇
Logan von Rochow comments and likes push your comment up so here's one of each! :)
I'm curious too bc hopefully my hubby and I will be getting service dogs for each of us in the next coming year or two. (we are both chronically ill)
Hope you get your answer and everything goes well w the training! 🐕
Raven Moore Thank you! That's one thing I'm really concerned about because I knoe hoe to housebreak a dog perfectly but having them realize that not every single time you go outside, you're allowed to go to the bathroom, I think that could be genuinely really hard and even with so many hours of research, I haven't been finding any methods that people can one hundred percent say that they work.
I don't have a service dog but I did train my pup to go potty on command. The way i did it was at the beginning I chose the spot that I would like her to go on and haver her some radius to search for her perfect spot. Once there i would give her a command like "potty" and once she did her business i would click and give her a treat saying "good potty". After she got that down I started changing the spot but not the command and she catch on pretty quickly. Now she knows that she can only potty outside when I give her the "potty" command. Of course always set your pup up for success by doing this right at the moment when you know she/he has to potty. Just remember that this is going to take a while and to be VERY VERY VERY patient. Hope this helps
Logan von Rochow Hi! As a service dog partner & trainer for 9 yrs, here are the ways I've always trained my service dogs to 'potty on command'. You are starting at a perfect time, as it sounds like your pup is quite young! So you will take your puppy out to potty, on a leash of course. I prefer 6' or 7' leashes for pottying. You will take puppy to the potty area and you will simply plant your feet. Your puppy can walk around within the confines of the leash length. You can even say "Get busy' or 'go potty'. (I prefer the cue 'get busy', especially when in public.). Always have treats in your pocket too. When puppy potties, give a treat and immediately take puppy inside the house. Be sure you consistently do it this way. Your puppy will learn that going out on leash with you, and you standing still giving the command 'get busy', puppy will potty. If you want to play with your puppy outside, then potty him/her the same way above, and then go back in the house. Then when you get inside, you can then turn around and walk back outside to play. This does make a difference!! If you take puppy out to potty AND play without coming back inside inbetween, then many times our dogs will play for a bit, then potty. And maybe you are feeling awful one day and you need puppy to potty so you can get right back into bed. So it's important that puppy knows that when you go out and say 'Get busy' or 'go potty', then puppy will potty on command. If you are CONSISTENT, puppy will quickly learn to potty on command! PS-Sometimes puppies need to walk a bit before going potty. This is where having a 7' leash helps. You still need to plant your feet and not walk all over the yard with your puppy. But if your pup doesn't potty when you take him out, then try taking 2 or 3 steps one way and then walk back to your starting point. But most times, your puppy will learn quickly that it's time to potty! Good luck!
Kelley Hornberger wow I never knew this! I'm hoping to learn as much as I can so when we do get our service dogs we will know a good bit. thanks for explaining in such detail! even tho this wasn't my question lol it helps a lot :)
I'm 22, I've had my PEG since I was 3! I'm still like tuch my PEG you'll lose a finger!
although my skindisoder makes my PEG area really sore. I've got Epidermolysis Bulosa Dystophica.
Wow do you know why you have all these ailments? Man I thought I had a lot, I'm battling 6 different things most of them being auto-immune. Have you tried going plant based? It has helped me not get colds and things on-top and has helped my arthritis, still working on my asthma, thyroid, UC, POTS, and allergies. You are so positive, thank you for helping me, now I know I am not alone 😊
beUtyista you are def not alone!!! I find the autoimmune diseases really do gang up together. i have stage 4 endometriosis, had adeno n fibroids but had a hysterectomy, have pcos, fibro,cfs, ibs-c, sbo, mvp, chronic migranes, hyperthyroidism, and more fun acronyms! so you're def not alone!! it's hard having so many I know but you're right she is so positive and it's encouraging!
I had an amazing endocrinologist, but then she went on vacation and I couldn't get her back for a year. The other ones I got would not talk to me. They asked my dad about things like my appetite and GI track, but why would me dad know that? He's got work and other kids to worry about. Ask me please and thank you!
Glad the appointment went well! Harlow is freakin adorable as usual. Hope you have a tolerable day today hun :)
I've watched every single video on your channel. From the beginning. I was subscribed to you when you only had 7 videos and I watch every single day! I love you! And now I spread awareness of service dog laws and chronic illnesses (though I have neither) and I advocate and support accessibility. And it's all because of you! When I wanted to learn about service dogs, I found you! And now I consider myself extremely knowledgeable. Thank you for everything that you do! You are amazing and your videos are the best part of my day
I saw in the last two videos you've been using your walker. I'm curious where did you get yours? As a mobility aid how helpful is it in comparison to a wheel chair?
