You are doing a great job sharing your experience. My 13 years son has Crohn, and I, his dad, I am crying all day long. You gave me a little hope. I am down, I can’t stand the thought that my little son is so ill. Thank you!
Oh wow that’s super kind, I’m really happy this made you feel better - and am thinking of your family during this tough time. But don’t worry! Things always get better just have to remain positive. I will make more videos soon, so hopefully it’ll make you and your son feel reassured :)
Thanks for this video. This video helped me to come out of the fear of this medicine. Finally I started to take this medicine with my doctor's guidance.
I took it for two weeks and had to stop because i couldn't keep any food down with the diarrhoea and vomiting. Now I'm on Mercaptopurine instead and works like a charm! 😁👍
Hey man i've had ulcerative colitis (the other ibd) for 13 years and i always only needed to take salofalk (mesalazine) and when i had big flare ups i would take prednisolone for like a month but now my new doctor wants me to start on imuran too (50mg a day)... i actually started today but i was kinda scared of the side effects... the only thing she told me was that if i felt a sharp pain in the stomach to stop taking it immediately and go to the hospital cause it was affecting the pancreas but that was very rare...
Hey man! Thanks for sharing your story, it's interesting to hear how you take your meds! Glad to hear you've transitioned to something more effective, I really hope it works for you. I wouldn't be too worried with Immuran, sure there are some side affects but if anything happens I'm sure you're doctor will put you onto something else right away. Best of luck :)
I was just given this drug, and the pharmacist said that taking Balsalazide with this drug has some interactions. Not sure I see such information anywhere else on the Internet, so maybe good to ask a pharmacist if you're also taking Balsalazide (and of course, anything else, and/or call your doctor regarding taking anything else/balsalazide with this drug, which I will probably be doing, since I was given this drug by said doctor with strangely no information/reason given, except for the side profile of being able to do something regarding Crohn's disease treatment potentially).
I’ve been on 150 mg daily for several years now and touch wood have had no side effects. I’ve had covid once and had a really bad fever but was fine after a couple days. It works for me .
Hey there thanks for the video and information and I hope you are still doing welll ! I have been recently prescribed Azathioprine as a treatment for my Lupus. I was wondering if you are still on it, was it prescribed to you as a long term treatment?
Hello, thanks for the message! I am no longer on Azathioprine, and am now on Stelara injections. I would say that it was only prescribed for the short term and the long term was to have an infusion or injections :)
I’m currently on day 3 but only on 50mg at the moment and will increase to 100mg next week. So far no nausea or horrible side effects. So far last year I’ve had 4 doses of steroids, had a camera whilst on them and still had active inflammation….. I really hope these drugs work…. I’ve have already tried biologic meds and they did nothing 😢
Thanks for the videos. I've been diagnosed with Crohn's in January. I was initially prescribed prednisone and I felt better instantly. In June, the prednisone was replaced with 200 mg Azathioprine daily. I've had sequential UTIs, severe shoulder pain and I am so weak, but at least I'm not vomitting. I have't had side effects that you mention. Could it be that side effects are different for men and women?
Very interesting about your side effects, sorry to hear you had to go through that! Yes I think it's possible that everyone will react differently for sure. Most important thing is to keep doing blood tests, and to voice your reactions to your doctor :)
I am about to come off of Azathioprine and go onto a drip called Vedolizumab for 6 hrs,then 4 weeks later again for 4 hrs,then 2 weeks for 2 hrs,then I am self injecting like a Diabetic..🙄🙄🙄..OMG.😱😱😱
I’m not impressed about this,I have researched this,and there’s not enough information for my liking,I’m not going to be there Guinea pig,I’m staying on my tablet..
I hv had Vodizumab infusions now for 3 years. No side effects, perhaps more tired but I am 78 so old age maybe! If offered this drug go for it. I could not toletate two by mouth meds, I was really ill with them. This drug had been a huge blessing for me, and others I knoe of.
Actually, my GI wants me to also start Azathioprine for 6 months via infusion together with infliximab (also infusion). I see that this video is a few years old, so how are you doing today? Any skin problems still? Warts? Do you go straight to the dermatolagist for those? I read that Azathioprine is a carcinogen, that's why I'm asking.
Hey! Inflixmab is meant to be really good, that's great you're on that, the azathioprine will hopefully only be used temporarily before you fully transition. I'm doing really good today, just on Stelera injections and basically in remission. My skin is really good, but still sensitive to the sun - I get burnt even in winter on my face. If I have any warts or skin tags (which are rare) I just find a bulk bill doctors. I do see a dermatologist for yearly checks however just in case. With the whole carcinogenic, the risks are there but it's closely monitored with frequent blood tests and I'm sure the second there would be an issue, your GI would stop it immediately. Mine was very clear on that, and I never had any issues with my bloods :) Hope that was helpful!
