13 years telling your story on TH-cam! And telling it today like it’s your first time! You’re a special soul. Keep having the big heart that you have, a lot of us need it and Im certain that you’re changing lives. I pray God continues to bless you and your family.
My dearest friend has just been told she needs a colostomy and I am researching so I can be a support to her. Outside of her family I am the only who knows so I feel compelled to do whatever I can to educate myself. She is a warm weather, sun and sand girl and seeing someone as young as you, with all these great videos is something I can't wait to share with her because I know your videos will help her immensely, as they are helping me. Thanks for putting it out there!
Thank you so much for sharing your story! My daughter is almost 15 and has had crohns for a little over 5 years, and right now is facing having her colon removed within the next few weeks. I cannot tell you how much your story has helped. You are a beautiful girl and we really appreciate your story! Thank you again so much!!!!!! Christi
You are such an inspiration and SOOOO brave to share your story like this, I'm sure that you have helped so many teens deal with a situation that could be embarassing. I admire your strength so ,much!!
I just want to say you are an inspiration and an amazing young girl!! Your testimony will help so many other young ladies to cope and that is the joy of sharing!! God bless you!!
Hi there! I have been struggling with Chrons disease for a long time now. I am currently in the hospital, I just had my surgery on Monday for my bag. My husband was really worried about the way i would feel about myself and he came across your videos. I just want to say that I have not stopped watching them this whole time and really admire your positive attitude. I hope that I can find my go do it mind set very soon. Thanks a lot.
you are sooooo brave! im considering a jpouch and its rather scary! watching your videos always makes me feel a lot better! thanx for sharing! lots of love from the uk!
More and more people should watch you,.You are a real brave girl,..My cousin has been diagnosed with chrons and the entire family is in pain,..I will show them your video so that they dont complain about the life anymore and face the challenges with a smile on their faces,..
@egyptlover16 That must have been so scary. I was scared being 40 minutes away from home while in the hosp. Glad you never had surgery and you're doing so well on those meds! and yes! DO NOT let it stop you ever.
I had my large all taken out and most of my small in 2009, I had my bag reversed... and now I still feel very up and down. I have my good days and my very bad days. It is looking like I will need to have another operation and get a permanent one. I think you are beautiful and a huge inspiration to lots of people. I wish you all the best with your battle and I hope you have a amazing life.
A beacon of light is what you are! :]Thank you. So, last summer while I was on internship in Germany I found out. Long story short-had to go to the hospital in the small town I was at, very little English was spoken, and it was very frightening. Probiotics and fish oil are helping currently, and very luckily I have not yet had to have surgery. My Doctor has decided to reserved surgery as a very last resort. To anyone that has this, I say to you- Continue going after your goals. Do NOT stop.
This is AMAZING what a BEAUTIFUL Young Lady you are….These are Priceless the Journal of your life…. You telling your story just like it’s nothing but the Truth is NO 1 Your Age should be going through this what a BRAVE young Lady you were..
Hi, I was just diagnosed with Crohns after 8 years of doctors saying it was IBS... The pill cam found all my trouble. My crohns is affecting my entire small intestine and I have deep ulcerations through out :( I'm 21 years old now, just can't believe I could of been misdiagnosed for my whole life. Glad we found it now. Better late than never! Just really nervous, thanks for posting this video. Hope you are doing better!
94 pounds!? You little thing! Thank you for sharing, I'm a Nursing student and love to hear 1st hand accounts to make my studies real. You have such a great energy & outlook, keep it up! Good luck reaching 105 (and beyond?)!
Your videos are funny, cute, informative and inspirational. Thank you for sharing your story and congratulations on your courage and positive attitude!
@kwixotic No need to be sorry! I figure everyone has some kind of trouble during their lifetime- us young people with Crohn's are just getting ours out of the way now. I'm glad to hear you're finally doing well! Keep it like that!