Liz Cole It depends in your symptoms. A wheelchair is better if you can't walk much at all but a walker is better if you just need some support and a seat sometimes lol
Liz Cole good question! I asked a similar one but asked it in reference to going from a cane to a walker. I've had a cane for a few years now and it's helped me walk n stand w a little less pain but lately it's been too painful to do much of either but I dnt think I'm ready for a wheelchair yet but not sure abt the walker. I dnt wanna move to the next stage til I absolutely need it but I also dnt want to be hurting myself for no reason ya knw.
I hope you find the device that helps you best!
I had gastritis! I developed it after taking Macrobid for another issue, it was absolutely awful and caused me so much pain and discomfort! I ended up on a medication for two weeks and I haven't had any issues with it since.
I hope it goes away for you ❤️
Where did I get ur feeding tube/sailing holder bag?! It's super functional and cute! Can u give me a link as to where I can get one?
Fiona P it's from vibedration and the link is in the description
I can see a big change in how healthier you look since your feeding tube. So glad you had a good day
I love you jac 🤞🏻❣️
ur super amazing!! donno how your always tried to be in an upbeat mood. I think Judd's always in a good mood is great asset for you. it tells me that I should find something similar to that. it's rare and difficult to find someone similar to him. any advice on where to find someone similar to Judd?
It's very hard to battle multiple chronic illnesses for sure! But we can do it. I am still seeking answers to what is causing my dizzy spells, went to my immunologist and she lowered my dose to 25ml instead of 30ml so that's something to celebrate! TH-cam seems to have a love hate relationship with mobile comments for me so I'm hoping you'll be able to see this!
I hope you get answers soon!! my husband went years n through many specialists til they found out he has a very severe case of neurocardiogenic syncope and POTS. :( I went almost 19yrs til I was diagnosed w stage 4 endometriosis so I def understand the long haul to diagnosis. i really hope u get one soon n one that will have some treatments to help u!!
so happy for you! I have such anxiety with doctors anymore. I often end up canceling, which I know isn't good. you sound stronger. 😊
I totally understand how big a deal it is to find a good AND knowledgeable dr!! a kind dr is fine but if they aren't knowledgeable then it's not helpful. I'm SO glad you've found such a great dr!!!!
I have a question- Im in my early 30s and have been using a cane for a few years now but it's gotten much harder to stand and walk with just the cane, usually if I'm going to a store I have my husband grab a cart so I can lean on it right away or if it's very bad I'll use an in store scooter.
but I'm wondering, I'm a new subscriber so forgive me if you've gone through this. but how did you make the decision to goto a walker? did u use a cane first? it's hard bc I def want to push myself to do what I can but I also don't want to put myself in more pain bc I'm being stubborn. fun chronic illness catch 22! lol anyways any insight is greatly appreciated! ❤ hope today is one of the better ones! ❤💪
0:54 I can usually tell, but this time I was wrong.
8:19 When I heard you say "jejunum", I thought it was a part of the body I had never heard the English word for, but I know what the small intestine is.
Your the best stay strong I feel super bad for u an Judd is the most supportive husband and you guys stay strong u will get threw it and give Harlow a kiss from me.
Glad to hear you're happy with your doctor, and he's doing what he's supposed to. So jealous you got Chick Fil A. Will be checking out that recipe 💜💜
I have had my feeding tube in my small intestine for nearly 5 years and my system doesn't seem to tolerate anything higher than 55 ML's an hour
I loved the look on Harlow's face at the end when Judd took the chew toy away to wave 🤣😂
Lowe's has the cooling towels
I can always tell when you have had a rough day
There was a Gander Mountain place that closed by my house too! I'm glad the appointment went well. ❤️❤️
I LOVEEEE seeing you with your wedding rings on! It makes me so happy for you! :)
Love it
I so understand you!! Between having (M..E.) www.hfme.org/mesymptoms.htm , Fibromyalgia, diabetes Meningioma (small brain tumor) and a couple of auto immune diseases....it never ends! To find the right doctors also took me years. I am now on a low-dose of Chemo shots once week, which hopefully will help with pain and inflammation in my whole body. I am almost always exhausted, and in pain, dizzy, nauseated, vomiting....well, you know the drill :-( However, like you , I always try to live in the moment, and stay positive. Keep being strong girl, we love you and support you on your journey., Thank you for sharing your life with us. C.
honestly jaquie, no matter what, you look amazing, whether your happy or sick, you handle life amazingly
Funny story about Gander Mountain. The weekend of Fourth of July we went there. BTW, it was cheaper to go on like a 3k shopping trip en go to the lake of the ozarks. xD We got my ma a Conduit 9.5 kayak that was around $350. It was a fun weekend. She finally got to use it last week and it had tons of cargo room for herself and our two pups.