Thanks for sharing! From the sounds of it we had a very similar rash, which is interesting since I'm not on imuran (I'm on humira and prednisone). I wonder what the cause is, I feel like there must be a link
Thanks Amanda! I suspect that prednisone might be the link as when I was on that too, my face was really puffy and often quite red. I also have really sensitive skin so it didn’t help unfortunately. Thanks for watching!
I started immuran treatment for 2 weeks. Do you also have nausea and loss of appetite at breakfast?If the disease goes into remission, will this go away?
hey ben im on imuran i take 2 and a half tablets each morning i think there 50mg tablets but that was the base start level and was ment to adjust if need be but ive never been adjusted ive been on it nearly 7 years now havent noticed many side effects besides fatigue and stuff im booked in to get re checked up ive been slack in the past like 4 years but i have had bloods done never been called for anything wrong, i also got medical weed indicia a few months ago and using that at night but got no idea if thats helping or not
Hey! Thanks for watching and for leaving your experience, thats super interesting regarding your dosage. How do you find the weed helps with inflammation? I'd be interested to hear your thoughts, as it never did anything for me from a medical standpoint...my problem is I get the munchies and eat bad foods which make it all the worse haha
If you're okay and not having any flare ups and you're doing fine, why are you transitioning to injections? Isn't injections usually needed for medium to severe cases of Crohn's?
@@GMPiccolo It's tough to say, but I've heard that it does go away around the 6 week mark. I never really felt nauseous but my friend did and eventually his body adapted to it...I would definitely bring that up with your doctor as they might be able to adjust the dosage
My mother is an optic neurotics patient , she has been taking Azathioprine 50 medicine every day for 2 years. How long can this medicine be taken continuously.please give me answer
I don't think taking azathioprine, increases risk of fatality in people taking it due to covid , I have been taking this drug for past 4 years and got covid recently with very mild symptoms and was absolutely fine in just 5 days 😊, i think people who are taking this drug are actually having blessing in disguise as one of the major reasons of fatality in covid patience is that there immune system goes on over reaction to fight covid virus and therefore harm the body instead, but with people who are taking this drug there immune system does not go for a toss after getting covid and there is very less inflammation as compared to people are not on immunosupresent drugs and am a living example of it 🤘👍
Ahhh that’s very interesting actually, thank you for telling me that, I was always kinda unsure and couldn’t get clarity anywhere. What you said makes total sense. Glad to hear that you were all okay...thanks so much for watching. Cheers!
That is a great question! But I actually can’t remember haha as it was a few years ago. Would 100mg makes sense? I feel like it was that but I really cant say for certain
Im using aza since 28 days now, until now i witnessed no side effects at all, i hope i stay like this, but i wonder how much does it takes untill i start getting results, i was on prednisone so i have no crohns symptoms now.
Hey! From my experience, I think I was told it would take 2-3 months to kick in. Prednisone definitely would stop inflammation temporarily but sadly won't fix it long term
I started taking azathioprine back in 2020 just before COVID but was worried as well with it lowering my immunity but have never gotten Ill yet🤞when I went up to 150mg my bilirubin count spiked and it bothered my liver so I’ve been off them for 4 weeks and will probably go back on them again on a lower dose sadly I feel like they won’t do me as much good as they used to sadly I might need steroids or surgery, I hope not. I’ve had to change my diet to a strict veggie diet as I want food to pass through my narrowed part where the Crohn’s is it’s worked but i’m struggling so I really want to get back to meds again.
Hey Dave! Really appreciate the comment and super interesting to hear your story. Really sorry though to hear about your troubles, fingers crossed you can get the treatment :)
![HIWWHEE | OHM [Official MV]](http://i.ytimg.com/vi/OJJLtTLqLag/mqdefault.jpg)
You are doing a great job sharing your experience. My 13 years son has Crohn, and I, his dad, I am crying all day long. You gave me a little hope. I am down, I can’t stand the thought that my little son is so ill. Thank you!
Oh wow that’s super kind, I’m really happy this made you feel better - and am thinking of your family during this tough time. But don’t worry! Things always get better just have to remain positive. I will make more videos soon, so hopefully it’ll make you and your son feel reassured :)
Thanks for this video. This video helped me to come out of the fear of this medicine. Finally I started to take this medicine with my doctor's guidance.
Ahh that’s awesome to hear! All the best with it :)
Thank you for sharing this video, it’s really helpful! ☺️
Thanks you Nicole, glad you enjoyed!