Hi there! Yay thank you! I'm so glad we have another youtuber:) maybe you can make your ibd experience video so everyone can get to know you? Also think about the different ways your disease affects your life and run with it! You probably take some meds, make a video about that! You might also get stomach aches - make a video about how to survive stomach aches! You have endless possibilites:) Hope this helps!
hey :) i just turned 12 and i was diagnosed with cd mid june 2013 i still am not in remission and its hard but i look up to you because youre so positive and cool
Always sorry to hear of really young people like yourself who get the dreaded CD. I had intermittent intestinal trouble years before I actually had CD diagnosed when I was 26. In remission eight and half years, then returned with a vengeance till I had surgery when I was 43. A couple more surgeries since and been doing well on Remicade and Imuran. Good luck!
I have heard of this happening before, complications after eating after surgery. Someone I know, their mother had a re-anastomosis and the doctors told her she could eat whatever she wanted to after the surgery. She ate lasagna, ended up in the ER that night. They kept her waiting for about 7 hours. It was a bowel obstruction and by the time they got to her, her colon had necrotized and she ended up having to have it removed. Why do they tell people to eat like that?
@corneliogreermedia wellll lower the amounts of soda, gum, and fiber. I where normal clothes, just empty my bad alot to keep it flat. There are also belts that kind of look like undershirts which you can try, and I wear camis alot to smooth out the bag under my shirt. I was definitely scared to look at it a first, but over time I became used to it, and now its not a big deal to me! (: and I feel the same way too, it'll be weird not having it!
@mushMOSSABBIR If you need the bag, definitely go for it! It seems so scary but when you've had it for a couple of months you'll be wondering why you were so worried. I hope everything turns out well for you - let me know if you get the surgery!
@leahcrow1 I've never had them myself personally but crohn's can run from your mouth all the way down the line, so you got yourself some mouth ulcers! ): I would use the same medicine you would use for like canker sores, they make paste that you would put on the areas and its supposed to help. But as soon as they get the right meds for you that'll start to go away
@leahcrow1 Oh thats rough! In the beginning though they make you take alot of tests, and you'll probably have to take a few more tests if you're getting surgery but the good thing is once they do surgery, most people come out of completely different and feeling amazing. You might not have to get surgery though, in the beginning it takes awhile to find the right meds and the right diet for you, but itll be over soon enough and you'll be able to live your life again! I hope everything goes well!!
@foodman561 Hey there! awh I'm sorry to hear that! I was diagnosed in 6th grade and went through the same things.. I was about 60 lbs then. I went from a skeleton to having a moon face. Don't worry though! As soon as you get off of prednisone the moon face will go away!
No my docs didn't put me on Imuran, I'm actually gaining the weight myself:D andd blehh prednisone! haha it took me awhile to get off of the steroids completely, but I eventually did! and I can't wait to see your video!
I've had crohns for 3 years now, and even though I didn't go through all those kinds of tests, I know it can be rough. I had to get an emergency surgery about 5 months after I was diagnosed with crohns. I do feel a lot better now with the iliostomey and even though I still have other symptoms from my medicines and low immune system we still got to fight through it. I'm glad there are people like you who have the courage to talk about this! :)
Wow hun...you've really been through it. I haven't had crohn's for as long as you have. But I can only hope and pray that it stays where it is right now...which is good! I am extremely lucky. I will make a video response so you can hear my story. Mine is horrible, just in a different way. I was just wondering, have your G.I. doctors ever put you on Imuran?? I am still taking my prednisone, I am trying to get off of it. I'm down to below 5 mg, but this Imuran has helped me gain weight.
I'm 11 years old and in 5th diagnosed with chrons a month ago and here's my story: In school I started having terrible pain. Then around Christmas time I had pain and high fevers and I lost 25 pounds( I was a skeleton 2) Then I had about 20 different tests run the final being colon/endoscopy. They figured out I had chrons and put me on imuran, pentasa, and predisone. But now I'm on my last week of predisone and I'm a healthy 74 pounds again! PS my face is so big and I hate it! Please respond!
Hi! I know this is an old video, but I'm learning all I can about others' experiences because I want to do a narrative of my experiences soon. :) I have a question, you mentioned they didn't do surgery to fix your narrowing, how did they do that?