Can't believe you can eat Chick-Fil-A. Makes me bloated as heck. XL stretchy pants to the rescue!
Jaquie, would it be beneficial to you to give yourself IV Zofran as a scheduled dose to avoid vomiting spells? Like staying ahead of you gastroparesis. Wishing you well. B
Watching your videos helps me so much! I have POTS, gastritis, IBS, fibromyalgia, asthma, and we're currently suspecting gastroparesis and EDS as well. Seeing other people to truly understand is so comforting! Most people cannot fully understand the struggle unless they personally experience it. It's so hard to feel exhausted, weak, in pain, and sick almost every moment of your life. Some days I feel like nobody around me understands. They think I'm exaggerating, or lazy, or using my health as an excuse for not doing things. But watching your videos is a great reminder that there are people who really understand the struggle of chronic illness.
Why is there ALWAYS a Prius parked at every single doctor's office??
(Slowly getting caught up on the last 3 weeks' happenings as my spoons allow.)
I had pretty severe gastritis, and once it's under control, you realize just how much it was impacting your quality of life. Granted I had inflammation of my entire GI tract, but the pain and bloating in my stomach was definitely much more noticeable before I went through chemotherapy. Hopefully being able to vent will relieve a lot of pressure, and help out. I've got multiple things going on (still sorting it all out), but the GI issues are definitely what stopped me in my tracks. Seizures suck, and the general aches and fatigue suck, too, but once I couldn't eat, I really didn't have an option other than to stop everything aside from seeing doctors.
This is so random! First off I'd like to say I just discovered your channel recently and I love what you are doing and think it's amazing that you're spreading awareness for so many different illnesses and the like. You seem like an incredibly strong person and I already admire you greatly ❤️ Now to the random part.. does anyone know what video game Judd is playing in the background towards the end of the video? I can't figure it out and it's driving me a tad crazy lol!
Hi Jac! I have been following you for a couple days now and I wanted to talk about something. So I have asthma and I’ve noticed over the years that it has gotten progressively worse. When I was little I used to get bronchial pneumonia twice a year but it went away when I had a tonsillectomy in 2011. Now I have got back into my bronchial pneumonia again and it takes a long time for my lungs and my respiratory and immune system to get well again. I am going to be pulmonologist soon to find out why I have been catching anything that comes around and getting sick because I always need allergy meds and when I’m sick I need my nebulizer. I was thinking that if I get diagnosed with a disability of some sort if a service dog would help a lot with not just my everyday needs but also being there when I’m sick. When I am sick, I cough and cough so much that it almost becomes impossible to breath and it is hard on my lungs so I don’t get any sleep when I’m sick. So maybe a service dog would help? What do you think?
just got a cooling towel so i can work out a little better outdoors in the summer! It still doesn't fix everything but at least I can be out longer than usual. Doesn't help my breathing which gets difficult in the heat but it helps my POTS and general dizziness.
I live east of TampaBay area. I didn't know you were this close!!!!
omg i need to try polynesian and ranch mixed together at chick fil a next time, my two fave sauces and i never thought of that!! so happy you're more stable/gaining weight and especially that you've found such a brilliant dr💪🏼♿️💕
i've had such a rough day but your videos always make me feel 10x better im glad your appointment went well
As someone who often experiences awful mornings on the bathroom floor and lives in a house with two other chronically ill people who sometimes have the same struggle, I feel ya girl. Thankfully my mom and dad have learned to recognize when I "hit a wall" and need to take some chill time and/or get a bucket 😂
What bone/chew does Harlow have at the end of this video? It looks like the same ones you used to bring to keep her busy in the hospital and I'm wondering what kind they are for hopefully keeping my doggies busy too!
Jacquie I can't thank you enough for sharing your journey. Every day I hear you say what you are thankful or grateful for and that reminds me how important it is to celebrate the small things even on the rough days.
I WAS IN THE SAME BOOTH AT CFA!!! i was there on sunday omg!