I took it for two weeks and had to stop because i couldn't keep any food down with the diarrhoea and vomiting. Now I'm on Mercaptopurine instead and works like a charm! 😁👍
Hey man i've had ulcerative colitis (the other ibd) for 13 years and i always only needed to take salofalk (mesalazine) and when i had big flare ups i would take prednisolone for like a month but now my new doctor wants me to start on imuran too (50mg a day)... i actually started today but i was kinda scared of the side effects... the only thing she told me was that if i felt a sharp pain in the stomach to stop taking it immediately and go to the hospital cause it was affecting the pancreas but that was very rare...
Hey man! Thanks for sharing your story, it's interesting to hear how you take your meds! Glad to hear you've transitioned to something more effective, I really hope it works for you. I wouldn't be too worried with Immuran, sure there are some side affects but if anything happens I'm sure you're doctor will put you onto something else right away. Best of luck :)
I was just given this drug, and the pharmacist said that taking Balsalazide with this drug has some interactions. Not sure I see such information anywhere else on the Internet, so maybe good to ask a pharmacist if you're also taking Balsalazide (and of course, anything else, and/or call your doctor regarding taking anything else/balsalazide with this drug, which I will probably be doing, since I was given this drug by said doctor with strangely no information/reason given, except for the side profile of being able to do something regarding Crohn's disease treatment potentially).
I’ve been on 150 mg daily for several years now and touch wood have had no side effects. I’ve had covid once and had a really bad fever but was fine after a couple days. It works for me .
I'm on day 3 on aza the nausea is intense for me and tiredness hopefully settles xx
Hopefully you should be all okay soon! The body just needs some time to adjust
I’m on day 4 & extremely tired too. Trying to stay hopeful and not worry too much
Hey there thanks for the video and information and I hope you are still doing welll ! I have been recently prescribed Azathioprine as a treatment for my Lupus. I was wondering if you are still on it, was it prescribed to you as a long term treatment?
Hello, thanks for the message! I am no longer on Azathioprine, and am now on Stelara injections. I would say that it was only prescribed for the short term and the long term was to have an infusion or injections :)
@@benjaymun thanks for the additional feedback. Wishing you all the best on your healing journey 🌟
I’m currently on day 3 but only on 50mg at the moment and will increase to 100mg next week. So far no nausea or horrible side effects. So far last year I’ve had 4 doses of steroids, had a camera whilst on them and still had active inflammation….. I really hope these drugs work…. I’ve have already tried biologic meds and they did nothing 😢
Sorry to hear that! It’s such a long journey. Hope that you’ll be able to find something that works for you soon :)
@ruthevans1249 what is your diet like? Do you follow a crohns elimination diet or are plant based? Or no diet at all? I'm curious.
Thanks for the videos. I've been diagnosed with Crohn's in January. I was initially prescribed prednisone and I felt better instantly. In June, the prednisone was replaced with 200 mg Azathioprine daily. I've had sequential UTIs, severe shoulder pain and I am so weak, but at least I'm not vomitting. I have't had side effects that you mention. Could it be that side effects are different for men and women?
Very interesting about your side effects, sorry to hear you had to go through that! Yes I think it's possible that everyone will react differently for sure. Most important thing is to keep doing blood tests, and to voice your reactions to your doctor :)
I am about to come off of Azathioprine and go onto a drip called Vedolizumab for 6 hrs,then 4 weeks later again for 4 hrs,then 2 weeks for 2 hrs,then I am self injecting like a Diabetic..🙄🙄🙄..OMG.😱😱😱
Seems like a lot! But worth it for the long term I hope
I’m not impressed about this,I have researched this,and there’s not enough information for my liking,I’m not going to be there Guinea pig,I’m staying on my tablet..
That’s fair enough! Have to do what’s best for you :)
I hv had Vodizumab infusions now for 3 years. No side effects, perhaps more tired but I am 78 so old age maybe! If offered this drug go for it. I could not toletate two by mouth meds, I was really ill with them. This drug had been a huge blessing for me, and others I knoe of.
Actually, my GI wants me to also start Azathioprine for 6 months via infusion together with infliximab (also infusion). I see that this video is a few years old, so how are you doing today? Any skin problems still? Warts? Do you go straight to the dermatolagist for those? I read that Azathioprine is a carcinogen, that's why I'm asking.
Hey! Inflixmab is meant to be really good, that's great you're on that, the azathioprine will hopefully only be used temporarily before you fully transition. I'm doing really good today, just on Stelera injections and basically in remission. My skin is really good, but still sensitive to the sun - I get burnt even in winter on my face. If I have any warts or skin tags (which are rare) I just find a bulk bill doctors. I do see a dermatologist for yearly checks however just in case.
With the whole carcinogenic, the risks are there but it's closely monitored with frequent blood tests and I'm sure the second there would be an issue, your GI would stop it immediately. Mine was very clear on that, and I never had any issues with my bloods :)
Hope that was helpful!