@gregoryspain30 I hope you start feeling better soon. And i got to 100 pounds and I'm keeping it on prettily easily now which is great, used to have so much trouble with that, but I still have my ostomy. Feel better soon! :)
Hey I really like your channel and I appreciate the advice on UC. I am 20 and was recently diagnosed with it and have struggled to cope with it myself. The weakness, tiredness, restlessness, constant intestinal pain, and people saying I have explosive diarrhea can really get exhausting so I really appreciate your video. To help take my mind off my sickness and pain I created an iPhone game called Box of Lies that is a 2 Truths 1 Lie Trivia game if anyone is interested. I just thought I would mention it because it would really make my day to see others playing it and also I have been extremely stressed out about how I am going to pay for my medical expenses on top of my living expenses on top of my college expenses since I still can’t hold down a job but if you are not interested that is fine. As for the people in the comments section, please keep sharing your stories as they are really helpful. And LetsTalkIBD, keep posting great videos. Have A great rest of your day!
Bae Quinn Is IBS different?? I'm 30 and I'm sure I have this. I haven't experienced any IBS symptoms till a few years after I have kids. I had a lactose test/stool and Blood test done. I'm taking OTC probiotics and I have Pepto as a backup. I do get bloating after eating heavy meals and gas.
I have crohns Disease and I have a lot of hard times with it. I have 98%-99% chance of compications through my life and im 15.. its really hard sometimes i get those days were i cry because of it but i learn to build from it and not let it take me over even though i wil lhave it for the rest of my life and sometime have to get surgery from it. I went through so many test and procedures im just used to it now..
I had an ileostomy to. But for different reasons not beacause of crohn's disease I had peptic ulcer disease in my stomach (for the second time but suprisingly for the first time I had that disease I didn't need an ostomy). I had my ostomy for 4 months (and yes I still have colon) then I got reconnected on December of 2010.
@Zinadinzoe You'll get through it! Eventually they'll take you off the steroids and put you on a better medicine (with less side effects). Good luck and feel better!
@mmsweet2 Crohn's is a terrible disease but you will get through it and be stronger in the end. If you ever need to talk message me!! Don't ever let the disease stop you from what you want to do with your life, defy it!
I know a few people that have had Crohn's Disease, its not pleasant at all for them. pain is excrutiating at times. Right now i have a friend in the hospital overnight due to severe pain.
hey i am watching your video i may have crohn's diease and my GI doctor thinks i have had it since i was a little kids and i am still undiagnosed but may have a diagnose soon i have had a upper and lower scopes both have shown alot of inflammation in my colon and my stomach is very inflamed the past 2 months have been the worsed for me because i am having chronic diarrhea,throwing up everytime i eat anything or drink anything i throw up 10 to 15 times a day if not more and same with the diarrhea
In Dec 2005 I was diagnosed with sever Colitis. I was 17. Kept having flairs, but medication would take care of it. Then In the summer of 2010 my body stopped responding to the drugs. I had to have my entire colon and rectum removed on July 17, 2010. I had an ilio anal pouch (J-Pouch) created during that surgery. I am going to be going into surgery to fix a complication with the pouch to hopefully save it so I can have my internal collection system connected. I Vlogged everything on my channel.
I'm not sure if I have Chron's or not, but the doctor has mentioned that and I'm scheduled for an endoscopy and colonoscopy. I know I have a gallbladder with polyps and fatty liver disease.
I am 13 and was diagnosed three weeks before Christmas ( thanks Santa ) I was weighing less than my ten year old sister at 42 kilos and was tired and had horrible wind and dihirrea since I have been taking my meds I have been better but I have to take steroids and they kinda make u really sensitive so I kinda have moderate depression but I am managing fine
@LetsTalkIBD i have sores on my mouth and they are on my lips inside my mouth they hurt really bad and i have a question ? do you get them to ? i am also wondering what they are from maybe 2 or 3 on the outside of my mouth on my lips and got more inside my mouth on my lips i have them on both sides of my mouth on my lips i dont know what to do for them to make them better is there anything i can do to help them get better? or to stop them from hurting so bad?
Im still undiagnosed. i go in for my colonoscopy this week. my diarrhea is constant, but no blood or pus in stool and no stomach pain. It started suddenly 2 months ago and nothing has helped, iv been checked for h.pylori and c.diff and other stuff but negative. What is wrong with me!!>>
Please see Jini Patels TH-cam channel. She had chrohns, was told she couldn't have children, etc. she healed her chrohns thru a specific diet, did a parasite cleanse, and healed her colon, gut, and now have 2 children.