I know your day started out not so great but you look great :) I get it though, I've been dealing with chronic illnesses for 14 years now.
Thats so funny!I literally was looking at almost all your videos to see if i can find the recipe for the melt in your mouth chicken 😂😂 its okay tho cause I finally made it and it was delicious,thank you 🙌
I have a blue cooling towel by that company you picked up. Got it on sale for $7, works a bit for me, enough when I'm in front of my fan but not enough when I'm out as I have severe heat intolerance as well.
You look great I wouldn't have thought you had a bad morning but I also love the message about someone not feeling well but still look ok. Keep fighting hard 😃
hi jac I love watching your videos just glad that your doing much better. I also have gastritis its a very complicated illness but watching you lifts me up and see that there is people who are going through worst so glad to see how better and happy you look.
Glad your GI doc is a winner. Sometimes it does take a bit of searching - love when things come together without the need to "shop" for a doc.
Glade you had a good appointment. It's funny though that you only wanted the J-tube to begin with not wanting the G-J and now you will be getting one. Sounds like it is the tube you need though and will be best for you so must have been Gods will.
Sending prayers. At least you are getting answers. And the new feeding tube will be placed in August. Take one day at a time.
how when you was in the hospital they didnt scope you then. if they didnt while you was in the hospital i wish they had cause that could relive some of your belly pain and being comfortable .i am so glad the man you seen yesterday gave you some comfort that you needed to hear.
could you also show us and talk to us about your walker and wheel chair? I am looking into getting one and was just wondering what brands you use
Ah I am new to your videos go to college in Tampa! I hope I see you around!!!
I just put the chicken in the oven. I didn't have mayo so miracle whip it is.
Can you make a video of how you replace the needle in you port I am new to the channel so if you have a video please just link it
absolutely love you positivity, never change we need more people to be like you!
I just had a scope this morning and found I had mild gastritis as well.
Hi jaq In your video about your illnesss you said type one, is that diabetes?
I'm health I think but I sleep 24/7 and never get untried
I'm glad your looking a lot happier and healthier 💕
To answer your question there was no way to show that you had a bad start today. You look really good as always .
its good to see your having a lovely dayoutwith your husband.
I live I Brandon fl and I have a anxiety service dog
yes but I too have many chronically I'll
I have a question will you ever go to vidcon?
lol. Judd dying in the background
your sun glasses look really nice on you , good choice
I would love to know the dr. I'm looking for a GI dr
Keep fighting Jac you are going to get better
I will keep praying for you guys.
you are one of the most respected youtuber
Great report! I am so very happy for you!
yay for great caring doctors! :)
Chickfila!!!! I love them!
how do you take a shower with the tube?
Do you live in Florida Jac
1:02 good morning you look happy
So glad about your doctor. Try to remember, that whenever someone is changing something, like in your case when you want to try an increase in your feeding tube, always take the smallest increment you know of and the longest way to do it, and just be happy with that little bit for as long as you can, when 2 weeks go by or longer if needed then consider a change. This may be crucial for many people on many different kinds of changes, like a woman once needed to increase a workout for 5 minutes longer than usual but it was too much, so she actually went to see how she could just add the 5 minutes in the week and felt good about that, eventually it all happened, but in her time. Any improvement is always okay, just do it in your time. Chronic gastritis stinks no matter how little, but there are simple healthy ways to deal with it and it does take time but you have to be accepting of it. That said even with the tube change it is highly beneficial to avoid greasy foods, chocolate and high fatty foods, that wonderful nutritionist from the hospital. Prayers that it all goes well for you. Blessings.
Talk more about Judd to😉
You look like your doing great.
Why do you have to wear a mask
Feel better Jaquie.
i love you three! ❤❤
De hard morning
Will you ever get over your illnesses or are they life long?
Monique Cantu they are life long.
You look Great
kiddie meal XD
I subscribed
Did you get Harlow as a puppy and trained her by your own with help from a coach or did you get her as a older dog who already was trained to be a service dog?
PS: Can you do more videos when you training with Harlow?
Love all your videos!!❤️
Elizabeth D | Thank you for answering.🙈🙃🙈
Elina Söderberg Jaquie has a whole entire video all about Harlow and answers almost every question about Harlow you can imagine. She also has a service dog 101 video which is very informative as well, even if you aren't getting a service dog/don't need one.
Hi
👍
what is that pink face mask???
DOOMSËŤ it is a VOG mask...link in the video description.
Patti Volkman Appreciate it