@@benjaymun Thanks! Happy to hear your remission! :) Hope you stay in so!
Thanks for sharing! From the sounds of it we had a very similar rash, which is interesting since I'm not on imuran (I'm on humira and prednisone). I wonder what the cause is, I feel like there must be a link
Thanks Amanda! I suspect that prednisone might be the link as when I was on that too, my face was really puffy and often quite red. I also have really sensitive skin so it didn’t help unfortunately. Thanks for watching!
I started immuran treatment for 2 weeks. Do you also have nausea and loss of appetite at breakfast?If the disease goes into remission, will this go away?
Not any more! But back in the day I used to, so hopefully it’ll clear up soon for you :)
hey ben im on imuran i take 2 and a half tablets each morning i think there 50mg tablets but that was the base start level and was ment to adjust if need be but ive never been adjusted ive been on it nearly 7 years now havent noticed many side effects besides fatigue and stuff im booked in to get re checked up ive been slack in the past like 4 years but i have had bloods done never been called for anything wrong, i also got medical weed indicia a few months ago and using that at night but got no idea if thats helping or not
Hey! Thanks for watching and for leaving your experience, thats super interesting regarding your dosage. How do you find the weed helps with inflammation? I'd be interested to hear your thoughts, as it never did anything for me from a medical standpoint...my problem is I get the munchies and eat bad foods which make it all the worse haha
If you're okay and not having any flare ups and you're doing fine, why are you transitioning to injections? Isn't injections usually needed for medium to severe cases of Crohn's?
That's a good point...it was more of a case of what's more convenient and proven to be more effective to get into remission
Possible you were reacting to one of the inactive ingredients in the medications.
Yes that’s true :)
Thanks man :)
No worries man!
@@benjaymun im currently taking 200mg for 4 weeks now. Having a bit trouble with nausea. Do you think this will go away?
Greetings from Germany 😊
@@GMPiccolo It's tough to say, but I've heard that it does go away around the 6 week mark. I never really felt nauseous but my friend did and eventually his body adapted to it...I would definitely bring that up with your doctor as they might be able to adjust the dosage
My mother is an optic neurotics patient , she has been taking Azathioprine 50 medicine every day for 2 years. How long can this medicine be taken continuously.please give me answer
@@sujankobir3427 ask this question to her doctor fool !!
I don't think taking azathioprine, increases risk of fatality in people taking it due to covid , I have been taking this drug for past 4 years and got covid recently with very mild symptoms and was absolutely fine in just 5 days 😊, i think people who are taking this drug are actually having blessing in disguise as one of the major reasons of fatality in covid patience is that there immune system goes on over reaction to fight covid virus and therefore harm the body instead, but with people who are taking this drug there immune system does not go for a toss after getting covid and there is very less inflammation as compared to people are not on immunosupresent drugs and am a living example of it 🤘👍
Ahhh that’s very interesting actually, thank you for telling me that, I was always kinda unsure and couldn’t get clarity anywhere. What you said makes total sense. Glad to hear that you were all okay...thanks so much for watching. Cheers!
How to lose belly fat and i have crohn's
If you don't mind me asking, what dosage are you on?
That is a great question! But I actually can’t remember haha as it was a few years ago. Would 100mg makes sense? I feel like it was that but I really cant say for certain
@@benjaymun Are you no longer on it? Also, how long did it take to start working for you? Thank you, man!
So sorry didn’t see this! No longer on it as I’m on Stelara injections nowadays. It took about 6 months maybe?
@@benjaymun So the rash only subsided when you lowered your Imuran dose from 150mg to 100mg?
Warts virals or skin tags?
Yes! I had a few but got them burnt off
Im using aza since 28 days now, until now i witnessed no side effects at all, i hope i stay like this, but i wonder how much does it takes untill i start getting results, i was on prednisone so i have no crohns symptoms now.
Hey! From my experience, I think I was told it would take 2-3 months to kick in. Prednisone definitely would stop inflammation temporarily but sadly won't fix it long term
@@benjaymun keep spreading good vibes ❤️
I started taking azathioprine back in 2020 just before COVID but was worried as well with it lowering my immunity but have never gotten Ill yet🤞when I went up to 150mg my bilirubin count spiked and it bothered my liver so I’ve been off them for 4 weeks and will probably go back on them again on a lower dose sadly I feel like they won’t do me as much good as they used to sadly I might need steroids or surgery, I hope not. I’ve had to change my diet to a strict veggie diet as I want food to pass through my narrowed part where the Crohn’s is it’s worked but i’m struggling so I really want to get back to meds again.
Hey Dave! Really appreciate the comment and super interesting to hear your story. Really sorry though to hear about your troubles, fingers crossed you can get the treatment :)