Iv just had a gastroscopu, they found inflamation in my stomach and duodenum. They took biopsies and are going to check for crohn's..... Should get my results in the next two weeks
Hey! im sadie, im 13 and i have UC, you and bedroomdancing911 really inspired me to make this channel! Because you make things more positive. I am really thankful you make these videos! and please could u give me ideas, on what videos i could do?:) xx
A little late to the game, but I just came across this video! Here's a video I made last year, kind of "my story" if you will. My IBD Story - Team Challenge 2013 Hope you are doing well!
i was diagnosed when i was 11 and now im 13 but i was 61 pounds when i was diagnosed with crohns and i had a blood count of 3.1 and it was really scary..... my docters think i have it since i was born though..... but iv never had a suergrey
@LetsTalkIBD my GI doctor told me if these tests don't show much that i am having one on wed and a other on the 17th but he said if they dont show much then he wants to do a surgery on me where he will open my stomach up and look around for crohn's diease can they find it that way ? i am not sure how to spell the surgery he wants to do on me but he said thats only if the tests dont show much
hi i was diagnosed last december with rectul colits do you have any tips on how to live with this ? u are inspirational i am very worried to have a osto bag how do you live with it ? plz reply thank u
if i don't take the meds for like a day or so the throwing up,diarrhea come back full force till i take the meds and keep taking them he had to call me in some pain pills for my stomach pain which they dont touch the pain at all so i am trying to get into a pain management doctor because i also suffer with chronic pain
im 11 and have chrones I hate it and ive had it for 2 years and I have 2 abceases that have been cut open and tubes have been put up my but and I have ir very severe I hate it
Now...no food has passed for 4 days and my stomach hurts, the big test today was to let me eat broth and if it goes thru then I get to go home. It seems stupid to me since I have so much pain hat I need pain medicine every four hours...I have had a colostomy for 20 ish years . It is considered reversible, or was but I never seem to get that well. I ate broth about an hour and a half ago and so far nada, except I feel a slight burning in my gut area. Usually whatever I eat come right back out, n
sorry could not add all what them tests showed he said the stool samples came back showing that my colon is very inflamed which he already knew that i also have a very inflamed gallbladder that may have to come out soon
also haveing alot of unbearable stomach pains my GI doctor is already treating me for crohn's he put me on ciprofloxacin 500 mg and faygl how ever you spell it and its also 500mg which the meds are helping me a little i am not throwing up and having the diarrhea like i was he knows they are helping and told me if they help then it is crohn's diease but he has to do all the tests on me to be honest i am getting sick of all the tests he is making me do he also has done blood work and stool samples
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13 years telling your story on TH-cam! And telling it today like it’s your first time! You’re a special soul. Keep having the big heart that you have, a lot of us need it and Im certain that you’re changing lives. I pray God continues to bless you and your family.
My dearest friend has just been told she needs a colostomy and I am researching so I can be a support to her. Outside of her family I am the only who knows so I feel compelled to do whatever I can to educate myself. She is a warm weather, sun and sand girl and seeing someone as young as you, with all these great videos is something I can't wait to share with her because I know your videos will help her immensely, as they are helping me. Thanks for putting it out there!
You have an amazing story. Thanks for sharing
Amazing lady! 🧡🏆
Thank you so much for sharing your story! My daughter is almost 15 and has had crohns for a little over 5 years, and right now is facing having her colon removed within the next few weeks. I cannot tell you how much your story has helped. You are a beautiful girl and we really appreciate your story! Thank you again so much!!!!!! Christi
You are such an inspiration and SOOOO brave to share your story like this, I'm sure that you have helped so many teens deal with a situation that could be embarassing. I admire your strength so ,much!!
I just want to say you are an inspiration and an amazing young girl!! Your testimony will help so many other young ladies to cope and that is the joy of sharing!! God bless you!!
You are so brave. All my prayers are for you.
