I had a CRAO in 1/2016 and lost vision in my left eye. I am a female and was 40 years old when it happened. Although I have HTN, it was under control with BP meds. The doctors tested me extensively and could not find the cause. I was an avid marathon runner prior to this event, and I think it may have triggered an isolated incident of A-fib. I say this because I stopped running and had a cardiac loop recorder implanted after the CRAO, and it has only detected SVTs thus far. Thank you for posting this video, I will show it to my family and friends that can’t comprehend why I just can’t have surgery to restore vision. At this point, I am just happy to be alive.
My brother had a retinal detachment surgery on 6 jan 2020 before the surgery his vision was perfect but during the surgery he got crao which lasted for 45 mins only , now it’s been a month he is able to count fingers only please suggest what can be done now .please e-mail me on abhishekyadav2128@gmail.com
I had a BRAO on 6th Sept 2018. I am 52 years old and I have no systemic disease. My BP stays around 130/90, no diabetes. I am an active healthy individual. On the morning of 6th Sept I got up and had blocked vision in my left eye. That's it. Over the next few days I underwent extensive tests of the eye and of other vital organs. Doctors couldn't find the cause. By 4th day, my upper half vision in the left eye stayed blocked while the central vision returned. And now two months after the the event, it remains the same. My only concern is that it should not deteriorate any further. Doctors say there are no do's and dont's... . There's nothing they can do..
I was 49, perfect health. I was on a very low dose of Premarin for 9 weeks, which, they think, was the trigger. The challenge I face, which no one understands, is a certain level of cognitive fatigue that comes from constantly trying to compensate for the vision loss. Thanks for posting your comment.
Heather DeCosta Hi Heather, my name is Beverly. I’m so sorry this happened to you. I also had a CRAO in Jan. 2016. They tested me for multiple things, including a protein deficiency to see if I had a clotting disorder. I think that is what the antithrombin 111 test is. Stay strong and best of luck to you.
@@beverlybeverly458 i had mine on Christmas day ...2018 i have given so much blood ..Hoping the hematologist will find the cause ...thank you do you have to stay on blood thinners?
Heather DeCosta Hi Heather, the doctors put me on daily Aspirin, along with several other meds, but no other anticoagulants. Today, I am still stuggling with the vision loss. I am not the same and I have to be cautious with all activities. I still walk into things. Do you have regular email or facebook? You can contact me that way if it’s easier
I had a CRAO in 1/2016 and lost vision in my left eye. I am a female and was 40 years old when it happened. Although I have HTN, it was under control with BP meds. The doctors tested me extensively and could not find the cause. I was an avid marathon runner prior to this event, and I think it may have triggered an isolated incident of A-fib. I say this because I stopped running and had a cardiac loop recorder implanted after the CRAO, and it has only detected SVTs thus far. Thank you for posting this video, I will show it to my family and friends that can’t comprehend why I just can’t have surgery to restore vision. At this point, I am just happy to be alive.
Hey.. Would like to get in touch with you as both of us seem to be going through a rare(at least not so common) eye condition.
Jenny Goyal Hi Jenny, I just saw this. Do you have facebook or messenger?
Mesa Beverly Hi, yes. Shall I search for you on Facebook ? You can message me at jennygoyal1@gmail.com
Jenny Goyal Hi yes, I’m sorry I just saw this, I will email you
My brother had a retinal detachment surgery on 6 jan 2020 before the surgery his vision was perfect but during the surgery he got crao which lasted for 45 mins only , now it’s been a month he is able to count fingers only please suggest what can be done now .please e-mail me on abhishekyadav2128@gmail.com
amazing approach please make more of these
I had a BRAO on 6th Sept 2018. I am 52 years old and I have no systemic disease. My BP stays around 130/90, no diabetes. I am an active healthy individual. On the morning of 6th Sept I got up and had blocked vision in my left eye. That's it. Over the next few days I underwent extensive tests of the eye and of other vital organs. Doctors couldn't find the cause. By 4th day, my upper half vision in the left eye stayed blocked while the central vision returned. And now two months after the the event, it remains the same.
My only concern is that it should not deteriorate any further. Doctors say there are no do's and dont's... . There's nothing they can do..
I was 49, perfect health. I was on a very low dose of Premarin for 9 weeks, which, they think, was the trigger. The challenge I face, which no one understands, is a certain level of cognitive fatigue that comes from constantly trying to compensate for the vision loss. Thanks for posting your comment.
I had the same 52 brao & active surfer ....
Hi my sister have same she is only 20 years old
i had same BRAO If you find people's treatment, please tell us also
@@shahnawazalam8604 do you have BRAO or your sister has it?
thank you so much just what i needed
Amazing!
I just had a CRAO & wondering what antithrombin 111 is ? My level was 122 ...Being tested for inherited clotting disorders am so stressed ...
Heather DeCosta Hi Heather, my name is Beverly. I’m so sorry this happened to you. I also had a CRAO in Jan. 2016. They tested me for multiple things, including a protein deficiency to see if I had a clotting disorder. I think that is what the antithrombin 111 test is. Stay strong and best of luck to you.
@@beverlybeverly458 i had mine on Christmas day ...2018 i have given so much blood ..Hoping the hematologist will find the cause ...thank you do you have to stay on blood thinners?
How are you doing now ?
Heather DeCosta Hi Heather, the doctors put me on daily Aspirin, along with several other meds, but no other anticoagulants. Today, I am still stuggling with the vision loss. I am not the same and I have to be cautious with all activities. I still walk into things. Do you have regular email or facebook? You can contact me that way if it’s easier
@@beverlybeverly458 yes my name is Hunter McNelly on fb i have dreads
Thank you for this it would be helpful if you let us download the slides you were using so we can annotate on them to make our notes
So there is no cure for crvo
helpful!
Pls do lecture about squint