Hi there! I have been struggling with Chrons disease for a long time now. I am currently in the hospital, I just had my surgery on Monday for my bag. My husband was really worried about the way i would feel about myself and he came across your videos. I just want to say that I have not stopped watching them this whole time and really admire your positive attitude. I hope that I can find my go do it mind set very soon. Thanks a lot.
Stay positive!! Even on those hard days!! Thanks for your story...
thank you for sharing my mum had it it she was 71 and died you have many years ahead thank you again for posting this
you are sooooo brave! im considering a jpouch and its rather scary! watching your videos always makes me feel a lot better! thanx for sharing! lots of love from the uk!
More and more people should watch you,.You are a real brave girl,..My cousin has been diagnosed with chrons and the entire family is in pain,..I will show them your video so that they dont complain about the life anymore and face the challenges with a smile on their faces,..
@egyptlover16 That must have been so scary. I was scared being 40 minutes away from home while in the hosp. Glad you never had surgery and you're doing so well on those meds! and yes! DO NOT let it stop you ever.
I had my large all taken out and most of my small in 2009, I had my bag reversed... and now I still feel very up and down. I have my good days and my very bad days. It is looking like I will need to have another operation and get a permanent one. I think you are beautiful and a huge inspiration to lots of people. I wish you all the best with your battle and I hope you have a amazing life.
A beacon of light is what you are! :]Thank you.
So, last summer while I was on internship in Germany I found out. Long story short-had to go to the hospital in the small town I was at, very little English was spoken, and it was very frightening. Probiotics and fish oil are helping currently, and very luckily I have not yet had to have surgery. My Doctor has decided to reserved surgery as a very last resort.
To anyone that has this, I say to you- Continue going after your goals. Do NOT stop.
I just found your channel today. Wow you are such an inspiration. Thank you for sharing your story. It takes a brave and strong person to do that.
This is AMAZING what a BEAUTIFUL Young Lady you are….These are Priceless the Journal of your life….
You telling your story just like it’s nothing but the Truth is NO 1 Your Age should be going through this what a BRAVE young Lady you were..
Hi, I was just diagnosed with Crohns after 8 years of doctors saying it was IBS... The pill cam found all my trouble. My crohns is affecting my entire small intestine and I have deep ulcerations through out :( I'm 21 years old now, just can't believe I could of been misdiagnosed for my whole life. Glad we found it now. Better late than never! Just really nervous, thanks for posting this video. Hope you are doing better!
Well done, no doubt your good natured video has put many people at ease.
94 pounds!? You little thing! Thank you for sharing, I'm a Nursing student and love to hear 1st hand accounts to make my studies real. You have such a great energy & outlook, keep it up! Good luck reaching 105 (and beyond?)!
Your videos are funny, cute, informative and inspirational. Thank you for sharing your story and congratulations on your courage and positive attitude!
@kwixotic No need to be sorry! I figure everyone has some kind of trouble during their lifetime- us young people with Crohn's are just getting ours out of the way now. I'm glad to hear you're finally doing well! Keep it like that!
hi! thanks for making this youtube channel! Its inspired me to think about making one too about my story. hope you are feeling well. :)
Hi there! Yay thank you! I'm so glad we have another youtuber:) maybe you can make your ibd experience video so everyone can get to know you? Also think about the different ways your disease affects your life and run with it! You probably take some meds, make a video about that! You might also get stomach aches - make a video about how to survive stomach aches! You have endless possibilites:) Hope this helps!
my father died of crohns disease, it's nice to see another persons view of it :) xx
hey :) i just turned 12 and i was diagnosed with cd mid june 2013 i still am not in remission and its hard but i look up to you because youre so positive and cool
i just want to say, your amazing and strong
Always sorry to hear of really young people like yourself who get the dreaded CD.
I had intermittent intestinal trouble years before I actually had CD diagnosed when I was 26. In remission eight and half years, then returned with a vengeance till I had surgery when I was 43. A couple more surgeries since and been doing well on Remicade and Imuran. Good luck!
I have heard of this happening before, complications after eating after surgery. Someone I know, their mother had a re-anastomosis and the doctors told her she could eat whatever she wanted to after the surgery. She ate lasagna, ended up in the ER that night. They kept her waiting for about 7 hours. It was a bowel obstruction and by the time they got to her, her colon had necrotized and she ended up having to have it removed. Why do they tell people to eat like that?
@corneliogreermedia wellll lower the amounts of soda, gum, and fiber. I where normal clothes, just empty my bad alot to keep it flat. There are also belts that kind of look like undershirts which you can try, and I wear camis alot to smooth out the bag under my shirt. I was definitely scared to look at it a first, but over time I became used to it, and now its not a big deal to me! (: and I feel the same way too, it'll be weird not having it!
@mushMOSSABBIR If you need the bag, definitely go for it! It seems so scary but when you've had it for a couple of months you'll be wondering why you were so worried. I hope everything turns out well for you - let me know if you get the surgery!
@prettypalsmart2 You sound really understanding about her and the disease since you're watching videos about it! Thats awesome! :)
great video from a great person
@P1nache Thank you so much :) Crohn's is a rough disease - I can't imagine having another disease ontop of that! You are a champ!! (:
@leahcrow1 I've never had them myself personally but crohn's can run from your mouth all the way down the line, so you got yourself some mouth ulcers! ): I would use the same medicine you would use for like canker sores, they make paste that you would put on the areas and its supposed to help. But as soon as they get the right meds for you that'll start to go away
@leahcrow1 and keep in touch if you have any questions let me know, but don't worry you've been through most of the tests you're almost done :)
I hope you're family has a good insurance company. Best of luck with everything :)
@leahcrow1 Oh thats rough! In the beginning though they make you take alot of tests, and you'll probably have to take a few more tests if you're getting surgery but the good thing is once they do surgery, most people come out of completely different and feeling amazing. You might not have to get surgery though, in the beginning it takes awhile to find the right meds and the right diet for you, but itll be over soon enough and you'll be able to live your life again! I hope everything goes well!!
Thanks! I got off my predisone a week ago and I look great again
@fjhgh100 thanks! What do you do that keeps you healthy without being on meds?
Yayy!:D thank u! that helps alot!xx
i am 45 had my first op last year gall bladder out you are much braver than me
@foodman561 Hey there! awh I'm sorry to hear that! I was diagnosed in 6th grade and went through the same things.. I was about 60 lbs then. I went from a skeleton to having a moon face. Don't worry though! As soon as you get off of prednisone the moon face will go away!
No my docs didn't put me on Imuran, I'm actually gaining the weight myself:D andd blehh prednisone! haha it took me awhile to get off of the steroids completely, but I eventually did! and I can't wait to see your video!
@mguruj well you're probably a little more knowledgeable than me, I'm a few months away from 18. so whats up with your crohn's?
I've had crohns for 3 years now, and even though I didn't go through all those kinds of tests, I know it can be rough. I had to get an emergency surgery about 5 months after I was diagnosed with crohns. I do feel a lot better now with the iliostomey and even though I still have other symptoms from my medicines and low immune system we still got to fight through it. I'm glad there are people like you who have the courage to talk about this! :)
@freshie2006 Aww I'm no braver than anybody - my first surgery I was so afraid, I can't even tell you. I hope you are doing well now!
Wow hun...you've really been through it. I haven't had crohn's for as long as you have. But I can only hope and pray that it stays where it is right now...which is good! I am extremely lucky. I will make a video response so you can hear my story. Mine is horrible, just in a different way. I was just wondering, have your G.I. doctors ever put you on Imuran?? I am still taking my prednisone, I am trying to get off of it. I'm down to below 5 mg, but this Imuran has helped me gain weight.
you're inspiring :)
I'm 11 years old and in 5th diagnosed with chrons a month ago and here's my story: In school I started having terrible pain. Then around Christmas time I had pain and high fevers and I lost 25 pounds( I was a skeleton 2) Then I had about 20 different tests run the final being colon/endoscopy. They figured out I had chrons and put me on imuran, pentasa, and predisone. But now I'm on my last week of predisone and I'm a healthy 74 pounds again! PS my face is so big and I hate it! Please respond!
Hi! I know this is an old video, but I'm learning all I can about others' experiences because I want to do a narrative of my experiences soon. :) I have a question, you mentioned they didn't do surgery to fix your narrowing, how did they do that?
@gregoryspain30 I hope you start feeling better soon. And i got to 100 pounds and I'm keeping it on prettily easily now which is great, used to have so much trouble with that, but I still have my ostomy. Feel better soon! :)
Hey I really like your channel and I appreciate the advice on UC. I am 20 and was recently diagnosed with it and have struggled to cope with it myself. The weakness, tiredness, restlessness, constant intestinal pain, and people saying I have explosive diarrhea can really get exhausting so I really appreciate your video. To help take my mind off my sickness and pain I created an iPhone game called Box of Lies that is a 2 Truths 1 Lie Trivia game if anyone is interested.
I just thought I would mention it because it would really make my day to see others playing it and also I have been extremely stressed out about how I am going to pay for my medical expenses on top of my living expenses on top of my college expenses since I still can’t hold down a job but if you are not interested that is fine. As for the people in the comments section, please keep sharing your stories as they are really helpful. And LetsTalkIBD, keep posting great videos. Have A great rest of your day!
Bae Quinn Is IBS different?? I'm 30 and I'm sure I have this. I haven't experienced any IBS symptoms till a few years after I have kids. I had a lactose test/stool and Blood test done. I'm taking OTC probiotics and I have Pepto as a backup. I do get bloating after eating heavy meals and gas.
IBS is a kitten purr where IBD/Crohn's/Colitis is like piranhas and rhinos in your stomach.
I have crohns Disease and I have a lot of hard times with it. I have 98%-99% chance of compications through my life and im 15.. its really hard sometimes i get those days were i cry because of it but i learn to build from it and not let it take me over even though i wil lhave it for the rest of my life and sometime have to get surgery from it. I went through so many test and procedures im just used to it now..
@freshie2006 I am so sorry to hear that ): You're welcome!
I had an ileostomy to. But for different reasons not beacause of crohn's disease I had peptic ulcer disease in my stomach (for the second time but suprisingly for the first time I had that disease I didn't need an ostomy). I had my ostomy for 4 months (and yes I still have colon) then I got reconnected on December of 2010.
@Zinadinzoe You'll get through it! Eventually they'll take you off the steroids and put you on a better medicine (with less side effects). Good luck and feel better!
@mmsweet2 Crohn's is a terrible disease but you will get through it and be stronger in the end. If you ever need to talk message me!! Don't ever let the disease stop you from what you want to do with your life, defy it!
I know a few people that have had Crohn's Disease, its not pleasant at all for them. pain is excrutiating at times. Right now i have a friend in the hospital overnight due to severe pain.
I have IBS as very painful from Ireland
hey i am watching your video i may have crohn's diease and my GI doctor thinks i have had it since i was a little kids and i am still undiagnosed but may have a diagnose soon i have had a upper and lower scopes both have shown alot of inflammation in my colon and my stomach is very inflamed the past 2 months have been the worsed for me because i am having chronic diarrhea,throwing up everytime i eat anything or drink anything i throw up 10 to 15 times a day if not more and same with the diarrhea
In Dec 2005 I was diagnosed with sever Colitis. I was 17. Kept having flairs, but medication would take care of it. Then In the summer of 2010 my body stopped responding to the drugs. I had to have my entire colon and rectum removed on July 17, 2010. I had an ilio anal pouch (J-Pouch) created during that surgery. I am going to be going into surgery to fix a complication with the pouch to hopefully save it so I can have my internal collection system connected. I Vlogged everything on my channel.
I'm not sure if I have Chron's or not, but the doctor has mentioned that and I'm scheduled for an endoscopy and colonoscopy. I know I have a gallbladder with polyps and fatty liver disease.
I am 13 and was diagnosed three weeks before Christmas ( thanks Santa ) I was weighing less than my ten year old sister at 42 kilos and was tired and had horrible wind and dihirrea since I have been taking my meds I have been better but I have to take steroids and they kinda make u really sensitive so I kinda have moderate depression but I am managing fine
@lizzylambchops you definitely should make one! :) I am, hope you are too!
Unfortunatly i have it on my mums side and dads side of the family :(
@LetsTalkIBD i have sores on my mouth and they are on my lips inside my mouth they hurt really bad and i have a question ? do you get them to ? i am also wondering what they are from maybe 2 or 3 on the outside of my mouth on my lips and got more inside my mouth on my lips i have them on both sides of my mouth on my lips i dont know what to do for them to make them better is there anything i can do to help them get better? or to stop them from hurting so bad?
Im still undiagnosed. i go in for my colonoscopy this week. my diarrhea is constant, but no blood or pus in stool and no stomach pain. It started suddenly 2 months ago and nothing has helped, iv been checked for h.pylori and c.diff and other stuff but negative. What is wrong with me!!>>
Please see Jini Patels TH-cam channel. She had chrohns, was told she couldn't have children, etc. she healed her chrohns thru a specific diet, did a parasite cleanse, and healed her colon, gut, and now have 2 children.
Iv just had a gastroscopu, they found inflamation in my stomach and duodenum. They took biopsies and are going to check for crohn's..... Should get my results in the next two weeks
Hey! im sadie, im 13 and i have UC, you and bedroomdancing911 really inspired me to make this channel! Because you make things more positive. I am really thankful you make these videos! and please could u give me ideas, on what videos i could do?:) xx
You really look like Bella swan from twilight! 😍
A little late to the game, but I just came across this video! Here's a video I made last year, kind of "my story" if you will.
My IBD Story - Team Challenge 2013
Hope you are doing well!
i was diagnosed when i was 11 and now im 13 but i was 61 pounds when i was diagnosed with crohns and i had a blood count of 3.1 and it was really scary..... my docters think i have it since i was born though..... but iv never had a suergrey
@iluvguineapigz Exactly! :)
@LetsTalkIBD my GI doctor told me if these tests don't show much that i am having one on wed and a other on the 17th but he said if they dont show much then he wants to do a surgery on me where he will open my stomach up and look around for crohn's diease can they find it that way ? i am not sure how to spell the surgery he wants to do on me but he said thats only if the tests dont show much
and im on inflixamab and its not settling down yet
hi
i was diagnosed last december with rectul colits do you have any tips on how to live with this ?
u are inspirational
i am very worried to have a osto bag
how do you live with it ?
plz reply
thank u
if i don't take the meds for like a day or so the throwing up,diarrhea come back full force till i take the meds and keep taking them he had to call me in some pain pills for my stomach pain which they dont touch the pain at all so i am trying to get into a pain management doctor because i also suffer with chronic pain
im 11 and have chrones I hate it and ive had it for 2 years and I have 2 abceases that have been cut open and tubes have been put up my but and I have ir very severe I hate it
Now...no food has passed for 4 days and my stomach hurts, the big test today was to let me eat broth and if it goes thru then I get to go home. It seems stupid to me since I have so much pain hat I need pain medicine every four hours...I have had a colostomy for 20 ish years . It is considered reversible, or was but I never seem to get that well. I ate broth about an hour and a half ago and so far nada, except I feel a slight burning in my gut area. Usually whatever I eat come right back out, n
@mguruj well you can talk to me! (:
@liverpool5146 I know, its so annoying losing weight ):
I see a gi dr too cause I have stomach issues too also I'm a kidney transplant patients
@selmyers5 Aww I'll keep you in my thoughts, hopefully you don't have Crohn's!!
sorry could not add all what them tests showed he said the stool samples came back showing that my colon is very inflamed which he already knew that i also have a very inflamed gallbladder that may have to come out soon
Dont judge people that have conditions or somthing wrong with them either it just isnt right..
also haveing alot of unbearable stomach pains my GI doctor is already treating me for crohn's he put me on ciprofloxacin 500 mg and faygl how ever you spell it and its also 500mg which the meds are helping me a little i am not throwing up and having the diarrhea like i was he knows they are helping and told me if they help then it is crohn's diease but he has to do all the tests on me to be honest i am getting sick of all the tests he is making me do he also has done blood work and stool samples
I've had so many colonoscopies and I am undiagnosed . all they say is ibs. I've had all the test :( I'm miserable. Do you have a fb I can add you on?
I m in the hospital
the audio
@DEEJAYCARL15894 you have crohns then
i lost 5kilos from this crappy disease :(
I made a video about me and my Crohn's disease on my channel